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Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: okarol on August 28, 2008, 05:23:22 PM

Title: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on August 28, 2008, 05:23:22 PM
What is the longest a recipient has survived with a kidney transplant?

Info gathered on the internet - August 2008.

*Joan Waddell is one of the longest-surviving kidney transplant recipients [34 years] - got a kidney from her older brother in 1974 when she was 18 years old. http://www.tulsaworld.com/news/article.aspx?articleID=071210_1_A1_spanc56110
*John Peper is HCMC’s longest living kidney transplant recipient - related donor - 1970 - lasting 38 years. http://www.hcmc.org/depts/transplant/patientstory.htm
*Denice Lombard of Washington, D.C., received her father's kidney on August 30, 1967 aged 13 and is still alive and healthy forty years later. http://en.wikipedia.org/wiki/Kidney_Transplant
*Howard Mehl was 20 years old in in 1965, received a kidney from his brother. http://www.uphs.upenn.edu/news/News_Releases/feb06/trnshse.htm
*Dale Murdock is the fifth longest-living transplant recipient. Forty-four years ago, [age 14 in 1964] doctors transplanted a kidney into him. http://www.wtae.com/r/16892578/detail.html
*Bill Thompson is the longest known surviving recipient of a kidney from an unrelated donor, lasting 42 years; transplanted in 1966 at age 15. http://www.childrensmemorial.org/depts/siragusa/feature.aspx?sID=2760&pID=1318
*Pam Collier on Monday, 24 March 2008 wrote: I have now had my Kidney transplant for 37 years as of 3 July 2008. http://www.kidney.org.au/Whoweare/KidneyBlog/tabid/143/EntryID/6/Default.aspx
*Michael Anderson on Saturday, 25 June 2005 wrote: Being one of the longest surviving renal transplants, (35 years post transplant), having suffered kidney failure at 22 years of age and awaited a transplant for five years. http://www.kidney.org.au/Whoweare/KidneyBlog/tabid/143/EntryID/6/Default.aspx

Kidneys: Longest Surviving - http://www.unos.org/data/default.asp?display=kidney&displayType=internationalData


Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: monrein on August 28, 2008, 05:41:53 PM
 :clap; :clap; :clap; :clap;  more, more, more  :clap; :clap; :clap;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: peleroja on August 29, 2008, 10:37:49 AM
Certainly gives you something to strive for, doesn't it!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: paris on August 29, 2008, 01:23:12 PM
 :2thumbsup;  Gives us great hope.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Zach on August 29, 2008, 01:50:54 PM
Wonderful news.
 8)

Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on August 29, 2008, 04:42:39 PM


From Lori Hartwell:

Charles has had a transplant for 37 years.
 
http://www.rsnhope.org/programs/kidneytalkshows/Charles_Rosenberg/index.php
------
(January 23, 2007)
Read story and hear his interview on KidneyTalk too.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on September 15, 2008, 11:39:07 PM
* 84 year old Lucille Nemeth celebrated an anniversary last year. She got a kidney from her sister Faye Spivey 34 years ago. (1973) http://www.pensacolanewsjournal.com/apps/pbcs.dll/article?AID=/20070506/NEWS01/705060331/1006 - deceased 2009 http://www.legacy.com/obituaries/pensacolanewsjournal/obituary-preview.aspx?n=lucille-nemeth&pid=131331880&referrer=1919
* Penny Jo “P.J.” Burnett will be celebrating a birthday of sorts today, 35 years of health given to her by a kidney transplant from her sister, Mary “Scarecrow” Foust in 1973. http://www.delphosherald.com/2008/09/12/kidney-transplant-patient/
* At 54, Twanny Farrugia is one of Australia's longest-surviving transplant recipients - his donated kidney has kept him going a staggering 36 years. http://ihatedialysis.com/forum/index.php?topic=5519.0
* John Brady, 56, is still on the go after a successful kidney op in 1974 (his second) making him one of UK's longest surviving transplant recipients at 33 years. http://ihatedialysis.com/forum/index.php?topic=4644.0


Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on November 17, 2008, 04:46:09 PM
Added another: Brothers celebrate 30th anniversary of life-saving gift - http://ihatedialysis.com/forum/index.php?topic=11138
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: kidney4traci on December 02, 2008, 01:57:58 PM
wonderful!!!!!!!! :yahoo;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: pelagia on December 02, 2008, 07:19:52 PM
love the numbers!  :cheer:
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: draven on December 18, 2008, 10:38:02 PM
At my transplant clinic there is a record sheet on the wall.

There is a lady who has had her kidney since 1974. not bad at all
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: circleNthedrain on December 18, 2008, 11:25:41 PM
Very inspirational !  Thank you Okarol !
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: pelagia on December 19, 2008, 06:46:57 AM
Stephen says he's planning to go 40 years! 
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on January 03, 2009, 11:29:29 PM
For Don Gordon, when the Pearl Harbor date rolls around [2008], it will mark, for him, the 25th anniversary of the kidney transplant that preserved his life. http://www.thecolumbiastar.com/news/2008/0718/news/006.html

Longest living kidney transplant recipient says never accept can't
2008-07-18 / News
By Jackie Perrone jacper@bellsouth.net

Snowball's chance is Don Gordon's manuscript documenting his journey through medical hell.
December 7 is a significant date for Don Gordon, but for a different reason than most. When the Pearl Harbor date rolls around this year, it will mark, for him, the 25th anniversary of the kidney transplant that preserved his life.

He doesn't know whether this is the longest recorded kidney transplant survival anywhere. He does know for sure that he is the longest surviving transplant patient at Columbia Nephrology Center, where he credits now- retired Dr. U. X. Cullum with his near- miraculous longevity.

"I was five years old when my kidney problems became critical," he notes. "My kidney damage was not due to disease but to a somewhat mechanical function which was not corrected until it had done irreparable damage to my kidney.

"Medication and dialysis were the treatments of choice for many years. Then in 1983, transplant surgery became the issue at Duke Medical Center, and my brother, Jim Gordon, donated a kidney.

"Probably one significant factor in my long- term endurance is that other than the kidney problem, my overall health was and is excellent. Heart, lungs, liver, physical fitness, those things are better than for most middle- aged men. I have been riding my bicycle around eastern Columbia ever since the 1970s."

His business career has included stints of marketing From page one and sales of such products as life insurance and overhead doors. He is now host of a talk show called Radio Free Dixie, and its web site, RadioFreeDixie. com. He offers verbal snapshots of history, and in his role as Lt. Commander of the Sons of Confederate Veterans he also tells some special commentary about the War Between the States.

His 60 years have been filled with medical trauma, hopes, and disappointments. A sense of humor and a philosophical approach to life have helped him through the worst of times.


"It's true that people who have faced the worst learn to appreciate the least. I know better than most folks that every day is precious, and the smallest moments can be important to us. Don't ever take your blessings for granted!"

He has put together a manuscript tentatively named Snowball's Chance, not yet published but documenting his journey through medical hell. He would like for it to provide some hope as well as help for others facing medical trauma.

Some of his rules for patients:

1. Play to win. Now is when you have to be willing to take chances. There's no glory for second place.

2. Remind yourself that about half of doctors finished in the bottom half of their class in medical school

3. Believe any doctor who says that he can't save you. Then go out and find one who says that he can.

Near the conclusion of his manuscript, he thinks back to a trip to Minnesota, where he had gone in a desperate search for help and offers this report about his return home:

"At the airport, they de- ice the plane two times. I can see seven snowplows working out on the tarmac… Shortly the pilot announces we were the last plane to lift off before the airport was closed down.

