POLL: Causes of kidney failure / disease - Please see if yours is shown here.

[kidneyless_In_PA]

mine was from lead poison from my dad filling lead in car batteries and when my parents created me it got in me.

[sico]

I was told FSGS. When i had biopsy done, the tissue was badly scared. Both of my kidneys were small on the ultrasound too. One of the docs at the hospital said i could have had something wrong for 16years.

[-Lady Noir-]

Mikes kidney failure started when he was 3 or 4 years old (Apparently..) Although we ddn't find out until he was 20!
He had strep throat when was little, and due to i being untreated, or not treated properly.. apparently that caused his kidney failure.
Chronic Glomerulonephritis.

[tweetyas]

mines called  AME -Amineralcorticoid Excess Syndrome....I was diagnosed at 2 years old at UCLA. The Docs told me its extremely rare.

[ryosaki]

I have alports....my family calls it our family "curse". so far all first born males in my family all have it!! that's me....my two cousins and my uncle who has already passed away. My aunt just gave birth about a month ago and lo and behold...it's a boy!! Alports is a disease that females carry it but it's the males who get affected by the symptoms. It's not just the kidneys that fail too...symptoms include deafness and blindness!!lol....can anyone top that? haha.

[Lillupie]

I have never heard of primary hyperparathyroidism? What is it exactly.

Lisa

I got it from primary hyperparathyroidism. Which I guess is really uncommon. I had it, undiagnosed, for about 10 years -- there were quite a few opportunities for it to be caught before it took my kidneys out, but hey, my medical clinic mislaid my bloodwork for 5 years. 

[jennyc]

Yeh, most renal patients suffer from secondary Hyper pth- it happens as a result of the renal failure and had it not been for the renal failure we never would have gotten it. Primary is where there is something physically wrong the the parathyroid gland in itself such as a tumor.

[amanda n]

i have SLE but the cause of my kidney failure was secondary antiphosphilipid syndrome... had my doctor kept me on asprin things could have worked out very differently, hind site is always 20/20!!!

[-Lady Noir-]

Yeh, most renal patients suffer from secondary Hyper pth- it happens as a result of the renal failure and had it not been for the renal failure we never would have gotten it.

True!
Mike had a parathyroidectomy, which in turn actually made his already bad kidney function worse. Thems the breaks eh

[bege]

mine was cancer, not "normal kidney cancer, but the type that is suppose to be in the colon--adeno carcinoma.  It started as a simple kidney stone surgery, but there was a spot "that probably was scar tissue".  But lucky me it wasn't.  I was diagnosed a year ago..I will never forger laborday weekend.  Now after7 months of chemo the kidney came out. And since I was born with only one kidney, now I am on dialysis 3 days a week for 4 hours a day. 

[Lillupie]

I cant find it, but my friend had strep throat that lead to his kidney failure.
Lisa

I hope I didn't leave anything out, please let me know. Feel free to explain.

[Razman]

I cant find it, but my friend had strep throat that lead to his kidney failure.
Lisa

   Same thing happened to me. I went to a doctor twice in 3 weeks.  He never did a throat swab and just said it was a cold.  My neph said that it what caused my kidney failure but you'll never prove it in court!



Edited: Fixed quote tag error- okarol/admin

[okarol]

I added strep throat

[Brianna!]

This book called "Saving Jessica" I think it's called, Jessica is on dialysis, and her kidneys started to fail apparently because of strep throat. Mine failed because of a neurogenic baldder.

[Swee_tone]

I haven't read through this massive thread yet, but I plan too.

I have no idea how my IGAN started, i've had strep throat several times... but my wife thinks it was when I was a kid.

I had gotten really sick and started hallucinating.  At 20 years old I started peeing dark tea colour, but was too scared to get it checked out.
LESSON: check abnormal situations/ conditions out with your doctor!!!

[fc2821]

   This has been a very intereresting thread, to me, to read.  Thanks to all for sharing.   I had not idea there were so many possible causes.
     My loss was due to injury.  I noticed that I was the first respondent with that cause. 
      For those who like details, here goes.  I was working, a deputy sheriff,  saw a fellow I knew to be wanted coming out of the back door of a closed business at three in the morning.  He fled, I persued.  He ran his car through a corn field and come out and ran into mine.  Another deputy close by caught him. I am on dialysis and his is in prison.  No winners.

[okarol]

   This has been a very intereresting thread, to me, to read.  Thanks to all for sharing.   I had not idea there were so many possible causes.
     My loss was due to injury.  I noticed that I was the first respondent with that cause. 
      For those who like details, here goes.  I was working, a deputy sheriff,  saw a fellow I knew to be wanted coming out of the back door of a closed business at three in the morning.  He fled, I persued.  He ran his car through a corn field and come out and ran into mine.  Another deputy close by caught him. I am on dialysis and his is in prison.  No winners.

I imagine it was a very severe accident. Usually when you hear of a kidney lost due to an injury the person can be ok with just one kidney. How was it that you lost both? Thank you for your service in law enforcement. I am glad they caught the guy.

[fc2821]

Severe injuries to my lower back.

[maglaw64]

They can't tell me what caused mine....might have been born with small kidneys, pregnancy might have exacerbated it (had pre-eclampsia), but that's all they can tell me.....

[-Lady Noir-]

Actually, come to think about it.. Mike was told his was because of Strep Throat.. and they told him it was glomerulonephritis. Not sure how correct that is..

