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Author Topic: Incenter Nocturnal Dialysis  (Read 30879 times)
Rerun
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Going through life tied to a chair!

« on: March 29, 2008, 09:15:25 AM »

I start my Incenter Nocturnal Dialysis sessions this Sunday night.  They want me there at 7:45PM with a start time of 8:00PM.  I am on 8 hours, so at 4:00AM I will come off.  I am concerned that I won't be able to sit in that plastic chair that long.  I'm going to shop for an egg shell pad today and also take a sheet.  I'll have sweats on and a blanket. 

I'm excited, if that is possible.  I'm hoping that if I can sleep through this crap then I can continue my denial.   >:D

My days will be free.  They say you don't feel washed out. Best of all you can add dairy back into your diet.  OMG  I can't wait to go get a chocolate milk shake. 

I'll let you know how things go.

                                                                                :stauffenberg; 







EDITED:Moved to new nocturnal section-kitkatz, Moderator
« Last Edit: October 24, 2008, 02:48:43 PM by kitkatz » Logged

kitkatz
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« Reply #1 on: March 29, 2008, 10:42:27 AM »

You are hardly in denial, girlfriend, unless it is a river in Egypt! Good luck with the nocturnal thing.  I hope it works out.  I might try for it, since home hemo scheduling is not working out for me yet.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
okarol
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« Reply #2 on: March 29, 2008, 10:48:21 AM »

It seems odd that they don't have beds for nocturnal, but try to get as comfortable as you can.
I am glad you're excited Rerun, it sounds like it could be great for you!
Hope all goes well!
 :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
twirl
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« Reply #3 on: March 29, 2008, 11:20:17 AM »

 :guitar:       nighty, night
                 don't let the needles bite
                 dream a dream about the shake
                 you will purchase or make
                 McD's, Jack-in-The Box
                 whatever makes your world rock 
                          ;musicalnote; ;musicalnote; ;musicalnote;
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willieandwinnie
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« Reply #4 on: March 29, 2008, 11:51:42 AM »

Rerun, you go for it girl. Please keep us posted. I do hope that you feel better doing Nocturnal.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Zach
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« Reply #5 on: March 29, 2008, 12:28:13 PM »

Good for you, Rerun!

How many nights per week will you be dialyized?
 8)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
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My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
JerseyGirl
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« Reply #6 on: March 29, 2008, 12:40:02 PM »

Wow that is excellent!  I'm very happy for you!  I thought nocturnal centers offered beds for patients, however.  I've read that patient outcomes are great, the need for many dialysis meds decrease and patients feel very good on ND.  Good luck to you and keep us posted! :bandance;
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kitkatz
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« Reply #7 on: March 29, 2008, 12:45:55 PM »

Are you bring your "shut the he** up" sign with you? For the noisy nurses?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kellyt
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« Reply #8 on: March 29, 2008, 01:08:27 PM »

Sell the house/apartment/condo, go to the center straight from work, hang out in the lobby and watch TV, have dinner from the vending machines, and do dialysis while you sleep.  Can you imagine?  But hey, you could save a ton of money on rent/mortgage!!   Entertaining would be really hard.  :(

On second thought....that would totally stink!   :lol;


Good Luck to you Rerun.  How many nights will you be there weekly?
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
lola
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« Reply #9 on: March 29, 2008, 01:11:35 PM »

Good luck Girlfriend, hope it works :cuddle;
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del
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del and willowtreewren meet

« Reply #10 on: March 29, 2008, 03:54:11 PM »

I hope it works well for you rerun!! :bandance;  Hubby has been doing nocturnal at home for a year and a half now.  The difference in blood work from in center 3 times a week is unbelievable.  In center he was taking binders and watching his phos intake and phos was still up.  No binders now, eating everything he wants and phos is fine.  Actually they are concerned with it being a little too low.  He really likes having all day to himself.  They really should have beds for you rerun.  Sitting in a dialysis chair for 8 hours will probably not be comfy.  Hubby does 5 or 6 nights a week. 7 hours each time. Took a few months before he got a good night's sleep but no problems sleeping now!!  How many nights will you be doing?  really hope this works for you rerun  :beer1;
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paddbear0000
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« Reply #11 on: March 29, 2008, 04:03:44 PM »

 :yahoo; Yay! I'm so happy for you!  :cuddle;
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
jbeany
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Cattitude

« Reply #12 on: March 29, 2008, 05:57:50 PM »

Sweet dreams!
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KT0930
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« Reply #13 on: March 29, 2008, 08:28:04 PM »

Glad to hear you're getting to try this! I hope it works well for you. From what I've read around the site, it's the way to go!  :2thumbsup;
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Rerun
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Going through life tied to a chair!

