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Author Topic: GOOFYNINA  (Read 169157 times)
stauffenberg
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« Reply #50 on: February 13, 2008, 04:25:48 PM »
I don't really understand what is happening, and I suspect there has been some confusion of the real story in its successive transmission from the doctor to the patient and from the patient to our reporter and then to us.  In the modern world of medicine with its systemic antibiotics, it is not necessary to find the source of the patient's infection to be able to treat it, since an i.v. dose of strong antibiotics will attack micro-organisms everywhere in the body.  Yet despite this, for some unexplained reason, the doctors are acting as though their inability to pinpoint the exact source of the infection is an excuse to give up on the patient and recommend hospice care?!  If they can control the pain with morphine, control the toxins with dialysis, and address the unlocated infection by systemic antibiotics, what on earth is the problem?!
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Rerun
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« Reply #51 on: February 13, 2008, 04:31:52 PM »
They shouldn't give up on Susie.  They don't know how much we need her!!  I just can't lose another dialysis friend!

Yet, I don't want Susie to be suffering and in pain.   I hope and pray that she is comfortable.

Susie, Peace be with you~
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paris
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« Reply #52 on: February 13, 2008, 04:33:00 PM »
You are right, Stauffenberg--there is more. It is a series of events that has brought it to this level.   I have been crying all day and now I just want to scream or hit something. The doctors have been trying to work miracles.  Susie has been much sicker than she wanted anyone to know.  She has been in so much pain, even with the morphine. I am sure more details will be posted later.   I can't say how sad I am today. :'(
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
bolta72
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« Reply #53 on: February 13, 2008, 05:13:16 PM »
 :( :'(
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gotta do what I gotta do.. 2 yrs in ctr hemo
karen547
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« Reply #54 on: February 13, 2008, 05:19:58 PM »
Can this day get any worse! First my day at dialysis was bad(seizure) my car almost dies and then gets stuck in the snow and now I hear about Susie! I am so saddened and upset, I hope some miracle comes upon her! :grouphug;
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del
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« Reply #55 on: February 13, 2008, 05:29:23 PM »
I just saw this thread and it is so sad.  Like others said Susie was everybody's friend. I really enjoyed the few chats I had with her.  She is a very special person.   :( :grouphug;
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Don't take your organs to heaven.  Heaven knows we need them here.
Rose From OZ
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« Reply #56 on: February 13, 2008, 05:55:24 PM »
Amanda just called me to tell me the shocking and sad news. I pray that a miracle happens and she pulls through I'm sending my thoughts and prayers through to Susie and family to give her strength to get through this..
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Sluff
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« Reply #57 on: February 13, 2008, 06:01:53 PM »
Goofynina would be so proud at the determination of her IHD family.

I would explain this in more details if I could but I by no means want to distort the truth. Unfortunately we have to except what is happening even though we don't want to believe it. The way the infection has grown all through her body faster then her cells can keep up to fighting it off. John explained it to me in medical terms and I am so sorry I cannot relay the information as I heard it, maybe when Karol talks to him she will be able to better explain it.
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vandie
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« Reply #58 on: February 13, 2008, 06:17:04 PM »
Quote from: Sluff on February 13, 2008, 06:01:53 PM
Goofynina would be so proud at the determination of her IHD family.

I would explain this in more details if I could but I by no means want to distort the truth. Unfortunately we have to except what is happening even though we don't want to believe it. The way the infection has grown all through her body faster then her cells can keep up to fighting it off. John explained it to me in medical terms and I am so sorry I cannot relay the information as I heard it, maybe when Karol talks to him she will be able to better explain it.

Sluff buddy, you are doing a fantastic job keeping Susie's IHD family in the loop about what is going on with our dear girl.
I thank you from the bottom of my heart.  I know how difficult this must be for you.  You two are very close and you love her so much.

You are appreciated, my friend.

