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Author Topic: Freaky me !  (Read 3508 times)
KICKSTART
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« on: January 24, 2008, 09:06:43 AM »

Most of us have at one time or another had 'restless legs' , but for the past two days i have been going mad with 'restless arms'!!! Come on tell me im not a freak and that some of  you out  there have had this too?  :urcrazy;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
jonn r
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« Reply #1 on: January 24, 2008, 09:44:44 AM »

Most of us have at one time or another had 'restless legs' , but for the past two days i have been going mad with 'restless arms'!!! Come on tell me im not a freak and that some of  you out  there have had this too?  :urcrazy;



you miss are a freak.....just kidding.... :sarcasm; :sarcasm; :sarcasm;
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donnia
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« Reply #2 on: January 24, 2008, 09:51:46 AM »

Yep... Freak for sure :)  jk
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #3 on: January 24, 2008, 10:00:07 AM »

Kickstart your not on your own. I start with restless legs and eventually restless everything until it feel like every nerve in my body is on end. Sometimes when I'm lying in bed tossing and turning I feel like I want to get on a bouncy castle and just through myself about and scream as loud as I can
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Ken
oswald
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« Reply #4 on: January 24, 2008, 10:39:02 AM »

kickstart, i know what you mean.  i had restless body syndrome.  it would start with my legs and in a matter of minutes it would be all over my body.  arms, legs, stomach, neck, every muscle in me was jumpy.  driving me and my wife crazy.  the only cure for me was heavy doses of sleeping pills.  you still might be a freak so  :welcomesign; to the freak club.
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
Sluff
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« Reply #5 on: January 24, 2008, 10:39:37 AM »

I have been through the gullet when it comes to the restless heebie jeebies.

Lyrica has been a help on the legs and so has Garbenten and now it has been so bad that I'am taking muscle relaxers called cyclobenzaprine and it has helped greatly but mixing the cyclobezeprine10mg  and lyrica 75mg  makes you very sleepy.
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KICKSTART
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« Reply #6 on: January 24, 2008, 11:35:30 AM »

I'm on tablets for my legs , which usually work well and sleeping tablets which have been good! I love the idea of a big bouncy castle to jump around on , sounds perfect!!! Good to know there's a few other 'Restless Freaks' out there .. :rofl;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
KT0930
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« Reply #7 on: January 24, 2008, 03:45:51 PM »

The first night or two that I took Ambien, I actually woke myself and my husband up with my flailing arms. It started out in whatever dream I was having, just a general sense of tension or unease, and the next thing I knew, I was awake, and my arms were up in the air flailing around. I haven't had it happen in many months, though.
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
oswald
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« Reply #8 on: January 24, 2008, 04:00:42 PM »

kt, with that new transplant the rls shouldn't bother you at all.  at least that was the way for me.  as soon as i got the transplant it went away.  thank god too, because it was just driving me crazy.   :urcrazy;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
kellyt
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« Reply #9 on: January 24, 2008, 04:59:49 PM »

What causes this restless legs/arms?  I am getting it as well in my legs.  I tend to feel is in my lower, lower back and it radiates down into my butt and legs.  Drives me nuts!  I thought maybe I was taking my meds too late and started to take them earlier.  I didn't have the restless feeling last night, so I'm not sure if it's something I'm causing or not.

What can be taken OTC?  I have too many prescription meds already!   :thx;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Ang
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« Reply #10 on: January 25, 2008, 05:33:29 PM »

where   do  apply  to  join  the  freaks  club :yahoo;

the  legs  uusually  start when  i'm  dead  tired,  noticed  lately  the  left  arm  has  started
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live  life  to  the  full  and you won't  die  wondering
Roadrunner
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« Reply #11 on: January 26, 2008, 07:24:50 AM »

I have another problem.  My husband has restless legs.  They jump every minute.  He sleeps thought it all but I can't sleep.  This week his arm also started twitching.  Whenever it happens I need to get up and move to the other room to sleep.  :(

Roadrunner
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KT0930
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« Reply #12 on: January 26, 2008, 09:13:05 AM »

kt, with that new transplant the rls shouldn't bother you at all.  at least that was the way for me.  as soon as i got the transplant it went away.  thank god too, because it was just driving me crazy.   :urcrazy;

Nope, no problems since the transplant. I had the problems probably six months ago or so.

What causes this restless legs/arms? I am getting it as well in my legs. I tend to feel is in my lower, lower back and it radiates down into my butt and legs. Drives me nuts! I thought maybe I was taking my meds too late and started to take them earlier. I didn't have the restless feeling last night, so I'm not sure if it's something I'm causing or not.

What can be taken OTC? I have too many prescription meds already! :thx;

I believe the toxins building up causes some problems with the central nervous system, and that's what causes the RLS in dialysis patients. I don't think there's anything OTC you can take. With all the other meds and things that may not be cleared out by dialysis, I would check with your doctor about anything you were going to take, anyway.
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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