"The long flight home is good for my soul because it gives me plenty of time to think (and pray). Please God just let me live my life like a regular man whose biggest worry isn't whether he will wake up the next morning.

"Unexpectedly,"(Colu mbia had snow), "as we turned into the driveway I see everything covered in white except for little bursts of yellow from daffodils poking up their heads.

"We don't need any mystics to explain the meaning of life when we have such a perfect example showing what we should all be striving to do: Bloom in the face of adversity."

This medical miracle strives every day to do just that.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on January 16, 2009, 12:30:20 PM
Harvey Brown marked the 30th anniversary since his life-changing kidney transplant with some of his children and grandchildren, as well as his two brothers, one of whom donated the life-saving kidney in 1979.
http://ihatedialysis.com/forum/index.php?topic=11989.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Theresakay on January 23, 2009, 11:04:13 PM
I'm still going strong. Received my transplant September 1978 ,after three years of home dialysis. I have had transplant longer then I had my own kidneys. Complete renal failure at 15, Transplant at 18 (three weeks before my wedding) Had my son eight years after transplant he is now 22 and has a one year old son of his own.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Romona on January 24, 2009, 03:05:00 AM
I'm still going strong. Received my transplant September 1978 ,after three years of home dialysis. I have had transplant longer then I had my own kidneys. Complete renal failure at 15, Transplant at 18 (three weeks before my wedding) Had my son eight years after transplant he is now 22 and has a one year old son of his own.
:clap; Great news!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Chris on January 24, 2009, 11:57:13 AM
 :bump;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: G-Ma on January 24, 2009, 01:21:20 PM
Thanks Okarol...this chart might be what some of us needed.  What concerns me is the only hospital in the midwest listed is Minneapolis and none in NC for longevity or is this not necessarily a complete listing?
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: monrein on January 24, 2009, 03:43:30 PM
One of the men at my clinic had his Mum's kidney for just over 31 years.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Falkenbach on January 27, 2009, 12:25:39 AM
Is there any research regarding whether the actual age of the kidney at the time of transplant makes any difference to its longevity?

At the time of my transplant, my dad was 58. Which means my kidney will be turning 60 in March lol.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Alain on February 05, 2009, 04:28:19 AM
hey there!
we had a big party last may in the university hospital of basel, switzerland (well we call it party, they call it symposium or what ever).
A patient here got his transplant kidney April 5th, 1968 - 40 years ago, and he's still doing well!  :clap;
Hopefully my transplant I got at the same place will last as long as his does  :bow;

here an article about that (in german).. walter thalmann is the name if the lucky guy!!:
http://www.nephro-basel.ch/de/walter-thalmann-symposium.html
---------------
Walter Thalmann Symposium

Mid 60-ies of the last century began in the era of modern nephrology Basel with the successful treatment of chronic renal failure by dialysis and kidney transplantation. Even then, as now based progressive and successful renal replacement therapy on close professional, collegial and friendly, not least of interdisciplinary cooperation. First and foremost, the team of transplant surgery and urology are called. Next to mention are the numerous colleagues in the intensive care units, psychosomatic, the Department of Angiology, hematology, pathology, and infectious diseases, and last but not least, the entire internal medicine. The cornerstone for the success of a transplant but is already laid at the referring Nephrologinnen and nephrologists. Only through close cooperation, a well planned transplant and at least as important to the transplant patient will be provided with successfully.
Some of you may be wondering about the title of the symposium? Now the longest-functioning kidney was transplanted 40 years ago. Mr. Walter Thalmann lives with this kidney. With the mention of his name, we wanted the one kidney? Face? A? Name? . give Kidney itself does not represent a value, the value grows only by the individual to whom it is made ​​possible by a successful transplant to live a normal life. In this sense, the name Walter Thalmann is for all people, which could be helped by a transplant and more broadly for all those who by a kidney donation to these people unselfishly a great service to prove proven and.
More than 40 years of transplant history and functioning for 40 years Kidney transplant is for us a reason to look back at the history of kidney without affecting the present and the outlook to forget in the future. Dr. Michael Mayr / Prof. Jürg Steiger


Editied: Added translation - okarol/admin
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: monrein on February 05, 2009, 05:47:51 AM
Superbe, Alain.  I hope yours lasts as long also.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Falkenbach on February 10, 2009, 11:19:52 PM
I hope mine does too!  :rofl;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: deafman on February 12, 2009, 03:20:07 AM
Gees, I would love it if my transplanet kidney last that long.

 :cuddle; :cuddle; :ausflag;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on February 14, 2009, 07:47:55 PM
Valentine's Day marks 30 years of man living with mom's kidney - Michael Weiss - Feb. 14 2009 - http://ihatedialysis.com/forum/index.php?topic=12467.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on March 21, 2009, 09:01:59 PM
Miguel Acosta Báez, is 70 years old and lives in the Cuban province of Villa Clara. He’s not famous, but he should be: he’s the world’s longest living kidney transplant recipient and on May 5 he will celebrate his 38th transplant anniversary. Acosta is not the only Cuban among the list of world’s longest living kidney transplant recipients: Marta Porro Morales, of Camagüey received a kidney transplant 35 years ago.
April 25, 2008
Longevos cubanos trasplantados renales del mundo http://www.granma.cubaweb.cu/2008/04/25/nacional/artic19.html
http://www.medicc.org/cubahealthreports/chr-briefs.php?a=0&d=05/05/08#1085
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on March 21, 2009, 09:09:22 PM
Charles Nelson Perkins, aka Kumantjayi Perkins (16 June 1936 — 19 October 2000) was an Australian Aboriginal activist and football (soccer) player, and administrator. Perkins was also notable as having Australia's longest recorded survival for a kidney transplant, having received a donor kidney in 1972. [28 years]
http://www.answers.com/topic/charles-perkins and  http://en.wikipedia.org/wiki/Charles_N._Perkins
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Beth35 on March 22, 2009, 06:29:36 AM
See I was thinking I was going to be one of those people.  My kidney is ten years old but I'm in stage three failure now.  I recently went to pre-transplant to schedule a new work up to go back on the list and they gave me some resources to read.  One said that people who get "live" kidneys last twice as long as those who get kidneys (as I did) from someone who is brain dead.  There is no one in my family who is a match but I may have to start looking for friends or church members cause I don't want to be having a transplant every ten years or so.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: monrein on March 22, 2009, 08:25:05 AM
I always try to remember that there are the stats and then there's what happens to each of us individually.  Kind of like the side effects of meds.  I try not to even read those until something starts happening with me then I go looking at those.
My first trx was cadaveric, was a perfect match and the donor was just 17.  It lasted 23 and a half years and I firmly believe it would have been longer if not for a screw-up with a routine colonoscopy.  Wrong prep med, a tiny puncture (years of prednisone can leave us quite delicate) and afterwards was when things began decelerating rather fast.  However, I always feel that the only thing we can really control is looking after ourselves the very best we can through diet, exercise and lowering our stress levels to the max, comply carefully with our team's instructions but ask a thousand questions to keep them on their toes and arm ourselves with as much information as we can possibly fit into our heads.

