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Author Topic: Last Post Loves IHD The Most!  (Read 1833637 times)
YLGuy
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« Reply #26375 on: June 26, 2011, 09:38:29 AM »

Give her an extra big hug for me!   :cuddle;
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Chris
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« Reply #26376 on: June 26, 2011, 05:53:55 PM »

I'm home and back on the internet. Met MooseMom for lunch today with Sugarlump :2thumbsup;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #26377 on: June 26, 2011, 06:39:02 PM »

 :pics;  :pics;  :pics;
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Chris
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« Reply #26378 on: June 26, 2011, 06:48:58 PM »

Sugarlump has it on her camera
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
chook
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Born to be a Granma!

« Reply #26379 on: June 26, 2011, 07:17:52 PM »

I'm impressed with your 5 miles on the bike, KK. I'm struggling to do ONE! Very envious!
Logged

Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
kitkatz
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« Reply #26380 on: June 26, 2011, 11:02:57 PM »

Three miles on the bike is getting easy. I am clicking that off pretty quickly now.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #26381 on: June 26, 2011, 11:46:10 PM »

Hook that bik up to a Wii and make it seem like your going somewhere, better than me hanging some dark chocolate in front of you. ;D
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #26382 on: June 27, 2011, 12:41:51 AM »

GOOD MORNING AMERICA  :cheer:  :cheer:  :cheer:
Had the best pizza I have ever tasted yesterday in Chicago's number one pizza place and somebody actually said to me
"Have a nice day!"
 :rofl;  :rofl;  :rofl;
:yahoo; We need photos!
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #26383 on: June 27, 2011, 06:36:42 AM »

Here are some pics :pics;
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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Gender: Male
Posts: 4901

« Reply #26384 on: June 27, 2011, 10:04:24 PM »

Nice pics!  Makes me really look forward to Vegas!
Today I came in and someone was in my chair.  They said I was sitting elsewhere for today.  I was pretty upset about the way they did it.  I asked who made the decision and was told it was the head nurse.  I went to her and told her that we are not cattle and I am a patient, not a stock number.  They said that there was an issue with the machines which upset me even more as the machines are on wheels and they move them around all the time.  I sat down in the chair that they moved me to and found that the TV did not work.  I took off my BP cuff and walked across the room to another chair and checked the TV and it worked.  I then moved all my stuff and sat down in the other chair and advised them that my set up needed to be moved.  They did.  I am NOT second shift chair 1. I am Marc.
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Chris
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« Reply #26385 on: June 27, 2011, 10:15:18 PM »

Geez, sounds like they were lazy on Monday. I never had to move to a diifferent chair if there was a machine problem, they just moved a machine and told me beforehand.. It would have been proper to tell you also before you went back to your spot also.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Gender: Female
Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #26386 on: June 28, 2011, 12:51:58 AM »

Here are some pics :pics;

 :thx;  :2thumbsup;
Boy that is so great you got to meet!
And the pizza looks yummy!
Love the photos, thanks Chris!  :clap;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis

« Reply #26387 on: June 28, 2011, 04:31:49 AM »

California in the spring Karol!!!!!  :2thumbsup;  :yahoo;  :2thumbsup;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis

« Reply #26388 on: June 28, 2011, 04:34:45 AM »

Nice pics!  Makes me really look forward to Vegas!
Today I came in and someone was in my chair.  They said I was sitting elsewhere for today.  I was pretty upset about the way they did it.  I asked who made the decision and was told it was the head nurse.  I went to her and told her that we are not cattle and I am a patient, not a stock number.  They said that there was an issue with the machines which upset me even more as the machines are on wheels and they move them around all the time.  I sat down in the chair that they moved me to and found that the TV did not work.  I took off my BP cuff and walked across the room to another chair and checked the TV and it worked.  I then moved all my stuff and sat down in the other chair and advised them that my set up needed to be moved.  They did.  I am NOT second shift chair 1. I am Marc.
Good for you YL  :boxing;
I had issues like this where they would have the machine on the wrong side for my line and be too lazy to move it so I too
refused to sit down UNTIL they did. WE ARE NOT CATTLE.
Lets campaign to treat patients like people and Make a Stand xxx
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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Gender: Male
Posts: 9219


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« Reply #26389 on: June 28, 2011, 05:06:18 AM »

Time to get ready and go get Sugarlump to take her back to the airport. Fun times comes to an end for her vacation.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis

« Reply #26390 on: June 28, 2011, 08:14:52 AM »

but I'LL BE BACK.... I love this city  8)

Trying to pack all the wicked stuff I have bought back into my case...have  overindulged @ Victoria Secret and GOdiva Chocolates and
Macys and a lovely little shop called chiaroscuro (try saying that after 3 margaritas!!!) hope i dont have to declare my spending on the way out!!!
       :rofl;  :rofl;  :rofl;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #26391 on: June 28, 2011, 05:02:44 PM »

Sugarlump on way back
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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Gender: Male
Posts: 9219


WWW
« Reply #26392 on: June 29, 2011, 07:14:04 AM »

Today is a day to go right back to bed. Feels like I did not sleep a all. Oh wait, that is partially true, but I did sleep 2 hours tho.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis

« Reply #26393 on: June 29, 2011, 11:38:02 AM »

Sugarlump on way back

Sob Sob  :'(  :'(  :'(
Now jetlagged and back in England and its RAINING
but dog was pleased to see me....not sure whether its Tuesday or Wednesday or teatime or breakfast but I know
I HAD A WICKED HOLIDAY FOLKS.....
Thanks for the lift in your truck Chris (We did go through some scary neighbourhoods courtesy of your sat nav!!!!!!!) but at
least I saw every aspect of Chicago!!!!  :waving;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
YLGuy
Elite Member
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Gender: Male
Posts: 4901

« Reply #26394 on: June 29, 2011, 02:27:51 PM »

 :2thumbsup;
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Chris
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« Reply #26395 on: June 29, 2011, 03:55:53 PM »

Yeah, I don't want to see that aspect of Chicago. Atleast we did not make the news due to it.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
Elite Member
*****
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Gender: Male
Posts: 4901

« Reply #26396 on: June 29, 2011, 05:11:36 PM »

 :oops;
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Chris
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« Reply #26397 on: June 29, 2011, 05:28:01 PM »

Day's like that, being old fashioned and having a paper map is great. Unfortunately my friend has my maps and still waiting to get them back! >:( :banghead;
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2160


10 years on and off dialysis

« Reply #26398 on: June 30, 2011, 12:22:12 AM »

Fear is good Chris proves we are alive!!!!  :rofl;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
Member for Life
******
Offline Offline

Gender: Male
Posts: 9219


WWW
« Reply #26399 on: June 30, 2011, 12:56:29 AM »

The day your not here, it is sunny and was 88 out. To bad you didn't come this week. Wheather so unpredictable!
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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