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Author Topic: CHICAGO: IHD first 2nd Annual Member Meeting  (Read 118127 times)
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« Reply #425 on: August 04, 2008, 09:07:25 PM »
 :2thumbsup; Chris  :2thumbsup;
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G-Ma
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« Reply #426 on: August 04, 2008, 09:18:19 PM »
yeah for regional...charlotte.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
MyRenalRomance
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« Reply #427 on: August 04, 2008, 10:40:15 PM »
Sounds like the Chicago IHD meeting was really fun!  Wish I could have been there!  Chicago is, definitely, a destination I'd like to travel to!  I enjoyed reading the posts, viewing the YouTube videos, and seeing the photos!  Everyone looks sooooo nice and soooo friendly!  :grouphug;

Will the Chicago meeting  be an annual event every August?  2nd question:  Is there a meeting in Las Vegas this October?  Hope so, because I might be able to make it to that!!!

Sorry, if the answers are already posted elsewhere.  I'm new ro the topic of the IHD meet-ups.
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Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
MyRenalRomance
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« Reply #428 on: August 04, 2008, 10:43:14 PM »
Duhhhh . . . I just noticed the Las Vegas 2008 thread!  (my apologies for asking a question who's answer was right in front of me!)  me:  :urcrazy;
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Kidneys damaged by hypertension/scleroderma 1987
In-center Hemodialysis:  May 2007 - October 2007
Switched to Manual PD October '07 - January '08
Switched to PD Nighttime Cycler January '08
Kidney transplant from living related donor June 2008
okarol
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« Reply #429 on: August 04, 2008, 10:43:46 PM »
Quote from: MyRenalRomance on August 04, 2008, 10:40:15 PM
Sounds like the Chicago IHD meeting was really fun!  Wish I could have been there!  Chicago is, definitely, a destination I'd like to travel to!  I enjoyed reading the posts, viewing the YouTube videos, and seeing the photos!  Everyone looks sooooo nice and soooo friendly!  :grouphug;

Will the Chicago meeting  be an annual event every August?  2nd question:  Is there a meeting in Las Vegas this October?  Hope so, because I might be able to make it to that!!!

Sorry, if the answers are already posted elsewhere.  I'm new ro the topic of the IHD meet-ups.

We haven't planned any meetings for 2009 yet. Yes, October 11 is the Las Vegas meeting - be there or be square!  ;D
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #430 on: August 05, 2008, 03:49:54 PM »
Not me!  I don't intend to be square!  I intend to be THERE!!!!!!!!
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I LOVE  my IHD family! :grouphug;
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« Reply #431 on: August 05, 2008, 05:47:02 PM »
can I be both?
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« Reply #432 on: August 05, 2008, 05:53:29 PM »
Quote from: bajanne2000 on August 05, 2008, 03:49:54 PM
Not me!  I don't intend to be square!  I intend to be THERE!!!!!!!!
And Huey Lewis and The News plays in the background ;musicalnote;"Hip to Be Square" ;musicalnote;:rofl;  :popcorn;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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« Reply #433 on: August 05, 2008, 07:36:47 PM »
I am excited.  Does anyone else want to speak to IHD at the dinner besides our scheduled speaker Bajanne2000?  I am also getting goodie bags together will help from other people.  ANyone have anything out there to put in them? I also have boxes with gifts for the dinner raffle in them!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #434 on: August 05, 2008, 08:10:05 PM »
I guess we got out of town just in time!  :bow;

Violent storms spawn tornadoes in Chicago area
Tuesday, August 5, 2008

By KAREN HAWKINS
CHICAGO (AP) -- Crews began cleaning up downed trees and restoring power across northern Illinois on Tuesday after a line of powerful storms ripped through the area, spawning at least two tornadoes.

The National Weather Service confirmed that tornadoes touched down in the Chicago suburbs of Bloomingdale and Bolingbrook late Monday. A third tornado touched down in Griffith, Ind.

A tornado and other high winds damaged 25 homes, including two left uninhabitable when winds ripped off parts of roofs, said Bolingbrook Assistant Fire Chief Robert Mierop. No one was injured.

Strong winds also damaged buildings and flooded streets across the northern part of the state late Monday, and lightning is being blamed for several fires.

