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Author Topic: CHICAGO: IHD first 2nd Annual Member Meeting  (Read 118209 times)
Chris
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« Reply #450 on: August 06, 2008, 09:30:19 AM »
Now what were we all looking at in the other direction while in Karols room  ??? :o :rofl;

Sorry Twirl, no  :pics; of bug bites in the  :sir ken; :rofl; :rofl;



I can actually see the family resemblence with your sister Karol

Good picture of Boxman

and yet in most pictures I am either looking the other way or on the pc :rofl;
« Last Edit: August 06, 2008, 09:36:24 AM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
lruffner
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« Reply #451 on: August 06, 2008, 10:24:00 AM »
Or guzzling beer!  :beer1;  :rofl;
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Diagnosed w/ primary fsgs- June 2007
Getting ready to begin transplant work-up at IU and Jewish-9/08

"Live for Today"
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #452 on: August 07, 2008, 05:36:32 AM »
Wow wish I could have been there. I thought I might make it over the pond this year but it wasn't to be. Maybe next year. I enjoyed the u tube clips. It felt like I knew you all even more than I already do.
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Ken
Chris
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« Reply #453 on: August 07, 2008, 02:21:04 PM »
Aharris is still in Chicago and going to Tommy Guns tonight. They asked if I would like to come, but couldn't due to physical therapy at 5 pm. Didn't help me staying up till 9 am and getting back up after 2 pm either. Still working on this computer crap. More security brings more pain in the  :sir ken; setting up. The two laptops I have to do is giving the most trouble. What the instruction booklet is showing is not what my computer screen is showing, so have to find a work around to ger' done.

I need my pc back! Having withdrawls from the internet and I need the internet to plan for Vegas!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #454 on: August 08, 2008, 11:23:38 PM »
More Chicago pictures from tonight.

1st picture Rolando and Alene in front of Zanies Comedy Club
2nd Zanies Front
3rd All of us at O'Brien's Restaurant after show
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sluff
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« Reply #455 on: August 09, 2008, 05:51:06 AM »
It's great that you are able to spend more time with Alene and Rolondo,  The purple leg wrap is for goofynina. That was way cool Rolondo.  :bow;
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paris
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« Reply #456 on: August 09, 2008, 01:26:45 PM »
You three look like you are having a great time.    I wish I had stayed in Chicago!!    Love the smiles in the last picture.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #457 on: August 09, 2008, 02:29:59 PM »
It was the alcohol I had that made me smile  :rofl; :rofl;
Actually the show was good, one of the audience made me think of kitkatz with the way the comedian th the person where going back and forth. It was a riot. There was a group of people who took a bus to the club, they were th rowdy bunch :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
pelagia
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« Reply #458 on: August 09, 2008, 06:39:33 PM »
What a wonderful time it must have been.  Thanks for sharing it with us in the photos and videos.  :clap;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
okarol
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« Reply #459 on: August 09, 2008, 06:43:09 PM »

I have been meaning to thank Paris for all her hard work making and procuring goodies for gift bags in Chicago! Thanks so much - your contribution is much appreciated!  :bow;
« Last Edit: August 09, 2008, 06:55:12 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #460 on: August 09, 2008, 06:55:12 PM »
Yes,
Thank You for the goody bag. I now have 3 women talking to me, unfortunately we dropped Mandy back off at the Mental Health Center. :rofl; :rofl; So now my watch and pill container talk to me. :urcrazy;
« Last Edit: August 09, 2008, 07:06:03 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
flip
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« Reply #461 on: August 09, 2008, 07:04:23 PM »
I have worn my purple bracelet ever since I got back. It seems like a part of me now. Thanks,Paris.
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That which does not kill me only makes me stronger - Neitzsche
paris
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« Reply #462 on: August 09, 2008, 07:47:33 PM »
Karol gets a lot of credit too. She came with great stuff and together we were able to come up with some nice goodies.   Chris, is the talking pill container driving you crazy?  If so, I know of a good mental health care facility! :rofl;    Karol and I were both fortunate to have some nice donations given to us.  It was good for me to work on the event. Some days I need to know there is a purpose to get up!   

Chris, if beer makes you smile like that, well, drink more beer :beer1;  You have a wonderful smile.  Of course, being with Alene and Rolando--you have to smile because they are always smiling.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #463 on: August 09, 2008, 07:53:39 PM »
Nope, she's not driving me nut's, just Mandy :rofl; :rofl;
I appreciate what everyone did who was involved.
And to Rolando and Alene, I appreciate them for taking me out. I offered to pay for things and Alene wouldn't let me. Glad we didn't buy gas in Chicago though, wow what a difference in price. A good time was had.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sluff
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« Reply #464 on: August 10, 2008, 07:31:45 PM »
Thank you so much Okarol and Paris. Due to other commitments I was unable to help with much of the planning for this years get together and it was comforting to know that I could trust these two wonderful ladies with the entire planning. Without Paris or Okarol IHD would not be what it is today. Thank you to both for giving unselfishly of your time, money and friendship.  :-* :grouphug;
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paris
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« Reply #465 on: August 11, 2008, 11:13:37 AM »
Chris, sounds like Alene and Rolando took good care of you.  It is amazing to meet IHD people in person and they are even more wonderful than you imagined.    I am still on an "IHD" high!   

Jess21, did you ever explain that you weren't micro-chipping dogs that weekend? :rofl;


Thanks everyone. It was truly my pleasure to be a part of the weekend.   :grouphug;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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« Reply #466 on: August 11, 2008, 05:57:55 PM »
Quote from: Sluff on August 10, 2008, 07:31:45 PM
Due to other commitments I was unable to help with much of the planning for this years get together

You did plenty Sluff, and you are greatly appreciated! Among other things, picking me up at the airport saved me time and money - thanks again!  :cuddle;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #467 on: August 11, 2008, 06:31:11 PM »
The hotel was in a perfect spot.  Lots of good restuarants close by. The staff was great.  Especially "Bob" who helped late one night find an all night pharmacy.  And the breakfast room gave us a place to start the day together.   And the mental health facility was just around the corner. :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Jess21
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« Reply #468 on: August 15, 2008, 08:58:14 AM »
No Paris, I didn't.  He didn't really ask me about the day I was gone, just if I had fun.  He couldn't really be mad though, I was gone for one day, he's gone for 4 this weekend.
I got in my mom's car yesterday, since a guy fixing our front step was blocking the car I drive, and there was a purple feather.  :rofl;
Logged
Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
okarol
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« Reply #469 on: August 15, 2008, 06:34:46 PM »
Quote from: Jess21 on August 15, 2008, 08:58:14 AM

.... and there was a purple feather.  :rofl;

 :bandance;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #470 on: August 15, 2008, 06:36:14 PM »


I cannot find my boa since the dinner -  :'( waaaaaaaa!!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #471 on: August 15, 2008, 07:10:59 PM »
You probably left it at the Mental Health Facility! :rofl; :rofl;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #472 on: August 15, 2008, 07:15:12 PM »
Quote from: paris on August 15, 2008, 07:10:59 PM
You probably left it at the Mental Health Facility! :rofl; :rofl;

Nooooooo!   :urcrazy;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
aharris2
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« Reply #473 on: August 19, 2008, 05:18:10 PM »
we... are back home...
we have been here for a bit more than a week, but it takes us awhile to recover
we will write more and post pictures (I think) soon
for now, we had a fantastic time and enjoyed meeting everyone
thanks to everyone who helped organize it
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Sluff
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« Reply #474 on: August 19, 2008, 06:59:18 PM »
The pleasure was all mine Rolondo and Alene. It was a fantastic time and I'm glad you were part of it.
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