Many hugs
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Life is the journey, not the destination.
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glitter
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« Reply #59 on: February 13, 2008, 06:18:04 PM »
I hate this....my heart is hurting for her family, and for her, and for me, and for all of us.    :grouphug; :'( :'(  

and Thanks Sluff and Okarol for letting us know what you can...
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
paris
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« Reply #60 on: February 13, 2008, 06:42:30 PM »
Sluff, we don't need all the details.  Thank you so much for keeping us updated.  I am sure this is one of the hardest days you've had.  Please know you are also in my prayers.  Thank you for being such a faithful leader.  I need to say it loud and clear how important this site and everyone here is to me.  I truly would be lost without all of you.  Now all our focus is on Susie and Sam.  Thanks, also, Okarol for all the calls and emails you have been making.  My love to all of IHD :grouphug; :grouphug;
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« Reply #61 on: February 13, 2008, 06:43:00 PM »
Sluff or Karol,
Please let us know more as you soon as you hear it.  You have been so good to keep us all informed.  Without you, we wouldn't know what was happening, and we wouldn't have the chance to say a prayer and/or send positive thoughts for our Susie.


Come on, Susie girl, hang in there!  And, please God, hear our cries and bring our Goofynina back to us.
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oswald
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« Reply #62 on: February 13, 2008, 06:57:13 PM »
hang in there susie, we're all praying for you.   :(  :'(  :grouphug;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
KT0930
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« Reply #63 on: February 13, 2008, 07:22:21 PM »
Absolutely, thank you Sluff and Karol for keeping us informed.

Susie and Sam, we're all thinking of you and praying that you pull through this.
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
CW
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« Reply #64 on: February 13, 2008, 07:30:32 PM »
I felt a sense of dread when I saw goofynina's name in all caps I hoped it was good but knew it was not. All my prayers and well wishes Goofynina. I am sorry you have to endure this.

Thank you for being real road warriors Sluff and okarol I know it is hard to have to deliver bad news.
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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
Ohio Buckeye
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« Reply #65 on: February 13, 2008, 07:57:30 PM »
My eyes have a riiver behind them and they keep dripping and my heart
is so heavy tonight.  I didn't realize Susie was so ill.  This is sooooooo hard!
for everyone. 
Thanks for keeping us updated Sluff and Karol. 
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If I must do this to live, I must strive to live
while I am doing this.
Amanda From OZ
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« Reply #66 on: February 13, 2008, 08:26:32 PM »
Still praying hard for you susie...  :grouphug;

sluff and Karol.  :cuddle;
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okarol
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« Reply #67 on: February 13, 2008, 08:57:14 PM »
Her brother says she's got about 15 family members with her, she's been sleeping for hours.
I feel her so strong right now - I know she can feel all the love from this group.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
angellady07
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« Reply #68 on: February 13, 2008, 09:03:17 PM »
I was afraid to read your post Karol. Thank God she's still with us. My love and prayers remain with Susie and her family.  :grouphug;
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charee
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« Reply #69 on: February 13, 2008, 09:05:45 PM »
Thanks Karol and Sluff :cuddle;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
angellady07
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« Reply #70 on: February 13, 2008, 09:10:40 PM »
I too want to say thank you Sluff and Karol.
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brenda
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« Reply #71 on: February 13, 2008, 09:12:43 PM »
My thoughts and prayers are with you Susie.  :grouphug; :grouphug;
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Life is what happens while your making other plans.
Adam_W
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« Reply #72 on: February 13, 2008, 09:44:32 PM »
I just can't believe this is happening
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Mimi
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« Reply #73 on: February 13, 2008, 10:11:11 PM »
I too, remember her post about being scared as hell.  Oh Susie I am so sorry this has happened to you.
Sounds to me like she may have MRSA (staff Infection)  Antibiotics will not touch it  And hospitals are a breeding ground for it.
My prayers  are with you Susie and Sam.  Susie honey, keep fighting as hard as you can.
 :'( :'( :'( :'( :'(
All my love,
Mimi
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cris
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« Reply #74 on: February 13, 2008, 10:31:41 PM »
For our Susie, let's hold hands all together in spirit and say a prayer for her, for the best. we love you Goofynina.
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there is no greater love than this: "that a man lays down his life for his friend"
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