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Author Topic: Ignorant things people have said to you  (Read 463399 times)
Adam_W
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Me with Baron von Fresenius

« Reply #475 on: July 21, 2008, 10:05:04 PM »

lol I have an extra penis coming out of my belly. It's made of rubber, plastic, and titanium. Oh wait, that's just my PD catheter.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
G-Ma
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« Reply #476 on: July 22, 2008, 04:28:44 AM »

Too bad some people's tongues don't quit.........
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
sickofbeingsick
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« Reply #477 on: July 29, 2008, 08:18:12 PM »

I was at the clinic and told one of the techs I might be working for the city's Water Department...He said and I quote: "Isn't that funny? She can't drink water but she can work with it."  This is a jerk who thinks he's God's gift to dialysis patients...
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okarol
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« Reply #478 on: July 29, 2008, 09:40:41 PM »

I was at the clinic and told one of the techs I might be working for the city's Water Department...He said and I quote: "Isn't that funny? She can't drink water but she can work with it."  This is a jerk who thinks he's God's gift to dialysis patients...

Funny guy.  :sarcasm;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
twirl
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« Reply #479 on: July 30, 2008, 12:35:49 PM »

I was leaving dialysis after treatment today carrying a quilt
a person walked past me and asked if I had to take a blanket to the doctor's office
I said yes--- they stopped letting us cover up with those paper sheets before we are examined
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Chris
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« Reply #480 on: July 30, 2008, 01:30:33 PM »

Monday a resident doctor in the transplant clinic came in to see me first. First thing he did wrong was asked me if I was Chris M and last name. I said no, then he started to look me up on the computer. First thing, wtf, didn't you look up who you are going to see ahead of time and in which room. There where two Chris's with the same last name that day. Anyway he was going over my medical history and type of transplant and he asked me, "So you no longer have diabetes?" WTFF kind of question is that from a person studying medicine? We are all told that we still have diabetes, that we are not cured, but it is managed and under control. So when the real doctor comes in I tell her about this guy and then tell her I don't want to deal with him again till he's an A student and has a clue about the transplantation process. Hate to ask what he thinks about CKF and kidney transplant. Moron is all that comes to mind that day :rant;
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jess21
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« Reply #481 on: July 30, 2008, 05:40:36 PM »

When I first started this crap in September I was on Weight Watchers at work.  After my first dialysis I lost like 6 pounds.  The instructor went nuts and I got a STAR and a BOOKMARK.  I didn't say anything and just took the applause!   ;D 8)
I was on Weight Watchers as well.  I went back a few weeks into dialysis (had lost over 20lbs from when I was last there).  Just imagine that reaction.  "You must have been really watching yourself!"  Yes, I've been watching my blood go in and out of the machine. ;D And this was after we had just had a discussion about my last few week's events.  **sign**

I also enjoyed when I was in a clincial lab class at my school, before everybody in the class knew I had kidney failure.  My teacher asked "If there is kidney failure do you think there is more or less urine output?"  The general answer was "more?".  Ok..kidney FAILURE?

The same teacher asked me if I felt better after my dialysis sessions.  I said yes because I normally get close to 10lbs taken off each session.  Without hesitation she said "Wow, I where can I sign up?  I'd love to lose that much in 4 hours!"  Did she not realize I GAIN that much between the sessions?!? :banghead;

~The same teacher's comment when she was in shock of just finding out I had ESRD (I had a drs. appt for my AV fistula and sent her an e-mail saying I wasn't going to be there.  She had been sick a few days before, so she responded "OK I hope you feel better".  I replied with something along the lines of "I'm not until transplant.  Kidney failure."  Boy was she waiting to talk to me after class).  But anyway, she says "Let me know if you need anything."  Umm ok cool, a kidney?!?  My mom has answered people like that as well.

~About a month ago I was hanging out with my boyfriend, his friends, and one of his friend's new girlfriend.  She saw the bandage on my arm and asked what happened.  I casually said "oh I get dialysis."  She goes "ooooh!" and smiles.  Happiest person I've ever seen to hear that I'm on dialysis.  A minute later, she goes "I don't know what dialysis is, please explain!".  "OK.  Well, my kidneys don't work, so I have dialysis 3x a week to clean my blood."  She goes "Oh well I'd give you one of my kidneys, but I don't know how that would work?"  I'm wondering if she knows a SURGERY is required?  And her boyfriend tells mine a few weeks later: figure out what blood type she is cause my girlfriend (underage, mind you) is serious.  And I'm thinkin, I seriously think STUPID would transplant as well. :Kit n Stik;

~I hate the "oh I know so and so is on dialysis too!"  Yes, believe it or not, I'm not the only one human on dialysis.