Of course I want 30 years out of this new transplant of mine but I'll relish whatever time I'm given.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on March 23, 2009, 02:06:03 PM
Louis Mascaro of Perinton, NY celebrates 30 years since his son donated a kidney to him. http://ihatedialysis.com/forum/index.php?topic=13031.0 [March 2009]
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: monrein on March 24, 2009, 06:03:09 AM
A fellow patient at my former dialysis center got almost 32 years from a kidney given to him by his mother. 
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: ayenter on May 02, 2009, 01:37:06 PM
My dad celebrated 39 years this past March of with his cadaver transplant. Wasn't supposed to have kids - had four of us!  Next year big bash for him!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: James Pie on June 05, 2009, 06:40:18 AM
James Piechowski in Oshkosh, WI had a kidney operation on 6/5/1979 and received his
identical twin's kidney.  As of this writing (6/5/2009), Jim has been alive and well
for 30 years.  His, twin, though, has the same condition that ruined Jim's own kidney's.
The doctor's have been able to sustain that condition these last 30 years so the condition
doesn't ruin the twin's last natural kidney.  The twin developed the condition after his
donation.  There is another family member who could donate to the twin, if needed.

The 1979 surgery was done at the University of Wisconsin Madison.  Now, though,
for the last two years, Jim goes to Froedtert in Milwaukee and Neenah, WI Theda Clark. 
Life was great until the health insurance and medical field got hellish.

Madison got really bad.  Jim would go for his physical, and then the clinic would
call him up one week later (in the evening) and demand that he set up a
payment schedule.  Jim NEVER had outstanding debt at the clinic for twenty-eight years,
yet they would treat him like he was a dead beat non-payer.  The business side of
Madison was cruel and inhuman.  The staff and doctor's all got appathetic
because of how the whole industry had changed.  It got so Jim felt that
they didn't give a care if he was okay or not.  I wouldn't wish them on anyone.

Froedtert, though, has been a blessing.  It is a total different story with them.
Jim is so fortunate to be able to get in down there.  I'd recommend that
facility and doctors to anyone. 
The prices at Theda Clark are the best around.  We had the option of going
to Aurora, and found out that Aurora charges what the traffic will bear.
Aurora has a patient sign that Aurora can go and get a their credit report.
They see if you have a medical savings account and if you do, Aurora
charges reflect the balance in your account.  A patient can't get
Aurora to quote a price.  It is always a ballpark figure and says that
the price may be higher.  Well, after the credit check, the price is
higher.  I personally paid $1,500 for a $300 ultra sound.  I never
went back to Aurora after that.  Aurora has friends in the federal senate
and gets social security money just handed to them for nothing.
Aurora is ruthlessly competitive and determined to run good places
like Theda out of business.  The WI senator, Herb Kohl, is also determined
to help Aurora do their damage.  It is all so unfair.  People need to
support the kind wonderful places like Theda with their dollars.
At Theda Clark in Neenah, WI....they are the best.  They quote
firm quotes and the care is totally superior.
The other health system in our area, Affinity, is part Catholic and
they are like Madison, cruel and inhuman and greedy and apathetic.
We used to have to go there and it was an angry experience.

To all the patients out there, I sincerely hope that the medical industry
doesn't make your life more difficult than it really is.
I hope you can find a good and kind doctor/system and can
rejoice in your life. 





 :beer1;


What is the longest a recipient has survived with a kidney transplant?

Info gathered on the internet - August 2008.

*Joan Waddell is one of the longest-surviving kidney transplant recipients [34 years] - got a kidney from her older brother in 1974 when she was 18 years old. http://www.tulsaworld.com/news/article.aspx?articleID=071210_1_A1_spanc56110
*John Peper is HCMC’s longest living kidney transplant recipient - related donor - 1970 - lasting 38 years. http://www.hcmc.org/depts/transplant/patientstory.htm
*Denice Lombard of Washington, D.C., received her father's kidney on August 30, 1967 aged 13 and is still alive and healthy forty years later. http://kidneytransplant.researchtoday.net/about-kidneytransplant.htm
*Howard Mehl was 20 years old in in 1965, received a kidney from his brother. http://www.uphs.upenn.edu/news/News_Releases/feb06/trnshse.htm
*Dale Murdock is the fifth longest-living transplant recipient. Forty-four years ago, [age 14 in 1964] doctors transplanted a kidney into him. http://www.kpvi.com/global/story.asp?s=8749491
*Bill Thompson is the longest known surviving recipient of a kidney from an unrelated donor, lasting 42 years; transplanted in 1966 at age 15. http://www.childrensmemorial.org/depts/siragusa/feature.aspx?sID=2760&pID=1318
*Pam Collier on Monday, 24 March 2008 wrote: I have now had my Kidney transplant for 37 years as of 3 July 2008. http://www.kidney.org.au/Whoweare/KidneyBlog/tabid/143/EntryID/6/Default.aspx
*Michael Anderson on Saturday, 25 June 2005 wrote: Being one of the longest surviving renal transplants, (35 years post transplant), having suffered kidney failure at 22 years of age and awaited a transplant for five years. http://www.kidney.org.au/Whoweare/KidneyBlog/tabid/143/EntryID/6/Default.aspx

Kidneys: Longest Surviving - http://www.unos.org/data/default.asp?display=kidney&displayType=internationalData
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on June 05, 2009, 09:22:29 AM
 :2thumbsup; Thank you for adding your story Jim. You must have seen a lot of changes over the 30 years.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on June 22, 2009, 03:40:15 PM
Read the story of our member Wilda, who received her sister's kidney 31 years ago, in 1978. Both she and her donor are doing great!
http://ihatedialysis.com/forum/index.php?topic=14493.0

Thanks Wilda, your story is an inspiration!!  :cheer:
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: aintnorock on June 23, 2009, 02:51:55 PM
I'm 62.  I just had open heart surgery, which should be good for 25 years.  If I get my kidney soon, and it lasts for 25 years, then I'd be 112 before they both wear out.  Not sure I want to live to be 112, but it's certainly worth shooting for.   :sarcasm;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Georgel on July 24, 2009, 06:06:18 PM
My twin sister had her first transplant from our father in Nov. 1964 and then her second from our younger brother in June of 1989.  She is doing well at age 58.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on July 30, 2009, 12:40:37 PM
Gregory McIntyre, 26, held a kidney party to celebrate 20 years since he had a transplant (1989) http://ihatedialysis.com/forum/index.php?topic=15012.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on August 06, 2009, 09:09:30 AM
Wendy Ward, 59, celebrates 30th anniversary of transplant from her brother Lloyd Jones [1979] http://ihatedialysis.com/forum/index.php?topic=15122.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on August 06, 2009, 09:18:22 AM
Donald W. Hicks of North Augusta, S.C., celebrated the 20-year anniversary of a successful kidney transplant with his sister and donor, Kathy Jowers.
http://ihatedialysis.com/forum/index.php?topic=15123.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on October 26, 2009, 05:22:56 PM

Dr. Ken Hughes was transplanted at the Winnipeg General Hospital in 1974. Hughes, who is now 72, has become the country's longest surviving Canadian procedure kidney transplant patient [35 years] Sept. 2009 http://ihatedialysis.com/forum/index.php?topic=16359.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on October 26, 2009, 05:43:26 PM
A medical marvel: a 55-year-old man with an 82-year-old kidney. Bill Thompson received a kidney 40 years ago during a transplant surgery at Children's Memorial Hospital that saved his life and made medical history. The 1966 procedure was one of the first kidney transplants from a living, unrelated donor to a child. [2006]
http://ihatedialysis.com/forum/index.php?topic=16360.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Phraxis on October 30, 2009, 03:50:29 PM
This information is a great inspiration.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: andydemaine on November 09, 2009, 07:22:15 AM
hi,
luv reading all the stories. I'm celebrating the 35th anniversary of my 2nd cadaver transplant today. Operation carried out in 1974 at cambridge, england when I was 17. I had previously had a kidney from my Dad in October 1970 whici rejected in 1974.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on November 09, 2009, 05:31:39 PM
hi,
luv reading all the stories. I'm celebrating the 35th anniversary of my 2nd cadaver transplant today. Operation carried out in 1974 at cambridge, england when I was 17. I had previously had a kidney from my Dad in October 1970 whici rejected in 1974.

