I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
September 30, 2024, 10:16:33 AM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  i wish i could make them understand...
0 Members and 2 Guests are viewing this topic. « previous next »
Pages: 1 [2] Go Down Print
Author Topic: i wish i could make them understand...  (Read 14660 times)
angieskidney
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3472

« Reply #25 on: December 01, 2006, 06:43:45 AM »

Whoo hoo!  Now go back to bed a celebrate. LOL ;D
lol

Ya I gotta do more around here and you guys give good advice!  :2thumbsup; :clap;
Logged

FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
nextnoel
Sr. Member
****
Offline Offline

Gender: Female
Posts: 552


« Reply #26 on: December 04, 2006, 08:04:53 AM »

Congrats on your success, Angela! :clap;  Ya done good!

I love the practical advice you guys provide  :thx;- I adopted the 20-min. rule as of 2 days ago, and little by little, I'm digging my way out to having a normal apartment; it still looks as if a Salvation Army store exploded, but it's getting better!
Logged

I can't reach the hill like I used to, but I'm not at a standstill yet!
Sara
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1557


« Reply #27 on: December 04, 2006, 06:09:08 PM »

Angela, how are you doing the last few days?
Logged

Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
angela515
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3385


i am awesome.

« Reply #28 on: December 04, 2006, 06:42:55 PM »

I have been getting some things done.  :thumbup; I did some laundry, only 1 load a day, but got it all done. I wrote myself a few daily chores and dived them throughout the day to do. I have been taking a shower after my kids head off to school, as it helps me not go back to bed because it refreshes me and wakes me up. So all-in-all, I think I am doing well this week! :) Thanks  :2thumbsup;
Logged

Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Sara
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1557


« Reply #29 on: December 04, 2006, 07:26:34 PM »

Sounds great!  I hope your dad is noticing, but even if he isn't, do it for YOU.   :cuddle;
Logged

Sara, wife to Joe (he's the one on dialysis)

Hemodialysis in-center since Jan '06
Transplant list since Sept '06
Joe died July 18, 2007
angieskidney
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3472

« Reply #30 on: December 04, 2006, 09:10:53 PM »

I have been getting some things done.  :thumbup; I did some laundry, only 1 load a day, but got it all done. I wrote myself a few daily chores and dived them throughout the day to do. I have been taking a shower after my kids head off to school, as it helps me not go back to bed because it refreshes me and wakes me up. So all-in-all, I think I am doing well this week! :) Thanks  :2thumbsup;
I am so proud of you! Really I feel the same way as you and this advice helps!  :2thumbsup; I have noticed if I get myself into a shower it does wake me up as well. Especially since my building's water temp seems not quite hot enough .. :P
« Last Edit: December 08, 2006, 01:00:37 PM by angieskidney » Logged

FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
nextnoel
Sr. Member
****
Offline Offline

Gender: Female
Posts: 552


« Reply #31 on: December 05, 2006, 06:05:27 AM »

Good for you, Angela - sounds as if you're in control!  I'm trying to follow your example now! :clap;
Logged

I can't reach the hill like I used to, but I'm not at a standstill yet!
MattyBoy100
Full Member
***
Offline Offline

Gender: Male
Posts: 264


What's dialysis?

« Reply #32 on: December 05, 2006, 03:45:30 PM »

Hey Ang,

You're doing great!   :clap; :2thumbsup;
Logged

SCOTLAND NO.1
Panda_9
Sr. Member
****
Offline Offline

Gender: Female
Posts: 994

« Reply #33 on: December 06, 2006, 04:58:30 AM »

Your dad sounds a bit nasty, theres no need to call you lazy. I am constantly tired but it is pretty much my job to do all the housework and cooking, and my other half works his butt off. I do things in shifts if Im really tired. Ill put a load of washing on when I get up, fill up the sink, wash the cups, throw in the cutlery to soak and go and sit down for 10 minutes. Get up, wash cutlery, put in plates to soak, sit down. Get up, hang washing, sit down. Then in the afternoon ill have a nap for 2-3hrs and ill allow myself about half an hour to wake up then ill go and do a bit more. Obviously its not always that easy but its generally what I try to do. Also when I do my housework, it makes it easier if you focus on one room at a time. Tidy each room seperately, then when everything is tidy, have a rest, and then get out the mop and vaccum.
Logged
angela515
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3385


i am awesome.

« Reply #34 on: December 06, 2006, 06:00:13 AM »

Your dad sounds a bit nasty, theres no need to call you lazy. I am constantly tired but it is pretty much my job to do all the housework and cooking, and my other half works his butt off. I do things in shifts if Im really tired. Ill put a load of washing on when I get up, fill up the sink, wash the cups, throw in the cutlery to soak and go and sit down for 10 minutes. Get up, wash cutlery, put in plates to soak, sit down. Get up, hang washing, sit down. Then in the afternoon ill have a nap for 2-3hrs and ill allow myself about half an hour to wake up then ill go and do a bit more. Obviously its not always that easy but its generally what I try to do. Also when I do my housework, it makes it easier if you focus on one room at a time. Tidy each room seperately, then when everything is tidy, have a rest, and then get out the mop and vaccum.

