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Author Topic: Question about permcath removal  (Read 11993 times)
Kayholio
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« on: October 26, 2011, 07:27:12 AM »
I'm getting my permcath out this Friday(yay!). My question is, when they remove it..do they give you anything so you don't feel it? I've heard they just pull it out..so what do they do?..cause I don't want to feel it hurt or anything :/
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December '99 : Diagnosed with kidney disease
September 15th '11 : Went into stage 5 ESRD
September 19th : Started hemo with permacath, PD cath inserted
September 28th : Started manual PD
November 9th '11: Started PD on cycler
Cordelia
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« Reply #1 on: October 26, 2011, 07:39:54 AM »
I'll likely be having mine removed in the next couple of months too myself. I have wondered that also and asked others who have had it removed and everyone I asked said it was no big deal that it didn't hurt. Sounded like from the nurses I asked that it doesn't really hurt either. I have reservations on the comments I heard though because having mine 'put in' hurt like hell, it was awful, so I HOPE that my removal doesn't hurt, but at the same time, I wouldn't be surprised if it did hurt-if that makes any sense    :rofl;       :P
« Last Edit: October 26, 2011, 07:56:34 AM by Cordelia » Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Rerun
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« Reply #2 on: October 26, 2011, 08:02:11 AM »
For mine they put some lidocane shots around the neck of it and then just yank it out and put pressure for about 10 minutes.  They bandage it and tell you to wait 24 hours before you shower.  When you take the bandage off it is just this little spot that has to heal.

Any thing medical is traumatic for me so this is something I hate to have done but it is over in a quick minute.

Then you will swear to the high heaveans they will never put another one of those in you ever ever again.    :P
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mcclane
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« Reply #3 on: October 26, 2011, 08:38:57 AM »
mine is coming out wednesday. 

i hope to dear god they don't keep me for 4 hours after for observation.  not only will i miss breakfast/lunch, i'm going to be very hungry by the time i get home.

I'm kinda torn though, i liked how the central line is easy to hook up, but looks god awful.
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Cordelia
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« Reply #4 on: October 26, 2011, 09:26:47 AM »
I will likely be thinking the same thing, Rerun, Hopefully I'll never need another one ever again! LOL! 

Mcclane, hope your removal goes smoothly and quick!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Kayholio
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« Reply #5 on: October 26, 2011, 09:37:05 AM »
Yeah, my PD nurse told me that they just yank it out, and I'm like.."uhhh, but it's right in my neck?" D:
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December '99 : Diagnosed with kidney disease
September 15th '11 : Went into stage 5 ESRD
September 19th : Started hemo with permacath, PD cath inserted
September 28th : Started manual PD
November 9th '11: Started PD on cycler
Cordelia
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« Reply #6 on: October 26, 2011, 09:59:16 AM »
Yeah, the 'yanking' part is exactly what one of my nurses told me.....rather nonchalantly too    ???

"Yanking" sounds awful....and painful   :(
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
jeannea
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« Reply #7 on: October 26, 2011, 10:10:03 AM »
I had mine out. They gave me local anasthetic. I did not feel pain although there was some uncomfortableness. It took less time than I thought and everyone was really nice to me. You'll be ok.
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CebuShan
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« Reply #8 on: October 26, 2011, 10:13:17 AM »
I had mine taken out 1 year to the day that it was put in. I was hoping/fearing they would put me out so I wouldn't feel anything. They did not use any painkiller before; they just counted to 3 and pulled. I am a total coward when it comes to pain so believe me when I say that getting it put in HURT but getting it out was nothing! It felt weird but NO PAIN! When my 24 hours was up, I stood under the shower until the hot water was gone! Good Luck! Hope it goes as smoothly for all of you as it did for me. It's about the only thing that has gone smoothly for me!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
Arcticat2000
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« Reply #9 on: October 26, 2011, 10:36:13 AM »
My experience was exactly like jeannea's.  It'll be over before ya know it.
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ESRD diagnosed June 2003
Dialysis begins July 2003
Nocturnal Dialysis since Aug.2005-present
3 nights per week @ 7hrs per session
Heart bypass surgery Nov.2007 w artificial valve
Subeat
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« Reply #10 on: October 26, 2011, 11:02:50 AM »
Y'all are making me feel a lot better about this.  Hopefully, mine will come out in a couple of months.  Though I'm dreading the needles, it will be nice to not have to worry about it anymore...and to take a real SHOWER.
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cariad
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« Reply #11 on: October 26, 2011, 12:16:12 PM »
Mine was removed during transplant, so one less thing to worry about.

