I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Rerun on October 26, 2005, 06:35:48 PM
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I usually get the crapy chair that has poor lighting, no TV and cold air blowing on me. So, I can't read, or do much. I'm thinking about getting a DVD player to watch movies. The center said I can't plug it in. So, any suggestions on what kind to get? I want a small one that is light so when I get tired of it on my lap I can throw it at one of the Nurses! (JK) >:D
Any other suggestions? What do most of you do to pass the time?
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I usually bring my knitting-- I sit up while I'm working on it.
I almost had to fight to be 'allowed' to knit while on the machine-- "You'll make the machine alarm if you do that!" I said, "OK, if the machine keeps alarming, I'll stop... but let me try it first." Guess what? The machine DIDN'T alarm! (Which really ticked some other patients off, because their machines alarm if they even breathe the wrong way!) I knit for about 2 hours, then put it away and recline my chair. If I was at home I'd be knitting, so bringing my projects in to dialysis makes me feeli like I'm accomplishing something and not just sitting on my ass doing nothing for 4 hours.
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Me, I have tried doing different things while on dialysis. I've tried writing, watching movies, listening to radio talk shows, reading, video games, but nothing really consistent. I think those 3 hours are the longest hours, I can't stand it. Maybe I'll try crossword puzzles next. I really wish I could browse the net while on dialysis, that would make the time fly for me. I am always on the internet and the time flies when I am at home.
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I usually bring my knitting-- I sit up while I'm working on it.
I almost had to fight to be 'allowed' to knit while on the machine-- "You'll make the machine alarm if you do that!" I said, "OK, if the machine keeps alarming, I'll stop... but let me try it first." Guess what? The machine DIDN'T alarm! (Which really ticked some other patients off, because their machines alarm if they even breathe the wrong way!) I knit for about 2 hours, then put it away and recline my chair. If I was at home I'd be knitting, so bringing my projects in to dialysis makes me feeli like I'm accomplishing something and not just sitting on my ass doing nothing for 4 hours.
I usually get the crapy chair that has poor lighting, no TV and cold air blowing on me. So, I can't read, or do much. I'm thinking about getting a DVD player to watch movies. The center said I can't plug it in. So, any suggestions on what kind to get? I want a small one that is light so when I get tired of it on my lap I can throw it at one of the Nurses! (JK) >:D
Any other suggestions? What do most of you do to pass the time?
Hi Rerun and LifeOnHold- try this for size
Sessions are Tues, Thurs and Saturday unit opens 6.50am -- after setting up and programming MY machine I get the techs to needle me (arthritis in my hands) put myself on the machine usually about 7.15 - fill out machine check and treatment observation forms - then settle down to sleep.
The techs bring coffee around 8.30 - 8.45 - some times they wake some times not. Anyway on awakening it's breakfast time - two manderines, a banana and a wholegrain bacon and egg sandwich now 9.00am (more or less)
Read part of last Sundays weekend newspaper now 11am (more or less) prepare saline syringe and tapes ready to come off. Then get tech to draw v needle (and this is the part I hate most with a very low platelet count it takes me up to 20, sometime 40 minutes to close (FOR EACH needle) so there I sit like a big dummy while others finish and wave bye bye.
That’s Tuesday - now Thursday is the same and I finish that Sunday paper. Saturday also is the same except that I have to buy the Saturday paper which after dumping the sport, motoring, real estate and employment sections in the rubbish what is left is so full of advertisements there is hardly enough left for two hours reading.
I hate like hell having to pay for what I don’t read. This is a rave site right?
cheers o in
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The thing I would most love to do is impossible. I would love to be ablle to read, but I do not read in that position. I read lying on my side with the book on the bed in front of me, or seated at a table. the other thing that I would love would be as Epoman said - being able to use the computer while I was there.
My number one activity now is sleep. In all, I sleep about 2 and half hours out of the 4 hours. My number two is watching television - if I am in one of the chairs which can see the TV. Number three is chat with a patient who happens to be from my country, about my age group, and who, it turns out, was taught by one of my sisters. But this also depends on if we get chairs near to each other.
If I don't get to do Two or Three, I just sleep and think.
LifeOnHold, thanks a lot. I am going to do my knitting there. I have a few unfinished things at home. I will bring them and finish them there.
