I Hate Dialysis Message Board
Welcome,
Guest
. Please
login
or
register
.
November 21, 2024, 11:29:30 AM
1 Hour
1 Day
1 Week
1 Month
Forever
Login with username, password and session length
Search:
Advanced search
532606
Posts in
33561
Topics by
12678
Members
Latest Member:
astrobridge
I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: F.A.Q. (Frequently Asked Questions)
question about central line/catheters
0 Members and 2 Guests are viewing this topic.
« previous
next »
Pages:
[
1
]
Author
Topic: question about central line/catheters (Read 5252 times)
Riki
Elite Member
Offline
Gender:
Posts: 3408
question about central line/catheters
«
on:
July 21, 2010, 11:09:00 PM »
As I'm sure I've mentioned a few times, I got my central line taken out about a month ago. I had had it for almost a year and a half before it was removed. I have noticed that since it's gone, I have a little bit of pain in the tunnel that was left behind. I can even still feel the tunnel, even though there is no tube there anymore. I can feel it sometimes when I cough, or sometimes when I roll over on that side in bed, it feels as if the line is still there.
For anyone who has had one taken out, is this normal, and will it go away with time? or is this something I should tell the dialysis nurses?
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
sullidog
Elite Member
Offline
Gender:
Posts: 1432
Re: question about central line/catheters
«
Reply #1 on:
July 23, 2010, 07:20:21 PM »
I would tell the nurses, that does not sound normal, you will feel a small indent in the skin but as far as what you're describing, no I've had two removed no problems.
Troy
Logged
May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Riki
Elite Member
Offline
Gender:
Posts: 3408
Re: question about central line/catheters
«
Reply #2 on:
July 23, 2010, 07:36:14 PM »
I had it in there so long, at first, I figured it was just scar tissue from having it there so long and that it would go away on it's own. But, a month later, it's still there. I can still feel the tunnel, which isn't as raised as it was when the tube was still there, but I can still feel it.
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
KICKSTART
Elite Member
Offline
Gender:
Posts: 2786
In da House.
Re: question about central line/catheters
«
Reply #3 on:
July 25, 2010, 01:06:54 PM »
Im no expert but do have one in right now and i should imagine things have been stretched and are also still healing ..give it time!
Logged
OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
Dianejt
Full Member
Offline
Gender:
Posts: 413
Re: question about central line/catheters
«
Reply #4 on:
July 25, 2010, 03:01:36 PM »
It will not hurt to mention it to the Doctor or nurse. You never know & the sooner it's looked at the better.
Logged
caregiver to husband Frank
bladder cancer 1994
renal failure April 2009 due to blocked right ureter. Left kidney 20% function
November 18 2009 surgery to remove right ureter.
April 3, 2010 removal bladder, prostrate, left kidney.
June 11, 2010 started Hemo @ hospital
July 2, 2010 Embolized right Kidney due to hemoraging of tumor
September 11, 2010 RIP my love
VictoriaG
Newbie
Offline
Gender:
Posts: 37
always happy <3
Re: question about central line/catheters
«
Reply #5 on:
August 13, 2010, 06:45:54 PM »
my husband had his out in early may i believe. he has a very defined collarbone and in the area between his collarbone and neck where it went in you can still kinda see and feel where the tube was. he also has a very noticable, somewhat red scar. neither cause him any discomfort and i don't even think he would be aware of it if i didn't mention it. im ready to call the vascular surgeon if it so much as tingles though! however he is diabetic so he doesn;t heal as quickly and scars very badly.
if it causes you discomfort at any point or the wound oozes, anything definelty get it checked out! (Duh)
Logged
Riki
Elite Member
Offline
Gender:
Posts: 3408
Re: question about central line/catheters
«
Reply #6 on:
August 13, 2010, 07:30:49 PM »
it doesn't ooze or anything like that. I can just still feel the tunnel as if there was a tube still there
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
natnnnat
Elite Member
Offline
Gender:
Posts: 1281
Re: question about central line/catheters
«
Reply #7 on:
August 14, 2010, 05:20:48 AM »
I had a laparoscopy in May, and I came out with four holes. I could feel them healing, like four itchy tubes. Not itchy around the outer hole, on my belly, on my skin, but itchy along the length. Sometimes they felt, not itchy, but kind of ... stiff. I've seen things living in holes in the sand on the beach, the outside of the hole is harder than the surrounding sand. They felt like that. I can still feel them sometimes. Maybe like me, you have funny stiff hole syndrome?
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient:
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.
Over the years: skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.
2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.
http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Riki
Elite Member
Offline
Gender:
Posts: 3408
Re: question about central line/catheters
«
Reply #8 on:
August 14, 2010, 01:09:32 PM »
Quote from: natnnnat on August 14, 2010, 05:20:48 AM
Maybe like me, you have funny stiff hole syndrome?
Sorry... I can be incredibly immature at times...
you could be right, though.. I figured it was probably scarring, after having it in for a year and a half, when I was only supposed to havei t for 6 months or so..
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
natnnnat
Elite Member
Offline
Gender:
Posts: 1281
Re: question about central line/catheters
«
Reply #9 on:
August 14, 2010, 07:24:41 PM »
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient:
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.
Over the years: skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.
2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.
http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
JScott1753
Newbie
Offline
Gender:
Posts: 38
Re: question about central line/catheters
«
Reply #10 on:
August 14, 2010, 07:52:06 PM »
Hi--
I have had two tunneled caths., with one in now. Both times, I could feel the tunnel until it "collapsed," which happens in a week or two. I imagine that you could feel it for a while, depending how easily or not they were able to remove the cath. My first one was in for about a month, and when the doctor gave it a gentle pull, it came right out; I didn't feel a thing. The second one, which was in for two months or so last year, was more difficult; the flesh below the skin grew around the cuff(designed to keep the cath. from coming out, at least easily, in an accidental pulling), resulting in the doctor having to do a little minor surgery to loosen the sticky points. It was like pulling teeth! The tunnel went down in a week or so, but i have a couple small mound-like scars where the doctor did his work. No problems, but they do itch like mad from time to time!
Finally, I would say that if it shows any signs of infection or bleeding, go to your doctor.
Jon
Logged
Riki
Elite Member
Offline
Gender:
Posts: 3408
Re: question about central line/catheters
«
Reply #11 on:
August 14, 2010, 09:32:44 PM »
since it had been in for a year and and a half, the skin had grown nicely around the cuff, and it had to be cut, and I ended up with 2 stitches that had to be removed. Once the skin was cut around the cuff, the line came out, no problems. But the tunnel is still there. This is now about 2 and a half months later
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Pages:
[
1
]
« previous
next »
Loading...