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Author Topic: CHICAGO: IHD first 2nd Annual Member Meeting  (Read 118252 times)
Sluff
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« Reply #375 on: August 02, 2008, 05:55:05 PM »
We had a blast at our dinner, the food was good and there were some cool donated items for everyone. Paris and Karol did a wonderful job putting this together. Some of us are headed to chicago tonight and some of us are going to bed early. The one thing that makes the IHD meetings so memorable is that everyone does what ever they want, it is stress free even while we get lost, eat too much, and act silly. WOW what a weekend.  :2thumbsup;
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flip
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« Reply #376 on: August 02, 2008, 06:52:52 PM »
Ladies and the Purple Boas
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That which does not kill me only makes me stronger - Neitzsche
twirl
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« Reply #377 on: August 02, 2008, 06:54:38 PM »
Flip Bob - you do D on Saturdays?   please have the best time and drink too much-- not enough to get sick but enough to have fun -
              too hell with fluid intake and out put
          I just got off the internet looking for some recipes I though you would like----- did you know you can make oatmeal cookies with vodka?
         ( the vodka goes into the cookie dough --- not the cook)
      hope you have the time of your life---- no DWI ---- and remember no D tomorrow to help with your hangover :shy;   Cheryl
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kitkatz
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« Reply #378 on: August 02, 2008, 06:59:08 PM »
I hope you all are having the times of your lives in Chicago. I talked to Karol and Sluff today around 4 their time.  Las Vegas here we come!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
flip
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« Reply #379 on: August 02, 2008, 08:50:39 PM »
the guys
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G-Ma
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« Reply #380 on: August 02, 2008, 08:55:26 PM »
what a motley crew............ :rofl; yeah guys and gals....love all the pictures...ladies too. :2thumbsup;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
flip
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« Reply #381 on: August 02, 2008, 09:29:37 PM »
Our fearless leaders. Thanks for a great time. Looking forward to Vegas.

Picture resized - Bajanne, Moderator
« Last Edit: August 03, 2008, 05:33:24 AM by bajanne2000 » Logged
That which does not kill me only makes me stronger - Neitzsche
kitkatz
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« Reply #382 on: August 02, 2008, 09:47:23 PM »
Our fearless leaders, Karol and Darrell.  Doesn't that sound like the beginning of a name to something.

Fabulous boas and tiara gentlemen!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jess21
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« Reply #383 on: August 02, 2008, 11:25:00 PM »
Past 1am and we all just got back from chicago.  my my my aren't WE the party animals? :rant;
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Chris
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« Reply #384 on: August 03, 2008, 12:40:07 AM »
I just got home a couple minutes ago from Tinley Park. It is now 2:36 am.

 Will be attempting to post videos of meet on YouTube later and post links. I took 4 videos.

Ohh, I apologize to Pattons parents for giving him those ringtones, My Bad ;D Hopefully not over playing them till his phone goes dead :rofl;
« Last Edit: August 03, 2008, 02:13:00 AM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #385 on: August 03, 2008, 12:46:30 AM »
Quote from: twirl on August 02, 2008, 05:38:10 AM
thanks and I though the fish bowl was some kind of sushi soup
who are some of these people
is Chris that very young nice looking boy
2Harris are which ones
Those fish where what was used for your sushi dish or cooked meal. You picked which one you wanted and they sliced and diced it in front of you. The calamari even talked to us as it was being cooked. (It smelled though)
« Last Edit: August 03, 2008, 12:49:02 AM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #386 on: August 03, 2008, 01:49:07 AM »
Sorry okarol, I said I wasn't going to turn my pc on when I got home, but can't sleep. So I am uploading my videos to YouTube now instead of waiting.. Just hope I did it right and gave enough description.

Taking a long time to upload to their website, 12 minutes and only 24% is uploaded on first video.

1st picture, The Women of IHD
2nd picture, Suprise, It's someones birthday (Paris) and we all sing  :birthday; :birthday; :pics;
« Last Edit: August 03, 2008, 02:30:18 PM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #387 on: August 03, 2008, 04:25:31 AM »
YouTube videos from camera of Chicago. Not the best quality video, but it was from a digital camera and not a camcorder.

http://www.youtube.com/watch?v=0v4dk9GQ_nQ


http://www.youtube.com/watch?v=URa-wjmMvGA

http://www.youtube.com/watch?v=g1bCtpfM3Hg

http://www.youtube.com/watch?v=74jzU87QjGw
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willieandwinnie
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« Reply #388 on: August 03, 2008, 04:41:40 AM »
 :thumbup; :yahoo; :rofl; :clap; :bandance; :beer1; Great videos Chris. Have fun..........
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bolta72
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my best friend
« Reply #389 on: August 03, 2008, 05:35:30 AM »
 :2thumbsup; :2thumbsup; :clap;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Bajanne
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« Reply #390 on: August 03, 2008, 05:52:57 AM »
That was supertremendous!!!  It seems that IHD is going a notch higher every time!  Imagine we were able to be there by means of the videos!  It was great being able to hear the speeches and to see everyone like that.
And thanks for the picts too. Lovely seeing the guys and gals with the purple boas.


LAS VEGAS, HERE WE COME!!!!!!!!!!!!!!!!!!!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #391 on: August 03, 2008, 06:03:57 AM »
 :rofl;

What a silly bunch! Thanks Chris!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
G-Ma
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« Reply #392 on: August 03, 2008, 07:08:24 AM »
Thanks for the videos..it was fun putting faces and voices to names.  Great job. :bow;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
thegrammalady
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« Reply #393 on: August 03, 2008, 08:27:30 AM »
:beer1; yea for the videos
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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For You Are Crunchy And Taste Good With Ketchup
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« Reply #394 on: August 03, 2008, 09:05:45 AM »
Thanks for sharing that all with us, looks like you had a great time - love you all  :grouphug;
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kitkatz
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« Reply #395 on: August 03, 2008, 11:07:20 AM »
Those are great.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
boxman55
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« Reply #396 on: August 03, 2008, 01:48:13 PM »
I had another party to go to on Saturday so I missed the Chicago party but then I got a call from Sluff and he wanted to stop over at my house today. Low and behold Arlene and Rolando, Okarol, Sluff and his wife and son Cristy and Patton show up in my driveway. What a thrill to see them all. We all went to lunch together and had a real nice time. When we where done we came back to my house and said our good byes. After giving me a hug Karol jumped on the back of Sluff's bike and off they went to her sister's house and Arlene and Rolando headed back to Chicago. They all are some of the nicest people you ever want to meet...Boxman

PS We took pics Okarol will post
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
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« Reply #397 on: August 03, 2008, 02:27:36 PM »
Quote from: boxman55 on August 03, 2008, 01:48:13 PM
They all are some of the nicest people you ever want to meet...Boxman

Yes, Yes they are :thumbup;
I had a great time, even trying to find way around and back from Chicago. Gotta Love technology, 2 GPS units not agreeing with each other :rofl; :urcrazy;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Bajanne
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« Reply #398 on: August 03, 2008, 04:06:18 PM »
That was super!  So many of you being able to meet up with Boxman and spend some time with him.   IHD is the BOMB!!!!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
monrein
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Might as well smile
« Reply #399 on: August 03, 2008, 04:11:21 PM »
Great that everyone had such a good time.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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