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I bought a portable DVD player today. I have to charge the battery, so I'll see how it works on Saturday. I also bought a mini book light so I can see to read. It worked okay until my hands got so damn cold I couldn't hold it. Next is gloves!
Bajanne2000: Have you ever thought about books on CD or tape. I really enjoy them. But, hey if you can sleep, go for it.
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I went to dialysis wearing my Halloween face paint... a stylized beak and wings on my face. Everyone got a kick out of it, but MAN did it itch after about an hour! But I kept my hands busy with knitting and finally the itch went away-- I didn't want to smear the paint and had no way to fix it while on the machine.
I'm still wearing it now... I might keep it on until my friend Fred and I go out to dinner, unless it really embarrasses him! It's washable poster paint so it comes right off with soap.
(I was going to dress up like a dialysis patient, but when I got to the unit, everyone else had the same idea!) ;D
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I went to dialysis wearing my Halloween face paint... a stylized beak and wings on my face. Everyone got a kick out of it, but MAN did it itch after about an hour! But I kept my hands busy with knitting and finally the itch went away-- I didn't want to smear the paint and had no way to fix it while on the machine.
I'm still wearing it now... I might keep it on until my friend Fred and I go out to dinner, unless it really embarrasses him! It's washable poster paint so it comes right off with soap.
(I was going to dress up like a dialysis patient, but when I got to the unit, everyone else had the same idea!) ;D
I was thinking of going as a "Kidney" with a sign saying have you seen my owner? ;)
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I've been watching TV until I doze off. I have a portable DVD player (I hacked it to make it region free) >:D
I don't know if the VA will allow me to watch - I know they don't allow cell phones in the waiting area or in the chairs. I'll report back tommorow with my findings.
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I've been watching TV until I doze off. I have a portable DVD player (I hacked it to make it region free) >:D
I don't know if the VA will allow me to watch - I know they don't allow cell phones in the waiting area or in the chairs. I'll report back tommorow with my findings.
Man ALL the techs at my center use cell phones. Let us know about the DVD player.
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I liked my DVD player. The time went a lot faster and it gets a little warm which helps in that ice box. I watched Ghost on Saturday and Sideways tonight. These are ones I had. The neighbors have offered to have me look through theirs. They have 6 kids, so I bet I will have lots of movies to watch.
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I also like to deface the propaganda literature that Fresenius stocks the waiting room with-- I like to 'creatively edit' the brochures while I'm on the machine. It passes the time and makes me laugh... I like looking through past 'edits', it gives me new ideas for articles about dialysis.
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Please share some with us.
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I also like to deface the propaganda literature that Fresenius stocks the waiting room with-- I like to 'creatively edit' the brochures while I'm on the machine. It passes the time and makes me laugh... I like looking through past 'edits', it gives me new ideas for articles about dialysis.
Do you have a scanner? >:D We would love to see your handy work.
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I don't have a scanner, but I remember one from the "Dialysis Dave" baloney:
Top Ten Reasons To Come To All Of Your Scheduled Treatments
(It had a numbered list, including Fewer Hospitalizations, Less Itching, etc.)
I crossed out Number 1 and wrote: If you don't show up, we don't get paid!
It's still hanging on the wall in the Isolation room... I don't think anyone has noticed it, since nobody reads the crap they put up on the walls, anyway!
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I don't have a scanner, but I remember one from the "Dialysis Dave" baloney:
Top Ten Reasons To Come To All Of Your Scheduled Treatments
(It had a numbered list, including Fewer Hospitalizations, Less Itching, etc.)
I crossed out Number 1 and wrote: If you don't show up, we don't get paid!
It's still hanging on the wall in the Isolation room... I don't think anyone has noticed it, since nobody reads the crap they put up on the walls, anyway!
;D
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I've been watching TV until I doze off. I have a portable DVD player (I hacked it to make it region free) >:D
I don't know if the VA will allow me to watch - I know they don't allow cell phones in the waiting area or in the chairs. I'll report back tommorow with my findings.
Man ALL the techs at my center use cell phones. Let us know about the DVD player.
Life is good at the VA Hospital. I am able to watch my movies so long as I use my own headphones. Even with the TV's that are provided, headphones are mandatory.
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Oh, how I wish TV headphones were mandatory at my unit!