Gwyn says his untunneled neck line did not hurt at all when it was removed. The nurse told him to breathe in and he also agrees that it felt weird, but not at all painful. They had to press on it for about 10 minutes straight, which I think they warned him might hurt, but he says it did not. I cannot even see his scar, nor mine for that matter, and mine was the tunneled variety.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Cordelia
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« Reply #12 on: October 26, 2011, 12:33:21 PM »
Perhaps I should think of it just the same as my neck line removal was, it didn't hurt either. I actually don't even remember specifically when it was removed, so it couldn't have bothered me that bad.   :P    I had forgotten about that all together. I think sometimes the hospitals, when you require medications, there's some kind of forgetting agent in some medications, because my mind is fuzzy trying to remember how it went.
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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« Reply #13 on: October 26, 2011, 01:41:10 PM »
Mine is tunneled a good 2+ inches under the skin on my chest, and it's been in for a year and a half (I know, I know) so it's healed up pretty good. I dread having it out, and I really hope it'll be more than just some local anesthetic and cut-and-yank. It seems like quite an angle to follow where it enters my jugular.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Cordelia
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« Reply #14 on: October 26, 2011, 02:45:57 PM »
My line is 15 months old. I'm concerned too because when mine went in, they said my skin was 'tough' that was why it 'hurt so much even with a local. It was a nightmare. Mine didn't take the 'first' time....I was a guinea pig for a new type of lumen and it didn't work so in I went for a second round. It was sheer hell and I hope to God I never, ever have to go thru it again. 10 years would be too soon, I say.......mine is healed up pretty good also.....my jugular vein really shows, it's very visible.
Logged
Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
sullidog
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« Reply #15 on: October 26, 2011, 05:37:57 PM »
first they tried just pulling on it, although it didn't hurt the guy decided to give me a local because he was going to have to cut cause it was in there so good.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Kayholio
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« Reply #16 on: October 26, 2011, 07:20:58 PM »
Ah, I see..well hopefully mine doesn't hurt that much. I can't take pain all that well. Thanks for all the repllies :)
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December '99 : Diagnosed with kidney disease
September 15th '11 : Went into stage 5 ESRD
September 19th : Started hemo with permacath, PD cath inserted
September 28th : Started manual PD
November 9th '11: Started PD on cycler
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« Reply #17 on: October 26, 2011, 07:34:13 PM »
I don't even know what mine felt like when they put it in - I was under general anesthesia because they took out my PD cath at the same time.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
HILINE
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« Reply #18 on: October 27, 2011, 01:51:36 AM »
I had 1 removed in the doctors office, he just pulled it out, no issues :2thumbsup;
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Riki
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« Reply #19 on: October 27, 2011, 06:53:06 AM »
Mine was in for a year and a half.  I had it taken out at the ER by my neph last June.  They didn't want to do it at the dialysis unit in case there was some kind of complication, but all went fine. I don't remember if he gave me any freezing, but I think he did, cuz I think there was a bit of cutting done, and I remember the pulling.  There was one stitch put in.  I have a scar now that looks like a belly button
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Restorer
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« Reply #20 on: October 27, 2011, 10:58:11 AM »
Oh great, more belly buttons.  :rofl; I already have an extra belly button from where my PD catheter was. A belly button on my chest will be even weirder.
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Riki
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« Reply #21 on: October 27, 2011, 10:59:08 AM »
Quote from: Restorer on October 27, 2011, 10:58:11 AM
Oh great, more belly buttons.  :rofl; I already have an extra belly button from where my PD catheter was. A belly button on my chest will be even weirder.

I have a couple of those too
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
cariad
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« Reply #22 on: October 27, 2011, 11:22:02 AM »
Quote from: Riki on October 27, 2011, 10:59:08 AM
Quote from: Restorer on October 27, 2011, 10:58:11 AM
Oh great, more belly buttons.  :rofl; I already have an extra belly button from where my PD catheter was. A belly button on my chest will be even weirder.

I have a couple of those too
Wasn't jbeany in need of a belly button?

Share the wealth, kids!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Riki
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« Reply #23 on: October 27, 2011, 11:43:23 AM »
I think she has one now, doesn't she?  And I'm not sure if a belly button just above your breast is what you want.. *LOL*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Sax-O-Trix
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« Reply #24 on: October 27, 2011, 12:55:09 PM »
Having the line itself taken out didn't hurt, you just hold your breath and they pull it out.  I had a band-aid afterwards:)
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Preemptive transplant recipient, living donor (brother)- March 2011
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