~And also my boyfriend originally saying "if you wouldn't have held your pee so much, you wouldn't have kidney failure."  Comes from the man who drank  atleast 100 fl ozs of liquid yesterday, held it a good hour, and had to pee so bad he could barely stand up and was screaming oww oww oww as he ran to the bathroom when we arrived at his house. :urcrazy;  I may be dating a camel. :rofl;
Logged

Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Chris
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« Reply #482 on: July 30, 2008, 05:55:18 PM »

When I first started this crap in September I was on Weight Watchers at work.  After my first dialysis I lost like 6 pounds.  The instructor went nuts and I got a STAR and a BOOKMARK.  I didn't say anything and just took the applause!   ;D 8)
And I'm thinkin, I seriously think STUPID would transplant as well. :Kit n Stik;


 :rofl; :rofl; :rofl;

God I hope not though, but I have turned out OK so far.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
jbeany
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Cattitude

« Reply #483 on: July 30, 2008, 07:32:38 PM »


 I seriously think STUPID would transplant as well. :Kit n Stik;


there's a question to add to the list of things I'm supposed to ask the coordinator when they call me for a kidney - donor's age, health issues, cause of death, and IQ!  Hehehehehehehe.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

G-Ma
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« Reply #484 on: July 30, 2008, 08:12:03 PM »

 :rofl;  :rofl;  :rofl;  :rofl; I am still laughing....I'm not sure which hospital does the stupid transplants but I think I have met her many times.
Logged

Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
cherpep
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« Reply #485 on: July 31, 2008, 10:38:07 AM »

This wasn't something ignorant that someone said, but I wanted to share....  This past weekend I attended a family reunion with many relatives I had not seen since being diagnosed with CKF.  Many of them were very polite and asked how I was doing, but I could tell they didn't really know what to say to me.  I think several were surprised that I was actually walking, talking, and being active.  I don't know how many people commented that I had color in my face - I think they all expected me to be bed-ridden, weak, and pale.

Anyhow, people were tiptoeing around me for a while.  Then, a bunch of us were preparing to go for a walking/shopping trip and we were waiting for one after the other to visit the restroom.  Getting a little restless, I said "Will all you people with functioning kidneys please get a move on?!".  You should have seen how many jaws dropped to the ground!  After the initial shock, most laughed and then the floodgates of questions opened up.  It was actually a good icebreaker. 
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KT0930
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« Reply #486 on: July 31, 2008, 04:46:18 PM »

That's awesome, cherpep! What a way to let them know not to tiptoe!!  :clap;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
kitkatz
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« Reply #487 on: July 31, 2008, 10:07:05 PM »

The nephrologist today wanted to know what Nocturnal dialysis was. WTF?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Joe Paul
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« Reply #488 on: August 01, 2008, 12:29:34 AM »

The nephrologist today wanted to know what Nocturnal dialysis was. WTF?
I want some of what he's been smokin!!
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
kellyt
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« Reply #489 on: August 01, 2008, 01:48:35 PM »

The nephrologist today wanted to know what Nocturnal dialysis was. WTF?

<stare>      Did you hit him with your big stick?    :Kit n Stik;
Logged

1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Rerun
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Going through life tied to a chair!

« Reply #490 on: August 01, 2008, 02:40:29 PM »

Sounds like he is living in "Nocturnal" Land.  Tell him to "wake up". 

                                 :rofl;
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Bajanne
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« Reply #491 on: August 01, 2008, 05:03:06 PM »

 :rofl; :rofl; :rofl; :rofl;
Here trying to recover from Jess21's post!!!   I am dying with laughter!  Among other hilarious things
Quote
I may be dating a camel
!!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Jess21
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« Reply #492 on: August 01, 2008, 05:27:56 PM »

Well..he DOES drinks CONSTANTLY and has the bladder the size of pacific ocean. :rofl;
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
KT0930
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« Reply #493 on: August 17, 2008, 12:02:15 PM »

About a month after my transplant, I noticed how very unhealthy my hair had gotten from all the toxins building up while on dialysis. So 6 weeks after the transplant, I cut it off...went from shoulder length to what it looks like in my avatar. I was at a meeting about five days ago and one of the other women, who had not seen me since about a week post-transplant commented on my haircut. I explained to her why I did it, and her response was, "Yeah, when I color my hair, I have to bleach my hair, and I have to cut it short after that, too."

Yeah, bleaching your hair is exactly like having kidney failure... :sarcasm;
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
okarol
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« Reply #494 on: August 17, 2008, 01:16:38 PM »

 :rofl; Is she a blonde? Ooops, sorry. You are too!  :cuddle;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #495 on: August 17, 2008, 01:21:42 PM »

Next time tell her to take it easy on the bleach. Apparently it has leached into her brain cells and killed a few off. :rofl; :rofl;
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
devon
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« Reply #496 on: August 18, 2008, 10:19:32 AM »

My favorite question is: What do you call a Doctor who graduated LAST in his medical School class?

The answer is: Unfortunately, Doctor.

Way too often we assume because they have MD after their name, they know something.  It's not true.  Be skeptical with all docs until they prove themselves to be worthy of the title.

-Devon
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KT0930
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« Reply #497 on: August 18, 2008, 05:41:46 PM »

:rofl; Is she a blonde? Ooops, sorry. You are too!  :cuddle;

Mine's strawberry blonde, thank you very much!    :P
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"Dialysis ain't for sissies" ~My wonderful husband
~~~~~~~
I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
Chris
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« Reply #498 on: August 18, 2008, 10:26:31 PM »

My favorite question is: What do you call a Doctor who graduated LAST in his medical School class?

The answer is: Unfortunately, Doctor.

Way too often we assume because they have MD after their name, they know something.  It's not true.  Be skeptical with all docs until they prove themselves to be worthy of the title.

-Devon

I respect a doctor or even a person who, when asked a question will tell me that they do not know rather than make something up.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
twirl
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Posts: 8960


« Reply #499 on: August 19, 2008, 04:03:59 AM »

Chris,
now you are a parakeet
you keep changing
guess you are really a chameleon
love the changes
always keep them guessing
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