Wow that's very cool! Thank you for letting us know Andy!  :clap; :clap; :clap;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on December 16, 2009, 10:35:04 PM
Annette Weber, 48, recently topped 20 years with a transplanted kidney and pancreas. On Nov. 15, 1989, she was among the first women to receive a kidney-pancreas transplant. http://ihatedialysis.com/forum/index.php?topic=17049.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on December 22, 2009, 10:18:21 AM
EIGHTY-year-old retired Army Col. Mauro Lachica the “gift of life” from a younger sister in May 1977. [32 years]
http://ihatedialysis.com/forum/index.php?topic=17129.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: oktbear on December 30, 2009, 10:02:11 PM
Hi everyone, I just found this site while doing a search on longest transplant recipient.

On February 6, 2010, my husband will be celebrating his 35th 'other' birthday.  That's what we call the anniversary of his transplant.

He started having problems with his urinary tract when he was 10 years old.  He had a growth at the top of his bladder which wouldn't allow his kidneys to drain.  He survived, barely, several surgeries for drain tubes and what not, to have his kidneys finally fail when he was 18 years old.  Months after his 20th birthday, he received a transplant from his brother.   He hasn't had any problems with rejection in all these years, Thank You God!!  Even his doctor that did his surgery is amazed at him.

Thanks for letting me join in.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on February 05, 2010, 07:58:51 AM
66-year-old Allen Newey is the longest surviving kidney transplantee in Europe. He was the second person ever to be given a transplant at the Churchill Hospital, in Headington, 35 years ago. [Jan 2010] http://ihatedialysis.com/forum/index.php?topic=17645.0
Title: longest surviving kidney transplant in the u.k.
Post by: becky on February 11, 2010, 08:38:16 AM
my wife is a kidney transplant patient and we are trying to find out the longest surviving kidney transplant patient
in the u.k.we have read so many peoples names some saying so many years and claiming to be the longest we have asked
our  area kidney assocciatian but they do not know.
best regards.
ken gray.

Edited: Topic merged - okarol/admin
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on February 11, 2010, 09:23:47 AM
my wife is a kidney transplant patient and we are trying to find out the longest surviving kidney transplant patient
in the u.k.we have read so many peoples names some saying so many years and claiming to be the longest we have asked
our  area kidney assocciatian but they do not know.
best regards.
ken gray.

Edited: Topic merged - okarol/admin

I read news stories and that's where most of the info in this thread comes from. I doubt there is any agency or group that actually tracks the length of transplants.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: becky on February 11, 2010, 10:30:22 AM
how do people make claims to be the longest if there is no way of proving jt?
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on February 11, 2010, 10:39:51 AM
how do people make claims to be the longest if there is no way of proving jt?

I think they ask around, cannot find any information to dispute their claim (as you have found, there is no clearinghouse for this), so they may honestly believe they are the longest surviving kidney transplant recipient. And it's not like they are getting in the Guinness World Records, so the only thing the title might get you is a newspaper story.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: becky on February 12, 2010, 03:11:16 AM
when someone puts a statement out like allen newey stating he is the longest transplantee in europe how does he jutify that and if it is not true
surely you should not permit it on a forum,otherwise anyone can claim anything which is then missleading information.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on February 12, 2010, 08:40:33 AM

The stories here are mostly from newspapers - and we have no way to verify them.
Perhaps you should track down the journalists and write to them.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: becky on February 12, 2010, 12:09:34 PM
if you could tell me the newspapers concerned i will.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: kristina on February 12, 2010, 12:59:46 PM

I should think these transplant-patients kept
the medical documentation/letters of their transplant?

I still have the medical documentation & medical letter (31.1.1973)
of my first (and only) kidney biopsy which diagnosed that my
kidney failure & coma in 1971 happened because
I suffer from chronic proliferative glomerulonephritis & hypertension.
I kept this medical letter all those years
& shown it whenever it was needed.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on February 12, 2010, 02:32:40 PM
if you could tell me the newspapers concerned i will.

You can read back all through this thread and see that I have added the link to the news stories section where each original article was posted. Follow that and at the bottom of each news story there is a link to the paper, and often the reporter's email is listed.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Hanify on February 12, 2010, 07:39:39 PM
And you should always read newspaper articles about anything with a pinch of salt anyway.  Often people will say they've been on dialysis for so many yers - and then when you read beltween the lines they had a transplant for 10 of them or something.  There was one article in Australia and the guy was monaing cos he had a 4 hour drive to get to dialysis or something.  I realised then that he lived in a place that was only about 1 1/2 hours from Brisbane - which is a huge city with multiple hemo centres.  He must have quoted the time it would take to get to a centre up north of him - sounded way better in the story eh???
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: KraigG on March 09, 2010, 01:53:17 AM
I had my kidney/pancreas transplant August 13, 1990. Pancreas was removed in 2001, but kidney still functioning, but going bad as the months go by. Not quite 20 years.

I'll be back on the waiting list for a new pair in the nest few weeks. It seems as though related donor patients have the longest surviving transplants, but my doctors have told me mine is going bad because of the anti-rejection medications I'm on are not as good as the meds they currently prescribe.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: rookiegirl on March 09, 2010, 07:28:49 PM
I had my kidney/pancreas transplant August 13, 1990. Pancreas was removed in 2001, but kidney still functioning, but going bad as the months go by. Not quite 20 years.

I'll be back on the waiting list for a new pair in the nest few weeks. It seems as though related donor patients have the longest surviving transplants, but my doctors have told me mine is going bad because of the anti-rejection medications I'm on are not as good as the meds they currently prescribe.

what meds are you taking that would cause your transplanted kidney to go bad?
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: KraigG on March 10, 2010, 02:18:20 AM
The stuff they handed out 20 years ago: Cyclosporine, prednisone, and Imuran. No longer on the Imuran, but those were the big 3 antirejection meds back in 1990.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: rookiegirl on March 10, 2010, 05:52:08 PM
I'm currently taking Prograf, Myfortic and Prednisone.  I was told I will be on Prednisone for the rest of my life due to high PRA.  This is pretty scary stuff.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on March 11, 2010, 01:47:50 AM
40 Years Later: Transplant Patient Beats Odds - Frank Germinaro Celebrates 4 Decades Of Medical History
http://ihatedialysis.com/forum/index.php?topic=18146.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: rookiegirl on March 11, 2010, 04:48:17 PM
thank you for posting the link.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on March 17, 2010, 10:46:13 AM
Kidney donor gave me 30 extra years --  Mike Broddle -- March 13, 1980 [Mar. 2010] go to http://ihatedialysis.com/forum/index.php?topic=18221.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: nebraskagirl on April 20, 2010, 06:24:57 AM
I am also one of those great survivors  :pray;. I've had my kidney transplant going on 30yrs-May 17-1980 :bow;!!!!! I had mine in Omaha, NE, it was a cadaver. I did dialysis twice a week for 13 months. I got the call the night before I was to go for treatment. And when I got to the hospital they told me they were going to tell me I would have to start going 3 times a week. So god works in mysterious ways. It's such an inspiration to read and hear about how well other people are doing with their transplants. I'm hoping for many many more years of good health and good fortune. I hope to make some new friends here. 
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on April 20, 2010, 02:13:24 PM
 :clap; Congrats! It's so nice to know someone who has had a transplant for so long! Was it a 6/6 match? I think that's the longest I have heard from a deceased donor. I hope you have many more years!!  :yahoo;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: st789 on April 20, 2010, 02:27:07 PM
Us new transplant recipients here can borrow longevity from some members here. :pray;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: rookiegirl on April 20, 2010, 05:17:35 PM
I am also one of those great survivors  :pray;. I've had my kidney transplant going on 30yrs-May 17-1980 :bow;!!!!! I had mine in Omaha, NE, it was a cadaver. I did dialysis twice a week for 13 months. I got the call the night before I was to go for treatment. And when I got to the hospital they told me they were going to tell me I would have to start going 3 times a week. So god works in mysterious ways. It's such an inspiration to read and hear about how well other people are doing with their transplants. I'm hoping for many many more years of good health and good fortune. I hope to make some new friends here.