Another line of thunderstorms left tens of thousands without power early Tuesday in north-central Illinois.

Parts of central and southern Illinois were under severe thunderstorm warnings Tuesday, and the weather service predicted more strong winds and the possibility of hail. Weather damage _ including standing water, downed tree limbs and blinking traffic lights _ snarled rush-hour traffic in the Chicago area.

More than 100 flights were canceled at O'Hare International Airport on Tuesday morning, according to aviation department spokesman Gregg Cunningham. He said airlines are catching up after last night's storms and delays are minor. A few flights are delayed about an hour at Midway.

Monday's storm prompted tornado warnings in downtown Chicago. Fans were evacuated from the stands at Chicago's Wrigley Field and travelers from the upper levels of terminals at O'Hare International Airport.

Storms were being blamed for one death Monday. In northwestern Indiana, a tree fell on a car and killed the 23-year-old driver, LaPorte County Deputy Coroner John Sullivan said.

___

Associated Press writer Carla K. Johnson contributed to this report from Chicago.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #435 on: August 05, 2008, 08:18:55 PM »
Bolingbrook is the next town northeast of me. Use to live there and a tornado would do some good damage if it hit the landfill mountain. eww the smell :puke;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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« Reply #436 on: August 05, 2008, 08:20:34 PM »
Yea Tinley Park didn't have any problems, but my friend who lives in Chicago has a flooded basement.  Lots of trees down, just not by me.
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
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« Reply #437 on: August 05, 2008, 08:25:33 PM »
Just heavy heavy rain, lots of tunder and lightning and a little hail. Got of Physical Therapy and home just in time. Started to rain as I pulled into the driveway and all heck broke loose once inside.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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« Reply #438 on: August 05, 2008, 08:35:08 PM »
Heck broke loose when my mom was driving me from dialysis!
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
kitkatz
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« Reply #439 on: August 05, 2008, 08:38:53 PM »
Weren't the IHD.com tornadoes in Chicago this past weekend?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #440 on: August 05, 2008, 08:47:21 PM »
I wish I had brought my karoke machine. We could have had some good stuff for Youtube.
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« Reply #441 on: August 05, 2008, 08:58:55 PM »
Quote from: kitkatz on August 05, 2008, 08:38:53 PM
Weren't the IHD.com tornadoes in Chicago this past weekend?
I wasn't that drunk!
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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« Reply #442 on: August 06, 2008, 01:39:50 AM »
1. Patton at Billy Hana's (hehehe cousin to Benihana  :rofl; )

2. Nice lunch

3. How many members fit in a room?

4. Looks like about 11 members!

5. Dinner at Cracker Barrel - my first ever hash brown casserole (YUM!)

6. Chris
« Last Edit: August 06, 2008, 01:44:35 AM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #443 on: August 06, 2008, 01:43:16 AM »

1. Aharris and rolando

2. Chris and a big beer

3. Chris finishes beer!

4. Patton in purple

5. Sluff speaks

6. Paris - our birthday girl
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #444 on: August 06, 2008, 02:27:42 AM »
1. Navy Pier fireworks

2. Yup! See next photos.

3. Patton and Bob Newhart

4. Patton as sculpture

5. Navy Pier IHD gang
« Last Edit: August 06, 2008, 02:31:50 AM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #445 on: August 06, 2008, 02:38:19 AM »
1. Sluff, Boxman, okarol, alene and rolando

2. Sluff, Boxman, okarol

3. Oh man, this skirt is not made for this!

4. Weeeee! Fun ride to my sister's house in Wisconsin (Thanks Sluff and Christy!)

5. Christy, okarol, my sister Lori and Sluff
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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« Reply #446 on: August 06, 2008, 03:50:14 AM »
Thanks Karol for posting those.  Everyone looks wonderful.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #447 on: August 06, 2008, 06:22:08 AM »
That black and white pic looks like the Wild Bunch got together!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
boxman55
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« Reply #448 on: August 06, 2008, 06:40:18 AM »
Great pics. just so you know I gave up my turn to ride on the bike so Okarol could. good choice...Hey   Boxman
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Ohio Buckeye
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« Reply #449 on: August 06, 2008, 09:24:42 AM »
Great pics!
Looks like you all had a blast.
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If I must do this to live, I must strive to live
while I am doing this.
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