With approximately 90% of my unit consisting of people over the age of 70, it seems that EVERYONE is hard of hearing and likes to blast the TV... as if it's not loud enough in there already with the machines and yakking, yelling nurses! Then I look like the bad guy when I ask the nurses to turn down the speakers.
Headphones were handed out last year when we all got our own TVs, but most patients conveniently lost them, and the unit doesn't have any more.
(I would like to know why the same people who blast the TV also SNORE at top volume, too!)
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Oh, how I wish TV headphones were mandatory at my unit!
With approximately 90% of my unit consisting of people over the age of 70, it seems that EVERYONE is hard of hearing and likes to blast the TV... as if it's not loud enough in there already with the machines and yakking, yelling nurses! Then I look like the bad guy when I ask the nurses to turn down the speakers.
Headphones were handed out last year when we all got our own TVs, but most patients conveniently lost them, and the unit doesn't have any more.
(I would like to know why the same people who blast the TV also SNORE at top volume, too!)
Funny. The nurses demand headphones in my dialysis unit. Also, they're nice enough to get ice and all the lollypops I want! If any of you are vets in the NorthEast Ohio Area, the VA Dialysis unit ROCKS.
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Oh, how I wish TV headphones were mandatory at my unit!
With approximately 90% of my unit consisting of people over the age of 70, it seems that EVERYONE is hard of hearing and likes to blast the TV... as if it's not loud enough in there already with the machines and yakking, yelling nurses! Then I look like the bad guy when I ask the nurses to turn down the speakers.
Headphones were handed out last year when we all got our own TVs, but most patients conveniently lost them, and the unit doesn't have any more.
(I would like to know why the same people who blast the TV also SNORE at top volume, too!)
Funny. The nurses demand headphones in my dialysis unit. Also, they're nice enough to get ice and all the lollypops I want! If any of you are vets in the NorthEast Ohio Area, the VA Dialysis unit ROCKS.
OK! >:( now your starting to sound like "oldborris" ;)
Members who remember "oldborris" posts before he passed know what I mean. >:D
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Oh, how I wish TV headphones were mandatory at my unit!
With approximately 90% of my unit consisting of people over the age of 70, it seems that EVERYONE is hard of hearing and likes to blast the TV... as if it's not loud enough in there already with the machines and yakking, yelling nurses! Then I look like the bad guy when I ask the nurses to turn down the speakers.
Headphones were handed out last year when we all got our own TVs, but most patients conveniently lost them, and the unit doesn't have any more.
(I would like to know why the same people who blast the TV also SNORE at top volume, too!)
Funny. The nurses demand headphones in my dialysis unit. Also, they're nice enough to get ice and all the lollypops I want! If any of you are vets in the NorthEast Ohio Area, the VA Dialysis unit ROCKS.
OK! >:( now your starting to sound like "oldborris" ;)
Members who remember "oldborris" posts before he passed know what I mean. >:D
Sorry, I don't know who "olldborris" is, but today's selection was musical (Pink Floyd). I watched a couple of bootleg concerts: "The Wall - Live @ Earls Court", some post Roger Waters concerts from 1994, Roger Waters RADIO KAOS in concert, and "Battle Royal" - A japanese movie about kids fighting & killing each other on a Japanese Government controlled island. I have to say, it was better than watching the TV.
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Oh, how I wish TV headphones were mandatory at my unit!
With approximately 90% of my unit consisting of people over the age of 70, it seems that EVERYONE is hard of hearing and likes to blast the TV... as if it's not loud enough in there already with the machines and yakking, yelling nurses! Then I look like the bad guy when I ask the nurses to turn down the speakers.
Headphones were handed out last year when we all got our own TVs, but most patients conveniently lost them, and the unit doesn't have any more.
(I would like to know why the same people who blast the TV also SNORE at top volume, too!)
Funny. The nurses demand headphones in my dialysis unit. Also, they're nice enough to get ice and all the lollypops I want! If any of you are vets in the NorthEast Ohio Area, the VA Dialysis unit ROCKS.
OK! >:( now your starting to sound like "oldborris" ;)
Members who remember "oldborris" posts before he passed know what I mean. >:D
Sorry, I don't know who "olldborris" is, but today's selection was musical (Pink Floyd). I watched a couple of bootleg concerts: "The Wall - Live @ Earls Court", some post Roger Waters concerts from 1994, Roger Waters RADIO KAOS in concert, and "Battle Royal" - A japanese movie about kids fighting & killing each other on a Japanese Government controlled island. I have to say, it was better than watching the TV.
