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Rare Kidney Disease Foundation
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SooMK
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0
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891
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January 30, 2023, 01:18:32 PM
by SooMK
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Sign Petition- US House of Reps: H.R.3976--Dialysis Help
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kickingandscreaming
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3
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3862
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April 13, 2018, 09:21:54 AM
by iolaire
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Public Comment: Deceased donor initiated KPD chains
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okarol
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0
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2557
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August 11, 2017, 11:47:15 PM
by okarol
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Anyone PERSONALLY know anyone in advocacy in San Francisco area?
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CW
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1
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2679
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January 15, 2017, 12:26:08 PM
by Michael Murphy
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House GOP eyeing major Medicare overhaul in 2017
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Bill Peckham
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21
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7729
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December 14, 2016, 05:44:36 PM
by Simon Dog
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Patients influencing quality of care
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hatedialysis2
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10
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5934
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May 16, 2016, 05:11:25 PM
by Simon Dog
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Announcement: 10th ANNUAL CKD/ESRD Patient Education & Awards Luncheon in NYC
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SugarBear
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1
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2793
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October 28, 2015, 05:19:39 PM
by Zach
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AAKP's 41st Annual Meeting Sept. 25-27 in Nashville
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noahvale
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4
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3214
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September 15, 2015, 05:16:08 AM
by noahvale
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You can provide input into the development of new devices for kidney patients
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Zach
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0
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2894
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August 07, 2015, 11:19:46 AM
by Zach
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Understanding Patients’ Preferences: Stimulating Medical Device Development
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Zach
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0
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2869
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June 15, 2015, 07:28:23 PM
by Zach
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Where is the research advocacy?
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Bill Peckham
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16
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10022
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April 23, 2015, 08:53:14 PM
by PrimeTimer
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Have an Impact: U.S. Dialysis Center Standards Up for Revision
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Zach
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5
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5009
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April 13, 2015, 06:15:53 AM
by Zach
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*** Webinar on Latest Dialysis Practice Monitor Data ***
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Zach
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2
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5346
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April 13, 2015, 06:08:27 AM
by Zach
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Call to Action via NKF re proposed Commisioning. Act Now
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JW77
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9
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5861
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January 29, 2015, 02:30:51 PM
by okarol
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Home Dialyzors United, Indiana University Team Up to Present “The Road Home”
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Zach
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0
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3309
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August 31, 2014, 06:01:13 PM
by Zach
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HELP: Pushing My Gov to Allow the Concept of [WAITING-LIST]
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nsdq
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2
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3255
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July 07, 2014, 10:41:30 AM
by SooMK
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the nerve of people mistreating the elderly patients, amoung others...
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gothiclovemonkey
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9
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6038
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May 16, 2014, 06:50:14 PM
by Charlie B53
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How can I help
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stuman413
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2
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3760
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January 29, 2014, 01:50:42 PM
by cassandra
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*** August 19, 2013 Deadline for ESRD Patient Comments on Quality Care ***
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Zach
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0
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4049
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August 11, 2013, 05:11:01 AM
by Zach
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Please support lifetime Medicare Coverage for transplant drugs
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noahvale
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8
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9756
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April 10, 2013, 07:39:35 PM
by Bill Peckham
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Obama cuts to Medicare
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Whamo
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14
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8759
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April 06, 2013, 06:51:04 PM
by Bill Peckham
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S 323 and H.R. 1325 should not be supported
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Bill Peckham
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5
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6171
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March 31, 2013, 06:25:12 PM
by Speedy1wrc
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Living Kidney Donation and Sharing Your Story (Free Talk)
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EndPKD
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0
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4000
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March 08, 2013, 05:59:44 PM
by EndPKD
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It's always either cops or cancer
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MooseMom
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3
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4682
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January 05, 2013, 06:17:36 PM
by boswife
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Kidney Patients & Physicians Team-Up for Hill Day Visits
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Zach
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1
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5238
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December 22, 2012, 07:02:01 AM
by Dgayle
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RSN bracelets honoring our Okarol!
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MooseMom
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6
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6974
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November 05, 2012, 01:40:24 AM
by natnnnat
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ProPublica launches a new patient safety section
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okarol
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0
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5001
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September 24, 2012, 01:24:23 AM
by okarol
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Join AAKP at its 39th Annual Patient Meeting August 9-11, 2012 in Atlanta, GA!
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Zach
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3
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6052
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August 03, 2012, 10:22:52 AM
by noahvale
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Outdated or no?
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MooseMom
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11
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8205
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May 12, 2012, 05:43:05 PM
by MooseMom
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Which charity to donate to?
