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Author Topic: Scared as hell...  (Read 50288 times)
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #50 on: January 24, 2008, 05:21:52 AM »
Susie, thank God it's treatable. I was worried sick about you all day yesterday and the first thing I did when I got to work this morning was log on to IHD to see if there was any news. My thoughts will be with you on Friday when you have the surgery. You'll get through it I know you will.
 :grouphug; :grouphug;
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Ken
lola
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I can fly!!!
« Reply #51 on: January 24, 2008, 05:35:26 AM »
susie my brother in law went through the same thing and did good, hang in there I'll say extra prayers for you and please keep us posted. xoxoxox :cuddle; :grouphug;
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MyssAnne
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« Reply #52 on: January 24, 2008, 05:58:58 AM »
Susie,

I am SO GLAD it can be treated!!!!  Your surgeon sounds like such a sweetheart to reassure you!

You can do this!! We'll be praying for a speedy, painless recovery (LOTS of morphie!!), and
you'll be home posting to us in no time!

We love you!! :cuddle; :cuddle; :cuddle; :grouphug; :grouphug; :grouphug;
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donnia
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me and my donor Joyce
« Reply #53 on: January 24, 2008, 06:00:57 AM »
Sux that you have to have surgery, but at least they are taking care of it.  I will be saying a prayer for you and your doctors.   :grouphug;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
xtrememoosetrax
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« Reply #54 on: January 24, 2008, 06:11:59 AM »
Even though I didn't post, I was thinking about you and worrying about you yesterday, goofynina.  So I'm VERY glad to hear that this problem is something they can do something about.  Wow, Friday is SOON!  But best to get it over and done quickly.  Sometimes I think that the most uncomfortable sensation of all is fear, so try not to be too scared, okay?  Remember, with this first round, the fear just made you miserable; it really didn't help a bit, did it? So, again, please try not to be too scared.  We all love you and will be thinking about you and praying for you.  Too bad we don't have a "holding hands" icon; I'm sure we'd all be using it!  Just think of all of us IHD folks holding your hand in spirit!  Hang in there, sweetie.  Sending hugs and love. :grouphug; :grouphug; :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

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kitkatz
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« Reply #55 on: January 24, 2008, 06:27:19 AM »
Be sure you understand what the wound vac does and are careful with it.  Victor had one.  Let me be honest It is not a pleasant experience, but it will help the wound to heal. 

I wish you luck and love.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
karen547
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« Reply #56 on: January 24, 2008, 06:51:28 AM »
Hi Susie, glad to hear it can be taken care of! I had a wound vac when I had my skin graft due to my burns. It basically is a seal that helps keep the wound from getting infections. I was attached to a little machine, that was the worst part of it, I had to carry the thing with me and keep getting on and off of it if I wanted to change my clothes! I wish you well and good luck!
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Amanda From OZ
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« Reply #57 on: January 24, 2008, 07:33:22 AM »
Good luck Susie.... know that we are all hear praying for you...  :grouphug;

Sending positive thoughts your way.

Love

Amanda
xxoo

 :cuddle;
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vandie
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« Reply #58 on: January 24, 2008, 07:52:53 AM »
Susie, I am so proud of you.   You are stronger than you realize and you are going to get through this with flying colors.

Love you
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Life is the journey, not the destination.
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Zach
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« Reply #59 on: January 24, 2008, 07:56:42 AM »
All my love to you, Susie!
 :-*
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
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No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
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Ohio Buckeye
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« Reply #60 on: January 24, 2008, 08:08:24 AM »
Know that my thoughts and prayers are with you.
Taake it easy.   :grouphug;
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If I must do this to live, I must strive to live
while I am doing this.
Deanne
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« Reply #61 on: January 24, 2008, 09:10:47 AM »
I'm glad they're able to take care of it so soon for you. The longer you have to wait for the surgery, the longer you'd have to be anxious over it. You'll feel better soon!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
aharris2
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Volcan Pacaya, Guatemala
« Reply #62 on: January 24, 2008, 09:18:30 AM »
Quote from: kitkatz on January 24, 2008, 06:27:19 AM
Be sure you understand what the wound vac does and are careful with it.  Victor had one.  Let me be honest It is not a pleasant experience, but it will help the wound to heal. 