Yeah I saw "Battle Royal" In fact I watched it during dialysis a few years back. I really enjoyed it.
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In the old clinic, they had hooked up a DVD player to the TV system, so I was able to watch all the Netflix movies I wanted. It's a great deal for Dialysis patients, becuase you can have 3 movies at a time. Your whole week is set up right there.
We just moved to the new clinic a month ago and it's nice and shiny, but only 22 channels and no DVD player. The clinic manager keeps asking me what would make me happy and I keep telling her that we need the DVD player back. I can't afford a portable right now and I'd rather they hook up the DVD player that they transferred from the old center.
But as you know, if it isn't considered "necessary" they won't take care of it.
Keeping me from going mad and distracting me from my burning needles, you think that would be filed under "Patient Needs."
I'm on Tuesday, Thursday and Saturday afternoons and let me tell you...there's nothing on TV in the afternoon.
Sigh.
Stacy Without An E
http://stacywithoutane.blogspot.com
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Your lucky Stacy, in the UK in our Unit we can only get 4 channels >:( I am on Tues, Thurs and Saturday mornings. If you think the TV is bad in the afternoons. Try it in the morning. Got a portable DVD player to try to keep me sane ;)
Kevno
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Things to do to make dialysis time go faster:
Ask the nurse if you can use your other arm.
Sing silly songs off key to the techs.
Ask everyone Do they come here often.
Bring a slinky and use it from the chair arm, to the table, to the floor. Ask your tech to pick it up every two minutes.
Play Frisbee with other patients.
Bring a Battle ship game. Play with another patient. Yell out the numbers really loudly as you play.Every five minutes yell "You sank my Battleship!"
Complain every few minutes that you forgot your headphones. Leave the headphones dangling from the TV.
Bring a ketchup packet, open it,pour it on your arm, and yell "I'm bleeding!"
Describe in great detail the last dialysis treatment you had. Compare this one to it.
Make up a wrestling name, refuse to answer to anything but it.
Wear sunglass and a hat in the unit the entire time you are there.
Call the unit on your cell phone, ask to speak to you.
Ask them if you can have your treatment "to go".
Play a tape of tropical sounds, use a Jamaican accent.
As you are leaving yell "Free, free, free at last. Thank almighty God, free at last."
Tell the doctor your life story in detail when he comes by to ask you how you are feeling.
Call the nurses and tech by the wrong names.
Add to the list......
Katherine
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well i must be really lucky because my unit lets me bring my playstation 2 or x box in and hook it up to those rolling tvs if you know what im talking about ya my dialysis unit ROCKS
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Must be nice. Mine will let me bring my own DVD player and own headphones, and battery pack, and movie. And watch it all by myself. Too bad the battery pack only last 3 hours.
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Kitkatz! You are Twisted! No wonder Kevno and you get along! >:D
How about.... Bring an umbrella and put it up in case it rains! ;D
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Things to do, to make the dialysis faster:
Ask if the nurse could use her arm ;D
Already got patients singing silly songs. It drives me crazy >:(
Play Frisbee, used to do that a few years ago, with those paper plates.
Bring a ketchup packet, did not need to a few months ago. Fell asleep and pulled the needle out, BLOOD all over the place :o Would have needed 100 ketchup packets.
I get called a lot of names by the nurses, but I do torment them a bit, well maybe a lot ;D
I have phoned the office to say may BP was dropping :( The buzzer was out of reach.
I am always calling the nurses by the wrong name, so I have given them all nicknames. Like nurse pushy, trouble, vandal, sneaky, viscous, popoff and so on ;D
Kevno
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I am the one patient that comes in and wakes the place up. It is pretty calm till I show up. How about:
Ballroom dancing while on dialysis. Uh, one, two three four.
Bring a small keyboard and play it with your toes.
Fart! Burp! Say really loudly "Excuse me" every time.
When someone asks you how you feel, ask them how they feel and of you can get them anything.
Make up an Ode to Dialysis and sing it.
Post the IHateDialysis.com posters all over the unit bulletin boards, then wear the T-Shirt or hat you bought on the site to treatment.
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Adding to the list:
Sing to the techs: I Got Friends in Low Places,
sing "Swing Low Sweet Chariot" as you get into your chair.
