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Author Topic: Waitinglists and solutions  (Read 4843 times)
cassandra
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When all else fails run in circles, shout loudly
« on: April 08, 2018, 12:42:06 AM »
 
 http://www.thelancet.com/pdfs/journals/langas/PIIS2468-1253(17)30037-7.pdf
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: April 08, 2018, 12:49:37 AM »
And


  http://www.bbc.co.uk/news/health-41199918
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Simon Dog
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« Reply #2 on: April 08, 2018, 07:20:04 AM »
I like the Israeli system the article mentions - higher priority on the list if you are a donor.   The US has this as well, but only if you have already donated.
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LorinnPKD
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« Reply #3 on: April 09, 2018, 12:11:01 PM »
With PKD, we're not able to donate anything at all.  I tried to donate bone marrow years ago but was rejected.

If I could have donated anything, I'd have been first in line. 
« Last Edit: April 10, 2018, 10:59:43 AM by LorinnPKD » Logged
kristina
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« Reply #4 on: April 09, 2018, 12:53:48 PM »
Quote from: Simon Dog on April 08, 2018, 07:20:04 AM
I like the Israeli system the article mentions ...

... An acquaintance of mine told me that there are serious problems with kidney donations because of religious reasons ... ?
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Simon Dog
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« Reply #5 on: April 09, 2018, 01:00:41 PM »
Quote from: kristina on April 09, 2018, 12:53:48 PM
Quote from: Simon Dog on April 08, 2018, 07:20:04 AM
I like the Israeli system the article mentions ...

... An acquaintance of mine told me that there are serious problems with kidney donations because of religious reasons ... ?
I was referring to the Israeli practice in which listing oneself as a donor is of benefit to you in the allocation process if you ever need an organ.

It is unfortunate that people in the US who are adamantly against donation get treated identically on the waiting list than those of us who have listed ourselves as organ donors ever since becoming of legal age.    And doubly offensive that non-citizens get treated identically on the waitlist.
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iolaire
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« Reply #6 on: April 09, 2018, 02:29:35 PM »
Quote from: kristina on April 09, 2018, 12:53:48 PM
Quote from: Simon Dog on April 08, 2018, 07:20:04 AM
I like the Israeli system the article mentions ...

... An acquaintance of mine told me that there are serious problems with kidney donations because of religious reasons ... ?
In Japan religious belief a serious problem with donation.  I don’t know if it’s on the Buddhist or Shinto belief.  I think the one Hospital I was looking at in either Tokyo or Kyoto did under 15 transplants in a year.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
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