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Author Topic: Last Post Loves IHD The Most!  (Read 1833787 times)
YLGuy
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« Reply #22425 on: February 27, 2010, 12:18:09 PM »
I used to speak spanish.  When I was 15 I did AFS and lived with a family in Spain for a short while.  I did not keep it up.  I remember enough to be able to eat, drink and find my way home.
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monrein
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Might as well smile
« Reply #22426 on: February 27, 2010, 12:32:44 PM »
Quote from: tyefly on February 27, 2010, 11:08:46 AM
OH  Gee.....  Working all night in your dreams sounds like me.....   I am either fixing something or going somewhere....  usually adventure dreams....

When I used to go on wilderness canoe trips I ran rapids all night in my sleep too, then got up and did them in real time.  We'd study the maps and upcoming obstacles the day before so it was all fresh. 
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #22427 on: February 27, 2010, 01:39:15 PM »
The tsunami affects are interesting and scary, water receding here at local beaches now.
I pray it doesn't cause more devastation anywhere.

 :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Slywalker
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« Reply #22428 on: February 27, 2010, 02:20:14 PM »
keep fingers crossed okarol. 
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paris
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« Reply #22429 on: February 27, 2010, 05:14:29 PM »
Quote from: YLGuy on February 26, 2010, 09:53:42 PM
Paris, you are awesome. Just thought I would let you know.
Marc
Thank you Marc!  I needed to read that!! 

Zeke and Paxton's games were great. Last one of the season.  At 5pm was the awards banquet and I just got home from that.  They had a basketball "handler" who put on a great demonstration of basketball tricks.  He called Zeke up to teach him how to spin a ball on your finger. Zeke was very proud of being picked and did a good job with over 200 people watching him.  Fun day, but I am tired now. 

Chris, I am worried about you.  Things just haven't been going your way lately.

Re: language. Beth's friend speaks Arabic, French and English. She asked him what language he thought in.  He says it depends on who he is around. Family it is Arabic and French equally and with Beth it is English. I admire those who can speak several languages.  It is a real talent.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #22430 on: February 27, 2010, 09:50:14 PM »
Quote from: okarol on February 27, 2010, 01:39:15 PM
The tsunami affects are interesting and scary, water receding here at local beaches now.
I pray it doesn't cause more devastation anywhere.

 :grouphug;

I have missed a lot. Sleeping too much
 
Marc, I will call doctor  on Monday. I'm not going to ER to have some idiot doctor have no idea what he's doing or know my health like my doctor. So far iPhone has been great to update on Facebook. Harder to do on here, so at my pc which is hard for me at this time, but trying to push myself to clean up email notifications.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Des
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« Reply #22431 on: February 27, 2010, 11:24:33 PM »

Good morning all.

I can't wait for tomorrow to go back to work. :sarcasm;

Afrikaans is spoken by the whole of South Africa, either as a first or second language. But every single person has to take 2 languages at school (from kindergarden until 18) one is your own language , in my case Afrikaans, and then English. We have eleven national languages. Most of them native languages. But all our business, colleges and universaties(spelling sorry) and public places are English.

I dream and think in Afrikaans. I think what I want to write done and then I translate it in my head. At home and with family and friends we speak Afrikaans.

« Last Edit: February 27, 2010, 11:27:44 PM by Des » Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
YLGuy
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« Reply #22432 on: February 28, 2010, 12:05:14 AM »
Good morning Des.  It is great to say that again.
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okarol
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« Reply #22433 on: February 28, 2010, 12:14:12 AM »
 :waving; Hey Des, have a great day back at work, take it easy!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Des
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« Reply #22434 on: February 28, 2010, 05:36:35 AM »
Quote from: YLGuy on February 28, 2010, 12:05:14 AM
Good morning Des.  It is great to say that again.

me too. :flower;
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
paris
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« Reply #22435 on: February 28, 2010, 07:00:23 AM »
So nice to see Des posting   :2thumbsup;   We missed you!   We are all glad you are doing better.

Have a fun Sunday, everyone!  My daughter, Melissa, made a meal for us so I don't even have to cook today.   :yahoo;   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22436 on: February 28, 2010, 10:19:20 AM »
Quote from: monrein on February 27, 2010, 12:32:44 PM
Quote from: tyefly on February 27, 2010, 11:08:46 AM
OH  Gee.....  Working all night in your dreams sounds like me.....   I am either fixing something or going somewhere....  usually adventure dreams....

