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fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #22375 on: February 23, 2010, 12:07:21 PM »
        Hello everyone from dialysis   :waving;.   Hope you are all having a good day.

        Small rant.  Got picked after my start time at the center.  Then their van broke down at the end of my driveway.  Finally got here an hour late.   :stressed;  It gets better   :rofl; :rofl; :rofl;  Had to wait 20 minutes after I got here to go in, then anothr 20 min to get stuck.  I won't get ut of here till 5 pm!   :rant;   I'll get over it, but had to complaint.  :rofl; :rofl;     ;)

         Yesterday was a great day.  Spent most of it with the grandsons (3 and 16 months).  The 3 year old wanted to try taking a photo of his dogs.  So, I let him use my camera. With a little instruction from me and his parents, he took his first photo. Good picture of the dogs.   :2thumbsup;  He then wanted to take one of his grand parrents, which he did.   :yahoo;  Might post it.  Digital photo is great, he got to see how well he did.  :bandance; :bandance; :bandance;   He got to hold the camera, line up his shot, and push the button all on his own.

         That's how life is, good days and bad days. The bad days let you appreciate the good ones even more.     
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22376 on: February 23, 2010, 01:21:15 PM »
Rob    please post that picture......   Its so fun to watch children learn......    I like to take them camping  and to teach them about the woods and crawdad catching and collecting things.....  all of those things that I love..... I guess  I am still a kid at heart.....   I never want to grow up...... I just want to wonder around the world and look and listen......
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #22377 on: February 23, 2010, 01:31:10 PM »
   I see people still want fuss and fight here, and insult others whose politcal views are not their own.  Sad really, this has been such a good site with many czring and supportive people. 

    I bid you all fairwell, I won't stay were people are insulted for doing their jobs or for expressing their beliefs.  And MUST add Rerun you are the rudest person here!
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22378 on: February 23, 2010, 01:38:04 PM »
Rob   I am sorry to see you go.....  and will catch up with you in the after life.....  I do agree with you that we should be able to fully express our views....   Respect  earns    Respect.......

   Take care......... and if you change your mind about leaving......   I will be here  along with a few others that care.....  and understand......
« Last Edit: February 23, 2010, 01:39:36 PM by tyefly » Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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« Reply #22379 on: February 23, 2010, 05:48:59 PM »
Tomorrow Zeke and Paxton are spending the day with me  :thumbup;   I better get some sleep tonight so I am ready for a 6 and 8 yr old who have a full day planned for us.     :2thumbsup;

Hope everyone is having a good evening.   :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Rerun
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Going through life tied to a chair!
« Reply #22380 on: February 23, 2010, 06:02:21 PM »
Quote from: fc2821 on February 23, 2010, 01:31:10 PM
   I see people still want fuss and fight here, and insult others whose politcal views are not their own.  Sad really, this has been such a good site with many czring and supportive people. 

    I bid you all fairwell, I won't stay were people are insulted for doing their jobs or for expressing their beliefs.  And MUST add Rerun you are the rudest person here!

Sure, hide this post where I never read.  Good thing someone PM'd me.  It is not illegal to be rude.  I perfer to think I'm honest to a fault.  You would NOT believe what I don't say.  So, my new name is RUDE RERUN.

Happy?     :kiss;   OH, and you had 2 spelling errors.  I'm going to start pointing that out too.  USE the spell check!  I'm not perfect, but I at least use the spell check.
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Chris
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« Reply #22381 on: February 23, 2010, 09:20:33 PM »
Quote from: Slywalker on February 23, 2010, 11:22:01 AM
Chris - no girl scout showed up at my door this year; however, one of the Bingo's I volunteer at usually have the Girls Scouts one or two weeks selling cookies.  If they have some of the lemonaides I'll pick up a couple of boxes for you.

Slywalker, if you find them I'll gladly pay for them and all the shipping charges and materials  :2thumbsup;
 
Today I got up early at 6, but went back to bed and ended up getting my labs done late. I cameback home home to wait to pick up most of the results later and shoveled heavy snow, so back was killing me. Went inside to find a mess in the kitchen that should not have been left, so I was mad because today was garbage day and this mess could have been picked up instead of making a bigger mess and stink. Plus I hate when food goes to waste, it's a pet peeve I have. Picked up results, came back home to finish cleaning andfinally laid down due to pain in back and knee. Now I wake up with a cough, sore throat, watery eyes, and a stuffed nose, CRUDE!! I have to get up real early for a doc appointment in the city and hate going when I feel like crap and tissues and hand cleaner is not easily accessable.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #22382 on: February 23, 2010, 09:28:14 PM »
Sorry to hear Chris.  I started fighting the same cold my kids have.
Tomorrow is the big day.  The committee decides if I can list at the St Joseph Hospital Transplant Center.  Say a prayer, keep your fingers crossed, think good thoughts...
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22383 on: February 23, 2010, 09:32:24 PM »
Oh  Chris   what a bad day...... and I thought my day was bad...... get some rest....

