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Author Topic: Tomorrow's the big day  (Read 12715 times)
2_DallasCowboys
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« Reply #25 on: February 10, 2009, 02:16:14 PM »

Hi, P. Bear!!!

Just wanted to let ya know
I have been thinking of you, and do hope
your first day on D went smoothly.

Sure hope you are feeling OK!!

Anne
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paddbear0000
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« Reply #26 on: February 10, 2009, 02:58:09 PM »

My first day was fairly uneventful. I did start out this morning nauseous though. As soon as I got there, they weighed me (55kg) then took my temp. As soon as I settled in the chair, they made my husband leave, which kind of suked, but he would have been so bored. The clinic is really nice, but like i said, it's in a well funded hospital. I have mixed feelings about having to leave in a month though. It is nice, with the tv, chair and all (and it was nice and warm!), but the way the chairs are seperated, you can't see anyone and it's lonely! Also, the no drink or food sucks too! My neph was supposed to make it to the hospital clinic during my shift after seeing patients at one of his offices, but he never made it. The nurse did get to take a look at my arm and said it looked a little red and felt a little warm. She said to keep an eye on it and they'll check it again Thursday. She's not overly worried yet because I do not have a temperature. It sure does hurt like a b**** though!!!  :banghead;  And it's rock hard, but people keep telling me that's normal. Okay.

I only had to do a 2 hour run at a slow speed today and very little fluid was taken off so that I can be eased in to dialysis. I will go 3 hours normally. My speed was originally set at 290, but it was making me very shaky and made my heart pound really hard, so the nurse cut it back to 250. My orders said no fluid removal, but since I have started retaining fluid since I saw the doctor, she took 1/2 a liter off. I see a little difference in my hand, but not a lot. The nurses were very good about telling me exactly what they were doing and I was busy asking questions too. I should have asked about the wi-fi sooner, but the thought didn't even cross my mind until I was already hooked up, so I didn't get to plug my laptop in. I only had about 10 minutes before the battery drained. So I spent most of my time watching tv.

Besides my computer, I had brought some puzzle books, a notepad, a book, warm socks and my warm, fleece blanket. I just became more and more tired as the session went along to read anything, but I did use the computer for those 10 minutes! I didn't bother to take my shoes off since I wasn't there that long, but the blanket was nice and cozy! I felt weird dragging in this big bag of stuff when the other patients were all being wheeled in in hospital beds with nothing else. After it was over, I was downe to 54.5 kg and I was extremely tired and exhausted (still am), still a little shaky, my heart was still beating hard, I felt a little lightheaded for a few minutes, and I've got a wierd taste in my mouth that appeared about half way though treatment. What is that all about? It's not horrible, but it's not pleasant either. I haven't gotten that metallic or ammonia taste yet, just stuff tasting different.

After figuring out the kilograms to pounds conversation, I just realized how much weight I've gained back in the last week after losing those 11 pounds over the last 3 months--all of it! Yikes!
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
TynyWonder
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Calvin

« Reply #27 on: February 10, 2009, 03:05:04 PM »

Oh Paddlebear!   I guess I read your last post wrong...........I thought when you talked about the clinic and the internet access and no food and drink and all that, I thought THAT was your first day.............sorry I misunderstood!    :urcrazy;  Anyways, just hang in there, it will get better or well, maybe not "better" but you will get use to the routine............... :cuddle;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
monrein
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« Reply #28 on: February 10, 2009, 03:10:53 PM »

I'm glad your first day went pretty well.  The unit sounds nice as do the nurses and that's a big bonus at the beginning.  I often feel washed out after a session and sometimes have a headache because it's not always easy to get the dry weight exactly right.   I hope the unit you go to eventually will also be OK and maybe they will allow a small snack.  It's probably wise not to eat much if anything in the beginning anyway as it'll take some time to figure out how you respond to everything.  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paddbear0000
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« Reply #29 on: February 11, 2009, 03:10:34 PM »

I've been very tired, but that wasn't unexpected. The one thing that I didn't expect was this horrible heartburn that started shortly after. And I hadn't even eaten anything. I keep taking stuff for it, otherwise it just comes back.
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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« Reply #30 on: February 11, 2009, 04:28:26 PM »

I didn't have that happen, maybe other have had that hapen. But bring it up with the nurse and doctor if he comes in on time Thursday.
Hope you have a good day tomorrow.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
monrein
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« Reply #31 on: February 11, 2009, 06:29:30 PM »

Could it have any connection to what you ate before D or to not eating enough in the day so that you might have had too much acid in your stomach?  Coffee and colas are the two things that occasionally give me heartburn but it isn't something that I deal with very much at all so I'm afraid I can't be much help.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paddbear0000
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« Reply #32 on: February 11, 2009, 07:03:23 PM »

I didn't eat anything before dialysis and the only things I had for the rest of the day were water, jello, and a bland, 6 inch sub from subway. And the sub was eaten long after the heartburn started. I'm hoping my neph will show up during my session tomorrow.
Logged

********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
silverhead
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« Reply #33 on: February 11, 2009, 07:56:06 PM »

Sharon never had any heartburn problems until she started on Dialysis, the Neph prescribed  Prilosec and it has controlled it quite well ever since. By the way, I get the Generic to it - Omeprazole, at Costco for $17.99 for 6 weeks supply......
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Wattle
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« Reply #34 on: February 11, 2009, 09:17:35 PM »

 :grouphug; :grouphug;

Hugs Paddbear.

