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Author Topic: what would you eat if you could.....dream menu  (Read 19116 times)
monrein
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« Reply #25 on: June 30, 2008, 04:35:31 PM »
I'll be right over LL.  Just one question, what's The Wife going to have ready for us when the munchies hit.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
flip
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« Reply #26 on: June 30, 2008, 04:39:06 PM »
Beef liver smothered in onions with mashed potatoes and gravy and black-eyed peas with a large chocolate shake
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That which does not kill me only makes me stronger - Neitzsche
twirl
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« Reply #27 on: June 30, 2008, 04:48:11 PM »
OMG you backwoods people know how to eat
no one will eat liver/onions but me so I never cook it, I go to Luby's (not the same)
and mashed potatoes and black eyed peas-------- sounds like my next dream meal

is the secret to good eatin' placing your washing machine on the porch------ if so, I will move mine

oh gosh, now I'm thinking who wants freakin' fruit tonight------ I want what flip is having
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flip
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« Reply #28 on: June 30, 2008, 05:02:51 PM »
I didn't say I was having it.....just dreaming about it
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That which does not kill me only makes me stronger - Neitzsche
twirl
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« Reply #29 on: June 30, 2008, 05:25:23 PM »
oh right, I was thinking we were in what's for supper
we have the same dreams
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kellyt
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« Reply #30 on: July 01, 2008, 01:50:39 PM »
Twirl, where are you from?

I LOVE Luby's!  I usually get the LuAnn Fried Fish.

Are you in Conroe?  Don't know if I spelled it right..  :)
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
donnia
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me and my donor Joyce
« Reply #31 on: July 01, 2008, 03:55:55 PM »
Ahhh Luby's.... I love their mac and cheese!
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
jamoman
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« Reply #32 on: July 01, 2008, 04:01:22 PM »
1/2 gal of ben & jerry`s everythingbut..................................coma!
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boxman55
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« Reply #33 on: July 01, 2008, 07:32:40 PM »
Ahh man, beef liver, bacon and onions the ultimate I love it...Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
twirl
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« Reply #34 on: July 02, 2008, 03:07:16 AM »
I am in Conroe, Texas
I grew up where the Woodlands is now located
love Luby's
fried fish, liver and onions, cabbage and I could go on and on --- anything with strawberries
the fish and liver are the best
if you are around this part of the world do not eat in the Woodland's Luby's
eat in the Conroe Lubys's
I have the recipes for the mac and cheese--- bought a cook book years ago------ it is the same!
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twirl
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« Reply #35 on: July 02, 2008, 03:09:17 AM »
Quote from: boxman55 on July 01, 2008, 07:32:40 PM
Ahh man, beef liver, bacon and onions the ultimate I love it...Boxman

and bacon? never had it like that..... oh the possibiilities.......... glad to see you. Box!
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donnia
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me and my donor Joyce
« Reply #36 on: July 02, 2008, 09:19:25 AM »
Oohhh twirl... could you share the mac and cheese recipe .......  pleeeaaassseee  :bow;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
twirl
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« Reply #37 on: July 02, 2008, 09:47:23 AM »
yes and I was hoping someone would ask
now, I need to find the cookbook

post ya' later
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kellyt
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« Reply #38 on: July 02, 2008, 03:23:38 PM »
That would be great!  Thanks, Twirl.   What about their pumpkin pie recipe?   Do they make their own pies?

mmmmm, Luby's.   :2thumbsup;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
twirl
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« Reply #39 on: July 02, 2008, 05:00:13 PM »
I am looking for my Luby's cookbook and will look for pumpkin pie

post ya' later
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alrightstill
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« Reply #40 on: July 03, 2008, 09:30:59 PM »
Monrein - what exactly are each of the dishes you posted in the photos?

I pretty much eat what I want too..  but being on daily home-hemo definitely helps with that.  Everything in moderation as well!

I wish I could eat more cheese though.. I love cheese!  And I absolutely loveeeeeeeeeee seafood and fruits.  Littleneck clams on the bbq I loveee.. and softshell crabs, mmmm.

Lately I've been eating blueberries like mad, they're a great snack! 

I dont know what my dream dinner would be though. 

Red Lobster has these new Lobster covered mashed potatos that are soooo good but you can just tell they're bad for you by looking at them.   :banghead;
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1992 @ age 12 i was suddenly diagnosed with ESRD. 
1992 - 1995: Peritoneal Dialysis
1995: Cadaver Transplant
2001: Kidney rejects, back on PD
2002: too much scar tissue prevents PD from succeeding, go on hemo via permacath,
         transplanted kidney is removed.
Dec 2004 -- 2009t: on NXSTAGE (with the bags NOT pureflow) 6x a week via permacath
Dec 2009: Transplant from a pal
Oct 2016 - present:  Transplant fails, back on NxStage w/pureflow via femoral cath, patiently waiting for next kidney
twirl
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« Reply #41 on: July 04, 2008, 02:53:18 PM »
did I understand you correctly
mashed potaotes covered in lobster
sounds so gooooooood
I am doing the blueberries also
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alrightstill
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BAH!
« Reply #42 on: July 07, 2008, 08:55:53 PM »
Quote from: twirl on July 04, 2008, 02:53:18 PM
did I understand you correctly
mashed potaotes covered in lobster
sounds so gooooooood
I am doing the blueberries also

I'm 28 and actually pretty much just started eating blueberries this year.  I can't believe what I was missing!

