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Author Topic: Got my transplant surgery date today  (Read 73986 times)
Hilrose
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Me and my sister 09/08
« Reply #75 on: February 01, 2009, 04:31:10 AM »
Excellent news ! I can't wait for the updates.... :yahoo;
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hilrose- hemodialysis patient since April 2007
Transplanted from living donor March 2007 and failed
Kidney rejected August 2008 no longer considering removing
No longer on waiting list 2008

Neverless very happy to be alive!
pelagia
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« Reply #76 on: February 01, 2009, 05:40:43 AM »
When my husband was having his surgeries, I found it difficult to handle much in the way of communication with the outside world.  One of my brothers-in-law and my sister graciously took on the jobs of contacting family on each side and updated key folks daily.  That made life a lot easier for me.  The CB site worked really well for our friends.  Actually, we still use it occasionally to give everyone updates.

And Kathy, if you are reading this, please know that a kidney donor changes many lives, not just the life of the donor. The transplant clinic gave my husband and his donor a framed version of this quote, which does a better job than I can of capturing my feelings about this:

"The best and most beautiful things in the world cannot be seen or even touched.  They must be felt with the heart."  Helen Keller

 :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
monrein
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« Reply #77 on: February 01, 2009, 07:51:42 AM »
It is only with the heart that one can see rightly;
what is essential is invisible to the eye.
The Fox  (From Le Petit Prince by Antoine de Saint-Exupery)


A similar sentiment.  Thanks Pelagia.

http://www.caringbridge.org/visit/gailwhiteside.

Here's my new CaringBridge site.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Red from Canada
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« Reply #78 on: February 01, 2009, 08:28:11 AM »
Wonderful news, Gail. I hope things go really well for both of you.  Keep us posted as to how you are doing. :flower;
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willieandwinnie
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« Reply #79 on: February 02, 2009, 05:39:22 AM »
:waving; Gail. 3 weeks... Wow, I hope the time will fly for you. Do you have your bag ready? I'm sure your house is spotless and you have probably already put dinners in the freezer. You always seem so together. I wish some would rub off on me lately.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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« Reply #80 on: February 02, 2009, 07:00:34 AM »
I seem to have given an entirely wrong impression here.  Not packed yet, still have to buy a new bathrobe.  House more or less ready but my new stove has issues and is being replaced on Thursday so waiting for that before having carpets cleaned.  Not cooking anything before I go, but I have people who'll be taking care of all that and I have great access to all kinds of prepared foods, even with diet restrictions..  So, thank you for thinking I'm "so together" which just goes to show how deceptive appearances can be.   :rofl;   Mostly I'm managing my stress levels.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #81 on: February 02, 2009, 03:55:30 PM »
Relax, take a bubble bath, have a glass of wine, just do things for the next two weeks that make you happy!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kimcanada
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WWW
« Reply #82 on: February 02, 2009, 03:56:27 PM »
Gail... this is getting SO exciting   :clap;
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #83 on: February 02, 2009, 05:10:13 PM »
OMG Gail!!!! I have no idea how I missed this thread this whole time!
Feel free to hit me over the head!  Me------>  :Kit n Stik; <------You

I am so thrilled for you! I wish you and Kathy all the luck in the world. And lots of hugs! 
:cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle; :cuddle;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
monrein
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Might as well smile
« Reply #84 on: February 02, 2009, 06:11:04 PM »
 :rofl;  Hey Paddbear,  I'm not sure I have the energy to lift Kit's stick AND club you with it,  but I'll for sure take the good wishes and the hugs.   :thx;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
nursewratchet
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"Either do it, or don't do it, don't try"
« Reply #85 on: February 03, 2009, 04:16:48 PM »
So excited for you!!!  Saying prayers and sending blessings for speedy recoveries for you both.  Can someone explain the caring bridge to me?
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
paddbear0000
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Dogs & IHDer's are always glad to see you!

