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MandaMe1986
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« Reply #25 on: February 04, 2009, 04:08:37 PM »
Yey  :yahoo;  i am not to sure what nocturnal is but everyone seems to be happy. So yey for you.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
Wenchie58
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Always carrying the big silly grin!
« Reply #26 on: February 04, 2009, 04:34:35 PM »
TGL....hope this works for you.  Rest and detoxify all in one ( I hope).  Good luck!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
kitkatz
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« Reply #27 on: February 04, 2009, 05:54:58 PM »
Go for it. I got a bed finally on Monday. Cripes did I sleep good.   Bring a big pillow to rest your back or arm on. It helps
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
pelagia
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« Reply #28 on: February 04, 2009, 06:01:43 PM »
Good night, sleep tight and don't let the bed bugs bite.  Hope it's going well.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Zach
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"Still crazy after all these years."
« Reply #29 on: February 04, 2009, 09:35:31 PM »
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
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« Reply #30 on: February 05, 2009, 12:18:58 AM »
Hope it went well with your session.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Joe Paul
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« Reply #31 on: February 05, 2009, 01:29:57 AM »
 :thumbup;
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Transplant Jan. 8, 2010
kitkatz
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« Reply #32 on: February 05, 2009, 06:28:39 AM »
How did it go?
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
thegrammalady
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« Reply #33 on: February 05, 2009, 09:11:55 AM »
well, it's 10am and i've only been up for 15 minutes. all in all not bad, considering i only intended to "rest" when i got home and be up by 9. i slept at the center about 4 hours and since i'm up till midnight most nights anyway is pretty good. they do have a bed, but it's completely flat and i don't sleep lying down any way. they have a very nice insert for the chairs which makes things much softer. they turn the lights out at 9pm, which means i'll need a reading light, that i can handle. everyone was fairly quiet, nothing to complain about there. if there was anything wrong, the room, if you can believe it. was too warm. i know, go figure. the machines didn't beep as often as during the day and then they weren't ignored and even the blood pressure cuff didn't bother me. maybe if was just beginners luck, we'll have to wait and see. i think i'm gonna love it!
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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Chris
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« Reply #34 on: February 05, 2009, 09:16:38 AM »
That's good, but hope it's not beginners luck. I ca't sleep flat either.
Good Luck with the next session and hope it does not change, well except the room being to warm. for you.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #35 on: February 05, 2009, 10:04:15 AM »
Sounds like a good first night.  I hope this works out really well for you.  The center seems to be doing things the right way for nocturnal.  Keep us posted  :2thumbsup;
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pelagia
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« Reply #36 on: February 05, 2009, 05:06:42 PM »
good news!  :cheer:
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kitkatz
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« Reply #37 on: February 06, 2009, 06:34:11 AM »
It is official- You are now a Nocturnal Babe.    :bandance; :bandance; :bandance;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
monrein
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Might as well smile
« Reply #38 on: February 06, 2009, 08:20:30 AM »
You now belong to a very good club indeed.  So glad it went well.  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #39 on: February 06, 2009, 02:42:09 PM »
 :bandance; good to hear another nocturnal babe !!
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
kitkatz
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« Reply #40 on: February 06, 2009, 06:25:54 PM »
Give it a month and I can guarantee the fog on your brain will lift and you will feel so much better. Oh wow what a difference here!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
thegrammalady
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« Reply #41 on: February 07, 2009, 10:31:21 AM »
2nd night, which was good, but i didn't sleep as much and i stayed up awhile when i came home. therefore when i did nap i slept a little longer than i would have liked. i gained .6 between thursday morning and friday night. but i think i've lost a bit of weight, so i don't know how accurate that is. i left 1.8 down from when i went in. the proof i guess will be in the labs. last labs, 3 weeks ago, before leaving for oregon, were good. but i would like to see better. i'm supposed to "meet" monthly (during the day) with the sw and the dietitian, but there's going to be a discussion on that one. i never met with them when i did days and i don't see any reason to start. if i have a question i can pick up the phone. if they have something to be signed they can leave it with the nurse. the only person i have to meet with is the doctor and his office is closer than the clinic. i'm sure he and i can work something out.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
kitkatz
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« Reply #42 on: February 07, 2009, 10:38:10 AM »
The dietitian and social worker come in once a week to our clinic. Isn't funny how different clinics do different things?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
thegrammalady
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« Reply #43 on: February 10, 2009, 10:37:33 AM »
Quote from: kitkatz on February 07, 2009, 10:38:10 AM
The dietitian and social worker come in once a week to our clinic. Isn't funny how different clinics do different things?
 

both our sw and dietitian have offices at the clinic. they are always there (except the sw who goes to another clinic on friday's) we still don't meet. the dietitian drops off her lab report and goes on her way. if i'm sleeping i don't even know she's been there till i wake up and see the report. which i've already seen anyway, i get the same report the doctor gets as soon as it's in the computer. the social worker might smile and say hi in passing, but that's not meeting either. basically i never talk to them unless i have a question, and that's the way i want to keep it. if i need something on a tuesday/thursday i pick up the phone, i don't wait to "see" them at clinic. the nicest part of nocturnal is no one is there to bug me!
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Chris
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« Reply #44 on: February 10, 2009, 11:20:58 AM »
If they have nocturnal here and I have to go back on, that's what I want. I never did like the dietician and the stupid smiley face blood count report and the sw. The less people bugging me, the better. Hopefully though dialysis would make me sleep instead of the insomnia I have now.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
thegrammalady
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« Reply #45 on: February 10, 2009, 09:14:15 PM »
our dietician is actually pretty nice, i just don't see any reason to meet with her. i get my labs the session after they are drawn. they're important, to important to wait two weeks while she runs a computer program that gives her everyones results. and a watered down version at that. they actually test about 3 times the number of things than they give you the results for.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
thegrammalady
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« Reply #46 on: February 12, 2009, 10:08:48 AM »
there were only 3 of us last night. one extremely nice lady got a transplant!  :yahoo;  :yahoo; we are supposed to have someone new starting next month, i'm wondering if it's someone i know. yes i know i could ask, but i like surprises and anticipation.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
pelagia
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« Reply #47 on: February 12, 2009, 04:11:55 PM »
Can you notice a difference in how you are feeling after the first week?  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
thegrammalady
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« Reply #48 on: February 13, 2009, 12:57:52 PM »
what i do notice is i'm sleeping better.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
paul.karen
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« Reply #49 on: February 13, 2009, 01:09:32 PM »
Sleeping is a good thing :thumbup;
Glad to read your adjusting to nocturnal ok.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
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