Wow! This is such an inspiration for me.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on May 19, 2010, 10:33:16 PM
This guy falls into BOTH categories! Long living dialysis patient AND transplant patient!
Beginning at age 22, Dr. Robin Eady underwent dialysis treatment for 24 years, and he has lived with a kidney transplant for 23 years. [May 2010] http://ihatedialysis.com/forum/index.php?topic=18959.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on June 16, 2010, 12:29:43 AM
Kathy Vilski believes she has someone to thank in Kenosha for saving her life nearly 40 years ago. Although this person lost his life, it was the donor’s kidney that gave her back hers. She was approved for transplantation and had her surgery Sept. 18, 1975. [June 2010] http://ihatedialysis.com/forum/index.php?topic=19231.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on August 08, 2010, 02:48:41 AM
Robert Rodriguez says he had no idea in 1980 that he would live to celebrate the 30th anniversary of his kidney transplant. Now Rodriguez, 84, is a grandfather of two and a great-grandfather of one. [Aug 2010] http://ihatedialysis.com/forum/index.php?topic=19784.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on August 23, 2010, 02:12:57 PM
Harry Turner, 61, still going strong: "Forty years later, a brother's gift of life. [Aug 2010] http://ihatedialysis.com/forum/index.php?topic=19925.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on September 01, 2010, 12:32:47 AM
Myra Sankey, 71, is believed to be the owner of Britain's oldest transplant kidney, having received it in July 1970, is celebrating the 40th anniversary of her kidney transplant. [Aug. 2010] http://ihatedialysis.com/forum/index.php?topic=20011.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on October 31, 2010, 12:32:02 AM
Bristol's first kidney transplant took place on October 31, 1968, with a kidney going to the then 25-year-old Anne Whiteman -- and it's still going strong 42 years later (from a deceased donor.) [Oct 2010] http://ihatedialysis.com/forum/index.php?topic=20720.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: kidney1972 on November 02, 2010, 10:02:24 PM
Just found your site last night.....read with great interest about all the long term tx recipients (in posts and in links to articles) as I was transplanted in 1972 (from my dad) and it lasted for over 36 years.  I was on dialysis for 21 months before being retransplanted on July 30, 2010....I was one of five recipients in a domino surgery that was done in one day-in one hospital-in San Antonio, TX.  My nephew donated in my behalf and I received my kidney from a woman who was donating for her husband.  An altruistic donor was thrown into the mix, with the extra kidney going to someone on the wait list with a PRA of 98.  Amazing....five donor surgeries and five txs in about 12 hours.  We are all doing great....I have a creatinine of .69 which makes this the best kidney I ever had!  My main reason for writing is that I am vice president of a club for those of us who have had a tx lasting for 25 years or more....the Quarter Century Club.  We have over 70 members, one of whom has had his for 46 years . We have several members over 40 years with deceased donor txs.  All of us in the club have at some point in time thought that we were the longest or near the top in longevity.  It has amazed us to find so many others who have made it for so long.  Our common denominator is Imuran/Prednisone.  Very few have changed to the new meds other than those of us who were retransplanted.  Just thought all of you would enjoy hearing about not just one more long term tx survivor, but 70!!!!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: paris on November 03, 2010, 09:32:39 AM
This in inspiring.  I need to read  every good story because there are lots of events I want to be at in the years to come!   Thanks for posting good news, Okarol.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on November 03, 2010, 09:58:54 AM
Wow kidney1972 - I would love to get a list of the 70 members - it would be cool to add their stories here!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Neo on November 04, 2010, 03:20:44 AM
Awesome!!!!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Brightsky69 on November 04, 2010, 03:59:43 PM
My 1st transplant lasted 17 years. I am hoping my 2nd once will last 40 or 50 years.  :bow;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: gregory on November 18, 2010, 02:11:25 PM
I had a transplant for 22 years. My body built up antibodies, I was really surprised when it happened. I thought I would have it forever. They have new medications now that might have saved it. :guitar:
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on November 18, 2010, 10:09:09 PM
Forty years ago, Jim Blanchard was given the gift of life by his brother [Nov 2010] http://ihatedialysis.com/forum/index.php?topic=20981.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on December 05, 2010, 02:25:34 PM
 :2thumbsup;
As a follow-up to a previous post, here is the link to the "Quarter Century Club" - Celebrating Organ Transplant Longevity
Organ Transplants with 25 Years or More Survival of the Transplanted Organ
http://www.qcclub.org/
 :clap;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: wj13us on January 17, 2011, 07:23:15 AM
Wow kidney1972 - I would love to get a list of the 70 members - it would be cool to add their stories here!

I'm also a member of the Quarter Century Club.  38 years in April 2011. 

Funny but I know a few people who either posted here or have articles about them.


Bill
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on January 17, 2011, 10:31:52 AM
 :2thumbsup; Thanks for posting Bill - may you have many more kidneyversaries!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: tyefly on January 17, 2011, 04:04:28 PM
Very Nice Bill......   thats a inspiration to us  who are looking forward to transplant..... and survival.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on February 12, 2011, 08:35:26 PM
Back in 1959 two Oregon sisters made history with their transplant operation. Charlene Hamilton,  one of the longest living kidney recipients in history, passed away in December of 2010 of unrelated health issues. She got her transplant at 12 years old, thanks to her twin sister Charlotte Hamilton, now Charlotte Cottle. [Jan. 2010] http://ihatedialysis.com/forum/index.php?topic=21954.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: willowtreewren on February 13, 2011, 06:12:38 AM
Louis Mascaro of Perinton, NY celebrates 30 years since his son donated a kidney to him. http://ihatedialysis.com/forum/index.php?topic=13031.0 [March 2009]

His niece called the school last week about enrolling her sons. She mentioned her uncle when I said that Carl had just gotten a transplant. Small world!

 :clap;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on April 05, 2011, 11:53:31 PM
For all these 41 years since he received a kidney, Frank Germinaro has called the unknown donor his little angel.
Now he finally knows her name.
[Apr 2011] http://ihatedialysis.com/forum/index.php?topic=22610.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on April 09, 2011, 02:55:24 AM
Edith Helm: Longest Surviving Transplant Patient Dies - Woman Was First To Give Birth After Surgery in 1956 - Kidney transplant from twin sister lasted 55 years! [Apr. 2011] http://ihatedialysis.com/forum/index.php?topic=22643.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on April 12, 2011, 11:12:04 PM
Our member wj13us celebrates 38 years! [Apr 2011] http://ihatedialysis.com/forum/index.php?topic=22681.0  :yahoo;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: PEGGY on April 14, 2011, 08:37:29 AM
 :flower;  first happy 38th...wow!
I am new to board. a little history: dialysis Sept 1991, transplant June 23, 1993 going on 18 years, never had a rejection episode (thank God).  I take 5mg prednisone, 75mg clyclosporine, 1 dble bactrim, 1 capitol once a day oh and vitamins.  creatine ranges .9 to 1.2.  Barnes Jewish hospital in St Louis, Mo.  is the greatest.  My donor was my daughter in law.  Illinois wouldn't transplant us because she was only a 2 out of 6 match but Barnes didn't hesitate. 

