Ignorant things people have said to you

[Rerun]

That is why this site was created.  Normal healthy people think we should be "thankful" to be alive.  Well, that works for about a month!  Then death doesn't look so bad!!

We need dialysis, but we can still HATE it.

To me.... acceptance is the last step before death.  I still don't accept this life of dialysis!

Okay, now I need to go take a blood pressure pill!

[kitkatz]

If one person walks up to me and says "Oh dialysis is not so bad." I swear 

[Chris]

If one person walks up to me and says "Oh dialysis is not so bad." I swear 

Hmm wouldn't  to throw them off and then  work better.

[Kitsune]

If one person walks up to me and says "Oh dialysis is not so bad." I swear 

It really isn't, according to my sister and stepdad. I mean, I get to sit in a (gross, sweaty Naugahyde) chair for 4 hours and watch (basic) cable TV for four hours a day, 2x a week and I get SSI to do nothing (except get jammed with needles and listen to this one attention whore named Angie who's old enough to be my mother (but acts like she's about 4) sit there laughing, screaming, shrieking, making herself sneeze and carrying on like she's a little child as she presses her buzzer for every stinking thing under the sun). Oh, and we can't forget the humiliating childish pamhlets they hand us featuring cute little cartoony pictures and smiling old people who supposedly love dialysis. Oh yeah, and the humiliating actiities they use to try and make us perfectly compliant little angels: Contests for perfect attendance, where if you go everytime for 3 months, you get a pillcase or something, contests for perfect compliance to the renal diet, where you get some disgusting renal-friendly food in an ugly cheap basket if you follow their diet totally, Like a basket of spaghetti (no sauce, too much potassium), gum, graham crackers, and white bread from the local Aldi's (which I could buy for about $4 if I wanted it.) is going to make me give up the foods I love...Mmmm hmmm, sure whatever you say, freaks.

[Chris]

If one person walks up to me and says "Oh dialysis is not so bad." I swear 

Oh, and we can't forget the humiliating childish pamhlets they hand us featuring cute little cartoony pictures and smiling old people who supposedly love dialysis. Oh yeah, and the humiliating actiities they use to try and make us perfectly compliant little angels: Contests for perfect attendance,

I really hated that crap they had and given out. I told the dietician and Social Worker there what I thought about it. A couple people started clapping when I told them what I thought. Then there was the stupid smiley or frown face stickers for lab results. Give me the fricken lab values in real numbers, not kiddie crap!

[twirl]

we get to play phos. bingo at my unit
Oh, what fun......It sucks and reminds me of teaching children.
coloring contest........ oh yeah....can't wait to do that
when we "play" Bingo the social worker calls out----What number do you need?"
If you want us to play a stupid game at least follow the rules
it was humorous the first time we played Bingo
patients were bingoing all the time
they were marking any pancakes not B pancakes, any coke not G coke
the social worker was upset that she had to explain how to play Bingo
well, it's been a long, long time since some of those patients played Bingo
we have dollars for good phos. numbers, I have yet to receive one
there is no interest in it during my treatment
and the prizes you get are crap
 
make us feel like helpless children and you will always see results-------NOT

[mark m]

I hate it when I get a cup of coffee at work and someone asks me, "Can you drink coffee"? I just want to kill them... 

[kitkatz]

Can you have that? 

Yes I can. I can eat anything I want to eat, thank you. (Asshole!)  I am an adult thank you very much! 

[Adam_W]

If one person walks up to me and says "Oh dialysis is not so bad." I swear 

Oh, and we can't forget the humiliating childish pamhlets they hand us featuring cute little cartoony pictures and smiling old people who supposedly love dialysis. Oh yeah, and the humiliating actiities they use to try and make us perfectly compliant little angels: Contests for perfect attendance,

I really hated that crap they had and given out. I told the dietician and Social Worker there what I thought about it. A couple people started clapping when I told them what I thought. Then there was the stupid smiley or frown face stickers for lab results. Give me the fricken lab values in real numbers, not kiddie crap!

When my home nurse gave me my annual Davita (Duh-vita) Christmas present, which was a pair of blue and yellow SOCKS with a li'l yellow Duh-vita star on them, I looked at her and said "Thank you, but I just have to say it, these things are absolutely retarded!" I was expecting her to just shrug her shoulders and change the subject or something, but she looked straight at me and said "Oh geeze you are not lying, those things are pathetic." 

Adam

[Adam_W]

If one person walks up to me and says "Oh dialysis is not so bad." I swear 

Oh, and we can't forget the humiliating childish pamhlets they hand us featuring cute little cartoony pictures and smiling old people who supposedly love dialysis. Oh yeah, and the humiliating actiities they use to try and make us perfectly compliant little angels: Contests for perfect attendance,

I really hated that crap they had and given out. I told the dietician and Social Worker there what I thought about it. A couple people started clapping when I told them what I thought. Then there was the stupid smiley or frown face stickers for lab results. Give me the fricken lab values in real numbers, not kiddie crap!

