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Author Topic: Jenna and The Brave Little Kidney  (Read 17439 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: July 29, 2010, 10:44:06 AM »
We saw Jenna's nephrologist yesterday and he looked over her labs. He said that the fact that her kidney function has remained unchanged since January (creatinine now at 3.39) - that it's been steady since the treatment for rejection - and her other levels all look good - he surprised us by saying, "Barring an infection or dehydration, there's a good chance this kidney could possibly last 5 more years." OMG I couldn't believe it! Did he say YEARS?? He said, "So hold off getting the fistula surgery for now, let's see how the next few months go." Jenna and I got in the car and I said "Wow, isn't it great to get a good report card?" and she burst into tears. "Mom, this is why I haven't gotten a job or anything else, I thought it was over." We both had a good cry. This was the first really good news since her rejection episode. Of course, I know none of this is a guarantee, but the kidney Patrice gave her is one tough bean! The Brave Little Kidney!
 :bow;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Fox_nc
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« Reply #1 on: July 29, 2010, 10:59:56 AM »
Wonderful news! I know nothing is for sure, but it's always good to get good news and to have a positive outlook.  Keep up posted!
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
billybags
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« Reply #2 on: July 29, 2010, 11:34:57 AM »
Wow, I bet you were both jumping up and down, I know I would be, that is wonderful news Okarol
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monrein
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Might as well smile
« Reply #3 on: July 29, 2010, 12:07:55 PM »
That's the absolute best news Karol...I am so thrilled to hear this.   It is a brave little kidney indeed.  Please hug Jenna for me.   :cuddle;   :cuddle;  And that one's for you.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paul.karen
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« Reply #4 on: July 29, 2010, 12:44:54 PM »
No news like good news.

And it sounds like it surprised you and Jenna greatly.  May it go five years then many more after that.  I am glad you got this news instaed of news youd rather not hear.

Prayers for Jenna and her kidney.
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Riki
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« Reply #5 on: July 29, 2010, 12:50:48 PM »
Okarol..  I had my first bout of rejection a year to the day after the transplant.  That kidney went through 3 bouts all together, and lasted me 8 years.  If it's caught early enough, rejection isn't the end either.  Hopefully that is the only bout she has, and her kidney lasts her many, many more years than just 5.
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
lou
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« Reply #6 on: July 29, 2010, 01:59:08 PM »
So so happy for you both!!! :2thumbsup; :yahoo; This has made my night.... love to you x x
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Sunny
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Sunny
« Reply #7 on: July 29, 2010, 02:53:43 PM »
It sounds like the treatment worked wonders.
It is very possible her kidney could last for quite a while with appropriate care.
I hope Jenna can now feel like she is able to make some plans for her immediate future. All she can do is her best to try and prolong the life of her kidney.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
kellyt
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« Reply #8 on: July 29, 2010, 03:15:56 PM »
Wonderful news!  I'll bet you two did have a good cry!  And who knows, it could be even longer than 5 years.  No one knows for sure.  I was diagnosed in 1993 or 1994 and I was told by my nephrologist that I would be on dialysis sooner than later.  Well, my little native kidneys just kept on going and going and as you all know I didn't get my transplant until Nov 2008 and never did do dialysis.  I was close though.

Here's to that awesome kidney/gift from Patrice!    :beer1;    May it live a long life so that Jenna can live a long life free of dialysis!   :2thumbsup;   Congratulations on the great news!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
romanyscarlett
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« Reply #9 on: July 29, 2010, 03:52:10 PM »
It is great to hear such wonderful news. I'm so happy for you both. I can't imagine how emotional it must have been for you and I'm glad that things are looking up for Jenna and her brave little kidney.
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Sluff
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« Reply #10 on: July 29, 2010, 04:41:27 PM »
That is great news for Jenna. She was a lot more worried than she led on.  Isn't it great to get some comfort news for a change.  :2thumbsup;
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aharris2
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« Reply #11 on: July 29, 2010, 05:12:52 PM »
 :)
What a roller coaster this whole thing is. This is for you supermom   :cuddle; , I hope you keep getting nothing but good news.
Keep on keepin' on little kidney, paint the town yellow !
I hope Jenna will feel secure enough to live her life.
« Last Edit: July 29, 2010, 05:14:36 PM by aharris2 » Logged
Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
lola
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« Reply #12 on: July 29, 2010, 05:37:45 PM »
 :bandance; :bandance;
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paris
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« Reply #13 on: July 29, 2010, 06:10:58 PM »
Tears are streaming down my face!  This is the most wonderful news.  Wow!  I don't have enough words.   Needless to say, I am thrilled for both of you.   Just unbelievable and so incredible.   What a great kidney Patrice gave Jenna!   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Meinuk
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« Reply #14 on: July 29, 2010, 06:17:10 PM »
Karol, that is the BEST news I have had all day!!! (And I had a GREAT DAY!!!)

 :cuddle;
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

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chook
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« Reply #15 on: July 29, 2010, 06:18:09 PM »
 :cheer: It's great to hear news like this - makes the whole day sunny!
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
cariad
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« Reply #16 on: July 29, 2010, 06:30:11 PM »
Karol, I second every word that has been written so far! I am over the moon for you and Jenna. Go, Brave Little Kidney! :cheer:
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natnnnat
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« Reply #17 on: July 29, 2010, 06:56:38 PM »
 :cheer: :cheer: give us a B!
 :cheer: :cheer: give us an L!
 :cheer: :cheer: :cheer: give us a BLK!  :cheer: :cheer: :cheer:
 :cheer: :cheer: :cheer: give us a BLK!  :cheer: :cheer: :cheer:
 :cheer: :cheer: :cheer: give us a Brave Little Kidney!  :cheer: :cheer: :cheer:
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
RichardMEL
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« Reply #18 on: July 29, 2010, 06:58:16 PM »
yeah, I've got a tear or two here reading this. Absolutely nothing is guaranteed, but that the bean has gone SIX MONTHS staying pretty stable is a really good indication that all things being equal it could last a lot longer than you've both expected. About time you guys caught a break. This is great for Jenna and hope it gives her inspiration to take herself off hold and get on with things - because as we all know dialysis doesn't preclude having a job or a life etc.

Really good to read this news!!!  :yahoo; :yahoo; :yahoo; :yahoo; :clap; :clap; :clap;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
sullidog
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« Reply #19 on: July 29, 2010, 07:47:39 PM »
That is great news!
Won't her donor be glad to hear this!
Troy
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
YLGuy
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« Reply #20 on: July 29, 2010, 07:52:06 PM »
OMG! That is so wonderful. Between Michelle and this I could not be happier.  We just need some good news from Chris now.
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jbeany
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« Reply #21 on: July 29, 2010, 08:04:39 PM »
"I think I can; I think I can!"  Go Kidney, go!   :yahoo;
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Zach
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« Reply #22 on: July 29, 2010, 09:21:04 PM »
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Des
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« Reply #23 on: July 29, 2010, 11:22:47 PM »
GOD is good.!!!!

I am so happy to hear the good news. Now !  she can LIVE her life.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #24 on: July 30, 2010, 12:32:35 AM »
 :thx;
It feels like a weight has lifted off - great feeling - I am deeply grateful!
Thank you for all the great messages!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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