They treat donors like manna from God.  So many of my fellow dialysis buddies wouldn't dream of asking relatives to donate.  My daughter in law was in hospital for 3 days and called me (who had to stay for almost 10 days) on the 4th day and said she had just got back from riding a bike.  Barnes had treated them to a big dinner at the roof top restaurant and given them a basket of wine, cheese and fruit that was as big as a baby bassinet.

 I have monthly labs that they over see and have all these years including prescribing all my meds all this time.  I go see them once a year.

They are thinking that I might be able to come completely off the clyclosporine because it is toxic.
I drink the water, watch my weight (though  I am a little over weight), take my meds and at the onset of a cold I get a z-pack (like taking antibiotics for 30 days).

The only real info I can share is that at the beginning when I went to nephrologist my creatine was 3.1 and if it had stayed there I would not have gone on dialysis.  But suddenly it started to go up .4 of a point every month.  I started going to labs every week.  I noticed that during my monthly cycle my creatine rose .9 of a point and the following week it went down .5 but retained .4 and this continued until I was at 6.1 and put on dialysis.  I made a point to bring this to the attention of my then nephrologist at 4.4 but he decided there was nothing to it.  I even asked him to stop my monthly cycle but that was put down. 

Since then I have tried to get someone to look into this.  I know it wouldn't help the guys directly but it might help in the long run if women only had to stop their monthly cycle to save their kidneys it would mean more transplants for men.  But I haven't been able to get anyone to listen.  While doing the work up for my transplant they noticed a shadow close to my pancrease which was finally diagnosed as a cyst on ovaries ended up having a complete hysterectomy before transplant.  So no more monthly cycle and my transplanted kidney that that nephrologist in Illinois swore would reject within 30 days and thought would be such a waste of a kidney and actually tried to get my donor to donate to someone else is still kicking...and like I said never a rejection episode and very little medication...if you know someone who will listen and look at the possibilities let me know...i will gladly let them look at my records.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: HouseOfDialysis on May 19, 2011, 05:47:09 PM
My mother had her cadaver kidney for 20 years before she developed an infection in her heart and they had to take her off the immunosuppressants.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on May 29, 2011, 02:51:31 AM
Kidney transplant has lasted 40 years and going strong. Jack Young's kidneys began failing at age 17 in 1967, so his 25 year old sister donated her kidney in 1971. [May 2011] http://ihatedialysis.com/forum/index.php?topic=23173.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on June 07, 2011, 11:26:33 PM
30 year transplant [June 2011] I received this note from a woman named Jeanine who I met from the NKF website. Here's her story:
I had my transplant in 1981 at Tuffs New England Medical Center in Boston when I was 19 years old.    For two weeks I felt like I had the flu and one of my eyes was really blurry.  I  went to the eye doctor and he said my blood pressure in my eyes were really high.  So I immediately saw my doctor and they said my kidneys were failing from the test they took.  I was immediately put on dialysis and had my transplant 4 months later. I did not have any rejections which at that time was really unheard of since my transplant was from a cadaver.   I have now had the kidney for 30 years.  My son who is 16 had to have a kidney transplant last year in January and he is doing fine.  He was on dialysis for 4 months as well.    His kidney was from a cadaver also.     He was diagnosed with FSGS kidney disease.  Although I didn’t have any test to tell me what kind of kidney disease I had they are pretty sure I had the same disease as my son.  My son had his transplant at Children’s hospital In Boston.
 
There is hope for everyone.  Always stay positive and keep the faith.
......................
 :clap; Best wishes for many more good years for Jeanine and her son!  :bestwishes;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: galvo on June 08, 2011, 10:50:19 PM
A good story!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: kittylee on June 13, 2011, 07:16:28 AM
I received a donor (deceased) kidney 6 weeks ago and was feeling rather positive until the past week. A combination of having to travel 2 hours each way to the hospital and some side effects from the prednisolone. Any how after reading this thread I have bucked up and am feeling that Roger Bean (my new kidney) and I are in it for the long haul.  I am sure once I get back to my normal routine and return to work I will feel much better. Heres to 50 more years Rog!!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Cordelia on June 13, 2011, 07:46:50 AM
I met a woman a few weeks ago who told me she had her kidney (donated from her sister) for 26 years! That's impressive!   :)
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Fran Unger on June 23, 2011, 06:33:29 AM
It is really inspiring to read all of the success stories of patients who had a kidney transplant. It is encouraging to see so many people live long and healthy lives after receiving a transplant. It is nice to read the stories behind the transplants too.


EDITED: Fixed link error - okarol/admin
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: jersey girl on June 26, 2011, 10:31:58 AM
I am having a kidney transplant in 2 weeks.  My husband and I are part of a swap in the Philadelphia area.  I love reading these stories.  This thread has really been an inspiration!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on June 26, 2011, 12:32:53 PM
It is really inspiring to read all of the success stories of patients who had a kidney transplant. It is encouraging to see so many people live long and healthy lives after receiving a transplant (http://iuhealth.org/transplant/). It is nice to read the stories behind the transplants too.

Hey Fran, please go to the introduce yourself section and tell us something about yourself. Posting urls to Indiana University Health in your posts is advertising, and doesn't really help someone outside Indiana.

okarol/admin
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on July 01, 2011, 10:41:23 AM
FORTY years ago, Diane Schulze barely made it through her wedding day without collapsing. She married and was transplanted in 1971 - [July 2011] http://ihatedialysis.com/forum/index.php?topic=23601.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on July 02, 2011, 05:05:45 PM
The 50th anniversary for Canada’s longest surviving single kidney transplant recipient is one for the record books.
On Dec. 28, 1960, 12-year-old Lana Nightingale (Blatz) donated her kidney to her identical twin sister Johanna Nightingale (Rempel).
[Jan 2011] http://ihatedialysis.com/forum/index.php?topic=23615.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on July 04, 2011, 01:40:05 PM
hi,
luv reading all the stories. I'm celebrating the 35th anniversary of my 2nd cadaver transplant today. Operation carried out in 1974 at cambridge, england when I was 17. I had previously had a kidney from my Dad in October 1970 whici rejected in 1974.

I got a note from Andy today:

Just to update you. I was first diagnosed with haemolytic uraemic syndrome in July 1969 aged 12. Its just a few weeks I went on haemodialysis. I had my first kidney transplant in Adenbrookes Hospital, Cambridge, England on 1st November 1970. Professor Roy Calne carried out the operation which was a live donor with my Dad giving the kidney.
This lasted until July 1974 when it was removed in Cambridge and I went back on dialysis and the waiting list. On 8th November 1974 I received my current kidney in Adenbrookes Hospital, Cambridge. On the 10th day it started to work and I still have very good renal function. This coming November will be my 37th anniversary.