I wish you luck and love.

Susie, best wishes. Regarding the wound vac, Rolando's experience was a good one, so apparently the experience varies by application. Like okarol said, it promotes the growth of granulation tissue and it was the last technique used on Rolando's wounds. It healed them. They place a porous spongelike material into the wound, cover it with an adhesive backing with a tube in it, sealing it from outside air and providing a passageway for the vacuum. It is self contained with a rechargeable battery so you can get out and around with it. It will take home health care to change the dressing. Pay close attention to the right way to do it because we found that most of the visiting nurses were not competent with it.
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Sluff
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« Reply #63 on: January 24, 2008, 10:23:37 AM »
Could you send a little of that Morphine my way?  >:D Then when we talk on the phone we will be on the same planet.. >:D ;)
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LightLizard
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« Reply #64 on: January 24, 2008, 10:33:20 AM »
wishing you smooth sailing through the surgery, susie.

i know it's a scarey time, but if it means you can stay on P/D and not have to go to hemo - it's worth it!

keep smilin!

love

LL
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rose1999
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« Reply #65 on: January 24, 2008, 10:37:56 AM »
Oh I'm SO glad you can get the treatmet so quickly, rest assured we will ALL be praying for you on Friday. 

Sending you all my love and best wishes for a speedy recovery, we are all with you. :grouphug;  :-*
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angellady07
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« Reply #66 on: January 24, 2008, 12:32:40 PM »
Susie my prayers are with you.God bless. Keep us posted.  :grouphug;
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The Wife
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« Reply #67 on: January 24, 2008, 02:04:04 PM »
I've just signed in a couple of days ago, have read some of your posts, and I wanted to let you know that I'm giving you the biggest hug I can muster.

I'm looking forward to future conversations with you and even though you don't yet know me, you've warmed my heart many a time.

Lots of love,
LL's wife.
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Mimi
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For any who do not like me I use - prayer.
« Reply #68 on: January 24, 2008, 02:29:32 PM »
Susie you are going to be alright.  With the Drs. and God at your side, you have no worries.

Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
willieandwinnie
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« Reply #69 on: January 24, 2008, 02:48:44 PM »
 :grouphug; I'll be praying and thinking good thoughts for you tomorrow. We all will.  :cuddle;
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KT0930
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« Reply #70 on: January 24, 2008, 03:31:27 PM »
I somehow missed this thread. Susie, I am so sorry you're going through this, but I am so glad to hear it can be taken care of! Know that lots of prayers will be heading your way tomorrow morning and until we hear from you again. Take care of yourself, and keep that morphine button close!!  :grouphug;
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Bill Peckham
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« Reply #71 on: January 24, 2008, 04:09:38 PM »
This too shall pass. Every hour will be an hour closer to this being a memory and to feeling better.
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
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bolta72
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my best friend
« Reply #72 on: January 24, 2008, 04:54:27 PM »
Susiie, I am sure all things will turn out ok, wishing you the best and here's a tune for you....http://oldbluewebdesigns.com/wonderfulworld.htm
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gotta do what I gotta do.. 2 yrs in ctr hemo
cris
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« Reply #73 on: January 24, 2008, 05:04:35 PM »
My Dear, with all the prayers and love sent your way don't be scared. For sure, an angel will be on your side during the operation. You have brighten so many lives in here and you are close in our heart. My prayers are with you, this Friday, I'll offer a novena prayer at the Blessed Sacrament for your quik recovery. Hope to see you log in soon.
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there is no greater love than this: "that a man lays down his life for his friend"
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« Reply #74 on: January 24, 2008, 05:08:55 PM »
Quote from: bolta72 on January 24, 2008, 04:54:27 PM
Susiie, I am sure all things will turn out ok, wishing you the best and here's a tune for you....http://oldbluewebdesigns.com/wonderfulworld.htm

I played this to Susie over the phone and it made her cry, It means so much to her that you thought of this song at this time.
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