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cattlekid
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11
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9190
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May 12, 2012, 11:04:50 AM
by smcd23
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New blog post from DaVita CMO on quality of life
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cattlekid
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5
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6653
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May 09, 2012, 08:01:40 PM
by dialysisadvocate
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Questions
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dialysisadvocate
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15
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8524
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May 09, 2012, 07:50:48 PM
by dialysisadvocate
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AHA proposed Meaningful Use Stage 2: a month to provide hospital discharge info
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natnnnat
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0
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5422
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May 02, 2012, 08:50:45 PM
by natnnnat
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DSEN: Deeply confused New York Times article is a disservice to dialyzors
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Zach
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5
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7696
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April 27, 2012, 12:39:00 PM
by MomoMcSleepy
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OPTN: Public comment is needed on these current proposals
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okarol
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0
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5705
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March 16, 2012, 11:13:41 AM
by okarol
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March is National Kidney Month
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Zach
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1
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6137
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March 02, 2012, 09:12:10 AM
by Rerun
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Panel discussion about Dialysis Sept. 4, 2011 - Hamilton, ON, Canada
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EndPKD
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2
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6818
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February 27, 2012, 05:22:00 PM
by EndPKD
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Adventures on E-bay (yes, this is advocacy!)
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Meinuk
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5
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8828
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January 05, 2012, 05:51:49 AM
by Meinuk
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UNOS: Policy Proposals Issued for Public Comment
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okarol
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0
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6619
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September 24, 2011, 02:50:48 PM
by okarol
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QIP should establish a new CPM: Hgb +/- 10% of MCP Physician target Hgb
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Bill Peckham
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0
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6494
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August 28, 2011, 06:25:59 PM
by Bill Peckham
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2nd Annual NxStageUsers Meet-Up and Conference
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M3Riddler
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0
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6315
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August 20, 2011, 02:13:13 PM
by M3Riddler
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Transplant Recipients International Organization
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rsudock
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0
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6560
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June 26, 2011, 11:27:45 AM
by rsudock
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Free lapel pins - organ donation - April is National Donate Life Month
« 1 2 »
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okarol
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42
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35515
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June 08, 2011, 12:08:05 PM
by okarol
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Philadelphia, Detroit and Washington, D.C. Free Lunch & Learn Seminar
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okarol
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0
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6981
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April 28, 2011, 08:53:48 AM
by okarol
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NxStageUsers Announces 2nd Annual Meet-Up and Conference
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M3Riddler
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0
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6275
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April 12, 2011, 06:57:03 PM
by M3Riddler
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QUESTIONS FOR THE CONGRESSMAN
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MooseMom
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8
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9581
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March 18, 2011, 10:35:29 PM
by okarol
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Are you looking for ways to educate others about kidney disease?
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okarol
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3
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7429
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February 01, 2011, 11:56:16 PM
by okarol
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A California dialysis tech training school: Whats good and bad about people?
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okarol
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0
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7903
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January 14, 2011, 11:09:56 PM
by okarol
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**Dial In for Dialysis Info**
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Zach
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0
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6175
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January 14, 2011, 07:42:40 AM
by Zach
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"A unified approach"
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MooseMom
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10
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9905
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January 06, 2011, 07:45:13 PM
by MooseMom
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My homework assignment RE: Etta's Gift
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jbeany
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5
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7083
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December 20, 2010, 08:37:29 PM
by kellyt
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Etta's Gift Business Card
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kellyt
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2
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6207
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December 20, 2010, 06:08:41 PM
by jbeany
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Nominations for 2011 AAKP Medal of Excellence Award Being Accepted
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okarol
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0
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6206
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October 16, 2010, 08:02:57 PM
by okarol
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Are you on the road to transplant?
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natlarson
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4
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7546
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October 12, 2010, 05:39:36 PM
by MooseMom
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Is this naughty?
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MooseMom
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10
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8744
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October 11, 2010, 10:43:29 PM
by okarol
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Who needs the help more? Opinions please...
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kellyt
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10
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8337
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September 18, 2010, 06:54:39 AM
by kellyt
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OPTN/UNOS Nominating Committee Seeks Board Nominations
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okarol
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0
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6444
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September 10, 2010, 05:05:49 PM
by okarol
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Advocate for Kidney Patients - Join AKF’s Advocacy Network
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okarol
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0
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6591
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September 02, 2010, 08:03:23 AM
by okarol
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Informed consent
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natnnnat
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4
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9034
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July 08, 2010, 07:59:31 PM
by cariad
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Passive Advocay
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Meinuk
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11
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10108
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June 21, 2010, 10:38:15 PM
by natnnnat
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When did the NKF become the National Transplant Foundation?
« 1 2 »
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Meinuk
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33
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22007
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June 10, 2010, 06:45:16 AM
by Meinuk
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Free Seminar in NYC: The Shortage of Available Organs and Public Health Policy
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okarol
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4
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7331
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April 29, 2010, 05:02:46 PM
by Meinuk
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World Kidney Day 2010
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okarol
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2
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6841
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March 01, 2010, 12:54:12 PM
by okarol
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DC Diary: Bringing Kidney Disease to Capitol Hill
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Meinuk
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1
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7188
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February 17, 2010, 07:04:32 PM
by paris
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Open Door Forum Panel - development of new quality measures for ESRD
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okarol
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0
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6885
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February 05, 2010, 06:50:08 PM
by okarol
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expectations and reassurances re stem cell benefits
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Everlasting
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4
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7779
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January 04, 2010, 12:03:24 PM
by CCStan
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Emergency Contact Information
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willowtreewren
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0
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7119
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December 17, 2009, 12:40:44 PM
by willowtreewren
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Getting hemodialysis unit in your own town
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littlesister
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3
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6925
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November 18, 2009, 01:17:21 PM
by Hanify
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meeting the costs of stem cell therapy
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Everlasting
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0
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6550
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November 16, 2009, 04:13:50 PM
by Everlasting
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Home Dialysis Actin Plan for Bundling
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M3Riddler
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0
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6618
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October 28, 2009, 09:32:10 PM
by M3Riddler
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perseverence - donor searching
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Everlasting
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4
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7520
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October 22, 2009, 06:36:16 PM
by okarol
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Organ donors and health insurance - fact or spam??