My current kidney was from a cadaver - I know it was a young male from Cardiff, Wales. I've tracked down most of my old medical records including those from 1969 and one day might put pen to paper.... In England there is no usual requirement to keep records after 7 years so really lucky to find them. Unfortunately I cant obtain my records from 1979 - 1993 whilst I was looked after by the Transplant Unit at Guy's Hospital, London. They destroyed the records!! In England there is no requirement to keep them after 7 years. Crazy!

all the best and keep up the good work.

andy demaine
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on December 20, 2011, 09:08:53 AM
John Trippe was on dialysis in 1980, at 26 years old. His five siblings were tested to see whether any would be a good match as a donor. The best match was his younger brother Jerry, then just 16. They just celebrated 30 years. [Dec. 2011] http://ihatedialysis.com/forum/index.php?topic=25328.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on January 27, 2012, 05:13:55 PM
Harry Greiner has been healthy with a donated kidney for 40 years — making Greiner one of the longest kidney transplant survivors in the United States. At age 20, his uncle, Les, donated a kidney so Greiner could undergo a potentially life-saving transplant. [Jan. 2012]
http://ihatedialysis.com/forum/index.php?topic=25676.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: MaryD on January 27, 2012, 05:52:17 PM
In the local renal unit just after Christmas I was chatting to a 69 year old man whose transplant was just failing after 39 years.  He had decided he probably wouldn't get another one. He was just starting HD again.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on March 10, 2012, 01:56:05 AM
Steve Brock, 57, was one of the first people in the UK to have what was then a pioneering transplant at Addenbrooke’s Hospital in Cambridge. He was diagnosed with kidney failure when he was 17 and after a short period of dialysis was given a transplant. 1972 [Mar. 2012] http://ihatedialysis.com/forum/index.php?topic=26024.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on April 13, 2012, 01:16:49 AM
Brother & sister celebrate kidney transplant of 25 years - John Arriola says giving one of his kidneys to his sister Maria Grijalva in April of 1987 was one of the best decisions he's ever made. http://ihatedialysis.com/forum/index.php?topic=26285.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: dkay42 on April 18, 2012, 11:13:39 AM
This was a very interesting, delightful post. My husband just lost his 24-year-old cadaver transplant. He is 51. His kidney is 60. Must mention that he told me this past week, that now on daily dialysis (training for home), he feels better than he has felt in years. He says he's not sure he wants another transplant. I say, "we'll see."
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Clara on August 17, 2012, 09:20:35 PM
These stories are truly inspiring.  I am doing the work up to go on the list for Kidney-Pancreas transplant.  Thanks everyone for sharing  :flower;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: natnnnat on August 18, 2012, 07:36:09 AM
This was a very interesting, delightful post. My husband just lost his 24-year-old cadaver transplant. He is 51. His kidney is 60. Must mention that he told me this past week, that now on daily dialysis (training for home), he feels better than he has felt in years. He says he's not sure he wants another transplant. I say, "we'll see."
Oh!  My hustand's 20 year old cadaver transplant is failing at the moment; he is 45.  I hope that we find he feels really well, when he finally goes back on dialysis.  I know its not the case for some but you can always hope.  I'm glad I saw your post.  :waving;
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on August 18, 2012, 05:54:37 PM
‎30 years ago Lorraine Campbell was given a kidney by her sister Denise Boyd. [1982] ‎http://ihatedialysis.com/forum/index.php?topic=27321.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on August 19, 2012, 02:22:48 AM
 
Woman marks her 33rd year as a kidney transplant recipient
When she was 18 years old, Joan Waddell got kidney dialysis for the next year and a half. Back in 1974, Waddell�s brother, Daniel White donated a kidney to her.
[2007] http://ihatedialysis.com/forum/index.php?topic=27325.msg436974#msg436974
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on October 26, 2012, 02:23:23 AM
83-year-old Clark Beck will celebrate the 40th anniversary of his kidney transplant on Oct. 29 (from deceased donor) [Oct. 2012] http://ihatedialysis.com/forum/index.php?topic=27729.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: DialysisGoneFOREVER on January 01, 2013, 04:13:15 AM
Great stories! So the longest surviving kidney transplant is 45 years from the lady who got it from her father at 13?

I don't consider identical twin transplants to be in the same league as us since they have a lot more compatability than the rest of us.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on January 16, 2013, 01:08:33 AM
63-year-old Neil Tubb celebrates a hearty kidney 30 years later (deceased donor) - [Jan. 2013] http://ihatedialysis.com/forum/index.php?topic=28271.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Lexxtech18 on January 16, 2013, 05:22:55 AM
This is amazing to read! At the pediatric clinic I used to go to, one of the nephrologists had a tx from her father when she was a teen and it lasted until she was in her 40s, I believe. What's more is her brother also had a tx from their mother around the same time. This is all what I heard through another clinic patient. The neph didn't like too many people to know, I guess she thought it made her look weak in the medical field. I found it quite inspirational.
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on February 04, 2013, 12:00:43 AM
Julie O’Neill (nee Sammon, Erriff) received a kidney transplant (she was 30) from her brother Padraic Sammon (he was 19) 30 years ago [Jan. 2013]  http://ihatedialysis.com/forum/index.php?topic=28387.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on February 04, 2013, 12:03:49 AM
On Feb. 3, 1983, after 14 months on dialysis, Walt Erwin received a kidney from his older brother, Frank. [Feb. 2013] http://ihatedialysis.com/forum/index.php?topic=28386.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on March 29, 2013, 11:39:50 PM
42 years ago a Eloy Romero gave his brother Fred a kidney. 1970 [Mar. 2013] http://ihatedialysis.com/forum/index.php?topic=28713.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on June 12, 2013, 04:41:45 PM
FOR the last 35 years, Valerie Coombe has been living life to the full – thanks to a kidney transplant.
The 77-year-old got a new kidney on June 7, 1978.

http://ihatedialysis.com/forum/index.php?topic=29148.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on July 13, 2013, 08:30:18 AM
Fifty+ years after kidney transplant, Nightingale twins still healthy - Johanna Rempel received a kidney from identical twin Lana Blatz when they were 12 years old. [June 2011]
http://ihatedialysis.com/forum/index.php?topic=29311.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on September 27, 2013, 01:35:46 PM
Sandy Daniels celebrates 30 years with transplanted kidney from her brother Rick Johnson [Sept. 2013] http://ihatedialysis.com/forum/index.php?topic=29711.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on October 08, 2013, 04:03:00 PM
Still going strong 38 years after a kidney transplant, George Franklin III of Cumberland, MD is thought of as the second longest living African-American transplant recipient in the Unites States. Franklin, 59 received his kidney in 1975 from a deceased donor. [Aug 2013] http://ihatedialysis.com/forum/index.php?topic=29763.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on October 30, 2013, 09:51:36 PM
Patricia Kunkle soon will celebrate her 66th birthday, but the healthy kidney inside her is 91, an almost unbelievable transplant achievement. Transplant was 45 years ago from her mom. [Oct. 2013] http://ihatedialysis.com/forum/index.php?topic=29877.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on November 29, 2013, 12:33:40 PM
FORMER jockey Bob Hughes became a national celebrity 40-years-ago when he became one of the first people in the country to undergo a kidney transplant. Then aged 25, his life was saved by his brother John who risked his own health by donating him a kidney – despite his own doctor advising against the procedure. [Nov. 2013] http://ihatedialysis.com/forum/index.php?topic=30023.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on December 01, 2013, 05:09:28 PM
For Don Gordon, when the Pearl Harbor date rolls around [2008], it will mark, for him, the 25th anniversary of the kidney transplant that preserved his life. http://www.thecolumbiastar.com/news/2008/0718/news/006.html

Longest living kidney transplant recipient says never accept can't
2008-07-18 / News
By Jackie Perrone jacper@bellsouth.net

Snowball's chance is Don Gordon's manuscript documenting his journey through medical hell.
December 7 is a significant date for Don Gordon, but for a different reason than most. When the Pearl Harbor date rolls around this year, it will mark, for him, the 25th anniversary of the kidney transplant that preserved his life.

