Ignorant things people have said to you

[kitkatz]

See's Candy lady: "Oh I did not think they did dialysis that long!" after I told her I had been on it fifteen years.

[Bungarian]

1. Some people think that because I am on dialysis that I will die in a few days.

2. People who ask "How long do you have to be on dialysis".

3. People who tell me if I eat or drink certain things I will be cured.

4. People who tell me I don't need dialysis and they are doing it to get money from me

[502Blues]

I had a transplant in 2013. When someone asks which kidney did you get the right one or left. . .or ,now you just need one more

[CebuShan]

I had a transplant in 2013. When someone asks which kidney did you get the right one or left. . .or ,now you just need one more

     "Now you  just need one more!"     That is too funny! Did you ask them if they were willing to donate?   

[502Blues]

LMAO

[kitkatz]

I am getting ready to get the ileostomy put back down in January.
Kaiser calls today and tells me to come to the pharmacy and get materials to clean my colon out for a barium enema test (Fun, fun)
I told them that that was not possible because I was not hooked up to my colon anymore.
I was referred to an Xray tech on the phone, who told me she would talk to the receptionist and call me back.
No phone call as of yet and it is 9:43p.m.
I threw them for a loop.

[jbeany]

Oh, that's priceless, Kit!  Tell them pouring Drano down the kitchen sink won't unclog the toilet.   

[KatieV]

While I was in for my transplant recently, I had quite a few doctors want to check my PD catheter.  When I explained that I'm on home hemo and don't have a PD catheter, they would say, "But your fistula isn't working".  They were shocked when I would say that I have a chest catheter.  "You're allowed to use that???"   

Apparently, the policy at my hospital doesn't allow home hemo patients to use a chest catheter.  Thankfully, my dialysis center is out-of-state and allowed it, as I had so much trouble with the fistula.

[Emerson Burick]

Due to repeated leaks this year, my PD fluid kept escaping. As a result, I had to stop using my cycler at home and do tunneled-cath hemo for most of the last eight months as they'd sew me up in one place, wait for me to heal, I'd use the cycler for a week or two, and then I'd spring a leak somewhere else. Anyhow, a couple weeks ago, after leak #3, I had to re-register at my local hemo center. They made me fill out all of the paperwork all over again, and, like before, I signed the DNR (Do Not Resuscitate) form. [If you look up the stats on how well resuscitation works on hemo patients results, you'd sign it too.]

Back in June this had gone though without comment. This time, however, I got a clucking at by one tech ("You're so young! You can't sign that!"), a lecture by another ("Do you know what this means for your family? Have you talked this over with your wife?"), and the winner, some guy who I had never seen before in my months at the center, who weaseled up to me and said "Since you signed the DNR form, we need to know where to take your body if you die here. What funeral home have you made arrangements with?"

I swear to you all, my project for 2014 is to get that last son-of-a-bitch removed from his job.

[Rerun]

Required paper work for DaVita is what funeral home they need to take you to.  They told me we can't let you sit here all day.  LOL Nice hua?

[okarol]

I am getting ready to get the ileostomy put back down in January.
Kaiser calls today and tells me to come to the pharmacy and get materials to clean my colon out for a barium enema test (Fun, fun)
I told them that that was not possible because I was not hooked up to my colon anymore.
I was referred to an Xray tech on the phone, who told me she would talk to the receptionist and call me back.
No phone call as of yet and it is 9:43p.m.
I threw them for a loop.

  Check the file? My plumbing is rerouted!

[kitkatz]

Funny thing, I told them that.  They would check with each other and get back to me.  Only got back to me when I complained two weeks later.

[Simon Dog]

Had an actual, real MD in the hospital tell me "I didn't know that" when I explained why potential transplant candidates such as myself wish to avoid tranfusions.

Had another MD at the same hospital tell me "I didn't know they did that" (referring to home hemo)

Had my vascular surgeon (who did great work) tell me "I don't think home hemo is a good idea, you have professionals at the clinic taking care of things"

ND:

Yes, they will take care of you with stupid lectures, high fever, and infections.  What a truly great way to live!

You forgot to include infiltrations in that list.  Got a really nice big one at my final in-center treatment.

[G.Lively]

I went to the doctor to ask why my stomach was distended.  After an x-ray he said I was constipated.  I took a  laxative as directed and I did produce a lot of waste product.  Abdomen still stuck out there.  Five and a half months later I was carried into a hospital in and out of consciousness and hallucinating.  The previous doctor missed three large cancerous tumors that shutdown the kidney function which resulted in renal failure and eight months of dialysis and chemotherapy for two and a half years.  During this time, my immune system was weakened and I developed chronic bronchitis and subsequently a pulmonary embolism.  Due to the pulmonary embolism and the pain that developed in my chest from coughing, Norco was prescribed.  I became addicted.  I was up to six pills per day when I decided to drop four of them, cold turkey. I just finished two weeks of the worst misery ever foisted on a human being.  I kept two pills per day to control the coughing.  All of that is behind me except the chemo.

Next month I will see an allergist about this chronic cough/bronchitis or whatever it is.  This will be my fourth doctor with whom I asked about this chest problem. They advice has been everything from a sleep clinic to surgery.   Also, next month I will have a CT scan per cancer - we hope it is in remission.

This began with a misdiagnosis.  Take my word for this: cancer and constipation are not similar; be an informed patient; make your own decisions and accept what a doctor says as advice. 

