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Author Topic: Mom is now in the active dying stage  (Read 13828 times)
Auntie V
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« on: March 08, 2009, 02:46:41 PM »
The hospice nurse has confirmed that Mom is now in the active stage of dying. As of yesterday at 2PM she thought that she had less than 48 hours. We are keeping her comfortable with morphine and atavan at this point. My brother and SIL will be staying a couple extra days to be here and support me. I will keep you posted.
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G-Ma
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« Reply #1 on: March 08, 2009, 02:51:35 PM »
 :grouphug;  I am praying for all of you.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
2_DallasCowboys
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« Reply #2 on: March 08, 2009, 03:04:01 PM »
Sending prayers your way, for you and
all of your family


Anne
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Chris
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« Reply #3 on: March 08, 2009, 03:10:55 PM »
Not sure what to say other than that I hope she goes peacefully and without pain.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #4 on: March 08, 2009, 03:52:39 PM »
May God wrap His loving arms around your family and may His angels gather around your Mother and give her peace.   You will all be in my prayers. 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
jbeany
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Cattitude
« Reply #5 on: March 08, 2009, 06:04:14 PM »
 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Sluff
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« Reply #6 on: March 08, 2009, 06:05:56 PM »
 :grouphug; my Prayers for a peaceful journey.
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petey
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« Reply #7 on: March 08, 2009, 06:51:36 PM »
Praying for you all.  Be strong.  Hold her hand.  I read somewhere that the sense of hearing is the last thing to leave us.  Talk to her, sing to her, pray aloud for her (if you believe in prayer), tell her how much she has meant to you, how much she has done for you, and how much you'll miss her.

My heart is really, really heavy for you at this time.  Know that there are many people thinking of you, your mom, and your family at this time.  We're here if you need to talk.
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glitter
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« Reply #8 on: March 08, 2009, 07:48:00 PM »
I am so sorry for your family...I will be thinking of your family. Its hard-no matter what else it is.  :'(
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
okarol
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« Reply #9 on: March 08, 2009, 09:41:40 PM »

God bless your mom and your family.  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #10 on: March 08, 2009, 09:42:19 PM »
May God take her into his hands.   :grouphug;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
rose1999
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« Reply #11 on: March 09, 2009, 12:07:01 AM »
I hope you can be with her to the end and that it will be peaceful - you have been a wonderful daughter, no mother could ask for more.  :grouphug;
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drinkboy
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« Reply #12 on: March 09, 2009, 05:41:10 AM »
My thoughts are with you and your family.
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paul.karen
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« Reply #13 on: March 09, 2009, 06:11:35 AM »
prayers-Thoughts & good wishes to all involved.  :cuddle; :grouphug; :cuddle;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
willieandwinnie
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« Reply #14 on: March 09, 2009, 07:11:04 AM »
 :grouphug;  :grouphug;  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
The Wife
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« Reply #15 on: March 09, 2009, 07:38:55 AM »
 Sending love...
:grouphug; :grouphug; :grouphug;
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pelagia
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« Reply #16 on: March 09, 2009, 10:30:33 AM »
 :grouphug; will keep your family in my thoughts
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
cherpep
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« Reply #17 on: March 09, 2009, 10:59:28 AM »
Keep talking to her.  Read to her.  Just let her know you are there.   God be with you all.
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Tinah1968
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ME
« Reply #18 on: March 09, 2009, 11:03:05 AM »
 :grouphug; :grouphug; :grouphug; So sorry to hear that.
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
monrein
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Might as well smile
« Reply #19 on: March 09, 2009, 01:25:22 PM »
May your Mom pass with no pain, no regrets and the utmost serenity.   :cuddle; :grouphug; :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Auntie V
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« Reply #20 on: March 09, 2009, 05:04:17 PM »
Just a little update 6PM Monday

Mom still is hanging on. I do not know how. It seems like she has taken her last breath several times today but always starts breathing again. This long goodbye is really hard but at least I have my brother from Wyoming here. She seems to be resting well so we are just here loving on her and being with her.
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Romona
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« Reply #21 on: March 09, 2009, 05:06:08 PM »
 :grouphug; God bless you and your Mom.
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del
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del and willowtreewren meet
« Reply #22 on: March 09, 2009, 05:23:51 PM »
 :grouphug;  :cuddle;
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Don't take your organs to heaven.  Heaven knows we need them here.
okarol
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« Reply #23 on: March 09, 2009, 06:20:54 PM »


We stayed all night with Goofynina - thinking each breath would be her last - I think I even counted between breaths - she was peaceful at the end - that's the best you can hope for.
I know it's hard Auntie V - you've done all you can - she's lucky to have had such a loving daughter.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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Going through life tied to a chair!
« Reply #24 on: March 09, 2009, 06:35:25 PM »
Tell her it is okay to go home.  Maybe she needs to hear that.  I hope she is comfortable and in peace soon.
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