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Author Topic: Last Post Loves IHD The Most!  (Read 1834543 times)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #21975 on: January 25, 2010, 12:06:33 PM »
Oh Paris - what a journey!  How wonderful.  This has just made my day.  Now all we need is for Jenna to be well and all will be well with the world.  Puts everything in perspective doesn't it???
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Slywalker
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« Reply #21976 on: January 25, 2010, 12:24:46 PM »
"rainy days and Monday really get me down...."

Rain in January in Vermont is really not a good thing.  And it is pouring - has been all day.  Can we say ICE will soon be forming nicely?
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paris
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« Reply #21977 on: January 25, 2010, 01:56:41 PM »
What a week!   Now my thoughts and prayers are all about Jenna.  And to other friends here and in my life who are stuggling in so many ways.  Wish life could be easy for all, but I guess that wouldn't be real life.   

I will take the win for the day----well, at least until Chris or Marc show up again   :rofl;

Sunny and in the 60's here    :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willowtreewren
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My two beautifull granddaughters

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« Reply #21978 on: January 25, 2010, 03:48:11 PM »
Hoo boy. Lost internet at school today.

Felt out of the loop!

But have access at home!  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
willowtreewren
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My two beautifull granddaughters

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« Reply #21979 on: January 25, 2010, 06:49:22 PM »
And I'm baaaack!

After Carl had held his sites for 15 minutes we had a blood spew that soaked the carpet 4 feet away. Just cleaned the carpet last weekend. Shouldn't have bothered.  :rofl;

Yep. We love dialysis!  :stressed;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21980 on: January 25, 2010, 07:17:52 PM »
4 feet! Wow. Carl wins.
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Chris
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« Reply #21981 on: January 25, 2010, 07:54:12 PM »
No Marc, Avitar problem is not fixed yet, but I'm not the only one. I created a topic for it in the tech help section.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
looneytunes
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Wishin' I was Fishin'
« Reply #21982 on: January 25, 2010, 07:59:01 PM »
Wow...1100 pages on this post!  And I'm winning!
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"The key to being patient is having something to do in the meantime" AU
YLGuy
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« Reply #21983 on: January 25, 2010, 08:07:13 PM »
Quote from: Chris on January 25, 2010, 07:54:12 PM
No Marc, Avitar problem is not fixed yet, but I'm not the only one. I created a topic for it in the tech help section.
I tried to make one from memory.
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Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #21984 on: January 26, 2010, 01:02:02 AM »
Did you draw that Marc?  Very clever.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #21985 on: January 26, 2010, 10:07:31 AM »
      Good day everyone  :waving;.  Had a hard time getting on from dialysis today, but I made and I'm here.  8)  In other words, you're stuck with me for the next 3 hours.  :rofl; :rofl; :rofl;   Aleta, know how you felt abput being out of the loop.
      Marc you are lucky you can change avitars.  I've wanted to put something up that better reprsents me. 
      Chris tried to pm you about a couple of thing, avatar was one of them.  Got the blocked message. Hopefully they will get all this fixed. I'm sure they are trying.  I couldn't find the thread about avatars.
      Marc that was a nice of you looks close to Chris' old avatar.  Good job. :clap; :clap;  Now if he could just use it.
       
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
Chris
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« Reply #21986 on: January 26, 2010, 03:47:38 PM »
Good Job Marc, very close to what I had made.
 
Hanify, if I would have waited an hour I would have seen you online an kept you company in the chat room  :rofl;
 
Rob, the thread is at http://ihatedialysis.com/forum/index.php?topic=17445.new;topicseen#new  but no answers yet. PM problem fixed a setting I never touched was changed that may have ben th work of the hacker.
 
Now as for today, it was an off day from the start. Went to get gas and had trouble filling  the tank. Gas would only go in solowly and then splashed out a few times (crap that's a waste of money and gs not going in my tank I'm thinking!), so I get some gas antifreeze to put in just in case that is what is needed due to cold weather. Just never had that problem before in much colder weather. Then went todrop off my leather coat to get fixed at he only shop I know that works on leather, and it;s out of business. Walk down the main street of the town to see if anyone else works on leather and find one place. The place is going to try to fix just the latch part of the zipper for $29, if that doesn't work, then they have to send it out to a leather specialist to replace the whole zipper for $75. It's cold out there without that coat and I was wearing a t-shirt, a long sleeve t-shirt, a heavy sweatshirt with a hood, and a leather jacket. Hoping it will only cost the $29, but he place said it should be ready Friday or Saturday which is perfect since I have to go to the city next week. That was just the begining of my fun drive today too. :rant;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #21987 on: January 26, 2010, 04:47:35 PM »
Hope you can get the jacket taken care of Chris! It is too COLD to go without good protection!

