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Author Topic: CHICAGO: IHD first 2nd Annual Member Meeting  (Read 118163 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #275 on: July 25, 2008, 03:30:04 PM »
Quote from: KR Cincy on July 24, 2008, 06:44:05 AM
I was in Chicago two weeks ago and had a GREAT time...and lots of it cost nothing at all. We spent an entire morning at Millenium Park, checking out the big kidney (pictures to follow) and the cool fountain. Navy Pier is great...fireworks on Weds and Saturday nights that I recommend...window shopping on the Miracle Mile, or just hanging out in Wrigleyville on a game night.

I wish I could join you all, but I know you'll have a great time

Wish you could be there too!

That reminds me - we need to do a group photo at the "Bean" - the giant chrome kidney!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #276 on: July 25, 2008, 03:31:04 PM »
I like to do that. I'll have to Google where the train station is in relation to the restaurant or the hotel to see if it will be easy for me to navigate at night. I know I can drive on the highway to my house at night, but not familiar with that area is a concern (I do not trust 100% in my GPS unit, HP has not updated the maps in 2 years >:( :rant;)
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
aharris2
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Volcan Pacaya, Guatemala
« Reply #277 on: July 25, 2008, 03:39:19 PM »
Quote from: Chris on July 25, 2008, 03:31:04 PM
I like to do that. I'll have to Google where the train station is in relation to the restaurant or the hotel to see if it will be easy for me to navigate at night. I know I can drive on the highway to my house at night, but not familiar with that area is a concern (I do not trust 100% in my GPS unit, HP has not updated the maps in 2 years >:( :rant;)

Just remember everyone, we are all a team. If anyone needs help - a ride, a driver, someone to follow home or wherever, make it known. Together we will do it. Even if we end up lost, we'll be lost together!
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
paris
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« Reply #278 on: July 25, 2008, 03:40:03 PM »
That would be a great picture!   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #279 on: July 25, 2008, 03:42:55 PM »
Quote from: aharris2 on July 25, 2008, 03:39:19 PM
Quote from: Chris on July 25, 2008, 03:31:04 PM
I like to do that. I'll have to Google where the train station is in relation to the restaurant or the hotel to see if it will be easy for me to navigate at night. I know I can drive on the highway to my house at night, but not familiar with that area is a concern (I do not trust 100% in my GPS unit, HP has not updated the maps in 2 years >:( :rant;)

Just remember everyone, we are all a team. If anyone needs help - a ride, a driver, someone to follow home or wherever, make it known. Together we will do it. Even if we end up lost, we'll be lost together!

Already been lost in that area a couple years ago, somehow found way home the back way instead of the highway.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
flip
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« Reply #280 on: July 25, 2008, 04:05:48 PM »
Is there a dress code in the restaurant or is tee shirt and shorts okay? I'm not a dress up person anymore.
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That which does not kill me only makes me stronger - Neitzsche
Chris
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« Reply #281 on: July 25, 2008, 04:18:01 PM »
I think that would be fine. Looking at the website, people are wearing T-Shirts. I have never been to a dress up pizza joint.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
flip
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« Reply #282 on: July 25, 2008, 04:50:41 PM »
I didn't know. I've never been to Chicago other than passing through.
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That which does not kill me only makes me stronger - Neitzsche
Jill D.
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« Reply #283 on: July 25, 2008, 09:10:03 PM »
Oooohhh...I so wish I was going! I was in Chicago yesterday attending an expo at McCormick Place for work. I LOVE Chicago!!!! We ate at a wonderful italian restaurant called Volaires.
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
paris
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« Reply #284 on: July 25, 2008, 10:00:05 PM »
Jill, I can't believe we missed you by a week!   Don't you go canoeing, camping next week?  Have a great time.  See you in Vegas??

Flip,  I think we are all at the casual stage of life now.  Even when I dress up, I am the most casual person in the room.  I am sure my husband will be in shorts and tennis shoes.