When I used to go on wilderness canoe trips I ran rapids all night in my sleep too, then got up and did them in real time.  We'd study the maps and upcoming obstacles the day before so it was all fresh.

I hope to do the same when I start kayaking.... which is what I want to starth this summer..... 

Des........ hope you have a wonderful Monday

Chris..... Hope everything gets better.....

Marc... be good...

Paris.... you are always good.....

Karol..... hope your foot is better....
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
angela515
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i am awesome.
« Reply #22437 on: February 28, 2010, 11:09:27 AM »
Good afternoon everyone.

I am gonna do a quick AB workout with my stability ball. Then laundry and then relax most of the day. :)

Angie
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
YLGuy
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« Reply #22438 on: February 28, 2010, 12:45:51 PM »
Me, be good.  Always  :shy;
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Chris
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« Reply #22439 on: March 01, 2010, 12:37:18 AM »
Des, hope work is going ok
 
Monday morning I will call doc. Pretty sure I will be admitted since I can't walk without getting dizzy or loosing vision ontop of chest pains now. Only had to use washroom once since Saturday too. Hard to sit in chair without neck hurting and getting dizzy.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Des
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« Reply #22440 on: March 01, 2010, 07:18:11 AM »
Afternoon all,

Work was HELL HELL HELL. :rant; I got there, someone else in my office, nowhere else to sit, no stationery, no computer and within the first half an hour I was crapped on by 2 bosses about my work that was not done while I was ill.

Well, he is an  :sir ken;   and I hate it there.

I really wanted to keep on working but not like this. If he wants me out. I can register for dissability the minute I start on Dialysis.  I actually had some "attack" or something, I was shaking,my heart was thudding and I felt dizzy. and for what!  I don't need this crap from anyone.

ps
I HATE THIS DISEASE!!!!! :'(  It just screws up everything. 

but I love IHD  so I win.... at least here.
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
YLGuy
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« Reply #22441 on: March 01, 2010, 07:23:09 AM »
You do get to win today Des.  I am so sorry about your day.   :grouphug;
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paris
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« Reply #22442 on: March 01, 2010, 12:55:07 PM »
I am lost today.  I don't know what to do.   No curling, no skiing------olympics are over.  Now what do I do?     :rofl;      BYW,  Great job, Canada. The Olympics were amazing!   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
YLGuy
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« Reply #22443 on: March 01, 2010, 03:16:43 PM »
Hmmm, you sound bored Paris.  Want me to stir up some trouble?  >:D  :rofl;
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paris
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« Reply #22444 on: March 01, 2010, 03:20:27 PM »
Please Marc--no trouble!  I am enjoying being slightly bored!!   I did get busy sewing pajamas for our families pajama/book drive.   

Chris, how are you doing today?  I hope you check in with us.

And dear Des,  I am sorry.  This disease does mess up our plans for what we thought our lifes should be.  Maybe going on disability would end up by being a good thing.  Take it easy    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22445 on: March 01, 2010, 04:05:00 PM »
Chris just posted on FB  that he was admitted to the hospital with a heart monitor..... 

     Hope is gets better soon
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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« Reply #22446 on: March 01, 2010, 04:09:36 PM »
Thanks, Tyefly.   Sending lots of healing thoughts and prayers for Chris.  Love you!!    :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
YLGuy
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« Reply #22447 on: March 01, 2010, 06:06:36 PM »
Paris, you know I was just teasing.  I would never cause any trouble for you.   :angel;
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paris
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« Reply #22448 on: March 01, 2010, 06:16:53 PM »
Look at that cute little halo sitting on top of Marc's head!   Ahhhhh------Marc really is a sweetie!   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Des
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« Reply #22449 on: March 02, 2010, 08:16:58 AM »
Hi all.

Sorry about the rant yesterday... today went better. The boss called me in this morning and told me that I must just sit and  sit and sit. I do not have any responsabilities... at first I thought it was a bad thing but now....  :clap; I am getting paid a heck of a salary for doing absolutely nothing.  YEAH ME!

I cant't wait to work half days! (when D starts)

D is not a bad thing (or is it)

Just wanted to let you know I am doing ok.

Thanks for listening (reading) yesterday. :cuddle;

Chris, you just have to get better. I am really worried about you.  :flower;
Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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