WWW
« Reply #86 on: February 03, 2009, 04:53:05 PM »
NureseWratchet--

CaringBridge is a web host site that lets people who have a serious illness set up their own site so they can keep friends and family up to date on how things are going. It's sooo easy to set up as they walk you through it in a few easy steps. You can choose a background, and there are pages for your story, photos, a guestbook, and a journal that the patient (or designated 'updater') keeps. You can check mine out. The link is in my signature. You'll have to enter an email address to view it though.
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Chris
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« Reply #87 on: February 05, 2009, 12:13:48 AM »
Quote from: monrein on February 02, 2009, 07:00:34 AM
I seem to have given an entirely wrong impression here.  Not packed yet, still have to buy a new bathrobe.  House more or less ready but my new stove has issues and is being replaced on Thursday so waiting for that before having carpets cleaned.  Not cooking anything before I go, but I have people who'll be taking care of all that and I have great access to all kinds of prepared foods, even with diet restrictions..  So, thank you for thinking I'm "so together" which just goes to show how deceptive appearances can be.   :rofl;   Mostly I'm managing my stress levels.

Yet there's that coachroach comment in another thread. You a chameleon?  :rofl; :rofl; :rofl;

Wishing you and your donor the best along with a speedy recovery.
« Last Edit: February 05, 2009, 08:05:49 AM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
monrein
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« Reply #88 on: February 05, 2009, 05:34:11 AM »
Chameleon might be the culprit there Chris. 

Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Chris
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WWW
« Reply #89 on: February 05, 2009, 08:03:03 AM »
Thanks, I had to edit it Monrein.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
pelagia
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Posts: 2991
« Reply #90 on: February 08, 2009, 05:26:54 PM »
Now that Traci has her transplant, we are on the serious countdown to Monrein's new kidney!  :cheer:
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
nursewratchet
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"Either do it, or don't do it, don't try"
« Reply #91 on: February 08, 2009, 07:32:54 PM »
Thanks for the Caring Bridge site info, what a great idea.  Wished I had known about that before my Mom died.  She had Breast Cancer, and although I am an Oncology Certifed nurse, ALL of it went out the window when it's family.  I was still the spokeperson for everyone, when I could barely manage my self.  SOO much to still learn, everyday. :flower;
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RN, Facility Administrator 2002 to present
RN, Staff Nurse 1996-2002
Vicki
Beth36
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« Reply #92 on: February 08, 2009, 08:05:36 PM »
Awesome!! I am so happy for you! I know you are totally excited and ready to go! I can't wait to read all about it. My mom had a Caring Bridge and it was wonderful for friends and family who weren't with us to read about my mom and all the updates. It won't be long now!! Yea!!

Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
kelliOR
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« Reply #93 on: February 09, 2009, 03:20:04 PM »
WOW....

I don't know how I missed this thread..............!!!

Monrein, I am so happy for you.
It takes me right back to the weeks before my transplant   :).
I'll be thinking of you and your donor....

love,
kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
Chris
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« Reply #94 on: February 10, 2009, 10:21:03 AM »
This month sems to be going by fast.
March is coming up quick and then you'll have your transplant Monein.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willieandwinnie
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Posts: 3957
« Reply #95 on: February 17, 2009, 07:06:20 AM »
 :2thumbsup; Gail, less then a week. Are you ready? I am sooooooooo excited for you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile
« Reply #96 on: February 17, 2009, 07:14:36 AM »
I think so Kathy.  Had my last Monday D yesterday and went to the hospital this morning for our final cross match blood work.  There were around 20 (no exaggeration) vials, feel drained anyone?  Kathy had all sorts of plane problems yesterday but did eventually make it here.  She and Lee are still down at the hospital because she has a surgical consultation mid-morning.  I came home because my "policy" is to never spend one second more than I HAVE to at any hospital or medical facility.  So I skipped the coffee break and came home to catch up here instead.
My brother and Syd (their 11 year old daughter) arrive on Saturday the 21st.
Thanks W&W.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willieandwinnie
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Posts: 3957
« Reply #97 on: February 17, 2009, 07:20:34 AM »
monrein, I know what you mean about all the blood draws they do. Lord, it's a wonder you have any left when they get done. I don't blame you one bit for getting out of hospital as quick as you can, there are some sick people there.  :rofl; I'm happy to hear that Kathy made it safely even with plane problems. Please try and get some rest this week although I know that is a tall order.  :cuddle;
« Last Edit: February 17, 2009, 09:16:39 AM by willieandwinnie » Logged
"I know there's nothing to it, but I want to know what it is there's nothing to"
lola
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I can fly!!!
« Reply #98 on: February 17, 2009, 09:04:35 AM »
OMG last D how nice for you. :grouphug; :grouphug;
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www.caringbridge.org/visit/ottomachado
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #99 on: February 17, 2009, 10:41:00 AM »
 :cuddle;  I'm so excited for you Gail!  :bandance; :bandance; :bandance;
Logged
********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
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