Tell them how low you been this week.
SMILE, it'll make them wonder what you have been up to.
Make up new names for the equipment. Ask for things by your made up names.
Tell them "I want my Mommy" as they are sticking your arm.
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Tell them "I want my Mommy" as they are sticking your arm. I do that, whats wrong ;D
Are you trying to say something Kitkatz :D
Just a few to add to the list.
Ask a tech for a drink every five minutes!
Take a big bar of choc in and eat it in front of the other patients.
Turn the machine up on a patient you do not like, so it takes off 20kg.
Play Darts with the needles, then put them back into the packet.
Clamp a line so the machine alarms every five minutes, to drive to techs crazy.
Take a fog horn with you, when you see a patient nodding off BLOW IT.( in Reruns case I do not think she would need the fog horn >:D)
Kevno
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Evil Kevno, evil. What fun! I think I will try a few.
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When the techs go to get something, I say "I'll wait here." Like I have a choice. ::)
I give each of the techs grief in an individually tailored manner, thus keeping me on my toes. >:D
I use my portable DVD player and Netflix for most of the year, but now it's baseball season, and my unit has pretty good cable.
I have a hard time reading, because I can only use my right arm; my left has to be straight out, so my right hand cramps up if I read too long. ::)
Mostly I watch TV and make smartass remarks to whoever happens to walk by. Sometimes when the doc asks if he can do anything for me, I say things like "Can you help me sex my goldfish?" It's pathetically easy to crack him up. >:D
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Hi Everyone
I am new to this site, and I am enjoying it very much. My dialysis unit is very small, and we have 3 nurses and 2 techs. My sessions are Mon, Wed, Fri. I am hooked up by 5:15 am. I usually catch up on all the news on the television (with headphones). We are allowed to bring our own food to eat, or else they provide juice and crackers. The head nurse thinks he is a Nazi, because he prefers no food during the dialysis session. The nurses and techs are very loud, and do not seem to care if you are asleep. I was dialyzed in a Gambro unit in California, and it was terrible. They did not even have ice to eat. Talk to you soon again Bye Barry1
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Ask the Tech to "Please get you a cup of Ice". When he/she brings it, say "Oh, I said water, no ice". When, he/she brings it say "no, just ice, no water." Keep doing that but be ready to get it dumpbed on you!
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Very dangerous to do, but I did. Guess the age of the Female Tech
Guess the weight of the Female Tech
Only just got of the unit with my life :o
They did ask me to guess, not my fault if I was a few years out, plus a few 10s lb out. ;D
Kevno >:D >:D
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Rerun can now take up knitting ;D Now she has two hands free >:D
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haha I love some of the replies in here, keep them coming!
I thought I was the only one who loved to tease the nurses at my center :D
At my center everyone gets served food .... it usually consists of some bread with butter and jam.
Some tea, and on occasion they have yogurt or fruits for 2 or 3 people only :-[
The way I spend my time ( monday,wednesday,friday, 8pm to midnight ) is by bringing a bag full of crap ... it ways a ton seriously.
I am also one of the only people that seems to bring anything!
Everyone is always watching tv ( but they do have to bring their own headphones no speakers allowed ).
I alternate between internet because the center has wifi!
Sometimes I bring my portable dvd player and watch movies or listen to music.
I often read the paper, or books.
I tried to take up origami during dialysis but it's too tricky ;D
And I might add a big plus for me is that I am on a tunnelled catheter so I have bigger mobility than if I I had one of my arms taken for you know what.
Lastly .... I usually take a 30 to 45 minute nap cause really it would be silly not to considering the sessions take place in a comfy bed 8)
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Does 'tunnelled catheter' mean that it is permanent, or is that the same catheter that will have to come out eventually?
I like the sound of your centre. Internet? TV with speakers? Comfy bed?
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Our in centre unit has the TV with headphones thing. Only you share a TV between 2, and if you want the channels changed you have to ask, which I really hate doing. Not one to like asking for anything. Its nice doing it at home, your own TV with remote, dvd player, mags, or better still, sleep! Since Ive been on nocturnal I only have the TV in the room, as I usually go to sleep not long after I hook up. I have just started getting into making greeting cards, so that something others could do on the machine easily.
