Ignorant things people have said to you

[Riki]

At this point, I wouldn't turn down anyone's offer to be tested.  I just haven't had anyone offer

[Des]

people just love sending me remedies.

The latest is some parsley tea!

Yes, why do I go to dialysis if a little bit of parsley tea will fix me right up....... .
Why haven't my neph thought of it.... darnit

[CebuShan]

people just love sending me remedies.

The latest is some parsley tea!

Yes, why do I go to dialysis if a little bit of parsley tea will fix me right up....... .
Why haven't my neph thought of it.... darnit

   Hey Des, I still have lots of parsley in my garden! If it works, I'll split the profits with you!   

[bleija]

when i tell ppl im on dialysis, "oh but ur so young" yeah well kidney failure doesnt really care how old u are... and why rnt u on the list yet, or have they given u a beeper?  oh and explaing peritoneal dialysis, ugh, so does the tube go to ur kidney... um no

[CebuShan]

I don't mind answering questions about D or ESRD but some people (read Adults) can be so stupid! One woman asked if I still urinate. I told her yes, I do. Fine, but every time she saw me after that she would ask increasingly personal and embarrassing questions. I finally lost it with her and told her it was none of her business. I didn't even know this woman very well! I wonder if she would ask a cancer patient who was a stranger the same kind of questions.

[bleija]

i hate explaining t when i go visit and stay the night, and as m setting it up im trying to explain the bodys part of it, and they are asking where does all the water go and why do u  use sugasr water and a bunch of other crap, ive pretty good at explaining it where everyday idiots can understand tho

[Annig83]

I kid you not, I had someone ask me the other day if an animal's kidney would work, instead of waiting on the transplant list!  Yeah... let me just head on over to the pet store and see who's a match?!  Idiot!!!!

[Adam_W]

I'm having an ongoing issue with medical professionals confusing home hemo with PD. I've been in and out of the hospital all summer, and it seems that EVERY paramedic, EMT, nurse, etc. asks me when/where I do dialysis, and I say I do it at home six days/ week. They ALWAYS assume I'm on PD, and I have to explain again and again that I'm on HEMO dialysis. Yes, people, I have a dialysis machine in my living room! 

[Riki]

when i tell ppl im on dialysis, "oh but ur so young" yeah well kidney failure doesnt really care how old u are... and why rnt u on the list yet, or have they given u a beeper?  oh and explaing peritoneal dialysis, ugh, so does the tube go to ur kidney... um no

I've gotten the "but you're so young" before.  When I hear it now, I say "yep, but I started when I was 12, so this is nothing"

[chook]

After waking in recovery after I had my small hernia repair earlier this year, a nurse came along to check my surgery site. On doing so, she looked rather perplexed and told me I had a large drain tube in. My heart rate went immediately to overdrive - and then I asked " That wouldn't be my PD catheter you're looking at, by any chance?' And it was. ? How could the nurse not have known? I'll never forget the terror at thinking the surgery had gone wrong - even for only a few seconds. 

[gothiclovemonkey]

yes, nurses in the hospitals seem oblivious to pd... when i was in there, NONE of the nurses knew how to hook it up or anything! (ended up with para...er... cant spell infection)


Heres a good one... my step mother calling me a hypochondriac!
um yes... see these "track marks"? ya i do this for FUN 

[Restorer]

When I was on PD, every time I was in the hospital, I had to explain to nurses and students and sometimes even ER doctors how PD works. Even now when I mention I was on PD, I sometimes have to explain it.

[bleija]

yeah, the hospital i go to, i used to work there, so when i go in i tell them whats wrong with... i rememebr one time i went in with peritonitis, told them this, and they said it could be apendicitis, or  i was pregnant, that patients that self diagnose were almost always wrong... no i have peritonitis, draw the fluid out, see that its cloudy, and send it up to the lab to see what it is and then send me a dialysis nurse bc u guys are useless...

[Riki]

When I had peritonitis, I was told it was gallstones.  I knew different.  I told them so.  It wasn't until after a few days, when I'd had the ultrasound to check for gallstones and there was no issue, that they started to believe me.  The problem with checking the dialysis fluid with me was, I didn't have any cloudy bags. They were clear.

For the doctors who say that patients who self diagnose are always wrong, I don't think they realize that dialysis patients know their bodies well.  They learn the signs, and know when something isn't right.  There are very few times that I've gone into the ER with an issue and been wrong about what it was

[rsudock]

For the doctors who say that patients who self diagnose are always wrong, I don't think they realize that dialysis patients know their bodies well.  They learn the signs, and know when something isn't right.  There are very few times that I've gone into the ER with an issue and been wrong about what it was

I agree with you!

when i tell ppl im on dialysis, "oh but ur so young" yeah well kidney failure doesnt really care how old u are... and why rnt u on the list yet, or have they given u a beeper?  oh and explaing peritoneal dialysis, ugh, so does the tube go to ur kidney... um no

I've gotten the "but you're so young" before.  When I hear it now, I say "yep, but I started when I was 12, so this is nothing"

yeah when folks say/said this to me I like to follow it up with..."yeah you don't have to be born with kidney disease to wind up on dialysis. I have met people who have had diabetes, elevated BP, and even strep throat end up on the machine...it would be wise to find a cure for this thing. Anyone can end up with this disease!!

