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Author Topic: GOOFYNINA  (Read 169158 times)
Sluff
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« on: February 13, 2008, 09:26:46 AM »
I am sorry to have to share this news with our family here at IHD. As most of you are aware Goofynina (Susie) went in to surgery on or around January 21st to have calcium deposits removed from her stomach area. The intended surgery was a success but unfortunately Susie developed an infection which was first thought to be peritonitis due to the fact that Susie does PD, this was later considered to be false and the Doctors are unable to find the source of her infection. The infection is causing her severe pain that is almost unmanageable leaving the Doctors with no other recourse but to send Susie home and offer hospice care. I talked with Susie's husband Sam this morning and learned that they are considering a two week window of which morphine is being administered to keep the pain to a minimum.

I will update when I learn more. I am trying to give her immediate family space and time to visit.

Sluff

UPDATE Noon FEB 13th
I heard from John (Susie's Brother-in-law) Susie has taken a turn for the worst and may not make it through the evening. Last night the family was there and she was alert for a very short time after doing dialysis. She has not been coherent except during that brief moment.

Sluff


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« Last Edit: February 14, 2008, 08:47:53 PM by Sluff » Logged
Joe Paul
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« Reply #1 on: February 13, 2008, 09:29:56 AM »
Oh man..this is very sad news  :thumbdown;  Not sure what to say
« Last Edit: February 13, 2008, 09:34:51 AM by Joe Paul » Logged
"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
LightLizard
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« Reply #2 on: February 13, 2008, 09:39:35 AM »
i thought i had reached the limit of an emotional low, for me....

i was wrong.

 :'(
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The Wife
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« Reply #3 on: February 13, 2008, 09:48:02 AM »
There are no words.

I sit in silence and with love for Susie.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: February 13, 2008, 09:49:10 AM »
 :'( heart breaking news  :'(
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #5 on: February 13, 2008, 09:56:56 AM »
We can still pray for a miracle, "All things are possible in his name" "if it be the will of God"
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #6 on: February 13, 2008, 09:57:20 AM »
Quote from: The Wife on February 13, 2008, 09:48:02 AM
There are no words.

I sit in silence and with love for Susie.

I can say no more than this.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
KR Cincy
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« Reply #7 on: February 13, 2008, 10:02:08 AM »
my heart is breaking for Susie and Sam...but the positive thoughts will continue
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Not giving up...thanks to Susan.
Meinuk
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« Reply #8 on: February 13, 2008, 10:09:43 AM »
I sent this in a personal message last night, and my feelings are magnified today.

We are all in this together, good times (like Vegas) and bad - today.  Heartbroken is an understatement. 

It is comforting to know that we are not alone, and that Susie knows how much love we have for her.
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
KICKSTART
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« Reply #9 on: February 13, 2008, 10:11:42 AM »
This  is so sad to hear, but that lady is a fighter and with our prayers i hope she comes through this. If anyone gets to visit please give her my love and a great big  :cuddle;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Jill D.
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« Reply #10 on: February 13, 2008, 10:12:38 AM »
I am sad.
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
paris
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« Reply #11 on: February 13, 2008, 10:15:42 AM »
I am praying for a miracle and for strength for Sam.  Also, strength for her IHD family. She is so loved by so many :cuddle; :'( :grouphug;
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« Reply #12 on: February 13, 2008, 10:19:54 AM »
Susie is someone who, in the short time I've 'known' her online, has touched my heart. I am so sad right now, I can't even believe this is happening to her. Prayers and loads of love for her.
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As is your sort of mind, so is your sort of search: you will find what you desire.
vandie
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« Reply #13 on: February 13, 2008, 10:27:33 AM »
Susie is everyone's best friend.  She is constantly the source of support and love and laughter here at IHD.

We love you.  Be strong sister.
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
jbeany
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« Reply #14 on: February 13, 2008, 10:30:07 AM »
 :grouphug;
My love to Susie and Sam.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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« Reply #15 on: February 13, 2008, 10:36:23 AM »
Don't know what to say.   So Sorry!
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Never Weaken
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« Reply #16 on: February 13, 2008, 10:40:56 AM »
My thoughts are with Susie and her family.  God Bless her.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
petey
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« Reply #17 on: February 13, 2008, 10:42:58 AM »
Our hearts are crying.

We are praying for a miracle for Susie and strength for Sam.



Marvin and Petey
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #18 on: February 13, 2008, 10:45:42 AM »
I can't believe this please stay with us Susie :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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Ken
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« Reply #19 on: February 13, 2008, 11:06:58 AM »
So heartbreaking. I'm praying for that miracle, Sluff. 
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Laurie
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May 13, 2008
« Reply #20 on: February 13, 2008, 11:22:47 AM »
 :'( This is so sad to hear. I will be praying for a miracle  :grouphug;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Psim
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« Reply #21 on: February 13, 2008, 11:27:03 AM »
No words. Thinking of you Susie. Your strength, your humour, your goofy grace. Scared... and still hoping.
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Zach
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"Still crazy after all these years."
« Reply #22 on: February 13, 2008, 11:31:33 AM »
My prayers are with Susie and her family.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
xtrememoosetrax
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« Reply #23 on: February 13, 2008, 11:43:05 AM »
Such disturbing news -- Hard to believe.  Don't know what to say except "Susie, you are loved so much by so many."  I'm going to keep hoping. 
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Living donor to friend via 3-way paired exchange on July 30, 2008.

www.paireddonation.org
www.caringbridge.org/visit/marthahansen
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #24 on: February 13, 2008, 11:48:14 AM »
So that's it, doc's can't find source of infection so they will send her home for hospice care ! This is making me so angry.
With all of the available tests today they can't find it ?
Susie deserves so much more.
I hope the pain is being managed as much as possible, but also hope that the doc's aren't giving up finding out what is wrong and fast.

Massive Hugs for Susie, Sam and families.  :cuddle;  :grouphug;  :cuddle;  :grouphug;  :cuddle;  :grouphug;  :cuddle;  :grouphug;  :cuddle;  :grouphug;  :cuddle; :grouphug;  :cuddle; :grouphug;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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