I had a funny taste long before I started dialysis. It still comes and goes. Because I am on PD I can't give you any advise on Haemo, except to say I know you will start to feel better. Give your body a chance to adjust.


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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Dan.Larrabee
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Dialysis Dan

« Reply #35 on: February 11, 2009, 09:28:57 PM »

I thought funny taste comes with the Kidney failure.  My neph also prescribed Prilosec and it helped.
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AKA Dialysis Dan
Feeling the best I can because of Home Hemo
Doing it the best way I can by making it Nocturnal
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« Reply #36 on: February 12, 2009, 01:08:42 AM »

I am glad you made it through!  Your body will soon get accustomed to it all.  when I first started, I would just go home, lie down and stay there until the next morning.  I had no energy, no will to do anything.   Now, I leave from dialysis and go straight to tutoring, feeling quite fine.  In the early days, I didn't even drive myself to and from D.  Now that is no problem at all.
You just keep on keeping on! :cuddle;
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« Reply #37 on: February 12, 2009, 01:17:21 AM »

Looked at my old med sheet and I too was on Prilosec while on dialysis. After transplant though I was switched to Ranitidine  (Zantac). Some transplant center will keep you on Prilosec though due to the efects of the anti-rejection meds on the stomach.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Joe Paul
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« Reply #38 on: February 12, 2009, 01:39:50 AM »

Glad your first day went OK. I remember my first taste of saline, but the iron they give by far is the worst taste of all.
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« Reply #39 on: February 12, 2009, 03:37:52 AM »

Hopefully everything went well for you.

Thinking of you mate.

 :cuddle; :cuddle; :cuddle; :grouphug; :grouphug;
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Tinah1968
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ME

« Reply #40 on: February 12, 2009, 05:49:33 AM »

Hoping that today goes better for you....  :thumbup;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
Lucinda
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Life is great!

« Reply #41 on: February 12, 2009, 10:07:45 AM »

Sorry I haven't been around to give you more support Paddbear.  Seems I am in a similar position to you at the moment and I am starting dialysis as soon as I can get a spot in training.  Definitely left it too long to get going but have to live with that decision now and just get on top of it.  I hope the effects of your treatments settle really soon and the treatment starts to make you feel a lot better.  By all accounts it takes a few months to settle into a routine and then you start to feel better.  I don't think it helps that we were both feeling pretty hideous before starting But you can look forward to feeling a lot better soon.  I hope I don't have to wait too long to start my training. Love to you and hope you start feeling better really soon. xx
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thegrammalady
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« Reply #42 on: February 12, 2009, 10:19:55 AM »

things will get better as you go along, but it doesn't happen overnight. after 3 years i still have days where all i want to do is sleep and nights where i can't. the interesting tv stops at 2am. i'm hoping my adjustment to nocturnal won't take too long. please know that we all care.
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« Reply #43 on: February 12, 2009, 07:37:54 PM »

I am on Pepcid-AC prescription strength for heart burn.
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Take it one day, one hour, one minute, one second at a time.

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« Reply #44 on: February 13, 2009, 04:34:52 AM »

Hey PB, hope it goes well today.  :cuddle;
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« Reply #45 on: February 13, 2009, 06:17:55 AM »

Same sentiments here paddygirl. :grouphug; :grouphug;
« Last Edit: February 13, 2009, 07:06:28 AM by Sluff » Logged
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« Reply #46 on: February 13, 2009, 06:36:05 AM »

Same sediments here paddygirl. :grouphug; :grouphug;

WTF!!?? are you trying to be funny there you sluffaroski??   :rofl;

your pal  :urcrazy;

Rolando
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« Reply #47 on: February 13, 2009, 06:49:20 AM »

Hope Saturday goes well for you paddbear.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sluff
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« Reply #48 on: February 13, 2009, 07:07:16 AM »

Same sediments here paddygirl. :grouphug; :grouphug;

WTF!!?? are you trying to be funny there you sluffaroski??   :rofl;

your pal  :urcrazy;

Rolando

 :oops; misspelled, spell check didn't catch it because sediments is a word also.. :rofl;
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monrein
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« Reply #49 on: February 13, 2009, 07:17:39 AM »

Sediments works well too though because we all do have the same cocktail of sludge settling down in us waiting to be removed by D.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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