Things To Do On Dialysis~

[kevno]

 

[Rerun]

Have you tried the game Kevno??  Oh, wait you have to be able to count to 9.   

[kevno]

Thats what I thought about you over 5 and you have had it I know that a few of the OLDER patients on the unit is all they do all the time"Sudoku" yawn! I just like to watch TV, DVD'S or torment the Nurses. The only trouble is I am stuck in a chair NO ESCAPE!!!! from the nurses. Plus yes tried, done many different levels, and bored not for me It's seems to be all the older one's on the unit who do "Sudoku" Thats the thing for you Rerun "SUDOKU" Thinking about it katkatz should try it too

[kitkatz]

Hate Soduko.  Hate it!  I throw the puzzles away from me every time I try to do one of them! They just frustrate me! I guess I can't count to nine the way they want you to.

[kevno]

Yes I think it is for the OLDER patient to kill time on the machine. Rerun One of Epoman's Old 45's Right I'm off before I get in any deeper

[kitkatz]

Make up an imaginary world and populate it with all kinds of weird people.  Talk about it with the techs and nurses.  Go be in it for the four hours you are on the machine!

[MattyBoy100]

I have to say that a lot of people sound quite negative about their units.  All I can say about mine is, is that the nurses and staff there are excellent.  I can bring in any electrical gadgets I like (apart from mobile (cell phone) (do I have to explain things to our American cousins or do you understand our phrases in the UK?).  The only thing I get annoyed with (apart from being hooked up to a machine 12+ hours a week) is that my ass gets numb and no matter how much I move about or how many coushins I use, my ass still goes numb.  Anyone got a cure for this???

[goofynina]

I know it is hard to move when you are hooked up but i used to find a way to shift from side to side,  Mattyboy,  may i ask if they gave you the option of PD? 

[MattyBoy100]

Yes, I was given the option of PD (if that`s the one you do at home) but I don`t like the idea of a catheter coming out of my stomach and as I`m working full time I don`t want to empty a bag four times a day or be connected to a machine overnight cos sometimes I have to start early in the morning etc and as I live with my father I don`t think he could provide the necessary support should anything go wrong.  I may be wrong in my perception of all this but the main reason is I don`t like the idea of a catheter out of my stomach and I`ve heard that the dialysing fluid in your stomach can stretch your stomach.

[Bear]

I just lurrrv typing 2 parge paragraphs...only to be told I've timed out & lost it!  Aaaarrgh!

[Bear]

Yes, I was given the option of PD (if that`s the one you do at home) but I don`t like the idea of a catheter coming out of my stomach and as I`m working full time I don`t want to empty a bag four times a day or be connected to a machine overnight cos sometimes I have to start early in the morning etc and as I live with my father I don`t think he could provide the necessary support should anything go wrong.  I may be wrong in my perception of all this but the main reason is I don`t like the idea of a catheter out of my stomach and I`ve heard that the dialysing fluid in your stomach can stretch your stomach.

O.K., I'm back for another go (if I can remember what I said!)......THere are pros & cons to everything, MattyBoy! First off, you can do Haemo at home too. I do.
But getting back to P.D......I did it for a year, but it didn't work for me. Clearances were crap. But they did say it didn't work well for big people, and I'm one! 
Also, people have very different membrane efficiencies too....
*BUT* for those that it works for P.D. has a lot of advantages. You won't need support from your father, as exchanges are very straightforward. I used to do 5
exchanges a day: 2 @ home, morning & evening; 2 at work, at my desk; one overnight, attached to a machine that would do the drain/refill process automatically
for me at a set time (I had 02:00 set), while I slept. Doing it at work does depend a lot on you and your colleagues attitudes, I guess. You can pile the car up
with bags & travel away whenever you want. YOu can pre-arrange deliveries of bags to a distant/foreign location too, if you want.
 Like I said, it didn't work for me, so I _had_ to go to Haemo. But with nocturnal home haemo available where I am, I said "where do I sign!?" 
I wouldn't swap & the clearances are great & I feel quite well now, after a year of haemo. But it can be a hassle & is restricting - difficult to get away,
with units needing a lot of advance warning & even then often t oo full to take you.
 But whatever you end up doing, I wish you well. Keep posting like the rest of us!! 
   

[Rerun]

This topic is "Things To Do On Dialysis".  You are getting way off subject.  But, most important, this is good information and should be put in a place where people will read it.

Rerun - Moderator

[Panda_9]

MattyBoy100, you generally dont need a care giver for doing PD. It is all very easily done on your own and is quite safe. The catheter isnt all that great, but Id prefer that rather than a fistula, at least a catheter is only temporary. Being on the machine overnight gives you alot more freedom and providing you are not on an extremely long treatment regime, it should be easy to work in with your working hours. Its quick and easy to set up, and you will know what time you need to hook up so that you can be finished in time to go to work. I really prefer PD any day! It doesnt stretch your stomach, it stretches your peritoneal membrane, which is the lining of your abdominal cavity. As far as I know, there are no common problems occuring as a result of this. After a couple of weeks your body gets used to it being stretched. I think it goes back to normal if you ever come off PD.

[Rerun]

Thanks for listening Amber.   

Thread Locked - Rerun - Moderator

[Panda_9]

I didnt see your post rerun before I posted.