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Does 'tunnelled catheter' mean that it is permanent, or is that the same catheter that will have to come out eventually?
I like the sound of your centre. Internet? TV with speakers? Comfy bed?
I am certainly no expert on the subject but I believe the main issues are air embolism, clotting, infection and thrombosis.
I don't do any of the handling myself so that leaves me out of the picture for messing it up >:D
I have been told it could be permanent. And statistically I am falling under the transplant call in time .... yeah I can tell you how eager to find out how this so called statistic will live up to it's promises. :D
Otherwise internet, stritcly Wifi and you have to bring your own laptop! ( I wasn't even informed they had it .... I just happened to bring the lappy one day and figured I should check if they had wifi and they did!! )
Tv with the speakers on is forbidden so you must bring headphones as well as your own universal remote if you want to change channels. There is only one remote for the whole room of 16 beds as the patients took the remotes!
The beds are standard hospital beds and they're somewhat comfy I guess but nothing beats my bed at home for comfort ;)
But I do certainly prefer that to the idea of a chair like in a lot of countries!
They just redid the whole center in the past year so everything is so nice and clean for now. The hospital is quite recent so that's a big reassuring point ( versus the transplant center that is an hour 1/2 away with a building that dates back to before world war II I think .... it's so old and unclean :-\ )
Our in centre unit has the TV with headphones thing. Only you share a TV between 2, and if you want the channels changed you have to ask, which I really hate doing. Not one to like asking for anything. Its nice doing it at home, your own TV with remote, dvd player, mags, or better still, sleep! Since Ive been on nocturnal I only have the TV in the room, as I usually go to sleep not long after I hook up. I have just started getting into making greeting cards, so that something others could do on the machine easily.
Individual tvs rock :)
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So, jdat, you are totally bilingual? Which do you consider as your first language?
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So, jdat, you are totally bilingual? Which do you consider as your first language?
Totally bilingual ( and working on adding german to the mix ).
I have no first language.
My parents spoke a mix of french and english ( franglais )growing up but the dominant language was english.
To be honest .... a lot of days this bilingual thinking totally screws me up not because of the language itself but the mentally of the different countries ....but when I moved to the US in 2001 that totally changed and now I handle it better.
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Which region are you from? I spent my year in Vichy.
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Which region are you from? I spent my year in Vichy.
Mulhouse, Alsace. Right next to Switzerland and Germany.
And I just thought of something to add to this to do list. I should work on my german while at the center! :)
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I see why you plan to add German to your mix. When I was in Vichy a basketball team came from Mulhouse.
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I highly reccommend the James Cavell series of books (Shogun, Taipan, Gagin, Noblehouse, King Rat & Whirlwind) however you'll probably have to prop these books up with a pillow considering the size but there very long and addictive which can keep me interested for 3 out of 4 hours.
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Find your butt with both hands. Prove you can do it without a map or a flashlight.
Play pat the tummy and rub the head, then reverse it.
Sing Little Bunny Foo Foo to the techs, or some other song you know that is silly.
Bring in the loudest rap music you can find, ask to put in on the centers CD players. Jam to it.
Find your way out of a paperbag without any help.
Write little notes to other patients. Have the tech pass them for you.
Make paper airplanes and fly them. Have contests with other patients in the clinic.
Bring the Victoria Secrets catalog or a Sex Toys catalog and make your choices after loud discussions with other people.
Celebrate being on dialysis. This will make other patients think you are completely nuts and they will leave you alone.
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I bought a book called "Easy Sudoku". It is that new "Fad" game with numbers 1 thru 9. We'll see if I can concentrate on it during dialysis.
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Have you tried the game Kevno?? Oh, wait you have to be able to count to 9. >:D
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Thats what I thought about you over 5 and you have had it ;D I know that a few of the OLDER patients on the unit is all they do all the time"Sudoku" yawn! I just like to watch TV, DVD'S or torment the Nurses. The only trouble is I am stuck in a chair :-\ NO ESCAPE!!!! from the nurses. Plus yes tried, done many different levels, and bored not for me :-\ It's seems to be all the older one's on the unit who do "Sudoku" ;D Thats the thing for you Rerun "SUDOKU" Thinking about it katkatz should try it too >:D
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Hate Soduko. Hate it! I throw the puzzles away from me every time I try to do one of them! They just frustrate me! I guess I can't count to nine the way they want you to.