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okarol
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2
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7006
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October 21, 2009, 05:44:15 AM
by tyefly
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OPTN/UNOS Policy Proposals Distributed for Public Comment
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okarol
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1
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6911
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October 15, 2009, 03:34:14 PM
by Sunny
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Your support and loving kindness
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Everlasting
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3
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7164
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September 26, 2009, 12:32:14 PM
by thegrammalady
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Help! a stroke has entered the picture!
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Everlasting
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7
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8109
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September 18, 2009, 05:28:07 PM
by Bill Peckham
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OPTN/UNOS meetings are open to the public
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okarol
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1
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6596
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September 11, 2009, 11:26:51 PM
by Chris
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NKF: Get Ready for an Emergency
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okarol
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1
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6744
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September 03, 2009, 05:32:33 PM
by Rerun
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financially supported airfares for out of province/country treatments
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Everlasting
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1
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6740
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August 21, 2009, 03:11:12 AM
by kimcanada
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look at my new license plate!
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xtrememoosetrax
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22
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14462
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August 18, 2009, 12:16:51 PM
by paris
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FREE HDC Webinar: Treatment Options & Informed Consent
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M3Riddler
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0
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6962
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August 12, 2009, 09:43:32 PM
by M3Riddler
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Keeping a relationship strong while dealing with kidney transplant issues
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Everlasting
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7
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9918
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August 12, 2009, 06:35:33 PM
by kellyt
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cell phones and sense of well-being
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Everlasting
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0
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6539
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August 11, 2009, 10:28:27 AM
by Everlasting
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UNOS public comments accepted until Sept. 14, 2009
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okarol
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1
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6971
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August 03, 2009, 12:16:08 AM
by Chris
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No dialysis in local hospital
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wahoozer
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14
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9607
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August 01, 2009, 05:43:56 PM
by Hanify
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I need help really bad
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kidneyless_In_PA
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7
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8801
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August 01, 2009, 12:26:26 PM
by kidneyless_In_PA
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establishing an informal support group
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Everlasting
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3
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7566
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July 31, 2009, 10:17:44 AM
by peleroja
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Please sign a petition to support me and others on dialysis
« 1 2 3 »
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Bill Peckham
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56
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34474
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July 22, 2009, 12:13:02 AM
by Hanify
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Speech to social workers for home dialysis advocacy
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Adam_W
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5
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8437
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July 14, 2009, 06:18:58 PM
by David13
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Ask your Representative to Extend Immunosuppressive Drug Coverage
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okarol
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8
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9257
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June 20, 2009, 04:39:59 PM
by TiffanyJean
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Terrible YouTube video series - what should be done? Anything?
« 1 2 »
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Bill Peckham
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33
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32742
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April 22, 2009, 08:17:45 PM
by Zach
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Immunosuppressive Drug Coverage Legislation Introduced
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okarol
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2
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7214
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April 06, 2009, 10:07:07 PM
by Rerun
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Tell Your Elected Officials to Co-Sponsor the Immunosuppressive Drug Bill!
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okarol
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2
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7060
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March 31, 2009, 12:25:18 PM
by paul.karen
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SSI for children with ESRD
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willieandwinnie
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0
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7071
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March 28, 2009, 11:43:13 AM
by willieandwinnie
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research for BK Polyoma Virus cure
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cmazure
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3
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9319
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March 24, 2009, 06:52:49 AM
by Zach
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World Kidney Day - videos found on the internet
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okarol
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1
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7026
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March 16, 2009, 05:41:56 PM
by Sluff
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Let's find another avenue to pay our BILLS!!!
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Rerun
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6
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9559
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March 14, 2009, 07:16:25 PM
by Rerun
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March 2009 PKD E-News: Today is World Kidney Day!
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okarol
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0
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6836
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March 12, 2009, 02:31:30 PM
by okarol
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Join George Lopez and his celebrity friends
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okarol
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0
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6970
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March 10, 2009, 01:09:45 PM
by okarol
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A Letter to President Barack Obama - The Ten Point Plan: Renal Patient’s View
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okarol
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5
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8817
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March 09, 2009, 11:18:58 AM
by Bill Peckham
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*** The Power of People Like Us -- Be Your Own Best Advocate ***
|
Zach
|
1
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6976
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March 02, 2009, 09:43:51 AM
by okarol
|
I Hate Dialysis Message Board
Topic you have posted in
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