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Author Topic: 3rd tube replacement in one year.  (Read 8327 times)
MyssAnne
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« on: October 08, 2007, 08:27:43 AM »

That has got to be a record. I have to have a 3rd tube put in. The 1st tube was clogged from all the peritonitis I got the first year. This one has the first cuff showing, and I've had 2 infections at the exit site. So, both the neph and the surgeon recommend replacing it. I am not happy.  :boxing; :boxing; It's nobody's fault, but I feel so angry and upset right now.
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paddbear0000
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« Reply #1 on: October 08, 2007, 11:47:03 AM »

I'm sorry about that! I hope you get this fixed soon though! Good luck!  :grouphug;
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fluffy
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Fluff!

« Reply #2 on: October 09, 2007, 06:46:59 PM »

im getting my tube removed because of recurrent peritonitis, :( i dont mind pd, but peritomitis hurts like hell
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angela515
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« Reply #3 on: October 09, 2007, 07:05:01 PM »

Awww, so sorry hun... hopefully this one lasts awhile!  :grouphug;
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angellady07
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« Reply #4 on: October 09, 2007, 10:19:43 PM »

MyssAnne, I'm sorry you are going through so much right now. I'm sending positive thoughts your way. Take care.
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MyssAnne
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« Reply #5 on: October 10, 2007, 06:16:22 AM »

Fluffy, I had the 2nd replacement because of P 3 times in one year. Grrrr... so far, no P, but two infections on the exit site was just two too many for my neph's comfort. Of course he isn't the one going through this procedure....it was easy for HIM to say it had to be replaced!!!  :boxing; :boxing;

I called the surgeon, the EARLIEST I can even see him is the 23rd. So it's hurry up and wait.
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Amanda From OZ
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« Reply #6 on: October 10, 2007, 07:53:34 AM »

Sorry to hear you have to go through that crap.

Hope it gets better soon.  :grouphug;
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goofynina
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« Reply #7 on: October 10, 2007, 01:41:37 PM »

Let's just hope that saying "3rd ones a charm" is true :) ;)  Hope all goes well and your feeling well besides all this crap your having to deal with.  :cuddle;
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MyssAnne
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« Reply #8 on: October 10, 2007, 02:05:28 PM »

Third time had better be the charm, I can only hope!!! I called my nurse and BEGGED her to see if she could call the surgeon and get me in earlier. Sure enough, she did!! The 16th!! Hopefully I'll get the surgery that week if not the next. I'm a bit more philosophical about it. I don't like it, but I'll be cooperative. Gotta get done, right?
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donnia
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« Reply #9 on: October 10, 2007, 04:19:25 PM »

It sucks that you are going through all this.  I am sending you happy thoughts and prayers on a speedy surgery and speedy recovery! :cuddle;
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Born with one kidney 1972
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Laurie
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« Reply #10 on: October 10, 2007, 06:12:28 PM »

Good luck, I hope the tube replacement goes well  :grouphug;
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March 7, 2001 - Complications after C-section caused kidney failure
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fluffy
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Fluff!

« Reply #11 on: October 11, 2007, 09:42:12 PM »

good luck  :cuddle; and watch out for that peritonitis
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MyssAnne
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« Reply #12 on: October 23, 2007, 12:08:55 PM »

I've been so busy reading other posts, I forgot to post on this thread! I go in Thursday (25th) for my 3rd tube replacement. I'm kinda nervous, but more because of the discomfort afterwards than anything else. 
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Bajanne
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« Reply #13 on: October 23, 2007, 12:21:43 PM »

And I am so sorry I only just saw this thread.  Please be assured of my caring thoughts and prayers.  We are right there with you.  Please let us know how everything is going.
I hope everything just heals quickly and let you get back to normal (???) as soon as possible.
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MyssAnne
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« Reply #14 on: October 23, 2007, 02:01:11 PM »

Hey. I represent that remark. I am as normal as anyone else on this site. Really. Just don't ask anyone who knows me in real life. I told my kittahs I was having surgery and that I would be home ALL day with them!!! Oooo!!! They were excited. Especially Agatha. She promised she would NOT bounce on my belly this time.
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fluffy
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Fluff!

« Reply #15 on: October 23, 2007, 06:44:07 PM »

i just had my pd catheter removed today.............ow.  the surgeon did a good job and the anesthesia techs and the nurses were all super nice, so i got lucky
its just sore now, and the demerol isnt working  :D on the bright side no more peritonitis  :bandance;
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KT0930
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« Reply #16 on: October 24, 2007, 05:30:51 AM »

Myss, I just now saw this post, I'm so sorry you're having to go through this (AGAIN!!). I hope replacing your cath fixes the problem and the third time is the charm, as Nina said. Sending good thoughts your way for your surgery tomnorrow.

Fluffy, so is that the end of PD for you? I'm so sorry if it is. I dread the thought of possibly having to go to hemo someday. Hope you're feeling better after your surgery, though!
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« Reply #17 on: October 24, 2007, 08:38:32 AM »

Best wishes for your catheter replacement procedure.
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fluffy
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Fluff!

« Reply #18 on: October 24, 2007, 08:57:47 AM »

im in a bunch of pain, but its not so bad, i feel better having the whole thing over andf done with, and yeah looks like no more pd for me. and im not too fond of hemo, but im getting used to it :)
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MyssAnne
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« Reply #19 on: October 24, 2007, 09:06:04 AM »

oh man, Fluff. Did you discuss that situation elsewhere? As to why you had to switch? Can I ask why?
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goofynina
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« Reply #20 on: October 24, 2007, 05:00:01 PM »

My neph laughs at my motto, i tell her i will go homo before i go back to hemo, lol, but i know i will eventually have to go back,  :thumbdown;
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....and i think to myself, what a wonderful world....

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MyssAnne
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« Reply #21 on: October 24, 2007, 05:51:12 PM »

t.tI tell ya, Nina. two weeks this past January was enough to convince me how lucky i was to be on PD. And now another two weeks of it Oh well.  I"m trying to get myself to sleep so  I can get myself up tomorrow morning. Not working so far. I DO get to go to my fiancee's though! My nurse called and said she got me an EARLY time for my first hemo this Friday, which means my fiancee can pick me up after he gets off work in Indy!! Yay!!!
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paddbear0000
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« Reply #22 on: October 25, 2007, 08:52:55 AM »

My neph laughs at my motto, i tell her i will go homo before i go back to hemo, lol, but i know i will eventually have to go back,  :thumbdown;


:rofl; I love it!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
MyssAnne
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« Reply #23 on: October 25, 2007, 11:29:46 AM »

Update. I am typing this lying down in bed. Surprisingly enough, I am not in too much pain. Discomfort, yes. pain, not really. Of course, I am on percocet right now. My surgeon ended up making a new exit site for this tube, then put in a catheter for hemo, of course. THAT's what hurts, the most. It's in my throat, bugs the heck outta me!! I've drinking a jamocha milkshake, with no guilt, I may add!!
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angela515
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« Reply #24 on: October 25, 2007, 03:25:17 PM »

Awww.. well I am glad your not in too much pain, and your doing ok.  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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