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Author Topic: Jenna and The Brave Little Kidney  (Read 17435 times)
MooseMom
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« Reply #25 on: July 30, 2010, 12:53:53 AM »
oh, I've just only now seen this thread.  This is just the most fantastic news!  Jenna must feel like she has a whole new life to live!  How wonderful!  The world must look so different to you now!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
sumalee
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« Reply #26 on: July 30, 2010, 01:18:14 AM »
It's great news! I am happy for you :cheer: :cheer: :cheer: :cheer: :cheer:
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found out have kidney disease 1989
start PD November 2008
On a waiting list for transplant active December 2008
KICKSTART
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« Reply #27 on: July 30, 2010, 02:38:08 AM »
Wonderful news !  :cuddle; to both of you .
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Poppylicious
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« Reply #28 on: July 30, 2010, 08:00:31 AM »
Oh, that's brilliant news!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Stacy Without An E
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God's Action Figure

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« Reply #29 on: July 30, 2010, 11:29:04 AM »
I became a little teary eyed after reading that myself.  I feel for you and Jenna with every step you take in this process.

Here's to good life and good health for both of you.
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Stacy Without An E

1st Kidney Transplant: May 1983
2nd Kidney Transplant: January 1996
3rd Kidney Transplant: Any day now.

The Adventures of Stacy Without An E
stacywithoutane.blogspot.com

Dialysis.  Two needles.  One machine.  No compassion.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #30 on: July 30, 2010, 09:45:24 PM »
Thanks everyone, I don't know how I'd cope without your fine example!

Quote from: Sluff on July 29, 2010, 04:41:27 PM
That is great news for Jenna. She was a lot more worried than she let on.  Isn't it great to get some comfort news for a change.  :2thumbsup;

You're right, she was playing it cool, trying not to freak out.
Yes, good news is really nice right now!
« Last Edit: July 30, 2010, 09:46:26 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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« Reply #31 on: July 30, 2010, 09:56:47 PM »
Many prayers have been answered.  Lord give Jenna many more years with her blessed little kidney.

              :bow;    :pray;
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Jean
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« Reply #32 on: July 31, 2010, 12:04:01 AM »
Wow, that is sooo amazing. God bless this amazing little bean and let it keep on p'in.   :yahoo; :yahoo;
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One day at a time, thats all I can do.
Mimi
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« Reply #33 on: July 31, 2010, 12:19:21 AM »
Oh my gosh what wonderful news.  Love and kisses to you both and
tell that wonderful Jenna to get up and start living her life.
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it is putting out the lamp because the dawn has come.
thegrammalady
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« Reply #34 on: July 31, 2010, 11:18:37 AM »
 :bandance; :bandance; :bandance; fantastic news
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Sax-O-Trix
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« Reply #35 on: July 31, 2010, 04:39:21 PM »
YAY!!!!  Good to hear good news :cheer:
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Preemptive transplant recipient, living donor (brother)- March 2011
del
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« Reply #36 on: July 31, 2010, 06:23:16 PM »
Wonderful news!!! :bandance; :bandance;
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BASSMAN
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« Reply #37 on: August 07, 2010, 08:20:41 AM »
That is great news indeed!!

I know I was feeling very tired at that creatinine level but it has to be better than dialysis.  I pray that the brave little kidney continues to improve!!
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Membranous Glomerulonephritis confirmed by biopsy in  April 1989
currently Stage IV CRF
GFR 18
Creatinine 3.9
AV fistula (radiocephalic) placed September 24, 2009
Began transplant evaluation November 11, 2009
Completed transplant eval and approved for transplant February 10, 2010
Received confirmation letter I am on the UNOS list February 18, 2010
Wife began donor testing March 1, 2010
Received living donor preemptive transplant from spouse July 22, 2010

http://www.caringbridge.org/visit/phillipjohnsen
MyssAnne
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« Reply #38 on: August 08, 2010, 05:41:56 AM »
Wonderful news!!! Poor kid, to be worrying so!  Brave mom!! Now you two can get on with your lives, and LIVE!
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Romona
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« Reply #39 on: August 08, 2010, 02:09:53 PM »
Wonderful news!  :2thumbsup;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #40 on: August 27, 2010, 05:20:03 AM »
Last Sunday Jenna and I attended the Renal Support Network's monthly support group meeting in Glendale. This time it was a picnic at the park - it was really fun - blazing hot temperatures but lots of shade and water balloons. Renal friendly food and and nice folks made it nice - Jenna actually spoke to another young woman close to her age who is on dialysis.  :2thumbsup;

On Wed. we went down to La Jolla to see the transplant team for the every-other-month check up (since the rejection episode) which is different than the local nephrologist (also seeing him on alternating months.) We met with the transplant surgeon, which seemed confusing to him, he thought we would see their neph, but it actually turned out to be interesting. Doc looked over her labs - GFR at 18 and creatinine at 3.2 - and he said things were looking pretty good. I asked what he thought about staying at the same creatinine for 7 months and he said "It's puzzling." He could not explain it, but said to keep up what she's been doing. Finally got the immunos worked out, she's been up and down with the Prograf too low and Cellcept too high - the Cellcept tablets are 1000 mg and Jenna has to cut them in quarters to take a small enough dose.
This Brave Little Kidney is still running the marathon - no telling for how long, but for today things are very good!
 :yahoo;
 
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
thegrammalady
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« Reply #41 on: August 27, 2010, 08:48:50 AM »
i just love a good report
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
ChickenLittle56
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Chickenlittle and Maria
« Reply #42 on: August 27, 2010, 10:44:22 AM »
I hope Jenna continues to get good report for years to come. :bandance; :bandance; :bandance; :yahoo; :yahoo;
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As I was coming out the Nephrologist office, I thought the sky was falling.
Knew I was going on dialysis since November 1999.
Had a fistula put in January 2000.
Been on 4-1/2 hour dialysis since August 28, 2001. (They took out 35Kg that single week)

Maria hasbeen on hemodualysis since January, 2005
charee
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« Reply #43 on: August 27, 2010, 10:17:27 PM »
Great news karol and Jenna, whatever your  doing that little bean is happy with it :grouphug;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Jean
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« Reply #44 on: August 27, 2010, 10:41:28 PM »
Three cheers for Jenna, her brave little kidney and her great MOM!!!  :bandance;  :bandance;
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One day at a time, thats all I can do.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #45 on: August 28, 2010, 01:28:37 AM »
PHOTO: Jenna at Scripps in La Jolla, calling her dad to give him the new (GOOD!) lab results.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
FindingNeverland
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« Reply #46 on: August 28, 2010, 07:23:20 AM »
That's awesome!  :yahoo;
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~*Laughter is the Language of the Soul*~
st789
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« Reply #47 on: August 28, 2010, 07:27:03 AM »
 :bestwishes;
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RuthWells
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« Reply #48 on: August 31, 2010, 10:37:22 AM »
Great news, Karol!  May it continue thus.
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jbeany
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« Reply #49 on: August 31, 2010, 10:41:20 AM »
 :yahoo;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
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