[cdwbrooklyn]

When I was in my early 30th my doctor told me I had high blood pressure.  However, I felt I was too young to have hbp so I totally ignored him.  WHY DID I DO THAT?  Young and foolish, I decided to continue going on with life without trying to lower my BP.
So one day I woke up and everything around me was blurry.  I could not see anything.  I went to the doctor and they could not tell me what was wrong although the doctor office took so many tests.  I must have saw about 10 different doctors and not one of them decided to take my BP.  To make a long story short, I winded up in the hospital after I could not breath and fell out.  The doctors in the hospital decided to take my BP and found out it was 200/120.  Right there and than the doctor gave me some meds.  I started to get my sight back after several hours.  That's when the doctor told me I had to go on dailysis.  I was so upset.  I've tried every herbs I could afford.  It worked but I couldn't paid $150 a week to maintain the herbs.  So after 6 months and behind on my rent.  I decided to go on dailysis. It was so hard for me.  I cried for about one year hoping my kidneys will start functioning again.  After a year I became very angry whereas I pushed everyone out of my life.  Well, they stayed away for a while.  After three years on dailysis, I started to fell sorry for myself.  Then after five years felling sorry for myself and not really interacting with to many people, I was thinking about killing myself. It was time for me to see a psychologist, which changed my whole attitude.... I started to accept dailysis and reunited with my friends and family and started to live again.  Now I'm more positive and have a great career and dating.  POSITIVE THOUGHTS, POSITIVE ENERGY!   

[sico]

When I was in my early 30th my doctor told me I had high blood pressure.  However, I felt I was too young to have hbp so I totally ignored him.  WHY DID I DO THAT?  Young and foolish, I decided to continue going on with life without trying to lower my BP.
So one day I woke up and everything around me was blurry.  I could not see anything.  I went to the doctor and they could not tell me what was wrong although the doctor office took so many tests.  I must have saw about 10 different doctors and not one of them decided to take my BP.  To make a long story short, I winded up in the hospital after I could not breath and fell out.  The doctors in the hospital decided to take my BP and found out it was 200/120.  Right there and than the doctor gave me some meds.  I started to get my sight back after several hours.  That's when the doctor told me I had to go on dailysis.  I was so upset.  I've tried every herbs I could afford.  It worked but I couldn't paid $150 a week to maintain the herbs.  So after 6 months and behind on my rent.  I decided to go on dailysis. It was so hard for me.  I cried for about one year hoping my kidneys will start functioning again.  After a year I became very angry whereas I pushed everyone out of my life.  Well, they stayed away for a while.  After three years on dailysis, I started to fell sorry for myself.  Then after five years felling sorry for myself and not really interacting with to many people, I was thinking about killing myself. It was time for me to see a psychologist, which changed my whole attitude.... I started to accept dailysis and reunited with my friends and family and started to live again.  Now I'm more positive and have a great career and dating.  POSITIVE THOUGHTS, POSITIVE ENERGY!   

I had the blurred vision and found out i had high bp (215/125) the same day i started dialysis. Although it took weeks for my sight to recover.
It can be hard to accept, but you can feel good on dialysis. Sure beats life with ESRF and no dialysis 'cause that don't exist.

[topazbeauty]

I have MPGN type 1 like a few other mentioned here. Usually type 1 is caused by a secondary disease that was never treated, typically Hep C or B, but not me, just good old no known reason. They diagnosed me accidentally when I was going into middle school from a weird UA value on my physical.

At least I had some time of "normal" life before dialysis. I only had to fight with the doctors about prednison. Went on a business trip and was working 15-20 hours a day for 1.5 weeks. Started feeling bad and had my levels check and my CrCl which had been stable at around 2 for 11 years jumped to 4. Soon after it was above 6 and I started dialysis. Hopefully 23 will be the only year of it and I get a transplant soon.

[Swee_tone]

When I was in my early 30th my doctor told me I had high blood pressure.  However, I felt I was too young to have hbp so I totally ignored him.  WHY DID I DO THAT?

So one day I woke up and everything around me was blurry.  I could not see anything.  I went to the doctor and they could not tell me what was wrong although the doctor office took so many tests.

The doctors in the hospital decided to take my BP and found out it was 200/120.

 So after 6 months and behind on my rent.  I decided to go on dailysis. It was so hard for me.  I cried for about one year hoping my kidneys will start functioning again.  After a year I became very angry whereas I pushed everyone out of my life.  Well, they stayed away for a while.  After three years on dailysis, I started to fell sorry for myself.  Then after five years felling sorry for myself and not really interacting with to many people, I was thinking about killing myself. It was time for me to see a psychologist, which changed my whole attitude.... I started to accept dailysis and reunited with my friends and family and started to live again.  Now I'm more positive and have a great career and dating.  POSITIVE THOUGHTS, POSITIVE ENERGY!   

Wow! That is an amazing story! Thanks for sharing, you really are an inspiration & a fighter! Keep positive, and thanks for helping others to stay positive.

[antoine]

i did a biopsie and didn't found the reason,
the doctor was guessing "membranoproliferatif" but it wasn't that.
dunno hwo much is important to know the cause of kidneys failure, but when i knew i had 18/12 BP,
and didn't feel anything then legs cramps in the morning donno for how many months.
any ideas?