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Author Topic: What is the longest a recipient has survived with a kidney transplant?  (Read 54464 times)
okarol
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« on: August 28, 2008, 05:23:22 PM »

What is the longest a recipient has survived with a kidney transplant?

Info gathered on the internet - August 2008.

*Joan Waddell is one of the longest-surviving kidney transplant recipients [34 years] - got a kidney from her older brother in 1974 when she was 18 years old. http://www.tulsaworld.com/news/article.aspx?articleID=071210_1_A1_spanc56110
*John Peper is HCMC’s longest living kidney transplant recipient - related donor - 1970 - lasting 38 years. http://www.hcmc.org/depts/transplant/patientstory.htm
*Denice Lombard of Washington, D.C., received her father's kidney on August 30, 1967 aged 13 and is still alive and healthy forty years later. http://en.wikipedia.org/wiki/Kidney_Transplant
*Howard Mehl was 20 years old in in 1965, received a kidney from his brother. http://www.uphs.upenn.edu/news/News_Releases/feb06/trnshse.htm
*Dale Murdock is the fifth longest-living transplant recipient. Forty-four years ago, [age 14 in 1964] doctors transplanted a kidney into him. http://www.wtae.com/r/16892578/detail.html
*Bill Thompson is the longest known surviving recipient of a kidney from an unrelated donor, lasting 42 years; transplanted in 1966 at age 15. http://www.childrensmemorial.org/depts/siragusa/feature.aspx?sID=2760&pID=1318
*Pam Collier on Monday, 24 March 2008 wrote: I have now had my Kidney transplant for 37 years as of 3 July 2008. http://www.kidney.org.au/Whoweare/KidneyBlog/tabid/143/EntryID/6/Default.aspx
*Michael Anderson on Saturday, 25 June 2005 wrote: Being one of the longest surviving renal transplants, (35 years post transplant), having suffered kidney failure at 22 years of age and awaited a transplant for five years. http://www.kidney.org.au/Whoweare/KidneyBlog/tabid/143/EntryID/6/Default.aspx

Kidneys: Longest Surviving - http://www.unos.org/data/default.asp?display=kidney&displayType=internationalData


« Last Edit: July 02, 2011, 05:38:12 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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« Reply #1 on: August 28, 2008, 05:41:53 PM »

 :clap; :clap; :clap; :clap;  more, more, more  :clap; :clap; :clap;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
peleroja
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I have 16 hats, all the same style!

« Reply #2 on: August 29, 2008, 10:37:49 AM »

Certainly gives you something to strive for, doesn't it!
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paris
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« Reply #3 on: August 29, 2008, 01:23:12 PM »

 :2thumbsup;  Gives us great hope.
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Zach
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« Reply #4 on: August 29, 2008, 01:50:54 PM »

Wonderful news.
 8)

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In-center uninterrupted hemodialysis since 1982--32 YEARS on March 3, 2014 !!
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No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06    ;)
Work full time.  I make films.

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okarol
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« Reply #5 on: August 29, 2008, 04:42:39 PM »



From Lori Hartwell:

Charles has had a transplant for 37 years.
 
http://www.rsnhope.org/programs/kidneytalkshows/Charles_Rosenberg/index.php
------
(January 23, 2007)
Read story and hear his interview on KidneyTalk too.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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« Reply #6 on: September 15, 2008, 11:39:07 PM »

* 84 year old Lucille Nemeth celebrated an anniversary last year. She got a kidney from her sister Faye Spivey 34 years ago. (1973) http://www.pensacolanewsjournal.com/apps/pbcs.dll/article?AID=/20070506/NEWS01/705060331/1006 - deceased 2009 http://www.legacy.com/obituaries/pensacolanewsjournal/obituary-preview.aspx?n=lucille-nemeth&pid=131331880&referrer=1919
* Penny Jo “P.J.” Burnett will be celebrating a birthday of sorts today, 35 years of health given to her by a kidney transplant from her sister, Mary “Scarecrow” Foust in 1973. http://www.delphosherald.com/2008/09/12/kidney-transplant-patient/
* At 54, Twanny Farrugia is one of Australia's longest-surviving transplant recipients - his donated kidney has kept him going a staggering 36 years. http://ihatedialysis.com/forum/index.php?topic=5519.0
* John Brady, 56, is still on the go after a successful kidney op in 1974 (his second) making him one of UK's longest surviving transplant recipients at 33 years. http://ihatedialysis.com/forum/index.php?topic=4644.0


« Last Edit: July 02, 2011, 06:09:08 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #7 on: November 17, 2008, 04:46:09 PM »

Added another: Brothers celebrate 30th anniversary of life-saving gift - http://ihatedialysis.com/forum/index.php?topic=11138
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kidney4traci
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« Reply #8 on: December 02, 2008, 01:57:58 PM »

wonderful!!!!!!!! :yahoo;
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Married - three children.
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pelagia
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« Reply #9 on: December 02, 2008, 07:19:52 PM »

love the numbers!  :cheer:
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
draven
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« Reply #10 on: December 18, 2008, 10:38:02 PM »

At my transplant clinic there is a record sheet on the wall.

