It's Official

[Zach]

 

[pelagia]

good to sleep - my favorite thing!

[thegrammalady]

saw the doctor, he came by on friday night a little before 9pm. he'll stop by at least once a week. last night there were 7 of us! the other thing i've noticed is i don't want a nap during the day! and if it was just a little warmer and the wind would quit, i might actually go out and do something. i've decided nocturnal is the best thing since sliced bread 

[okarol]

  It's nice to know it's working out for you TGL!

[monrein]

saw the doctor, he came by on friday night a little before 9pm. he'll stop by at least once a week. last night there were 7 of us! the other thing i've noticed is i don't want a nap during the day! and if it was just a little warmer and the wind would quit, i might actually go out and do something. i've decided nocturnal is the best thing since sliced bread 

It did me so much good to read this post.  I'm so happy that you're feeling the benefits of better quality dialysis.   

[kitkatz]

Ain't it great!  Has the fog in your head cleared out yet? 

[thegrammalady]

head much less fuzzy, but then i've always been fuzzy headed. it's a natural state.

amazing! i walked in last night to find that we've grown to 8 (the maximum for now) and the center director and the social worker were there.  the center has 3 bays of 8 chairs each and we were set up in the last section. they have decided to use that one because it isn't used on tues, thurs, sat. and if there are problems and anyone runs past 5am we won't have to move or be cut short. they talked with everyone and asked how we felt about things. if we liked it, did we have any concerns or questions. would we prefer to use an adjustable hospital bed or the dialysis chair.  apparently no one likes the roll-away type bed they tried and they aren't too thrilled with the inserts they have.  so beds it is. as long as they're adjustable and i don't have to lie flat i'm all for it. the sw made sure all our records were up to date, address, emergency numbers etc.  as usual they're oh so slow on updating. i've been in castle rock for 6 months. the sw was aware i had moved but the computer still had my address as centennial. come on people let's get our act together. i'm changing my cell provider and thinking about getting a new number, i wonder how long after i inform them of the change it will take to get that one changed. and what kind of problems it will cause when they don't get it changed in a timely manner.

the tech and i were talking and we are both curious about the davita nocturnal set up. they have two centers in the area that do nocturnal. i may call and ask some questions and see what i can find out.
...and life goes on...   

[Treasure]

Greetings, all. Well, I have been doing nocturnal for about a month now, or so.  I love the way I feel-- but then I've always done much better on longer treatments (I did 8-hour/thrice weekly treaments during the day last year).  My joints aren't as creaky and my phosphorus is actually too low and I'll have to adjust for that. My sleep is better-- on the nights I'm not at dialysis. hehehe. Basically, I CANNOT sleep at the center. It's the chair-- not anything else. I have noise canceling earphones and the light doesn't bother me...but OY! THAT CHAIR!

Let me continue my rant about the chair. My body totally rejects dialysis chairs. I cannot do a 3-hour treatment in a dialysis chair without it throwing my neck off. I have to sit upright-- in the posture one has in a really good office chair. To sleep, I need a flat surface, where I can turn on my sides. I cannot sit or sleep in a reclining position--EVER.  Are my CAPS getting the message across?

Actually, I shouldn't be shouting here. I made the staff aware of this problem I have with dialysis chairs before we begun this nocturnal study. I have made a point of repeating my chair problem at least twice a night during my sessions. I have made the directors and docs and some of the corporate board members aware of my aversion to their chairs. And it isn't that this has fallen on deaf ears-- they have looked into getting some samples of alternative chairs.  But really, I can no longer wait for their approval process to run its course.  And here's why...

Not only do I drive 1.5 hours each way to the center where the nocturnal dialysis is taking place, I frequently have to work early the day after a session-- for 8 hours. I find that because I do not get more than a few minutes of sleep at the center (sometimes I'm so exhausted that I will doze off for a bit) I end up sleeping-- on my drive home from the center at 6 am! This is not very healthy, and I'm sure that I"ll end up negating the good from nocturnal dialysis by driving off a cliff on the trip back. * goofy grin*

Anyhoo... I have endured this sleep exhaustion as long as I can. I am now shopping for my own dialysis chair...and I will find out what I have to do to get the center to accept the delivery (isn't nocturnal dialysis great? I can now work full-time and use one whole paycheck to purchase a dialysis chair!) 

I am perfectly willing to let any and all other patients, doing dialysis at the center, use the chair when I'm not scheduled for it.  And whooo boy, I came across one chair on the internet that lies flat, has heat AND massage.  I just ask that they designate the chair the Michelle Adams-Walton Memorial Comfortable Dialysis Chair after my demise-- which may come soon than I anticpated, because I plan to scrabble over the falls in Yosemite over Spring Break-- that's how good I feel! Hmmm, on second thought, I think I'll be buried in that chair....aw! being heated and massaged into the afterlife sounds kinda groovy.

Anyway...I thought I would just give this long-ass update. I'm going to cut and paste this message into my brand new nocturnal dialysis blog-- niteynitedialysis.blogspot.com.  I"ll be contributing additional reports on my blog-- feel free to drop by in a few days and post comments, links, etc.

Nitey nite...
Treasure/Michelle

[kitkatz]

I finally got to a bed in the center I am at.  Oh my God. I am more comfortable than in the chair.  Being in a chair would wake me up periodically.  Being in a bed, in spite of the snoring of the men int here, I sleep better and am more comfortable.   Also the night goes quicker.