No mishaps so far on dialysis tonight. I never posted about this, but over the weekend I nearly infiltrated Carl. Hit a really easy spot to go in and I wasn't expecting that. I usually have to lean on the needles. Man, it went in fast and I actually felt it hit the bottom of the fistula....but I pulled back fast enoght that it didn't infiltrate. WHEW! I was shaking, though.

Have a great evening everyone.  :bandance; :bandance;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21988 on: January 26, 2010, 04:48:56 PM »
 :bandance;
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willowtreewren
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My two beautifull granddaughters

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« Reply #21989 on: January 26, 2010, 04:52:52 PM »
Marc,

I'll see your  :bandance;

and raise you  :cheer: :cheer:

 :rofl; :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21990 on: January 26, 2010, 05:43:54 PM »
 :bandance;
 :cheer: :cheer:
 :rofl; :rofl;
 :beer1;
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willowtreewren
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My two beautifull granddaughters

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« Reply #21991 on: January 26, 2010, 05:48:08 PM »
:bandance;
 :cheer: :cheer:
 :rofl; :rofl;
 :beer1;

 :beer1;
 :rofl; :rofl;
 :cheer: :cheer:
 :bandance;
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21992 on: January 26, 2010, 05:51:20 PM »
 :bandance;
 :cheer: :cheer:
 :rofl; :rofl;
  :beer1;

:cuddle;

 :beer1;
 :rofl; :rofl;
 :cheer: :cheer:
 :bandance;
 
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #21993 on: January 26, 2010, 05:51:54 PM »
 :Kit n Stik;     I am too tired to raised anything for anybody......   training all day......  no alarms....    self cannulation  not a problem......  self needle removal not a problem......      the only problem is   

          WHEN WILL I BE DONE........   ???
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
willowtreewren
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My two beautifull granddaughters

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« Reply #21994 on: January 26, 2010, 05:54:08 PM »
Oh, Kathy!

You rock! That is wonderful! Way to go. Congrats. Woo hoo!

 :cheer: :cheer: :cheer: :cheer:

You win this hand!  :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #21995 on: January 26, 2010, 05:59:43 PM »
 :cheer: :cheer: :cheer: :cheer: :cheer: Kathy
Yes, you win!  :2thumbsup; :2thumbsup;
 :thumbup;
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paris
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« Reply #21996 on: January 26, 2010, 06:01:28 PM »
Good job Tyefly!  You are doing amazing!    :2thumbsup;

I just spent the past hour and 55 minutes on the stupid phone with my prescription company.  Arggggggggggggggggggggggggggggg!  I am sitting her with bottles with 4 refills , but someone thinks because it is a new year, they all need new prescriptions written!!!   The doctor just wrote new ones the end of October with refills.   Solution?    I   have to call doctor's office first thing and "make" them call medco to have the meds refilled.  Oh my---- just shoot me.   Stop taking the stupids meds and be done with it.   Not a fun night.   

I did get to pick up Zeke and Paxton from school and bring them home with me for awhile. We played air hockey, had a snack and then did homework.   So, I will call that my win for the day.     And Tyefly wins because she is doing stupendous at home hemo training.    :clap;
« Last Edit: January 27, 2010, 12:03:46 PM by paris » Logged


It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #21997 on: January 26, 2010, 09:08:30 PM »
Just reading about self cannulation makes me want to cringe. I don't think I could do that. However good job there tyefly.
 
Paris, you have one bizarre  :urcrazy;  prescription company. I never had to do that with any mail order (across the US) or walk in pharmacy
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #21998 on: January 26, 2010, 09:17:31 PM »
Paris, I have never heard of that either.
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fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #21999 on: January 27, 2010, 05:45:40 AM »
     Good morning everyone  :waving;.   
 
      Paris read, this morning, your post about calling Medco.  I spent all Monday on the phone with those clowns.  Trying to get my Sensapar prescription straightened out. 
       Chris I hope you get your jacket fixed.   Thanks for the avatar thread info. 
       
        Well, off to see the dentist this afternoon.  Always fun  :sarcasm;  So, no pajama day for me  :rofl; :rofl;   But all the rest of your have my permission to have one.   :bestwishes;
                                                            Rob 
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In center hemo dialysis since Feb 14, 2007. 

If I could type properly, I'd be dangerous!

You may be only one person in the universe but you may mean the the universe to someone else.
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