Marc   how exciting.....I bet you wont sleep tonight......   I will be thinking about you tomorrow..... :cheer:
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Chris
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« Reply #22384 on: February 23, 2010, 09:49:51 PM »
Good Luck Marc, you'll get accepted I'm sure.
 
Going back to bed now, Night
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #22385 on: February 24, 2010, 08:07:47 AM »
I can call in 7 hours and find out if I made it.
tick, tick, tick  :pray;
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22386 on: February 24, 2010, 08:28:27 AM »
tock  tock   tock      :rofl;
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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« Reply #22387 on: February 24, 2010, 09:42:17 AM »
We're all waiting right beside you   :grouphug;   I hope you can feel our good wishes surrounding you today.  We'll be ready to celebrate, too. 

Chris, you just can't catch a break right now.  I'm sorry you woke up with the crud.  No fun.  And I agree about food going to waste.  And about stinky garbage.  Yuk!

Zeke and Paxton are spending the day with me --- so far we have watched Alvin, the Squeakal, we've written thank you notes, snuggled with books.  Lunch is over.  Now what?    :rofl;
'
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22388 on: February 24, 2010, 11:50:41 AM »
Crossing all fingers and toes.....   Really Marc..... I feel that this is a shoe in.....   

Chris.....  you need to feel better.....   so you can eat more cookies....


Paris..... how about bean art...... you know get those dry beans out and make pictures..... I loved doing that when I was a kid.....
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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« Reply #22389 on: February 24, 2010, 02:02:02 PM »
The good thing for my grands is I taught 4 & 5 yr olds for 18 years!  We have a very well stocked craft closet.  We got out a box of quilt squares that my Mom cut out before she died.  We spent a lot of time putting together squares to see what pieces looked good together. Another day we will sew them together and make a "crazy quilt" -- any color,pattern mix-matched any way they want it.

They go home in about an hour.  I am grateful for these days.  Some days they'll be too busy to hang out with me. 

Waiting to hear Marc's good news  (I am thinking positive!)
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22390 on: February 24, 2010, 02:05:45 PM »
  Yes   Waiting ON the good news from Marc...

Paris    you must have lots of good ideas for kids.....   I just had my three and all the neighborhood kids over when they were young....  There is nothing better than to see how children get so excited when they are doing thing.... I wish I got that excited about new things...... ok    I still do..... but I always said  that I will never really grow up inside........ 
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
YLGuy
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« Reply #22391 on: February 24, 2010, 03:19:53 PM »
They called me during dialysis and told me I was accepted.  I need to drive down there this afternoon and sign some papers and go to the lab.  They said they were going to take some blood to be stored at UCLA for if and when I get a transplant.
 :bandance;
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YLGuy
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« Reply #22392 on: February 24, 2010, 03:20:23 PM »
Oh ya,
I Win!
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22393 on: February 24, 2010, 03:27:10 PM »
 :flower;     :flower;    :cheer:    :cheer:     :2thumbsup;    :2thumbsup;    :2thumbsup;    :yahoo;    :yahoo;


Marc Wins ...... all day    We knew  it would be a day for winning........    Great New.......
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
paris
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« Reply #22394 on: February 24, 2010, 03:36:07 PM »
Good news Marc.  Now the waiting begins.  Patience is not my virtue, but I am learning to take life as it comes.  Here's hoping you wait is short and quick  :2thumbsup;   You are the big winner today!   :yahoo;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
YLGuy
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« Reply #22395 on: February 24, 2010, 05:48:45 PM »
I was completely wrong about the lab work.  They are sending it to UCLA to crossmatch???
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #22396 on: February 24, 2010, 07:22:47 PM »
Marc the winner...... :yahoo;
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Jess21
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« Reply #22397 on: February 24, 2010, 09:20:32 PM »
 :yahoo; :yahoo; :yahoo;
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Chris
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« Reply #22398 on: February 24, 2010, 09:56:52 PM »
That's good news Marc, but to bad they couldn't take the blod while you where at dialysis to avoid being stuck.
 
Glad you had a good day paris with grandkids.
 
Made it to the cardiologist and even got the non stop train which made me get into the city early. However when I got there they were calling me back immediately until a hassle came up with insurance, so I didn't get called back till after 10:30 am. He asked me questions, did an ekg (just had one from the doctor downstairs on Feb 9 who told me I needed to see him), and then a short chemical stress test. I passed on all and now cleared for surgery, but need to schedule it tomorrow.On the way back to the train station on the bus another persons guide dog sat beside me keeping my foot and ankle warm. Whoops, dogs giving the attention to the wrong person  :rofl;  but it was nice and made me wish I had a guide dog. I'm sure that will come though. Came home after 5 pm, took socks off before laying down and discovered my right foot is black and blue, yet have no idea what happened to cause it. I will call doc or go to ER tomorrow to see if there are any problems, after I get a hair cut! Always plan ahhead to avoid bed hair if there is a stay :2thumbsup; :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #22399 on: February 24, 2010, 10:08:04 PM »
It was just a little needle.  Good news about getting cleared for surgery.  Keep us posted about the foot.  That does not sound good.
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