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Author Topic: Tomorrow's the big day  (Read 12727 times)
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« on: February 09, 2009, 06:39:30 PM »
Tomorrow I start dialysis!   :o   I am having mixed feelings about it. I am glad I'm starting because I want to feel better, but then again, it's somewhat scary. I'm starting with the cath, so I feel like I'm easing in to this before going full force with the gigantic needles going directly into my veins!
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: February 09, 2009, 06:41:49 PM »

I hope it goes ok. Anticipating it may be worse than the actual experience, at least i have often heard that.
Take care and hopefully it will be over before you know it!
Do they offer benadryl for sleeping? Some places don't - Jenna never got any but she napped anyway.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #2 on: February 09, 2009, 06:50:55 PM »
  :grouphug;  :grouphug;  We'll all be thinking of you.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
monrein
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Might as well smile
« Reply #3 on: February 09, 2009, 06:55:06 PM »
 I'll be there with you in spirit Janet.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Tinah1968
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ME
« Reply #4 on: February 09, 2009, 06:58:45 PM »
Good luck and  I am sure everything will be okay :grouphug;
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Tina
Fistula Oct 2007
Started Dialysis May 22, 2009
Adam_W
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Me with Baron von Fresenius
« Reply #5 on: February 09, 2009, 07:37:58 PM »
We're here for you  :grouphug;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Sluff
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« Reply #6 on: February 09, 2009, 07:43:50 PM »
We are with you paddygurl, take something with you to occupy yourself. Let us know how it went.  :grouphug;
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twirl
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« Reply #7 on: February 09, 2009, 08:31:16 PM »
been there; done that
thinking about you
keeping you in my heart
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paddbear0000
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« Reply #8 on: February 09, 2009, 08:50:03 PM »
Thank you!   :grouphug; :grouphug; :grouphug;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Chris
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« Reply #9 on: February 09, 2009, 08:52:44 PM »
Hope it goes all well for you on your first day and the rest. Of course there will be up's and down's, but hopefully you'll get your transplant soon.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kidney4traci
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« Reply #10 on: February 09, 2009, 10:17:05 PM »
Take a blanket, you may get cold.  Wear comfy clothes, I have gotten bleach stains before too.  Pray you get nurses/techs that talk you through what they are doing, that helps.  Relax, it isn't that bad.   I remember that I was scared too, but then again I didn't have IHD.   You are so much more prepared than I, you will be fine.  Looking forward to your post. Praying all goes well....
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Joe Paul
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« Reply #11 on: February 09, 2009, 10:57:20 PM »
Good luck Padd, hope your first run is a good one  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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« Reply #12 on: February 10, 2009, 12:11:29 AM »
Girl, do you know how many people all over the world will be there with you holding your hand?   You will do fine.  IHD is with you. :grouphug;  We are looking forward to you telling us all about it.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
idahospud
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« Reply #13 on: February 10, 2009, 12:23:01 AM »
  god bless you have a hug  :grouphug;  carol






Edited: Fixed smiley error - paris, Moderator
« Last Edit: February 10, 2009, 10:42:52 AM by paris » Logged
jessup
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« Reply #14 on: February 10, 2009, 01:40:04 AM »
Hey mate
You will  be fine
You are informed
You are strong
You are loved
You are supported
You can do it
Lots of love mate
 :cuddle;
 :flower; :flower; :flower;
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2_DallasCowboys
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« Reply #15 on: February 10, 2009, 05:37:00 AM »
Sending you big  :grouphug; P Bear!

I hope you get great nurses to help you
thru your first day.  I know this must be
scarey for ya, but keep in mind you will
have all of us with you there in spirit cheering
you on!

Anne
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paul.karen
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« Reply #16 on: February 10, 2009, 05:52:19 AM »
You will be fine padd.
You have the best support group and we will be waiting to hear how it went for you. 
And im sure it will be a humdrum day, maybe even a bit boring.

I just know when i start i will here the theme from Jaws running through my head.
But im strange like that  ;)
P&K :grouphug;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
willieandwinnie
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« Reply #17 on: February 10, 2009, 06:28:23 AM »
:cuddle; paddbear. I will be thinking about you today and hope all goes well. Please let us know as we will be worried about you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
cherpep
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« Reply #18 on: February 10, 2009, 07:50:22 AM »
Sending good thoughts your way.  I hope you can relax and let the cleansing begin.  Good luck!
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #19 on: February 10, 2009, 09:08:32 AM »
Thanks everyone! I'm actually hooked up right now! They had to go find out if I could get online because no one has ever asked before! Usually, the patients that use this clinic are hospitalized and older. It's a very nice clinic, probably because it's part of a highly funded level 1 trauma hospital. The chairs are so comfortable! They cover it in a sheet, so no bleach spots on my clothes. I have a wide screen tv, wi-fi, the machines are all new and the nurses are all very nice and explain everything. Today I am only running 2 hours, but I will move up to 3 next time. The only thing I'm not happy about is that I can't eat or drink, especially since lunch time runs right in the middle of my treatment.

I've not been feeling well since getting sick last night. Since getting hooked up, I feel more and more tired, shaky and kind of out of body. I'm still not feeling well.
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
paul.karen
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« Reply #20 on: February 10, 2009, 09:13:16 AM »
 :2thumbsup;
Hopefully you will feel like yourself soon.

But a nice center big tv wi-fi  comfy chair.  You may not want to leave.   This may be why your not aloud to eat ot drink.  they want you to visit but not stay :-).
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Chris
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« Reply #21 on: February 10, 2009, 10:10:47 AM »
Welcome to dialysis paddbear.
Sorry your not feeling well, but I thought that might happen. You'll probably want to sleep after treatment too. Yeah those Lazy Boy type recliners the hospitals have are great and then when you go to  your dialysis facility, you get crappy chairs. >:(
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
TynyWonder
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Calvin
« Reply #22 on: February 10, 2009, 12:59:10 PM »
Paddlebear!

I am glad to hear that your first treatment was not *too* bad and it sounds like you have a really nice clinic!   I don't think my clinic even has  internet access, so I am happy for you that yours does because we ALL know how time flies when you are online!  Keep us posted on how you are doing!   :bandance;   Also, being without food and drink for that long, DOES suck!    :stressed;
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Diagnosed with ESRD-November 2006
I have had 2 fistuals-neither one worked
I have had 2 grafts the last one finally "took"
I had 3 different catheters from Nov. 06 - Dec. 08
Got on the transplant list - Halloween Day 2008

You can easily judge the character of others by how they treat those who they think can do nothing for them.    I BELIEVE THIS TO BE SOOOOO TRUE!
pelagia
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« Reply #23 on: February 10, 2009, 01:29:22 PM »
just sending a hug  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
del
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del and willowtreewren meet
« Reply #24 on: February 10, 2009, 02:05:15 PM »
 :cuddle; For most people they start feeling better after the first few treatments. seems like it takes your body a while to get used to not having as many toxins in your body!!!  Take care and try to relax a bit.  Sounds like you have a very nice unit!!
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Don't take your organs to heaven.  Heaven knows we need them here.
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