My dad is very old fashioned I guess you can say... he thinks things should be done hisway or it's not good enough.. he can never be wrong..  and so on. I have started writing down what i need to do each day, and take it one thing at a time... slowly, take a break when I need to, and eventually everything will get done. When my dad comes home, if he still wants to complain about anything... I simply nod my head and say yep, and act like I really care  ::) without saying anything smart to make him upset, and once he's done the complaining is usually over and he moves on to another subject. Some people cannot be changed... unfortuntely.
Logged

Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
nextnoel
Sr. Member
****
Offline Offline

Gender: Female
Posts: 552


« Reply #35 on: December 06, 2006, 06:07:31 AM »

I read somewhere that "Friends are God's way of apologizing for relatives."  Well, you've got a lot of friends here, and it looks as if you're dealing with things just fine!  Keep up the positive spirit!
Logged

I can't reach the hill like I used to, but I'm not at a standstill yet!
goofynina
Member for Life
******
Offline Offline

Gender: Female
Posts: 6429


He is the love of my life......

« Reply #36 on: December 06, 2006, 12:27:56 PM »

I read somewhere that "Friends are God's way of apologizing for relatives."  Well, you've got a lot of friends here, and it looks as if you're dealing with things just fine!  Keep up the positive spirit!


That is for sure  :2thumbsup;  (and thank I thank God for you all) :thx; :angel;
Logged

....and i think to myself, what a wonderful world....

www.kidneyoogle.com
gizmar
Newbie
*
Offline Offline

Posts: 35

« Reply #37 on: December 07, 2006, 08:29:07 PM »

If your bloodwork is reasonable and all levels seem okay, I would want to start looking at your living arranagements.  You talk about fighting with your dad "every day".  That's GOT to be stressful.  Add being a single mom to the mix and having a chronic illness - I don't want to sound glib in any way but I think your weakness and wanting to sleep are signs of depression.  If you have someone to talk to (social worker, good friend, dialysis buddy).

I'm also getting that your dad is carrying alot of guilt and just doesn't know how to deal with it.  Reading between the lines, you're not who you used to be and he's still in denial about your condition.  My advice to you - when he starts to bitich at you - don't go there - don't engage.  These are your buttons - he's pushing them and you're acting out a behavior pattern that he's expecting.  This is kind of the merry go round of relationships and if you want things to change, you'll have to do something different.

Definition of Insanity - Doing the same thing all the time and expecting different results.
Logged
angela515
Elite Member
*****
Offline Offline

Gender: Female
Posts: 3385


i am awesome.

« Reply #38 on: December 07, 2006, 08:47:26 PM »

If your bloodwork is reasonable and all levels seem okay, I would want to start looking at your living arranagements.  You talk about fighting with your dad "every day".  That's GOT to be stressful.  Add being a single mom to the mix and having a chronic illness - I don't want to sound glib in any way but I think your weakness and wanting to sleep are signs of depression.  If you have someone to talk to (social worker, good friend, dialysis buddy).

I'm also getting that your dad is carrying alot of guilt and just doesn't know how to deal with it.  Reading between the lines, you're not who you used to be and he's still in denial about your condition.  My advice to you - when he starts to bitich at you - don't go there - don't engage.  These are your buttons - he's pushing them and you're acting out a behavior pattern that he's expecting.  This is kind of the merry go round of relationships and if you want things to change, you'll have to do something different.

Definition of Insanity - Doing the same thing all the time and expecting different results.

Yah... I agree, I need to stop giving him a response. Sometimes thats hard to do... lol, but I will try. I have plenty of people to talk too... I dont feel I am depressed... I mean, of course there are things I wish could be different and such but when I look at the whole picture, I think I am pretty happy considering all things. I may be depressed though, but I dont feel I am.... or am I in denial? lol ...

As for the living situation, it does suck... but at the same time, I definately appreciate the help my parents give me with my children. I just don't know if I would be able to do it all alone while on dialysis. I will be very excited and thrilled to get my own place for me and my kids once I get a transplant. On a happy note though, my dad has finished the basement, so.. my bedroom is now complete!! I was having to share a bedroom with my daughter while the basement was being finished, so that was no fun. I now am moved into my new bedroom, and its HUGE, and I have my own bathroom and walk-in closet.  :clap;  My daughter now has her room to herself and she is happy too... I think that will help out with me being  able to have some time to myself to read and such now that I have my bed to myself. LOL.

