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Author Topic: Jenna and The Brave Little Kidney  (Read 17443 times)
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #50 on: August 31, 2010, 12:34:21 PM »
Excellent news Karol. Sending you and Jenna love and best wishes :cuddle;
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Ken
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« Reply #51 on: August 31, 2010, 10:42:05 PM »
What a trooper. I hope Jenna continues to do well. Good luck to all of you.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #52 on: September 24, 2010, 08:55:39 PM »
 :thumbup; Jenna saw her nephrologist today and once again her lab numbers are steady! Her creatinine is at 3.21, slightly lower than last month. The Brave Little Kidney is hanging tough and still working like a champ! It's been 8 months since rejection knocked out some of it's function, but she's feeling great, her numbers are good and we are so very grateful! Also very thankful for her donor Patrice, who is a triathlete and marathon runner and there's no doubt in my mind that she gave Jenna one tough little bean!  :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MooseMom
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« Reply #53 on: September 24, 2010, 09:01:07 PM »
I think I had a dream about Jenna last night because I woke up this morning wondering how she was doing, and voila!  Here's an update on her brave little kidney.  That' absolutely fabulous news; I am sure you all heaved a huge sigh of relief!  How wonderful.  Oh, I am so happy for you, Jenna and the whole family!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Sluff
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« Reply #54 on: September 27, 2010, 02:56:30 PM »
So glad the Dr visit went well. Did Jenna name her kidney?
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #55 on: September 27, 2010, 02:59:45 PM »
Quote from: Sluff on September 27, 2010, 02:56:30 PM
So glad the Dr visit went well. Did Jenna name her kidney?

No she never did.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!
« Reply #56 on: September 27, 2010, 04:12:20 PM »
 :bandance; :bandance;
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www.caringbridge.org/visit/ottomachado
BASSMAN
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« Reply #57 on: September 27, 2010, 05:30:16 PM »
Quote from: Sluff on September 27, 2010, 02:56:30 PM
So glad the Dr visit went well. Did Jenna name her kidney?

I like "Brave Little Kidney".
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #58 on: September 27, 2010, 09:07:08 PM »
The labs slip was faxed over today and it shows Jenna's creatinine is actually 3.15 - yeah, I know - not much difference statistically but that's the lowest it has been since she returned from Paris. Her GFR is 18, hemoglobin 11 and tacrolimus is good!   :beer1;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
ChickenLittle56
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Chickenlittle and Maria
« Reply #59 on: September 27, 2010, 09:38:57 PM »
More great news :2thumbsup; :2thumbsup; Continue to keep us posted. I love good news.
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
harley08
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« Reply #60 on: September 28, 2010, 05:59:26 AM »
Karol and Jenna- This is such great news, I am so sorry I have not been around much lately but sometimes all the bad new takes toll and I have to take a break for awhile, this is such good news I had to join in and say how happy this makes me feel. So glad Jenna is doing better and getting good news, it will brighten her spirits and help her keep to the brighter side of things.... good luck and stay doing whatever it is that you do to make that magic continue to work.  :yahoo; :grouphug;
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RichardMEL
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« Reply #61 on: September 28, 2010, 06:58:01 PM »
It's funny but there's a nurse at my unit who calls me "Sir Richard the Brave" (no idea why) and whenever he says it I think about Jenna's Brave Little Kidney (hey any excuse to think about a beautiful young lady, right?  >:D). I'm just so happy for her that it's struggling along keeping its head above water (that's a poor pun I know) and keeping her away from dialysis for now. I know it's not what any of you wanted, but it's much better than it could be, and hopefully keeping to the meds and everything being well it can stay stable for a long time!

 :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Zach
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"Still crazy after all these years."
« Reply #62 on: September 30, 2010, 09:41:06 AM »
 :beer1; :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Bajanne
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« Reply #63 on: September 30, 2010, 12:01:21 PM »
This is absolutely great!  My caring thoughts continue to be with Jenna, and you Karol!
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I LOVE  my IHD family! :grouphug;
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #64 on: November 15, 2010, 05:47:56 PM »
Jenna has had a blood pressure reading of around 140/100 for the last 2 weeks. Nephrologist is adding Amlodipine (Norvasc) to her pill regimen. She still feels good and her kidney is stable at GFR 18.

 :pray;
« Last Edit: November 15, 2010, 05:55:07 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
chook
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« Reply #65 on: November 15, 2010, 05:51:17 PM »
Sending  :pray; for the new pill to lower the bp
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
jbeany
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« Reply #66 on: November 15, 2010, 07:26:31 PM »
Go kidney, go!   :cheer:
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Lucinda
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Life is great!
« Reply #67 on: November 16, 2010, 12:14:51 PM »
Hi Karol

About five years ago a friend of mine went through a rejection period with their transplant and they also had a problem with increased blood pressure 180/125 which they also corrected with medication.  She still has the same kidney and has had no further problems with it.  She went off all her blood pressure medications about two years ago.  She is currently on safari in Africa and says she has never felt better in her life.  She is in her early 30's so hopefully it will be the same outcome for Jenna.
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RichardMEL
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« Reply #68 on: November 16, 2010, 06:23:51 PM »
Are you sure it's not a boy that's got her blood pumping that much harder?!?!  >:D >:D >:D >:D >:D
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #69 on: November 16, 2010, 06:44:32 PM »
Quote from: RichardMEL on November 16, 2010, 06:23:51 PM
Are you sure it's not a boy that's got her blood pumping that much harder?!?!  >:D >:D >:D >:D >:D

I wish it was. Experiencing kidney disease during her teen years didn't help her social life, being pretty shy already, she tends to isolate. She says she doesn't mind being alone all the time, but I wish she'd meet someone. 
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
RichardMEL
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« Reply #70 on: November 16, 2010, 06:46:34 PM »
Quote from: okarol on November 16, 2010, 06:44:32 PM
Quote from: RichardMEL on November 16, 2010, 06:23:51 PM
Are you sure it's not a boy that's got her blood pumping that much harder?!?!  >:D >:D >:D >:D >:D

I wish it was. Experiencing kidney disease during her teen years didn't help her social life, being pretty shy already, she tends to isolate. She says she doesn't mind being alone all the time, but I wish she'd meet someone.

I know I'm a bit old and all, but I know a pretty young lady when I see one... and I can relate to her kidney issues!!

Sorry Paris, AlohaBeth may have some competition for a long distance lover!!  :rofl; :rofl; :rofl; :rofl; :rofl; :rofl;

Should I call you mom now Karol?! >:D >:D >:D >:D >:D >:D
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #71 on: November 16, 2010, 07:01:13 PM »
 :o MOM???
lol
Sure, get your new bean and come on over!
Not sure how her dad will feel about it, but I'll put in a good word for ya!  :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
boswife
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us and fam easter 2013
« Reply #72 on: November 16, 2010, 07:05:21 PM »
oh my gosh RichardMel, you are soooooooo cute!! That just tickled my innerds..  :rofl;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
RichardMEL
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« Reply #73 on: November 16, 2010, 10:05:15 PM »
 :shy; :shy; :shy;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
kellyt
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« Reply #74 on: November 17, 2010, 03:42:49 PM »
Quote from: okarol on November 15, 2010, 05:47:56 PM
Jenna has had a blood pressure reading of around 140/100 for the last 2 weeks. Nephrologist is adding Amlodipine (Norvasc) to her pill regimen. She still feels good and her kidney is stable at GFR 18.

 :pray;

Norvasc was one of my BP pills pre transplant and it worked very well for me.  I hope it works for her.
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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