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Author Topic: question about central line/catheters  (Read 5251 times)
Riki
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« on: July 21, 2010, 11:09:00 PM »

As I'm sure I've mentioned a few times, I got my central line taken out about a month ago.  I had had it for almost a year and a half before it was removed.  I have noticed that since it's gone, I have a little bit of pain in the tunnel that was left behind. I can even still feel the tunnel, even though there is no tube there anymore.  I can feel it sometimes when I cough, or sometimes when I roll over on that side in bed, it feels as if the line is still there.

For anyone who has had one taken out, is this normal, and will it go away with time?  or is this something I should tell the dialysis nurses?
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sullidog
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« Reply #1 on: July 23, 2010, 07:20:21 PM »

I would tell the nurses, that does not sound normal, you will feel a small indent in the skin but as far as what you're describing, no I've had two removed no problems.
Troy
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May 13, 2009, went to urgent care with shortness of breath
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Riki
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« Reply #2 on: July 23, 2010, 07:36:14 PM »

I had it in there so long, at first, I figured it was just scar tissue from having it there so long and that it would go away on it's own.  But, a month later, it's still there.  I can still feel the tunnel, which isn't as raised as it was when the tube was still there, but I can still feel it.
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KICKSTART
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« Reply #3 on: July 25, 2010, 01:06:54 PM »

Im no expert but do have one in right now and i should imagine things have been stretched and are also still healing ..give it time!
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« Reply #4 on: July 25, 2010, 03:01:36 PM »

It will not hurt to mention it to the Doctor or nurse. You never know & the sooner it's looked at the better.
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« Reply #5 on: August 13, 2010, 06:45:54 PM »

my husband had his out in early may i believe. he has a very defined collarbone and in the area between his collarbone and neck where it went in you can still kinda see and feel where the tube was. he also has a very noticable, somewhat red scar. neither cause him any discomfort and i don't even think he would be aware of it if i didn't mention it. im ready to call the vascular surgeon if it so much as tingles though! however he is diabetic so he doesn;t heal as quickly and scars very badly.

if it causes you discomfort at any point or the wound oozes, anything definelty get it checked out! (Duh)  ;D
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Riki
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« Reply #6 on: August 13, 2010, 07:30:49 PM »

it doesn't ooze or anything like that. I can just still feel the tunnel as if there was a tube still there
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« Reply #7 on: August 14, 2010, 05:20:48 AM »

I had a laparoscopy in May, and I came out with four holes.  I could feel them healing, like four itchy tubes.  Not itchy around the outer hole, on my belly, on my skin, but itchy along the length.  Sometimes they felt, not itchy, but kind of ... stiff.   I've seen things living in holes in the sand on the beach, the outside of the hole is harder than the surrounding sand.  They felt like that.  I can still feel them sometimes.  Maybe like me, you have funny stiff hole syndrome?
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Natalya – Sydney, Australia
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Riki
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« Reply #8 on: August 14, 2010, 01:09:32 PM »

Maybe like me, you have funny stiff hole syndrome?

  Sorry... I can be incredibly immature at times...

you could be right, though.. I figured it was probably scarring, after having it in for a year and a half, when I was only supposed to havei t for 6 months or so..
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« Reply #9 on: August 14, 2010, 07:24:41 PM »

 :angel;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
JScott1753
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« Reply #10 on: August 14, 2010, 07:52:06 PM »

  Hi--
  I have had two tunneled caths., with one in now. Both times, I could feel the tunnel until it "collapsed," which happens in a week or two. I imagine that you could feel it for a while, depending how easily or not they were able to remove the cath. My first one was in for about a month, and when the doctor gave it a gentle pull, it came right out; I didn't feel a thing. The second one, which was in for two months or so last year, was more difficult; the  flesh below the skin grew around the cuff(designed to keep the cath. from coming out, at least easily, in an accidental pulling), resulting in the doctor having to do a little minor surgery to loosen the sticky points. It was like pulling teeth!  The tunnel went down in a week or so, but i have a couple small mound-like scars where the doctor did his work. No problems, but they do itch like mad from time to time!
Finally, I would say that if it shows any signs of infection or bleeding, go to your doctor.
  Jon
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Riki
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« Reply #11 on: August 14, 2010, 09:32:44 PM »

since it had been in for a year and and a half, the skin had grown nicely around the cuff, and it had to be cut, and I ended up with 2 stitches that had to be removed.  Once the skin was cut around the cuff, the line came out, no problems.  But the tunnel is still there. This is now about 2 and a half months later
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