There is a lady who has had her kidney since 1974. not bad at all
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circleNthedrain
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« Reply #11 on: December 18, 2008, 11:25:41 PM »

Very inspirational !  Thank you Okarol !
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
pelagia
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« Reply #12 on: December 19, 2008, 06:46:57 AM »

Stephen says he's planning to go 40 years! 
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
okarol
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« Reply #13 on: January 03, 2009, 11:29:29 PM »

For Don Gordon, when the Pearl Harbor date rolls around [2008], it will mark, for him, the 25th anniversary of the kidney transplant that preserved his life. http://www.thecolumbiastar.com/news/2008/0718/news/006.html

Longest living kidney transplant recipient says never accept can't
2008-07-18 / News
By Jackie Perrone jacper@bellsouth.net

Snowball's chance is Don Gordon's manuscript documenting his journey through medical hell.
December 7 is a significant date for Don Gordon, but for a different reason than most. When the Pearl Harbor date rolls around this year, it will mark, for him, the 25th anniversary of the kidney transplant that preserved his life.

He doesn't know whether this is the longest recorded kidney transplant survival anywhere. He does know for sure that he is the longest surviving transplant patient at Columbia Nephrology Center, where he credits now- retired Dr. U. X. Cullum with his near- miraculous longevity.

"I was five years old when my kidney problems became critical," he notes. "My kidney damage was not due to disease but to a somewhat mechanical function which was not corrected until it had done irreparable damage to my kidney.

"Medication and dialysis were the treatments of choice for many years. Then in 1983, transplant surgery became the issue at Duke Medical Center, and my brother, Jim Gordon, donated a kidney.

"Probably one significant factor in my long- term endurance is that other than the kidney problem, my overall health was and is excellent. Heart, lungs, liver, physical fitness, those things are better than for most middle- aged men. I have been riding my bicycle around eastern Columbia ever since the 1970s."

His business career has included stints of marketing From page one and sales of such products as life insurance and overhead doors. He is now host of a talk show called Radio Free Dixie, and its web site, RadioFreeDixie. com. He offers verbal snapshots of history, and in his role as Lt. Commander of the Sons of Confederate Veterans he also tells some special commentary about the War Between the States.

His 60 years have been filled with medical trauma, hopes, and disappointments. A sense of humor and a philosophical approach to life have helped him through the worst of times.


"It's true that people who have faced the worst learn to appreciate the least. I know better than most folks that every day is precious, and the smallest moments can be important to us. Don't ever take your blessings for granted!"

He has put together a manuscript tentatively named Snowball's Chance, not yet published but documenting his journey through medical hell. He would like for it to provide some hope as well as help for others facing medical trauma.

Some of his rules for patients:

1. Play to win. Now is when you have to be willing to take chances. There's no glory for second place.

2. Remind yourself that about half of doctors finished in the bottom half of their class in medical school

3. Believe any doctor who says that he can't save you. Then go out and find one who says that he can.

Near the conclusion of his manuscript, he thinks back to a trip to Minnesota, where he had gone in a desperate search for help and offers this report about his return home:

"At the airport, they de- ice the plane two times. I can see seven snowplows working out on the tarmac… Shortly the pilot announces we were the last plane to lift off before the airport was closed down.

"The long flight home is good for my soul because it gives me plenty of time to think (and pray). Please God just let me live my life like a regular man whose biggest worry isn't whether he will wake up the next morning.

"Unexpectedly,"(Colu mbia had snow), "as we turned into the driveway I see everything covered in white except for little bursts of yellow from daffodils poking up their heads.

"We don't need any mystics to explain the meaning of life when we have such a perfect example showing what we should all be striving to do: Bloom in the face of adversity."