And yes - mashed potatoes covered in lobster with this lobstery (is that a word? haha) gravy-ish sauce on it.  I took a pic of them the other day with my phone as soon I get the pic off the phone I'll post it.  :)
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1992 @ age 12 i was suddenly diagnosed with ESRD. 
1992 - 1995: Peritoneal Dialysis
1995: Cadaver Transplant
2001: Kidney rejects, back on PD
2002: too much scar tissue prevents PD from succeeding, go on hemo via permacath,
         transplanted kidney is removed.
Dec 2004 -- 2009t: on NXSTAGE (with the bags NOT pureflow) 6x a week via permacath
Dec 2009: Transplant from a pal
Oct 2016 - present:  Transplant fails, back on NxStage w/pureflow via femoral cath, patiently waiting for next kidney
Chris
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« Reply #43 on: July 07, 2008, 09:25:01 PM »
Anything with potatoes, but really would like chees scallopped potaotes with bacon bits on top.
Chilli, hot
Spicey Foods
Lasagna
Cheese, lots of it
Smoked Almonds
and anything else that easily raises my lab levels over the normal range.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
monrein
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« Reply #44 on: July 08, 2008, 01:10:15 PM »
Alrightstill, those pics are three courses of a ten course seasonal (fall) menu.

1.  A chestnut course.  In the bowl is rice cooked in bonito broth with bits of chestnut throughout.  Soft textures.  The chips are deep-fried slices of chestnut and the thing that looks like a chestnut popping out of its casing is a roasted then grilled chestnut inside a shell made of shrimp and egg whites then rolled in pieces of noodle and deep-fried.  Light and fluffy but crunchy with intense shrimp taste.

2. Thin layer of savory, warm gelatin topped with fish steamed in seaweed with baby radish, hand cut piece of adult radish (daikon, the japanese variety), carrot flower and delicious sauce of unknown-to-me ingredients.
The thin strips of green on top are the zest of a type of japanese lime with intense citrus kick.

3.  Delicate flavoured green pepper (a variety from Japan) dipped in sake then rolled in tiny beads of puffed cereal and deep-fried,  slices of deep-fried sushi roll (no raw fish here however) with soba noodles inside wrapped with a ribbon of fish then the rice layer then the seaweed and the extremely light batter on the outside.  The marvel here is in the variety and subtlety of the textures.  The carved crane is eaten with the carrot sauce in the small bowl and I confess to licking the bowl.  There is also a clear juice in the bottom of the long dish that was outstandingly delicious and not a drop was returned to the kitchen.


I really love this restaurant Mibarra.  They only serve a maximum of 8 people on any given evening and you must reserve a week ahead because they source things from Japan.  At the end of the meal, they tale a photo of you and email it to you with the pics of everything you ate.  Here we are in October 2007 at my birthday dinner.  We were the only people there that evening.
« Last Edit: July 11, 2008, 03:01:59 AM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
CW
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Yeah .............That's me!
« Reply #45 on: July 11, 2008, 12:10:00 AM »
Wow this is a tuffie there are so many choices

My aunts super cheesy macaroni and cheese
Fillet mignon with smashed garlic potatoes
oxtail stew with pigeon peas and rice
Jamaican beef pattie with american cheese
tall glass of cold coke
tall glass of cold OJ
Good chocolate
Good medium cheddar cheese
Super moist yummy Carrrot cake from Mimi's here in fairfield
Strawberry cheesecake from junior's

I can do this all night  - so I will stop here
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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
Chris
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« Reply #46 on: July 16, 2008, 10:59:26 PM »
Here's a food question, what are white beans? They are suppose to contain either Calcium or Vitamin D (not looking at my list of foods to eat). Only thing I can think of as white beans are butter beans in a can.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
monrein
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Might as well smile
« Reply #47 on: July 17, 2008, 03:16:04 AM »
Could be the navy bean which is white (they're used for pork and beans) or the Tuscan white bean, cannellini, which is also called a white kidney bean (used in french and italian cooking).  In France they're used for the traditional dish, cassoulet, and in Italy they're used in pasta e fagiole.
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Chris
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« Reply #48 on: July 17, 2008, 01:45:21 PM »
Well pork and beans I have had, but still staying away from due to the tomato base used because of potasium levels, pasta e fagiole I think I have had, but hard to find. The bone doctor wants my nephrologist to put me on a binder so I will eat more of what I like. When I was on dialysis, I was on Phoslo and those where big pills to take. To bad lentil soup wasn't on the list.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Robby712
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« Reply #49 on: July 26, 2008, 05:20:49 PM »
Half a meat lovers pizza with a 6 pack of beer.

Followed by a large piece of chocolate cake and another 6 pack of beer.

Man I miss beer.  Not just being able to drink as much as I want...but the social part.
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