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Author Topic: Last Post Loves IHD The Most!  (Read 1833535 times)
cariad
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What's past is prologue
« Reply #27000 on: July 09, 2012, 06:52:20 PM »
Sounds exhausting, Chris. There's one thing I cannot abide for myself, and that's anyone trying to tell me what, when or how much to eat. It just too controlling for me. Eventually you'll be back home making your own food choices anyway, so I'm not sure what they are trying to accomplish here.

Your dog looks a real sweetheart. Enjoy getting to know your new best friend!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Jess21
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« Reply #27001 on: July 12, 2012, 09:53:26 PM »
 :waiting;
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Chris
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« Reply #27002 on: July 13, 2012, 10:44:40 PM »
2 full weeks left of training. Graduation next week on Saturday and then extra training in New York City the last week. Manhattan trip this week also. Tonight was first time in the dark.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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When all else fails run in circles, shout loudly
« Reply #27003 on: July 14, 2012, 07:20:42 AM »
Ooh it sounds exhausting, but it will be so worth it Chris. Good luck already.

Keep strong, and lots of love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
CebuShan
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« Reply #27004 on: July 14, 2012, 06:40:59 PM »
Best of Luck, Chris. Whitley is beautiful!
Hey everyone! Think of me on Wed. 18th. I am going to start training for Nexcare!
 Also, My TX coordinator called and they have all my results so now I'm waiting for scheduling to call to set up the initial appointment!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
Chris
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« Reply #27005 on: July 14, 2012, 07:03:54 PM »
Good Luck CebuShan
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #27006 on: July 16, 2012, 08:23:51 AM »
Quote from: CebuShan on July 14, 2012, 06:40:59 PM
Best of Luck, Chris. Whitley is beautiful!
Hey everyone! Think of me on Wed. 18th. I am going to start training for Nexcare!
 Also, My TX coordinator called and they have all my results so now I'm waiting for scheduling to call to set up the initial appointment!

 :2thumbsup;
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cassandra
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When all else fails run in circles, shout loudly
« Reply #27007 on: July 17, 2012, 08:41:12 AM »
How did you get on Cebushan?
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27008 on: July 25, 2012, 07:21:14 PM »
Well, looks like everyone is busy and Chris is in Ny so I WIN!!!  :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer: :cheer:
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
YLGuy
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« Reply #27009 on: July 26, 2012, 01:00:44 AM »
 :2thumbsup;
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YLGuy
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« Reply #27010 on: July 26, 2012, 01:00:53 AM »
 ;D
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27011 on: July 26, 2012, 02:21:28 AM »
 :sir ken; Hi YLGuy!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #27012 on: July 26, 2012, 05:29:31 AM »
Last full day in NY and sort of can't wait to get home so I can get away from noisey younger students, yet do not fully feel ready to go. I still need help on a couple things.
 
Met my puppy raiser at graduation and was given a short photo album of Whitley's  life as a young pup before going into training. I posted most of my pics and videos on facebook since I can not post pics from iPhone onto here.
 
Not sure what we are doing today since plans maybe different due to rain.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #27013 on: July 26, 2012, 07:21:45 AM »
 :waving;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27014 on: July 26, 2012, 10:05:34 PM »
 :cheer: Hi Chris! That was a sweet gift, the photo album.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
YLGuy
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« Reply #27015 on: July 27, 2012, 02:31:55 PM »
I lost another dialysis friend.  I saw his wife in the parking lot this morning and found out that my friend John had passed.  It was devastating.  I changed my chair time for next Friday so I can attend his memorial service.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27016 on: July 27, 2012, 02:34:10 PM »
 :'( That's so sad.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #27017 on: July 29, 2012, 10:04:51 PM »
I hope everyone is well now!  :yahoo; :yahoo; :yahoo; :yahoo;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #27018 on: August 02, 2012, 06:46:45 PM »
Define WELL!  :rofl;
I'm still adjusting to having a guide dog, it is surreal and I wish I was still there due to having a structured out day even tho it was hectic.
 
I'll post graduation pictures when I get my laptop back from repair. The puppy raiser brought a photographer friend who took some nice photo's that I need to save to my pc along with puppy pictures.
« Last Edit: August 02, 2012, 06:49:15 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #27019 on: August 03, 2012, 09:45:47 PM »
Went to dialysis at 6 this morning so I could attend the funeral of one of my dialysis friends.  I got to spend one last Friday with John.  May he rest in peace.  I miss him very much.  THIS @#$#@#$! SUCKS!
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MaryJoe
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« Reply #27020 on: August 04, 2012, 02:37:52 PM »
YLGuy - I am so sorry about your friend John.  i will keep his family and you in my prayers.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
YLGuy
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« Reply #27021 on: August 05, 2012, 06:36:34 AM »
A number of patients I have known have passed.  John was an older sweet  man who no matter what was going on with him, when he saw me he would get a big smile and say well hello!  We talked a lot about sports.  We also talked about family and life in general.  He made dialysis just a little bit easier.  I looked forward to seeing him even though I dread going into dialysis. I am taking his loss much harder.
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chook
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Born to be a Granma!
« Reply #27022 on: August 06, 2012, 01:39:08 AM »
Take some comfort from knowing that John enjoyed your company too, obvious by his warm greetings and smiles.  :cuddle;
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #27023 on: August 08, 2012, 02:00:18 AM »
 :flower; My sunflowers are growing tall.
It's hot outside and my tomatoes love it.
Summer is nice, even if it's hot.
I win.  ;D :lol;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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Posts: 9219


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« Reply #27024 on: August 08, 2012, 12:38:12 PM »
I'll be happy when fall weather arrives or early spring. Not a fan of humidity which cuts down on walking or being outside.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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