So, how do ordinary patients like me contact Dr. Blagg for ideas on how to spread the mantra of optimal dialysis to our own neph or to our own Congressman? Would he have the time to be the go to guy for all of us who want our voices heard? Does he have any ideas on how we can rid the dialysis profession of the 3x4hr mindset? How do we move Seattle to Chicago, Houston, Boston, Miami and all points in-between? Tell me what MooseMom can do right here, today to get the message to those who have the power. I'm tired of preaching to the choir.
Well you know, Hemodoc, I have to say that I was having difficulty recognizing the existence of any fundamental disagreement in terms of the benefits of optimal dialysis. Despite hearing many voices, I seemed to be hearing the same basic things, so I have not been particularly pessimistic. The basic agreement that more dialysis is better dialysis gives us the foundation from which we can direct our focus. As I've said before, there seems to be a rather lot of preaching to the choir, and I'd like to bring more people into the concert.Thank you for explaining that we do not need to invent the wheel. If I am correctly interpreting your post (I have a dreadful cold and am finding it hard to wrap my head around anything harder than a pillow), we need to patiently explain to those who control funding that said wheel needs inspection to make sure it carries patients to Optimal Dialysisville and not to the hospital. The wheel is there; we just have to ensure that it is moving quickly to the correct destination.
Instinct tells me you are right, and that's why I want to write to my US representative not as a "professional advocate" affiliated with a large, well-oiled organization but, rather, as a regular constituent who saw dialysis offered "non-optimally" to my mom and wants better treatment for herself. I highly doubt that my new rep knows anything at all about dialysis, so if I can educate him from the ground up, he may become an ally for all I know. You don't know unless you try.Sometimes it is easier to call folks to action with a battle cry founded in pessimism and urgency. If you are told that things are actually looking up, there may be that fear that you won't get off your duff and add your voice. Perhaps that is why there is this impression you've gotten that some feel we are doomed unless we all come together and say the same thing through only one conduit.LOL@Zach. We can all be insurgents.