He doesn't know whether this is the longest recorded kidney transplant survival anywhere. He does know for sure that he is the longest surviving transplant patient at Columbia Nephrology Center, where he credits now- retired Dr. U. X. Cullum with his near- miraculous longevity.

"I was five years old when my kidney problems became critical," he notes. "My kidney damage was not due to disease but to a somewhat mechanical function which was not corrected until it had done irreparable damage to my kidney.

"Medication and dialysis were the treatments of choice for many years. Then in 1983, transplant surgery became the issue at Duke Medical Center, and my brother, Jim Gordon, donated a kidney.

"Probably one significant factor in my long- term endurance is that other than the kidney problem, my overall health was and is excellent. Heart, lungs, liver, physical fitness, those things are better than for most middle- aged men. I have been riding my bicycle around eastern Columbia ever since the 1970s."

His business career has included stints of marketing From page one and sales of such products as life insurance and overhead doors. He is now host of a talk show called Radio Free Dixie, and its web site, RadioFreeDixie. com. He offers verbal snapshots of history, and in his role as Lt. Commander of the Sons of Confederate Veterans he also tells some special commentary about the War Between the States.

His 60 years have been filled with medical trauma, hopes, and disappointments. A sense of humor and a philosophical approach to life have helped him through the worst of times.


"It's true that people who have faced the worst learn to appreciate the least. I know better than most folks that every day is precious, and the smallest moments can be important to us. Don't ever take your blessings for granted!"

He has put together a manuscript tentatively named Snowball's Chance, not yet published but documenting his journey through medical hell. He would like for it to provide some hope as well as help for others facing medical trauma.

Some of his rules for patients:

1. Play to win. Now is when you have to be willing to take chances. There's no glory for second place.

2. Remind yourself that about half of doctors finished in the bottom half of their class in medical school

3. Believe any doctor who says that he can't save you. Then go out and find one who says that he can.

Near the conclusion of his manuscript, he thinks back to a trip to Minnesota, where he had gone in a desperate search for help and offers this report about his return home:

"At the airport, they de- ice the plane two times. I can see seven snowplows working out on the tarmac… Shortly the pilot announces we were the last plane to lift off before the airport was closed down.

"The long flight home is good for my soul because it gives me plenty of time to think (and pray). Please God just let me live my life like a regular man whose biggest worry isn't whether he will wake up the next morning.

"Unexpectedly,"(Colu mbia had snow), "as we turned into the driveway I see everything covered in white except for little bursts of yellow from daffodils poking up their heads.

"We don't need any mystics to explain the meaning of life when we have such a perfect example showing what we should all be striving to do: Bloom in the face of adversity."

This medical miracle strives every day to do just that.

Update:
Thirty years later, transplanted kidney still doing its job

http://ihatedialysis.com/forum/index.php?topic=30029.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on December 05, 2013, 02:24:56 AM
Darlene Miller, 40-year transplant survivor, from her brother Leo Arens [Dec. 2013] http://ihatedialysis.com/forum/index.php?topic=30043.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on May 28, 2014, 11:48:54 PM
Brothers mark 35 years with kidney gift. Tom Cooper was a 26-year-old man nearing death when his 18 year old brother, Ed Cooper, donated a kidney to him. [May 2014] http://ihatedialysis.com/forum/index.php?topic=31185.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on June 09, 2014, 11:32:54 AM
KidneyTalk from the Renal Support Network:
A kidney is a priceless gift, and keeping it for over 25 years is something we all wish for. George Franklin III is the President of the Transplant Quarter Century Club and has had his kidney transplant for more than 38 years. Knowing first-hand the unique problems that can come from having a transplant for so long, he started the club so that members could support one another as they deal with both physical and emotional issues. Lori and George discuss some of the problems long-term transplant recipients encounter. Says George, “Having been there and done that, we can offer a lot of advice.”
http://www.rsnhope.org/kidneytalk-podcast/show-index/transplant-quarter-century-club-the-club-recipients-want-to-join/
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on June 10, 2014, 06:52:24 PM
Keith Lemerise has one of his brother Gregg's kidneys, which he received 30 years ago during his college days. (1984)
[June 2014] http://ihatedialysis.com/forum/index.php?topic=31225.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on June 21, 2014, 01:06:11 PM
Cindy Ellis was 25 when her older sister, Corinne offered to donate a kidney. Ellis had the transplant on May 25, 1977, at Tampa General Hospital. Today, she is the longest living known survivor of its kidney program, celebrating 37 years this month. [June 2014]  http://ihatedialysis.com/forum/index.php?topic=31259.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on June 22, 2014, 09:55:42 AM
A kidney donated from one identical twin to the other, Janice and Joanie are doing well since the transplant in 1964. University of Michigan celebrates 50 years of Transplant Center [May 2014] http://youtu.be/7N34Rfh0Luw
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on July 08, 2014, 01:10:40 PM
It's been almost 45 years since the operation that saved Glenis Lucanus's  life, the 78-year-old, from Hamilton Hill, has the longest-surviving transplanted kidney in WA.
[Jul 2014] http://ihatedialysis.com/forum/index.php?topic=31323.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on July 20, 2014, 09:32:40 PM
When Vivian Bond needed a kidney, her sister Brenda Kent gave her one. That was nearly 40 years ago ─ 40 years of life Vivian may not have had otherwise. [July 2104] http://ihatedialysis.com/forum/index.php?topic=31368.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on July 31, 2014, 02:09:45 PM
Eric Lang of Cheverly won a gold medal in bowling during the Transplant Games of America. He said he received a kidney transplant 30 years ago. [July 2014] http://ihatedialysis.com/forum/index.php?topic=31396.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on October 11, 2014, 03:44:44 PM
30th anniversary of G.A. Flesher's kidney transplant procedure from a deceased donor[Oct 2014]

http://ihatedialysis.com/forum/index.php?topic=31575.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on March 18, 2015, 02:23:05 PM
Andy Demaine, aged 57, a former Plymouth professor, is celebrating more than 40 years since his kidney transplant. [Mar. 2015]  http://ihatedialysis.com/forum/index.php?topic=31970.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on April 26, 2015, 04:10:41 PM
Angie Done is 66, but part of her is 100. When she was a young woman, her kidneys failed and she received a new kidney from her father. Since 1974, it's been going strong - 42 years! [Apr. 2015] http://ihatedialysis.com/forum/index.php?topic=32215.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: okarol on June 13, 2015, 05:20:17 PM
Katheryn Aiton's kidneys failed in 1965, so her brother Jim “Shorty” Knight volunteered one of his. Sister, brother and kidney are all still going strong 50 years later. [June 2015] http://ihatedialysis.com/forum/index.php?topic=32352.0
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Bluebutterfly on July 31, 2016, 12:07:36 PM
I have had mine since 5/25/1991
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: DialysisGoneFOREVER on July 31, 2016, 01:07:33 PM
I have had mine since 5/25/1991

That's awesome! 25 years!  :2thumbsup; :clap; :beer1;

Was it a living donor or cadaver? Were they similar in size and older or younger?
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: Bluebutterfly on August 02, 2016, 06:01:35 PM
I got my kidney from my sister who is one year older
Than me 6 antigen matching kidney
So happy she is my hero!!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: LorinnPKD on August 02, 2016, 08:59:05 PM
25 years!  What a tremendous and generous gift!
Title: Re: What is the longest a recipient has survived with a kidney transplant?
Post by: DialysisGoneFOREVER on August 02, 2016, 09:03:32 PM
I got my kidney from my sister who is one year older
Than me 6 antigen matching kidney
So happy she is my hero!!

That's awesome! What medications are you on now and what's your creatinine like?