Logged

Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
nextnoel
Sr. Member
****
Offline Offline

Gender: Female
Posts: 552


« Reply #39 on: December 08, 2006, 07:08:53 AM »

Gizmar is so right!  Decades ago, there was a book called "When I Say No I Feel Guilty".  If memory serves, it had some practical advice about the actual "how-to" of taking control.  One technique was "the fog bank".  Picture a fog bank, and someone throws a rock into it.  The rock (your dad's negative remarks) just disappears into the fog bank (your placid refusal to snap back at him), and so he doesn't get anywhere!  If you're not engaged in a back-and-forth tug with your dad, then his words will still have some effect on you, naturally, but they won't be getting you all wound up, and won't have an overly strong and long-lasting effect on you.

Sometimes, people who aren't "in touch with their feelings" (Geez, how I hate that phrase, but there it is!) don't know how to deal with the fear of a loved one being ill, and their fear is expressed as something else, like impatience or anger.  And sometimes, even though it isn't rational, people feel that if they just keep acting as if nothing is wrong and barreling through, and they make no allowances for any deviation from what they expect from others, then somehow everything will be "normal".  Sounds to me as if your dad may be stuck in some of this fuzzy thinking, without knowing it.

Just do your best, and remember that however grumpy he may be, he loves you and your girls! :grouphug;


Logged

I can't reach the hill like I used to, but I'm not at a standstill yet!
devlinswife
Jr. Member
**
Offline Offline

Gender: Female
Posts: 70


« Reply #40 on: December 08, 2006, 08:05:05 PM »

I'm about to try the 20 min suggestion, I'll let you know how I do. I have been called lazy more than once, cause I don't clean, but my philosophy is whne I feel good I spend that time with my kids. What are they going to remember more, that I did the dishes every night or that I spent time with them?
Logged

Live each day as if it will be your last!
mcjane
Sr. Member
****
Offline Offline

Gender: Female
Posts: 697


« Reply #41 on: December 08, 2006, 08:34:05 PM »

I like that 7 second rule.  You can do many of them a day & the 7 second rule could include something as simple as putting things back where you got them. That will knock the heck out of clutter.

Doing the 7 seconds several times a day & the 20 minutes once a day & you've got it made the easy way.

You feel so much better when the house is neat & clean.
Logged
Zach
Elite Member
*****
Offline Offline

Gender: Male
Posts: 4820


"Still crazy after all these years."

« Reply #42 on: December 08, 2006, 08:51:11 PM »

I do the bachelor's rule -- after eating, put the plate in the frig till the next meal.  Same with the coffee mug.
Logged

Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Epoman
Administrator/Owner
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3368


Want to help out? Become a Premium Member today

WWW
« Reply #43 on: December 08, 2006, 09:41:38 PM »

I'm about to try the 20 min suggestion, I'll let you know how I do. I have been called lazy more than once, cause I don't clean, but my philosophy is whne I feel good I spend that time with my kids. What are they going to remember more, that I did the dishes every night or that I spent time with them?

Screw dishes, do what we do, we use paper plates, plastic bowls and plastic utensils and when we are done, we just toss everything in the trash. The .99 Cent store is our dishwasher.  It's cheap, works, and saves a lot of time. :thumbup;

- Epoman
Logged

- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
kitkatz
Member for Life
******
Offline Offline

Gender: Female
Posts: 17042


« Reply #44 on: December 08, 2006, 09:43:43 PM »

I do the same as Epoman. We have china, but do not use it. Plastic and paper is my china.
Logged



lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Epoman
Administrator/Owner
Elite Member
*****
Offline Offline

Gender: Male
Posts: 3368


Want to help out? Become a Premium Member today

WWW
« Reply #45 on: December 08, 2006, 09:45:47 PM »

I do the same as Epoman. We have china, but do not use it. Plastic and paper is my china.

Yeap, and when we have "company" over we break out the good stuff. :thumbup; Well except when I have "goofynina" over for dinner, paper plates are good enough for her.  >:D
Logged

- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.

Please help us advertise, post our link to other dialysis message boards. You
Sluff
Member for Life
******
Offline Offline

Gender: Male
Posts: 43869


« Reply #46 on: December 08, 2006, 09:50:05 PM »

I do the same as Epoman. We have china, but do not use it. Plastic and paper is my china.

Yeap, and when we have "company" over we break out the good stuff. :thumbup; Well except when I have "goofynina" over for dinner, paper plates are good enough for her.  >:D

Actually paper wrappers is all she needs..Titos Taco wrappers to be precise.
Logged
kitkatz
Member for Life
******
Offline Offline

Gender: Female
Posts: 17042


« Reply #47 on: December 08, 2006, 10:02:25 PM »

Ohhhh. I want some of those too.
Logged



lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Pages: 1 [2] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!