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Author Topic: Last Post Loves IHD The Most!  (Read 1839054 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27075 on: November 15, 2012, 01:43:33 PM »
Jeeez Marc, that's awful. Very worrisome. I hope you get some answers soon.  :cuddle; :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MaryJoe
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« Reply #27076 on: November 16, 2012, 05:37:35 AM »
Wow, Marc, I hope your PCP was able to give you some answers.  I can relate to the nose packing, it's a miserable experience.  the doctor packing my nose said, "tell me when you can feel this in your throat."  :o  Seriously?!  Ugh!  Do you know if the headache was from the pressure of the packing, or was/is it related to whatever caused your nosebleed?   I hope you are felling better.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
YLGuy
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« Reply #27077 on: November 16, 2012, 02:58:43 PM »
Thank you all.  The headache was definitely because of the packing.  I had so much pressure behind my eye.  I spoke with my neph who told me that he had not changed my orders for Heparin.  I spoke to the nurses this morning and they said nothing had changed but JIC they did not give me any Heparin today. 

Good thing because this is a huge weekend for me.  One of my closest friends from high school is flying in from China tonight for the weekend.  Since he is coming all the way from China I called our two other buddies that live in The San Francisco area and told them to get their buts down here.  My friend from China has no idea they are coming down to see him so it should be a great surprise.  Also, Mishy and DJ are in town from Boston and I really want to see them too.
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YLGuy
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« Reply #27078 on: November 18, 2012, 09:59:38 PM »
Had a really great weekend seeing some old friends.   :yahoo;
I missed Mishy and DJ though.  :(
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CebuShan
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« Reply #27079 on: December 18, 2012, 12:37:00 PM »
NxStage came out to update my machine today. Turns out that it was already updated! Apparently the 3rd CU that was sent was an updated one!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
cassandra
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When all else fails run in circles, shout loudly
« Reply #27080 on: December 20, 2012, 03:07:57 PM »

   :bump;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
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« Reply #27081 on: December 20, 2012, 11:02:55 PM »
I've got nothing
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
CebuShan
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« Reply #27082 on: December 22, 2012, 05:00:42 PM »
Quote from: Chris on December 20, 2012, 11:02:55 PM
I've got nothing

How did it finally turn out at the car dealer? Did you get Whitley's picture with Santa and the stocking full of treats?
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
Chris
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« Reply #27083 on: December 22, 2012, 09:23:31 PM »
Yes, went car ddealer and got picture, but have not gotten email of the picture yet. They did not hand out the stocking, I guess I was to early for them to be ready, but why advertise 12 to 4 when santa did not show till 12:45. Next year I hope I do not have to be anywhere when the pet stores do it again.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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Posts: 4901
« Reply #27084 on: December 23, 2012, 09:36:20 AM »
 :santahat;
Merry Christmas. Went out to pick up a couple of things yesterday. Stopped for gas first. Card was declined??? Went home and looked at my account. Someone out by one of the Indian Casinos drained my account. They left me $1. Wells Fargo can't do anything about it yet because the transaction is still just pending.
 ???
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Chris
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« Reply #27085 on: December 23, 2012, 08:19:48 PM »
I have had a similar event happen. The person was making online transactions. It took a couple weeks, many phone calls to finally get my money back except for one transaction (luckily it was less than $15). It is frustrating, gut wrenching, and flabbergasting to have happen. Now in a habit of checking account everyday online, thru phone to make sure nothing else happens and to report asap if something does.
« Last Edit: December 24, 2012, 10:56:09 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #27086 on: December 24, 2012, 02:22:55 AM »
Same thing just happened to my hubby - $1500 gone overnight - he's been dealing with fraud department - Merry Christmas? UGH!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #27087 on: May 10, 2013, 02:23:06 PM »
 :shy; Anyone still out there? hahahaha I WIN!  :yahoo;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
iKAZ3D
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Posts: 221


06/08/2013
« Reply #27088 on: May 11, 2013, 07:19:54 AM »
I WIN, NO POST BACKS!
Logged
August 16th, 1996 - Born in Sacramento, CA; Born with Posterior Urethral Valves
September 2008 - Large Reconstruction, bladder augmented, stoma placed and ureters fixed
September 2010 - Needed emergency hip surgery for Slipped Capital Femoral Epithysis
September 2010 - Started Dialysis without refusal (Big mistake)
Summer/Fall 2011 - "Inactivated" on the Inactive Transplant List
October 2012 - Activated on the transplant list
November 30th, 2012 - Surgeons threatening to not to a transplant based on weight
April 25th, 2013 - Lost 25 pounds (97kg), however developed highly resistant bladder bacteria, Inactivated from list until eradicated
May 15th, 2013 - Finally cleared of the bacteria, reactivating on list imminent.
May 24th, 2013 - Reactivated on the list!
June 8th, 2013 - Transplant!
June 19th, 2013 - Dialysis Catheter officially removed and returned home from the hospital!
June 21st, 2016 - Sleeve Gastrectomy
March 11th, 2019 - Revision to Gastric Bypass
geoffcamp
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« Reply #27089 on: May 11, 2013, 11:05:24 AM »
WINNER!!   Tiger blood!!  Thx Charlie Sheen!!  Topic locked!!!  :rofl;
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Geoffrey Campbell
Diagnosed with ESRD at 26
Transplanted in 1999 rejected 2001
In center hemodialysis since late 2001 3X a week 4 hours late evening 3rd shift
iKAZ3D
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06/08/2013
« Reply #27090 on: May 11, 2013, 02:27:56 PM »
Quote from: geoffcamp on May 11, 2013, 11:05:24 AM
WINNER!!   Tiger blood!!  Thx Charlie Sheen!!  Topic locked!!!  :rofl;