This medical miracle strives every day to do just that.
« Last Edit: July 02, 2011, 06:33:32 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #14 on: January 16, 2009, 12:30:20 PM »

Harvey Brown marked the 30th anniversary since his life-changing kidney transplant with some of his children and grandchildren, as well as his two brothers, one of whom donated the life-saving kidney in 1979.
http://ihatedialysis.com/forum/index.php?topic=11989.0
« Last Edit: March 11, 2010, 09:55:51 AM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
Now needs a new kidney, 7 yr transplant lost due to rejection.
She started PD Sept. 2013
Searching for a living donor using social media, friends, family.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Jenna is an artist, she loves music, is a fan of ComicCon, and has been writing stories since she was little.
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Theresakay
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« Reply #15 on: January 23, 2009, 11:04:13 PM »

I'm still going strong. Received my transplant September 1978 ,after three years of home dialysis. I have had transplant longer then I had my own kidneys. Complete renal failure at 15, Transplant at 18 (three weeks before my wedding) Had my son eight years after transplant he is now 22 and has a one year old son of his own.
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Romona
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« Reply #16 on: January 24, 2009, 03:05:00 AM »

I'm still going strong. Received my transplant September 1978 ,after three years of home dialysis. I have had transplant longer then I had my own kidneys. Complete renal failure at 15, Transplant at 18 (three weeks before my wedding) Had my son eight years after transplant he is now 22 and has a one year old son of his own.
:clap; Great news!
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Chris
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« Reply #17 on: January 24, 2009, 11:57:13 AM »

 :bump;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?

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G-Ma
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« Reply #18 on: January 24, 2009, 01:21:20 PM »

Thanks Okarol...this chart might be what some of us needed.  What concerns me is the only hospital in the midwest listed is Minneapolis and none in NC for longevity or is this not necessarily a complete listing?
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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« Reply #19 on: January 24, 2009, 03:43:30 PM »

One of the men at my clinic had his Mum's kidney for just over 31 years.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Falkenbach
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« Reply #20 on: January 27, 2009, 12:25:39 AM »

Is there any research regarding whether the actual age of the kidney at the time of transplant makes any difference to its longevity?

At the time of my transplant, my dad was 58. Which means my kidney will be turning 60 in March lol.
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Alain
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« Reply #21 on: February 05, 2009, 04:28:19 AM »

hey there!
we had a big party last may in the university hospital of basel, switzerland (well we call it party, they call it symposium or what ever).
A patient here got his transplant kidney April 5th, 1968 - 40 years ago, and he's still doing well!  :clap;
Hopefully my transplant I got at the same place will last as long as his does  :bow;

here an article about that (in german).. walter thalmann is the name if the lucky guy!!:
http://www.nephro-basel.ch/de/walter-thalmann-symposium.html
---------------
Walter Thalmann Symposium

Mid 60-ies of the last century began in the era of modern nephrology Basel with the successful treatment of chronic renal failure by dialysis and kidney transplantation. Even then, as now based progressive and successful renal replacement therapy on close professional, collegial and friendly, not least of interdisciplinary cooperation. First and foremost, the team of transplant surgery and urology are called. Next to mention are the numerous colleagues in the intensive care units, psychosomatic, the Department of Angiology, hematology, pathology, and infectious diseases, and last but not least, the entire internal medicine. The cornerstone for the success of a transplant but is already laid at the referring Nephrologinnen and nephrologists. Only through close cooperation, a well planned transplant and at least as important to the transplant patient will be provided with successfully.
Some of you may be wondering about the title of the symposium? Now the longest-functioning kidney was transplanted 40 years ago. Mr. Walter Thalmann lives with this kidney. With the mention of his name, we wanted the one kidney? Face? A? Name? . give Kidney itself does not represent a value, the value grows only by the individual to whom it is made ​​possible by a successful transplant to live a normal life. In this sense, the name Walter Thalmann is for all people, which could be helped by a transplant and more broadly for all those who by a kidney donation to these people unselfishly a great service to prove proven and.
More than 40 years of transplant history and functioning for 40 years Kidney transplant is for us a reason to look back at the history of kidney without affecting the present and the outlook to forget in the future. Dr. Michael Mayr / Prof. Jürg Steiger


Editied: Added translation - okarol/admin
« Last Edit: July 02, 2011, 06:52:07 PM by okarol » Logged
monrein
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Might as well smile

« Reply #22 on: February 05, 2009, 05:47:51 AM »

Superbe, Alain.  I hope yours lasts as long also.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Falkenbach
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« Reply #23 on: February 10, 2009, 11:19:52 PM »

I hope mine does too!  :rofl;
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Yes it is that crazy deaf bloke from the Top End!

« Reply #24 on: February 12, 2009, 03:20:07 AM »

Gees, I would love it if my transplanet kidney last that long.

 :cuddle; :cuddle; :ausflag;
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