PS-IGNORANT THING ALERT....My former pediatric neph saw me in the dialysis unit helping the kids on dialysis "hey you want us to hook you up for old time sake?" Freaking hilarious...ass hat!

xo,
R

[Riki]

PS-IGNORANT THING ALERT....My former pediatric neph saw me in the dialysis unit helping the kids on dialysis "hey you want us to hook you up for old time sake?" Freaking hilarious...ass hat!

xo,
R

I imagine that he was probably joking.  My pediatric nephrologist would probably say something like that to me, too, if I saw him.  They don't dialyze kids here, so he has no need to be here.

I think it funny, my pediatric nephrologist is the best in his field in North America, and I teased him solidly the whole time I was his patient.

[Iwannabean]

I frequently use the term "Ass Bag" , But I love your saying "ass hat", thanks for the laugh, I needed one

Iwannabean

[justme15]

Does anyone ever get asked, "Which kidney did they transplant?" I've been asked that multiple times by medical professionals!! then there's always an awkward pause as I look at them bewildered, to which they repeat the same question! as if I misunderstood them the first time! 

[jbeany]

Does anyone ever get asked, "Which kidney did they transplant?" I've been asked that multiple times by medical professionals!! then there's always an awkward pause as I look at them bewildered, to which they repeat the same question! as if I misunderstood them the first time! 

I haven't heard that one yet!  I suppose if you had a live donor, you could answer left or right.  (From what I've read, left is most common.)  For a cadaver donor, I think I'd answer, "I don't know; my donor was dead when she gave it to me, so I didn't get a chance to ask."

Sarcasm is the best defense against stupidity.

[KarenInWA]

I can't tell you how many times I've been asked which kidney of mine failed. Um, BOTH of them!!! I then have to explain that if only ONE failed, I would be okay, because look at all the people out there who are living healthy lives with ONE kidney. Like, for example, all the LIVE donors out there!!! Especially the one who donated to me!!! 

KarenInWA

[rsudock]

I frequently use the term "Ass Bag" , But I love your saying "ass hat", thanks for the laugh, I needed one

Iwannabean

No problem glad to make you chuckle!!   

PS-IGNORANT THING ALERT....My former pediatric neph saw me in the dialysis unit helping the kids on dialysis "hey you want us to hook you up for old time sake?" Freaking hilarious...ass hat!

xo,
R

I imagine that he was probably joking.  My pediatric nephrologist would probably say something like that to me, too, if I saw him.  They don't dialyze kids here, so he has no need to be here.

yeah he might of been joking but I don't think it was funny at all....the only time he talks is when he has something smart to say....I get very sick of people who are like that....

[chook]

My transplant was from a deceased donor and I know that I have the left kidney. The surgeon told me they usually place a donor left kidney on the right side and the donor right kidney on the left side but because of my enlarged native kidneys (thanks to PKD) I have a donor left kidney on the left side. I was somewhat stunned by this info. Huh? Did I need to know all of that as it raises more questions than it answers. However, it did tell me ''which kidney".

[Restorer]

Every nurse and tech that's asked me about whether I'm on the transplant list has told me, "Oh, good. You're young, they'll give you priority for a kidney. I hope you get the call soon." As far as I know, that's not how it works. Being young isn't going to get me a kidney anytime soon, with the wait times being 10 years and 6 years in my two list areas, and I'm relatively new to both lists. I've given up on trying to tell them that. Now I just make a dismissive chuckle and say, "Yeahhh..." 

[amanda100wilson]

When I was on PD , I used to get p***** off when,  after explaining about it to someone they would then say, "so how long can you do this before you do real dialysis?"

The real gem, remembering that at the time I was. 26 yearold woman wanting to start a family, and having received my diagnosis, not knowing if this was going to be an option, my husband's grandmother said " well, have a baby and you will be OK".  Stupid old biddy, she was as dim as anything but I could never bring myself to forgive her for that.

The standard annoying comment is 'you look well' or even worse, being completely ignored  by a  person who stood and talked to my mum while I was there. Previously she had always spoken to me.  Another woman, to my mum as I am standing there 'she looks well doesn't she' .  I suspect that I had a small taste of what someone in a wheelchair must experience when people talk over them and not to them.

[Rain]

Not sure how I was to react to this one.  I was at in center and I am one of the 2 self care patients.   They sat me in a different area then usual so I didn't recognize the people.  I was setting up my needles and tapes and getting the machine ready, and myself ready to needle. when the guy next to me asks if I'm a nurse.  I said no but I'm self care.  HE said  oh but that's the nurse job why would you want to take their job away from them.

Really really..