People treat you differently when they know you have a major illness; they stay away, they don't shake your hand and if they do they wipe their hand on their shirt.  Body language.  Clearly they do not understand.  The most fun I had while on dialysis was when I got a wheelchair while my wife shopped.  I ripped around those aisles and people will get out of your way.  People will be polite but they won't touch you. 

[Simon Dog]

This began with a misdiagnosis.

I had severe thrombocytopenia (platelets 12) diagnoses as NAFLD (noon alcoholic fatty liver disease) by a local hemotologist.   I should have listened to my wife who told me "you don't have that" when I came home with the diagnosis (she is pretty good this way - she told me I had FSGS before the biopsy was done).   Once the HGB got down to 6.5 and crit to 20, she had me transferred to a big name hospital where they told me "you don't have that" and found the real problem (niacin poisoning from a cholesterol drug).

And there is the time my wife was hospitalized with Cdiff that she picked up as the side effect for anantibiotic she was given for osteomyletis.  The problem is that she didn't have osteoymyletis in the first place - the MDs couldn't tell the difference between the dental work of a tooth extraction and bone erosion.

And there is the time when I went to an out of town clinic and the RN in charge told me there were going to enter 40 for the bicarb setting on the machnine when it was supposed to be 32 (she never go the memo about the +4/+8 issue with Naturaliyte and Granuflo).

So, be careful about trusting what the docs tell you.

[G.Lively]

I meant to add that the diagnosis was an ignorant thing to say (in keeping  with the spirit of this thread). 

Years ago, my wife fell and crushed her elbow.  This required surgery and a stay in the hospital.  After a week, the surgeon wandered in, looked at her and said, "What are you doing here?"  It seems the Doctor forgot about her and the hospital wouldn't release her without the Doctor's order.

[Ninanna]

I love my mother death, and I am so lucky that she is willing to be my donor.  She also knows that the chemo I'm going to be doing is going to make me lose every hair on my head.  At least half a dozen times in less than 48 hours she kept telling me how lucky I was to have such nice thick gorgeous hair, unlike her thin hair. 

OMG I have never wanted to scream so bad at her!

[cdwbrooklyn]

I was visiting my family that lives in long island NYC this weekend.  My godsister told my godmother that I was doing dialysis at home with a portal machine.  My godmother was very surprised because she thought that dialysis was when the hospital takes your blood out of your body and replace it with new blood.  I had to laugh.  I told her that I would have been dead by now because the hospital don’t have enough blood to cover me for all these years.  Things that people really don’t know.  Wow!!! 

[Sugarlump]

When I was facing a return to haemodialysis for the third time (after two failed transplants) and considering my options, a friend commented (was repeated to me later)
"I don't know what she's moaning about its only a short visit to hospital once or twice a week!!!!!!!!!"

If she had said it to my face I would have knocked her out 

[UkrainianTracksuit]

This just happened a few minutes ago. 

I'm a bit concerned with finding work on dialysis here.  I raised the concern with my friend and she said, "You don't have to work.  There are many people our age that don't work.  Such as people on drugs."  I replied, "Drugs?!"  She said, "Yeah, like heroin or cocaine."  I was STUNNED so I asked, "You are comparing dialysis with drugs?"  She said "yes."  Naturally, I went bonkers.   

[Sugarlump]

I must be doing it wrong if we are supposed to get high on dialysis!!!!!
Only thing high is my bp at times 

[Riki]

When I was facing a return to haemodialysis for the third time (after two failed transplants) and considering my options, a friend commented (was repeated to me later)
"I don't know what she's moaning about its only a short visit to hospital once or twice a week!!!!!!!!!"

If she had said it to my face I would have knocked her out 

I have what you would probably call a "slow fuse" where it takes an awful lot to set me off.  If someone had said something like this to me, it would have been like dipping that fuse in gasoline before lighting it

[iKAZ3D]

When I was facing a return to haemodialysis for the third time (after two failed transplants) and considering my options, a friend commented (was repeated to me later)
"I don't know what she's moaning about its only a short visit to hospital once or twice a week!!!!!!!!!"

If she had said it to my face I would have knocked her out 

I have what you would probably call a "slow fuse" where it takes an awful lot to set me off.  If someone had said something like this to me, it would have been like dipping that fuse in gasoline before lighting it

I'd slap the  out of them.

[Serene1]

Oh wow we're to begin to be honest since I am 24 and obviously I hang out with people in my age group and I see them doing stupid shit like taking illicit drugs or drinking to point of black out and I just think to myself why the p*ck are they allowed to do that to themselves and yet get confused between what your kidney and livers do!!! But I digress one very ignorant thing I heard from a registrar asking me "do I like needles"while pushing in the 9th and sorry attempt of putting an IV in.  Fortunately for her my dad was with me and could tell I wanted to punch her in the face and I just calmly said "no do u." She didn't reply but I really wanted to say " obviously I don't and I don't think even heroine addicts like it which is probably better suited to your skills and least you would be able to find a vein"

[kitkatz]

Last night I said: "I cannot eat white bread anymore upsets the tummy."
Dialysis tech: "You should not be eating it anyway, wheat bread is way better."
I said: "Whole wheat has way high phosphorous. Remember dialysis patient here."
Tech: "Oh yeah."


SIGH!