« Reply #14 on: March 29, 2008, 08:46:51 PM »

Sunday, Tuesday, and Thursday nights.

Thank you for all your well wishes.
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Mimi
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« Reply #15 on: March 29, 2008, 09:37:53 PM »

Night, night.  Hope you can sleep.  Good luck with it all.

Mimi
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Rerun
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Going through life tied to a chair!

« Reply #16 on: March 31, 2008, 10:23:33 AM »

The first night wasn't very smooth.  I get there a little early just to be told they didn't have any doctor's orders for me and I needed to go home.  I just get home when I get a call from Lynette saying the dialysis center was trying to get a hold of me.  WTF?  They found the orders and I needed to come back.
                                                                                                                                                                                         :banghead;

So, I get all set up..... my egg shell pad, my sheet over that, my DVD player with an extra movie just in case, my book, my flashlight, my snack, my ice, my two pillows, and my blanket.  Then I can't sleep.  I watch my movie and I still can't sleep.  So, why fight it?  I asked for something to make me sleep.  She gave me a half dose of benedril IV.  I start feeling the affect and then my arms start jumping and my legs get restless and I start itching.  I wanted to get up and run around the building.  It was awful.  I finally fell asleep only to wake up in a start and then I had a headache.  I asked for two tylenol and finally fell asleep.  Then I woke up at 4:15AM and they took me off at 4:30.  I'm so tired when I get home, but I take the dogs outside.  Then I go in the bathroom and there is puke.  At least it was on the floor and not on the rugs.  Then I still smell something and I go in the closet and there is poop.  Poor baby dogs didn't understand why Mom didn't come home last night.  I tried to tell them before I left.  I took them out at 7PM and got home at 4:30 AM.  Most of the time when I'm home, that works.  But, again, they are use to having a doggy door and going whenever they need to.  In this apartment they don't have that.
We'll get it all figured out.

I'll try again Tuesday night.  Only this time I'm having a shot of whiskey!!    ;D
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okarol
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« Reply #17 on: March 31, 2008, 10:28:25 AM »

 :cuddle; Sounds exhausting Rerun, I hope it gets better!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
devon
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« Reply #18 on: March 31, 2008, 10:40:55 AM »

Let's hope the problems you encountered are due to the change in routine.  Best of luck to you. I hope the next few rounds go easier.  And, thanks for detailing your plans and "take-alongs".  That information could be very helpful to the rest of us!

-Devon
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MyssAnne
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« Reply #19 on: March 31, 2008, 10:45:00 AM »

Rerun, I sure hope the next few nights are a lot better!!!!  At least you're well prepared, and yes, the shot of whisky just may do the trick!

If only we could get our babies to understand where we are going...it's probably gonna take them a couple of weeks to get adjusted to the
new schedule. But ick!! Barf AND poop???? Only our furbabies.

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twirl
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« Reply #20 on: March 31, 2008, 10:55:01 AM »

the first thing I did when I got home from dialysis was to check and see if you posted
I thought about you this morning at 4:15 am when I got up to go to dialysis
Please give your dogs a big :-* from me
maybe you should take that shot of whiskey before you go to dialysis :yahoo;
things will improve; you'll see
I am learning from you and thank you for that
you bring your own ice?
did the egg shell make a difference
did it seem like you were there twice as long as usual
anyone snore
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paddbear0000
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« Reply #21 on: March 31, 2008, 02:33:01 PM »

I'm so sorry! I absoilutely hate it when I can't sleep. I think the stress doesn't help. Try taking some Benadryl before you leave for the clinic. That way it will kick in a lot sooner.
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Rerun
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Going through life tied to a chair!

« Reply #22 on: March 31, 2008, 02:35:31 PM »

The place doesn't have a 'freaking' ice machine, so I bought a bag of ice and take a travel cup full.  It isn't the same as the ice you get at most centers.  But, this is better than nothing.

I'll let you know how Tuesday goes.   :secret;
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Mimi
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« Reply #23 on: March 31, 2008, 10:41:19 PM »

Hope things get better for you.  No sleep and upset doggies is a bummer.  Better luck Tues.

Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
Ang
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« Reply #24 on: March 31, 2008, 10:58:50 PM »

bit  jealous,  if  they  had  nd  in center  at  my  center  i  reckon  i'd  jump  at  it, probably  sleep  better  than  know  and  drink  more.
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live  life  to  the  full  and you won't  die  wondering
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