When my home nurse gave me my annual Davita (Duh-vita) Christmas present, which was a pair of blue and yellow SOCKS with a li'l yellow Duh-vita star on them, I looked at her and said "Thank you, but I just have to say it, these things are absolutely retarded!" I was expecting her to just shrug her shoulders and change the subject or something, but she looked straight at me and said "Oh geeze you are not lying, those things are pathetic." Oh, and lets not forget the "slogan" at the top of those stupid little "comic" things. "The first day of the rest of your life" Oh yeah, rub it in that a lot of us are going to be tethered to a bloody machine for the REST OF OUR LIVES" 

Adam

[Adam_W]

Pardon my last post being messed up. I hit the quote tab instead of the edit tab. 

Adam

[KT0930]

This wasn't said, but done, and I've gotta share.

Last May, I went to a convention for dialysis patients, and they had door prizes throughout the day, and of course the vendors had all sorts of freebies. One of the door prize baskets had two 32 ounce water bottles in it! One of the freebies given away by the company that makes Hectorol were 24 ounce water bottles. What were these people thinking??  Oh yeah, they weren't! 

[Chris]

Why does a cop always ask
"Do you know why I pulled you over?"
Well duuhhhh   Could it be I was speeding or did you just pull me over to say Hi! and wanted some small chit chat.

[twirl]

Why does a cop always ask
"Do you know why I pulled you over?"
Well duuhhhh   Could it be I was speeding or did you just pull me over to say Hi! and wanted some small chit chat.

Chris, you are a comedian

[KT0930]

Why does a cop always ask
"Do you know why I pulled you over?"
Well duuhhhh   Could it be I was speeding or did you just pull me over to say Hi! and wanted some small chit chat.

I asked my husband (a cop) this. He gave a fairly long answer, but essentially, it's because sometimes you've only been pulled over for a minor traffic violation, but you might say something about those outstanding warrants against you. 

[kellyt]

Or if you're really stupid you might say "Because of the person in my trunk?  uh, heh heh heh"

[paddbear0000]

 

[twirl]

I told a nurse that my son was accepted at Colorado College of the Minds, she wanted to know if he would be performing at the circus......
Why hellooooo, of course, we are sending our son to an Ivy League college to perform at a circus...

He wants to play for A&M, so now I have to change all those Aggie jokes.

[Sunny]

I was with a group of ten women last week and one of them starts spouting off about how we have all been so lucky to be in good health at our age with no
major bouts of health problems. I felt like saying,"Speak for yourself. Did you forget about my battle with kidney disease?" Apparently she : A) did forget; or
B) didn't think my health issues were a major problem. After all, I look healthy, don't I? What do I have to do to make people realize? I thought I already had
made it perfectly clear to this group of women just how difficult my health has been. But when they see you looking O.K. for so long and if I don't talk about it
every time (Which I loathe doing), then people perceive me as being healthy and just like them. I suppose I could look on the bright side and be grateful I  am
so good at covering for myself.

[twirl]

Sunny and let me say now, I love your duck. I have a similar comment. I worked with a teacher for three years and we became great friends.
She left to teach in Willis and came back after 7 years. When she saw me she wanted to know if I was over "my little kidney problem". She knew all about my disease Nope, I still have my little kidney problem, only it is worse.

[monrein]

A colleague (male originally from Corsica) asked me once if I it was possible to have sex while hooked up to dialysis.  The question was so stupid and actually incomprehensible to me that I thought he'd made a mistake in his english since it was his second language.  So I asked him to repeat the question in french and sure enough there it was again.  Moronic or what.

I also knew two kids who were very very different in their reactions to seeing me hooked up and we had talked about the purpose for dialysis.  They were both about 7 at the time.  One boy said "that would be great saving all the time you spend peeing" and the other (who probably should have been evaluated for depression) said quietly "if I had to do that I'd just kill myself".

[kellyt]

"if I had to do that I'd just kill myself".

Out of the mouths of babes come the truth.    Cute story.

[KT0930]

"if I had to do that I'd just kill myself".

Out of the mouths of babes come the truth.    Cute story.

Actually, I would be pretty concerned about a 7 year old saying this.

[monrein]

Exactly right.  I was concerned and am serious about him being quite depressed about his own life.  He's now about 33 but I've lost touch although I've heard he's doing OK.

[kellyt]

Maybe I read it differently.  What I meant was that they say what they are feeling when they are feeling it.  I don't know if I would have immediately jumped to "depression" if this kid said it to me.  I'm sure the thoughts going through his/her mind while looking at the machine and seeing everything she was going through hit him/her as serious and that he/she would never want to live that way.  I hope I didn't offend by laughing!  Definitely not my intension!