My Time

[Romona]

  Good for you!

[Laurie]

Glad to hear you're feeling good 
Has your experinece at Baylor and DTI been a pleasant one?? I'm on the list at Baylor, so I'm just curious.

[waitlisted]

Has your experinece at Baylor and DTI been a pleasant one?? I'm on the list at Baylor, so I'm just curious.

Yes, I have been very happy with everything in Baylor and DTI.

[rimbo74]

Hey waitlisted, glad everything is going well now and that your experience with DTI and Baylor were as good as mine.  I normally go still on Tuesday morning, do you have a general day you go?  If u see me, say hi.

[waitlisted]

Hey waitlisted, glad everything is going well now and that your experience with DTI and Baylor were as good as mine.  I normally go still on Tuesday morning, do you have a general day you go?  If u see me, say hi.

My visits have been still very irregular. Now I am expecting that starting next week I would start going Tue and Thu. I have my appointments normally at 9:20, what time are you going?

[rimbo74]

On Tuesday its at 8:00am so I can get to work.  On Dec 4th though, its at 9:20.  :-)

So I'm sure I'll see you there.  Just look for me, I'll have a Red and Black backpack.

[waitlisted]

Just a quick update. Everything has been (fortunately) very uneventful, after the rejection episode my creatinine has been stable on 1.3 for last month and I am visiting the clinic once a week. I am tapering down the prednisone 2 mg per week and this week I will end up to 10 mg per day, which is suppose to be my maintenance dose.

In 1 month tests my Glofil was 91 and Creatinine Clearance 128, so the kidney is working very well.

I started to exercise again last week, still only cardio as the doctors did not like the weights yet. After 2 months, which is coming next week, I was told I can do anything.

I am still on short term disability and will go back to work in mid January after the 3 month tests.

[okarol]

  That's great waitlisted - I am please to hear you're doing so well!

[angela515]

Great news.

[donnia]

Great to hear everything is going so well.

[goofynina]

Thanks for checking in and updating us Waitlisted, hope things continue to get better and better for you,   Please keep us posted on how your doing 

[Sluff]

Great to hear from you and glad everything is going well. 

[waitlisted]

Haven't been too much reading the discussion lately, but here is a 6 months update:

Everything has been great, I don't really remember that just 6 months ago I was in a major surgery.

Creatinine has been settling between 1.1 and 1.3. The Glofil was in 1 month 92, 3 months 97 and in 6 months 101, so based on that the kidney is in excellent condition.

I also got rid off the Glipizide as my sugar levels stay in control nowadays without any medication. Current dose of Prednisone is 7mg and with that my sugar levels are OK. (I was never diabetic before the transplant)

Also my cholesterol level is at least currently fine without any medication, even I was on Zocor before the transplant and the immunosupressive drugs are suppose increase the cholesterol level.

I have been back at work since mid Jan and after that I have been exercising very little compared to when I was on sick leave, now I would need to do it after work and I am getting lazy...

In April I was travelling to Europe for business, and no issues with that one either.

The only "issue" really is that Prograf seems to be causing some hair thinning, but I think that's a small price for the working kidney.

My current medications are:

• Prograf 2mg twice
• CellCept 1000 mg twice
• Prednisone 7 mg
• Rocaltrol 0.25 ug
• Norvasc 10 mg
• Bactrim 400 mg
• Nexium 40 mg
• Calcium 1500 mg
• Magnesium 400 mg

plus multivitamin and some other non-prescription ones

Clinic visits are in every 6 weeks.

[okarol]

  Thanks for the update - I am happy to hear from you!
Take care! 

[willieandwinnie]

  waitlisted. Good for you. Glad you are doing well. 

[kitkatz]

I am so glad things are good for you! 

[Sluff]

Glad everything turned out in your favor.    Maybe now you can grow a second eye...

[monrein]

Always exciting to hear good news.  Thanks for keeping us in the loop.

[MyRenalRomance]

   Thanks so much for the 6 month update!  I'm so glad to hear you are doing great!!!   

[angela515]

Glad to hear all is well!

As for the hair thinning... there is a shampoo system that Walmart sells in their salon, I use it and I have noticed the thinning areas are getting thicker again. Try it, it's a lil expensive, but not that bad and it works. 

[pelagia]

Thanks for posting an update.  My husband had a transplant mid-May and we are looking ahead.  Happy to hear that you are doing well.

[waitlisted]

Last couple of days I have been feeling sick, no fever (99) but all other nasty symptoms: headache, body ache all over, stomach pain, some diarrhea,tiredness etc. This has been getting a bit worse day by day and I will be flying to Europe for vacation tomorrow, so I decided to call the clinic this morning and see what they would, even I did not have fever.

So I went there and in regular blood work only abnormal was bit low white blood count. At this point of time they said I might have CMV, as I was CMV- before transplant and my donor was CMV+. I took Valcyte for 3 months after transplant and that point of time they stop itit was stopped
So I was sent to additional tests; chest X-ray, blood bacteria culture and CMV test. CMV test will come back only in couple of days, so they told me to start on Valcyte already now and call back on the test result next week.

I hope this is getting better soon, as even I don't have fever, it feels like I would have, I don't have much energy to do anything and the ache in whole body makes me just want to sleep. It is not going to be fun to sit 13 hours in plane, so I have to see what kind of pills I take to make me more confortable.

[donnia]

UUGGHHHH!  I hope you feel better soon! 

[pelagia]

Oh no, sorry to hear that you are not feeling well.  I hope that you do okay on the long flight.  Stay hydrated.  Those planes are really, really dry.

[waitlisted]

Quick update: lab tests confirmed that I have CMV. The CMV level have been checked weekly and during the first week the viral level remained same, so the doctor lowered  my CellCept dosage a little help the situation. Yesterday was the 3rd test and now the viral level value decreased to half, so the the situation is improving.

Most of my symptoms went away in couple days after starting the Valcyte, only the stomach pain was lasting longer and continued almost 2 weeks, but now that is also gone.

Fortunately I know the people in the local hospital as they have treated me earlier, so it was very easy for me to get good treatment during my vacation.