Sorry, I called "No Post Backs". Your post is disqualified.  :yahoo; :rofl; :yahoo; :clap; :yahoo; :rofl;
Logged
August 16th, 1996 - Born in Sacramento, CA; Born with Posterior Urethral Valves
September 2008 - Large Reconstruction, bladder augmented, stoma placed and ureters fixed
September 2010 - Needed emergency hip surgery for Slipped Capital Femoral Epithysis
September 2010 - Started Dialysis without refusal (Big mistake)
Summer/Fall 2011 - "Inactivated" on the Inactive Transplant List
October 2012 - Activated on the transplant list
November 30th, 2012 - Surgeons threatening to not to a transplant based on weight
April 25th, 2013 - Lost 25 pounds (97kg), however developed highly resistant bladder bacteria, Inactivated from list until eradicated
May 15th, 2013 - Finally cleared of the bacteria, reactivating on list imminent.
May 24th, 2013 - Reactivated on the list!
June 8th, 2013 - Transplant!
June 19th, 2013 - Dialysis Catheter officially removed and returned home from the hospital!
June 21st, 2016 - Sleeve Gastrectomy
March 11th, 2019 - Revision to Gastric Bypass
YLGuy
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Posts: 4901
« Reply #27091 on: May 11, 2013, 11:38:09 PM »
Quote from: iKAZ3D on May 11, 2013, 02:27:56 PM
Quote from: geoffcamp on May 11, 2013, 11:05:24 AM
WINNER!!   Tiger blood!!  Thx Charlie Sheen!!  Topic locked!!!  :rofl;

Sorry, I called "No Post Backs". Your post is disqualified.  :yahoo; :rofl; :yahoo; :clap; :yahoo; :rofl;
I would consider this a post back as well which would disqualify you! Hmmmm, that would make me the winner!  :sir ken;
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iKAZ3D
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06/08/2013
« Reply #27092 on: May 12, 2013, 10:16:12 AM »
Quote from: YLGuy on May 11, 2013, 11:38:09 PM
Quote from: iKAZ3D on May 11, 2013, 02:27:56 PM
Quote from: geoffcamp on May 11, 2013, 11:05:24 AM
WINNER!!   Tiger blood!!  Thx Charlie Sheen!!  Topic locked!!!  :rofl;

Sorry, I called "No Post Backs". Your post is disqualified.  :yahoo; :rofl; :yahoo; :clap; :yahoo; :rofl;
I would consider this a post back as well which would disqualify you! Hmmmm, that would make me the winner!  :sir ken;

Asshat.  :rofl;
Logged
August 16th, 1996 - Born in Sacramento, CA; Born with Posterior Urethral Valves
September 2008 - Large Reconstruction, bladder augmented, stoma placed and ureters fixed
September 2010 - Needed emergency hip surgery for Slipped Capital Femoral Epithysis
September 2010 - Started Dialysis without refusal (Big mistake)
Summer/Fall 2011 - "Inactivated" on the Inactive Transplant List
October 2012 - Activated on the transplant list
November 30th, 2012 - Surgeons threatening to not to a transplant based on weight
April 25th, 2013 - Lost 25 pounds (97kg), however developed highly resistant bladder bacteria, Inactivated from list until eradicated
May 15th, 2013 - Finally cleared of the bacteria, reactivating on list imminent.
May 24th, 2013 - Reactivated on the list!
June 8th, 2013 - Transplant!
June 19th, 2013 - Dialysis Catheter officially removed and returned home from the hospital!
June 21st, 2016 - Sleeve Gastrectomy
March 11th, 2019 - Revision to Gastric Bypass
CebuShan
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Posts: 2848
« Reply #27093 on: May 21, 2013, 09:29:46 AM »
I'M THE WINNER!!   :rofl;
I haven't posted in this thread in a while so this is NOT a "Post Back"!   :clap;
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
okarol
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #27094 on: May 23, 2013, 08:25:34 PM »
 :bandance; Dancing for the WIN!! Heeheeee  :rofl;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
CebuShan
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Posts: 2848
« Reply #27095 on: May 24, 2013, 06:06:04 AM »
Hope everyone has a great Memorial Day Weekend!   :guitar:
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
okarol
Administrator
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #27096 on: May 26, 2013, 11:43:24 AM »
Quote from: CebuShan on May 24, 2013, 06:06:04 AM
Hope everyone has a great Memorial Day Weekend!   :guitar:

Thanks - same to you!  :flower;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
YLGuy
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Gender: Male
Posts: 4901
« Reply #27097 on: May 27, 2013, 09:46:19 PM »
Dialysis today  :(
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Chris
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« Reply #27098 on: May 27, 2013, 10:20:03 PM »
Fun with test procedure and doc appointment afterwards tomorrow, but no dialysis.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
Administrator
Member for Life
*****
Offline Offline

Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

WWW
« Reply #27099 on: May 27, 2013, 11:02:16 PM »
 :cookie; :cookie; :cookie; cookies 
had to empty them from my computer :rofl;
« Last Edit: May 27, 2013, 11:03:54 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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