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Yes I think it is for the OLDER patient to kill time on the machine. Rerun ;D >:D One of Epoman's Old 45's :D Right I'm off before I get in any deeper ::)
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Make up an imaginary world and populate it with all kinds of weird people. Talk about it with the techs and nurses. Go be in it for the four hours you are on the machine!
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I have to say that a lot of people sound quite negative about their units. All I can say about mine is, is that the nurses and staff there are excellent. I can bring in any electrical gadgets I like (apart from mobile (cell phone) (do I have to explain things to our American cousins or do you understand our phrases in the UK?). The only thing I get annoyed with (apart from being hooked up to a machine 12+ hours a week) is that my ass gets numb and no matter how much I move about or how many coushins I use, my ass still goes numb. Anyone got a cure for this???
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I know it is hard to move when you are hooked up but i used to find a way to shift from side to side, Mattyboy, may i ask if they gave you the option of PD?
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Yes, I was given the option of PD (if that`s the one you do at home) but I don`t like the idea of a catheter coming out of my stomach and as I`m working full time I don`t want to empty a bag four times a day or be connected to a machine overnight cos sometimes I have to start early in the morning etc and as I live with my father I don`t think he could provide the necessary support should anything go wrong. I may be wrong in my perception of all this but the main reason is I don`t like the idea of a catheter out of my stomach and I`ve heard that the dialysing fluid in your stomach can stretch your stomach.
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I just lurrrv typing 2 parge paragraphs...only to be told I've timed out & lost it! Aaaarrgh!
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Yes, I was given the option of PD (if that`s the one you do at home) but I don`t like the idea of a catheter coming out of my stomach and as I`m working full time I don`t want to empty a bag four times a day or be connected to a machine overnight cos sometimes I have to start early in the morning etc and as I live with my father I don`t think he could provide the necessary support should anything go wrong. I may be wrong in my perception of all this but the main reason is I don`t like the idea of a catheter out of my stomach and I`ve heard that the dialysing fluid in your stomach can stretch your stomach.
O.K., I'm back for another go (if I can remember what I said!)......THere are pros & cons to everything, MattyBoy! First off, you can do Haemo at home too. I do.
But getting back to P.D......I did it for a year, but it didn't work for me. Clearances were crap. But they did say it didn't work well for big people, and I'm one! ::)
Also, people have very different membrane efficiencies too....
*BUT* for those that it works for P.D. has a lot of advantages. You won't need support from your father, as exchanges are very straightforward. I used to do 5
exchanges a day: 2 @ home, morning & evening; 2 at work, at my desk; one overnight, attached to a machine that would do the drain/refill process automatically
for me at a set time (I had 02:00 set), while I slept. Doing it at work does depend a lot on you and your colleagues attitudes, I guess. You can pile the car up
with bags & travel away whenever you want. YOu can pre-arrange deliveries of bags to a distant/foreign location too, if you want.
Like I said, it didn't work for me, so I _had_ to go to Haemo. But with nocturnal home haemo available where I am, I said "where do I sign!?" ;)
I wouldn't swap & the clearances are great & I feel quite well now, after a year of haemo. But it can be a hassle & is restricting - difficult to get away,
with units needing a lot of advance warning & even then often t oo full to take you.
But whatever you end up doing, I wish you well. Keep posting like the rest of us!! ;D
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This topic is "Things To Do On Dialysis". You are getting way off subject. But, most important, this is good information and should be put in a place where people will read it.
Rerun - Moderator
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MattyBoy100, you generally dont need a care giver for doing PD. It is all very easily done on your own and is quite safe. The catheter isnt all that great, but Id prefer that rather than a fistula, at least a catheter is only temporary. Being on the machine overnight gives you alot more freedom and providing you are not on an extremely long treatment regime, it should be easy to work in with your working hours. Its quick and easy to set up, and you will know what time you need to hook up so that you can be finished in time to go to work. I really prefer PD any day! It doesnt stretch your stomach, it stretches your peritoneal membrane, which is the lining of your abdominal cavity. As far as I know, there are no common problems occuring as a result of this. After a couple of weeks your body gets used to it being stretched. I think it goes back to normal if you ever come off PD.
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Thanks for listening Amber. >:(
Thread Locked - Rerun - Moderator
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I didnt see your post rerun before I posted.