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Author Topic: Last Post Loves IHD The Most!  (Read 1833505 times)
YLGuy
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« Reply #19400 on: September 03, 2009, 10:26:04 PM »
 :waving;
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Slywalker
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« Reply #19401 on: September 04, 2009, 05:22:46 AM »
Hey Everybody - time to rise and shine - woohoo - Welcome to Friday and the weekend weather report is awesome!!!

 :bunny:
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willowtreewren
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My two beautifull granddaughters

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« Reply #19402 on: September 04, 2009, 05:51:05 AM »
And it is going to be a loooong weekend. Woo hoo!

 :clap; :clap;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #19403 on: September 04, 2009, 08:05:04 AM »
My oldest turned 18 today!
Now he is an adult.
 :rofl;
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cariad
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What's past is prologue
« Reply #19404 on: September 04, 2009, 11:28:57 AM »
 :birthday; to you son, Marc!

Things are not looking good with the company where my husband is a contractor.

My husband has already sent out 3 resumes, and called a few former colleagues. There is little more that he can do.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19405 on: September 04, 2009, 12:10:25 PM »

Forecast here is HOT! But fires are looking better.
Hope everyone enjoys the weekend!

Oh, and I win!!!  :cheer: :cheer: :cheer: :cheer: :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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« Reply #19406 on: September 04, 2009, 12:45:27 PM »
The day is winding down here at school.  :clap;

And a long weekend with good weather is in the works!  :2thumbsup; :2thumbsup;

I hope everyone has a great one. We have dialysis, each day, of course, but other than that, I plan to catch up on some relaxing!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
thegrammalady
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« Reply #19407 on: September 04, 2009, 03:23:02 PM »
no carol, i win.

aleta, what grade do you teach.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
kitkatz
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« Reply #19408 on: September 04, 2009, 03:31:14 PM »
School is out for three days! Hurray!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #19409 on: September 04, 2009, 03:45:33 PM »
 :bump; :popcorn;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #19410 on: September 04, 2009, 03:56:36 PM »
 8)
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willowtreewren
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« Reply #19411 on: September 04, 2009, 05:37:25 PM »
Hey, Marc, I teach grades 1 - 5 in a mixed age setting. Fun, fun!

We got to leave school fifteen minutes early tonight because all the children had been picked up. Yea!

But Carl hadn't applied his cream early so we putzed around getting set up for dialysis, had dinner after he got on the machine and then I went out to swim.

Oh oh! He called with an alarm. # 14 - air in the dialysis lines. WTH? Then the PureFlow started alarming - #53  - fluid in the tub. The SAK had sprung a leak. Had to cut the treatment short.  :clap;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
paris
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« Reply #19412 on: September 04, 2009, 06:03:27 PM »
Big day tomorrow.  Zeke's first Pop Warner football game is at 8:30, Paxton's first game to cheer at is 9:30 then we all head over to Melissa's for a cook out.   About 25 of us and everyone will be bringing their specialties.  I have made pasta salad (with fresh mozzerella and salami), napa cabbage salad ( I add mandarin oranges, pineapple chunks and granny smith apple chunks, and deviled eggs.  It will be a nice day with family and extended family.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willowtreewren
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« Reply #19413 on: September 04, 2009, 06:23:29 PM »
Sounds wonderful, Paris. Enjoy.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
YLGuy
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« Reply #19414 on: September 04, 2009, 10:09:14 PM »
Good luck to Zeke and I am sure Paxton's squad will do great to.  The Pop Warner cheer squads work VERY hard. 
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Chris
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« Reply #19415 on: September 04, 2009, 10:53:06 PM »
Pais, any more smoked butt at your house from your son?  :rofl;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
YLGuy
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« Reply #19416 on: September 04, 2009, 11:37:02 PM »
 ???
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kimcanada
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« Reply #19417 on: September 05, 2009, 04:11:13 AM »
lol@smoked butt!!  Chris you have a great memory!
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paris
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« Reply #19418 on: September 05, 2009, 04:26:42 AM »
Chris, I wasn't going to mention it, but Todd has been rubbing and smoking his butt for two days now!   :rofl;   He is so very proud of his butt!    So, yes, Todd's famous butt is on the menu.   :2thumbsup;   And there will be enough for everyone - come hungry!  See you this afternoon   :beer1;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Des
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« Reply #19419 on: September 05, 2009, 06:54:48 AM »
Quote from: YLGuy on September 04, 2009, 08:05:04 AM
My oldest turned 18 today!
Now he is an adult.
 :rofl;

I did remember for a bit ... I promise... then I went to theatre for my angio.

Please tell him that I say a belated 18th birthday from SA with love and hugs and all.

It is funny what a diff a day can make - one day 17 and the next .. an adult.   
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
YLGuy
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« Reply #19420 on: September 05, 2009, 08:25:09 AM »
How did your angio go???
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willowtreewren
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« Reply #19421 on: September 05, 2009, 08:32:21 AM »
Morning all!

Last night's leak turned into a bigger problem! We could not get the PureFlow to work again without sending out an alarm. As is turns out, some moisture got into the heat sensor and damaged it. We will need a new PureFlow chassis. Won't be in until Tuesday or Wednesday.  :P

So we will be using bags until then. Will have to remember to turn the warmer on! The last time we used bags, Carl froze because he forgot to do that.  :rofl;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Slywalker
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« Reply #19422 on: September 05, 2009, 08:36:55 AM »
Morning IHD - can't believe it is already Labor Day Weekend - marks the end of summer and winter is on the horizon.  But the weekend start is beautiful sunny day - can't beat that. 

Have a great day -

 :bunny:
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YLGuy
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« Reply #19423 on: September 05, 2009, 08:38:15 AM »
I am in center HD so I really don't understand what occurred but it sure sounds like you had quite the night!
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willowtreewren
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« Reply #19424 on: September 05, 2009, 08:51:05 AM »
Hey, Marc.

For dialysis you have to use purified water so nasty stuff doesn't get into your system. The centers have these big purifiers, but those of us at home have smaller units. Mine sits on the floor under the dialysis machine and hooks into it. Every three days we mix up a batch of new dialysate through this nifty little machine. We had just started using a new batch of 60 liters last night. Apparently one of the factory fittings in the lines was loose (from now on we'll check that one, too!) It leaked into the tub that holds the 60 liter bag of finished dialysate. Somehow, that loose fitting also allowed air into the line, so our dialysis machine gave that alarm first and then the tub gave a "moisture" alarm. Alarms were going off everywhere (and to make it even more interesting, I was doing laundry and at the same time a load finished and the washer started beeping!)

The half inch of leaked dialysate in the tub also damaged the heat sensor that warns if the daylsate is not at the proper temperature. That cannot be reset here at home, so NxStage is sending a whole new chassis. This will be our third one since June. The first was damaged in shipping.

We keep pre-mixed bags of dialysate on hand, so until we get the new chassis for mixing up the dialyste, we will just hang bags. There is a separate warmer to warm the dialysate when doing that, though. One more step to remember!

Even with glitches like this, I would not willingly trade doing dialysis at home for going in-center. And that is one of the good things about having options for treatment. To each his own.

 :2thumbsup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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