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Author Topic: 3rd tube replacement in one year.  (Read 8326 times)
goofynina
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« Reply #25 on: October 25, 2007, 03:28:52 PM »
Good for you, i am glad you are enjoying your Jamocha Shake girlfriend, (sounds good right about now) ;)  The pain will ease up with time, take care and keep it elevated.   I am sending good thoughts and prayers your way  :2thumbsup;
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KT0930
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« Reply #26 on: October 26, 2007, 10:20:54 AM »
Anne, I'm glad the surgery went well and you're not in too much pain. I know what you mean about the hemo permcath, though. I HATE those things (I know, join the club). Anyway, glad to hear you allowed yourself a treat after a rough day. Take care of yourself and keep us posted on your progress.
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paddbear0000
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« Reply #27 on: October 26, 2007, 11:33:05 AM »
 :cuddle; :cuddle; :cuddle;
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
MyssAnne
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« Reply #28 on: October 27, 2007, 07:06:51 AM »
Well, we tried the permatcath. It would NOT work. So. I had to go to the hospital again and have another one put in, this time, under local anesthesia. OW. That hurts. Man, as of now, I'm not in pain as much as it's discomfort and a lot of spaciness too. I can't type worth a darn right now. I'm with my fiancee, then he will take me to a friend's house tomorrow so she can take care of me. I did get washed up, got that gunk off me.
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kidney4traci
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« Reply #29 on: October 27, 2007, 07:21:10 AM »
This is one time I say - take the drugs!!   :grouphug;
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Married - three children.
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MyssAnne
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« Reply #30 on: October 27, 2007, 07:24:17 AM »
so far I'm okay on tylenol!!! I do have the percocet, but thought I'd save that for traveling, especially tomorrow when Ran takes me back to Muncie. My friends ganged up on me, and have arranged me life for the next week or so. I am not allowed to be alone in my house with my kittahs. Which is just as well, really. Eating doesn't sound good. Drinking does, though. I had some chicken noodle soup, which goes down well.
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MyssAnne
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« Reply #31 on: November 08, 2007, 10:38:14 AM »
AAARRRRGH!!! I was to have seen the surgeon to be cleared so I could use my pd catheter AND go back to work. Nope. He has  emergency surgery and cannot see me til the 15th. I have to continue with hemodialysis AND am NOT allowed to go back to work without that slip. I HATE this. I HATE it.  I HATE hemodialysis. I feel horrible, I feel sick, this stupid catheter is so uncomfortable and I cannot get comfortable lying down OR sitting up.  I can't eat, I don't want to, I want my life back!!!!

Okay. My temper tantrum is over.  :rant;
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paddbear0000
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« Reply #32 on: November 08, 2007, 10:52:29 AM »
I'm sorry! I know how you feel. I had to reschedule my appointment with my nephro the other day and now they can't see me until mid January! I hope things improve for you soon.  :cuddle;
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
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« Reply #33 on: November 08, 2007, 11:03:42 AM »
Quote from: MyssAnne on November 08, 2007, 10:38:14 AM
AAARRRRGH!!! I was to have seen the surgeon to be cleared so I could use my pd catheter AND go back to work. Nope. He has  emergency surgery and cannot see me til the 15th. I have to continue with hemodialysis AND am NOT allowed to go back to work without that slip. I HATE this. I HATE it.  I HATE hemodialysis. I feel horrible, I feel sick, this stupid catheter is so uncomfortable and I cannot get comfortable lying down OR sitting up.  I can't eat, I don't want to, I want my life back!!!!

Okay. My temper tantrum is over.  :rant;

Take care MyssAnne  :cuddle;
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goofynina
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« Reply #34 on: November 08, 2007, 03:56:20 PM »
Thinking of you MyssAnne, i hope once you get to using your catheter and are no longer on Hemo that things will get better for you... :2thumbsup;
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angela515
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« Reply #35 on: November 08, 2007, 04:18:05 PM »
 :grouphug;
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MyssAnne
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« Reply #36 on: November 09, 2007, 11:28:49 PM »
It's Saturday morning and I haven't gone to sleep yet. I'm so wired and so sore at the same time. I DO get to go back to work,yay! However, I have to continue hemodialysis for another week til my surgeon sees me next week. Bummer.

I had a horrible time tonight. I cramped extensively for over an hour, from my feet to my knees, then my tube started hurting (weird, I know), then my hands. Man, that was miserable.  I've cramped before, but NEVER like this. I was crying, and hyperventilating, it hurt so much.

Now I can't sleep. I'm tired, but I just can't go to sleep. I hate this.

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Joe Paul
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« Reply #37 on: November 10, 2007, 03:49:59 AM »
Sorry to hear you are having so much pain & trouble. I hope you can get some rest  :grouphug;
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"The history of discovery is completed by those who don't follow rules"
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goofynina
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« Reply #38 on: November 10, 2007, 03:09:30 PM »
Quote from: MyssAnne on November 09, 2007, 11:28:49 PM
It's Saturday morning and I haven't gone to sleep yet. I'm so wired and so sore at the same time. I DO get to go back to work,yay! However, I have to continue hemodialysis for another week til my surgeon sees me next week. Bummer.

I had a horrible time tonight. I cramped extensively for over an hour, from my feet to my knees, then my tube started hurting (weird, I know), then my hands. Man, that was miserable.  I've cramped before, but NEVER like this. I was crying, and hyperventilating, it hurt so much.

Now I can't sleep. I'm tired, but I just can't go to sleep. I hate this.



MyssAnne, i have been keeping a bottle of Gatorade by my bed (for them damn cramps that only seem to come when i am in the deepest sleep)  >:(   But if and when i get them i just take a big swig of Gatorade, give it a minute and it goes away, just a suggestion, hope it helps  :thumbup;
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MyssAnne
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« Reply #39 on: November 10, 2007, 09:38:43 PM »
Nina, only problem....I was at clinic, darn it. I have gatorade by my bed too, swear by it!!! I'm thinking of taking a bottle with me to hemo next week though. man, that hurt. worse than I've ever had it before.
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Amanda From OZ
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« Reply #40 on: November 11, 2007, 04:39:44 AM »
Sorry to hear abour your troubles.. Hope things improve.  :cuddle;

Amanda
xxoo
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thegrammalady
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« Reply #41 on: November 11, 2007, 04:51:07 AM »
just found this thread. have know idea how i miss things, but i do.

hopefully by now things are going a bit better for you. sorry to hear you've had so much trouble.
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