No worries about anything now.  Once we are together we will work everything out.  Like aharris2 said, we will stick together and make sure everyone is having a great time.  We are family, right?  I am starting to get excited now. :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
paris
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« Reply #285 on: July 25, 2008, 10:20:31 PM »
Okarol, I was looking through the old posts and I really like the sunset cruise you posted about.  Sounds like it would be beautiful views of Chicago.   :thumbup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
paris
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« Reply #286 on: July 25, 2008, 10:29:56 PM »
All day parking at Navy Pier for Friday or Saturday is $23.   Fireworks at the Pier are at 10:15.   My family enjoyed the beer garden, sipping drinks and listening to the bands.   It is 1:30 am and I can't sleep, again, so here I am researching.   :urcrazy;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Jill D.
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« Reply #287 on: July 25, 2008, 11:00:06 PM »
Yes, we have our annual canoe weekend next week, which is something we look forward to every year!
I have not yet committed to Vegas, but haven't ruled it out either. I have been to Vegas twice in the last year and both times the trip wiped me out. However, my desire to see everyone is so strong that there is a good chance we'll be there!
Logged
Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Sluff
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« Reply #288 on: July 26, 2008, 06:48:02 AM »
Quote from: Jill D. on July 25, 2008, 11:00:06 PM
Yes, we have our annual canoe weekend next week, which is something we look forward to every year!
I have not yet committed to Vegas, but haven't ruled it out either. I have been to Vegas twice in the last year and both times the trip wiped me out. However, my desire to see everyone is so strong that there is a good chance we'll be there!

You gotta go Jill, who else would drink shots of tequila as well as you?
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Chris
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« Reply #289 on: July 26, 2008, 12:44:42 PM »
Quote from: paris on July 25, 2008, 10:29:56 PM
All day parking at Navy Pier for Friday or Saturday is $23.   Fireworks at the Pier are at 10:15.   My family enjoyed the beer garden, sipping drinks and listening to the bands.   It is 1:30 am and I can't sleep, again, so here I am researching.   :urcrazy;

If I have my truck, I can't drive on Lake Shore Drive to get to Navy Pier. Vehicles with truck plates will be ticketed if caught on Lake Shore Drive. It's a stupid old old law they never took off. Do not want o take the chance and get a Chicago Cop with an attitude. If I can get my vehicle in the repair shop, then I might have a rental car at the time. I just hate city traffic though, Country Boy at heart (not the music though :rofl;)
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #290 on: July 27, 2008, 12:22:14 AM »

I have cell phone numbers for the following people:
Sluff, Paris, Chris and aharris - if anyone else wants to share their's or get mine please PM me. Thanks.

okarol
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #291 on: July 27, 2008, 11:47:09 AM »
List that I have:  Okarol
                        Sluff and Kristi
                        Paris and Barry
                        Alene and Rolando
                        Flip and Donna
                        Chris
                        Jess21 and Mom, Nancy
                        Maria

Did I forget anyone?   It is just days away now and I am looking forward to seeing everyone.  Now, if I was ready to go,I would be even more excited! :rofl;
« Last Edit: July 27, 2008, 07:31:59 PM by paris » Logged


It's not what you gather, but what you scatter that tells what kind of life you have lived.
flip
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« Reply #292 on: July 27, 2008, 11:58:24 AM »
My g/f Donna is coming too. I'll pick her up in Indiana.
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paris
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« Reply #293 on: July 27, 2008, 02:48:51 PM »
Great!  Looking forward to meeting you and Donna! :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Sluff
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« Reply #294 on: July 27, 2008, 06:56:26 PM »
Kitkatz daughter Maria will be there also.
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kitkatz
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« Reply #295 on: July 27, 2008, 06:57:45 PM »
Yes, Maria will have a good time!
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Take it one day, one hour, one minute, one second at a time.

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paris
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« Reply #296 on: July 27, 2008, 07:31:10 PM »
I added her name!  Thanks--am glad she will be there too! :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #297 on: July 28, 2008, 04:28:18 PM »


Thanks Jess21, I got your cell phone number.  :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #298 on: July 29, 2008, 10:45:23 PM »
Quote from: kitkatz on July 17, 2008, 08:00:54 PM
Remember to bring the purple boas.

yeah baby yeah!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #299 on: July 29, 2008, 10:48:42 PM »

KitKatz and her boa  :rofl;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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