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Author Topic: Scared as hell...  (Read 50283 times)
Deanne
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« Reply #300 on: February 12, 2008, 06:30:23 AM »
This has been a long road for you Susie! Get well soon!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
rose1999
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« Reply #301 on: February 12, 2008, 08:25:55 AM »
Sluff, great idea, would love to send a get well card but how do we get her address?  Please let us know.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #302 on: February 12, 2008, 08:29:52 AM »
Send me a PM and I will give you Susie's address.

okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
petey
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« Reply #303 on: February 12, 2008, 05:09:50 PM »
Dearest Goofynina,
My Marvin has a wound vac now, too.  He said to tell you that WOUND VACS SUCK !! (It's an inside joke -- you have to had experience with a wound vac to get it!)  Marvin also said that even though they suck, the healing process is much quicker and much better with them.

Fight hard, girl!  Marvin and I are right here with you -- we've got your back if you need help fighting this stuff.  It looks like there are a lot of IHD folks who want to be in your "army," too.

 :banghead; = IHD folks without our precious Goofy
 :boxing; = let's fight for our Goofy
 :'( = miss you, Goofy

Get well and come back to us soon, Goofy!  We love you, need you, and miss you.
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KT0930
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« Reply #304 on: February 12, 2008, 05:12:20 PM »
Susie, I'm sorry to hear things are not going as well as we all would like. Keep fighting, and remember you have lots of family members here praying for you and missing you!  :grouphug;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
vandie
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« Reply #305 on: February 12, 2008, 05:36:03 PM »
Oh Susie girl, get well soon.  We miss you so.

Love you
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
CW
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Yeah .............That's me!
« Reply #306 on: February 12, 2008, 10:01:11 PM »
:bestwishes;
Still missing your posts Goofynina
Get well soon today's hugs :grouphug; :grouphug; :grouphug; :grouphug;
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*Common Sense is an uncommon thing


20 years navigating ESRD
Had a transplant but it rejected

To all of my kidney brothers and sisters who have left too soon -
Where you used to be, there is a hole in the world, which I find myself constantly walking around in the daytime, and falling in at night.  I miss you like hell.  ~Edna St Vincent Millay
Joe Paul
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« Reply #307 on: February 13, 2008, 01:14:09 AM »
Praying for you Goofy, hope you are doing good   :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Amanda From OZ
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« Reply #308 on: February 13, 2008, 02:10:14 AM »
Susie keep fighting....

Amanda
xxoo

 :grouphug;  :grouphug;  :grouphug;
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Wattle
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« Reply #309 on: February 13, 2008, 02:54:31 AM »
 :boxing; :boxing; :boxing; :boxing; :boxing; :boxing; :boxing; :boxing; :boxing; :boxing; :boxing; :boxing; :boxing; :boxing; :boxing; :boxing;

Come on Susie.  Fight your way back to us.  :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
paris
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« Reply #310 on: February 13, 2008, 05:01:22 AM »
I love you, Susie :cuddle; :'( :'(
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Jill D.
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« Reply #311 on: February 13, 2008, 10:34:51 AM »
Susie - you are loved by so many (Including me, of course!) Please know and believe.  :beer1; :cuddle; :grouphug;
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #312 on: February 13, 2008, 11:55:29 AM »
Update of Susie in this thread peoples http://ihatedialysis.com/forum/index.php?topic=6999.0

 :grouphug;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Romona
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« Reply #313 on: February 14, 2008, 02:16:05 PM »
Re-reading this just makes me cry.  :'(
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Deanne
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« Reply #314 on: February 14, 2008, 03:03:29 PM »
Me, too. I keep re-reading it, wondering if there's *something* in these messages that give an inkling of what was to come.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
kellyt
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« Reply #315 on: February 15, 2008, 12:03:20 PM »
Quote from: Deanne on February 14, 2008, 03:03:29 PM
Me, too. I keep re-reading it, wondering if there's *something* in these messages that give an inkling of what was to come.

I did the same thing!  I read her last post.   "LOVE YOU ALL..."    She was truly an amazing woman!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kimcanada
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« Reply #316 on: February 15, 2008, 06:06:22 PM »
 :'(
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paris
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« Reply #317 on: February 15, 2008, 06:39:04 PM »
 :'(
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
petey
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« Reply #318 on: February 15, 2008, 06:55:51 PM »
paris -- this is for you...  :grouphug; :grouphug; :grouphug;

this is for everyone else on IHD...  :grouphug; :grouphug; :grouphug;
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