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Author Topic: My Time  (Read 21613 times)
paddbear0000
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« Reply #75 on: November 01, 2007, 12:32:28 PM »
I'm sorry to hear that. Is the medicine done through an IV or something since you have to drive there everyday? I would hope they're not making you drive there just for a pill! Or do they do blood work too?
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I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
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Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
oswald
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« Reply #76 on: November 01, 2007, 12:39:26 PM »
don't worry about working, worry about your new kidney. be glad they don't keep you in the hospital until the rejection is over.
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
Joe Paul
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« Reply #77 on: November 01, 2007, 12:41:17 PM »
Hope they can stop the rejection with those drugs, and the drugs don't effect you too much. Good luck to you  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
waitlisted
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« Reply #78 on: November 01, 2007, 12:50:34 PM »
Quote from: paddbear0000 on November 01, 2007, 12:32:28 PM
I'm sorry to hear that. Is the medicine done through an IV or something since you have to drive there everyday? I would hope they're not making you drive there just for a pill! Or do they do blood work too?

Solu-Medrol is administered through an IV and I believe they do the blood work as well every day to see the progress.
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Sluff
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« Reply #79 on: November 01, 2007, 01:32:07 PM »
 :(  I really hope that you are not in rejection. Try to remain positive okay I'll be praying for you.  :grouphug;
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goofynina
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« Reply #80 on: November 01, 2007, 02:02:20 PM »
Pray for the best, prepare for the worst,  sending positive thoughts and prayers your way Waitlisted  :cuddle;
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okarol
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« Reply #81 on: November 01, 2007, 06:14:45 PM »
I found this on the internet:

Treatment of rejection usually consists of three daily doses of intravenous methylprednisolone. This drug is also known as solu-medrol
and is an intravenous form of prednisone. You may be admitted to the hospital to receive the solu-medrol. In some cases, we arrange
for a home care company or your local doctor to give you your solu-medrol at home. One of the major side-effects of solu-medrol is increased
blood sugar. You may need extra monitoring if you are diabetic.
If rejection is extremely severe, or if it persists after the above treatment, a second anti-rejection medicine may be used. Your normal
immunosuppression medicines be adjusted or changed also during a rejection episode.
- - - -

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
angela515
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« Reply #82 on: November 01, 2007, 06:22:24 PM »
Solumedrol.... my enemy!!!  :lol; I was on that for 3 months at a time, very high doses, like 5 different times... ahhhh!!

Good thing you don't need a long period  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Chris
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« Reply #83 on: November 01, 2007, 09:20:45 PM »
Sorry to hear the news, hope you get better soon.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Amanda From OZ
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« Reply #84 on: November 03, 2007, 01:02:24 AM »
Sending good thoughts your way..  :cuddle;

Amanda
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waitlisted
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« Reply #85 on: November 05, 2007, 09:32:02 PM »
5 days Solu-medrol course is now over the creatinine was both on Fri and today 1.6, so I guess it did what it was suppose to do.  :thumbup;

I was surprised to get hardly any side effects I was warned about, the biggest issue was my glucose level, which went high and when it was controlled with glipizide they suddenly went too low. This should hopefully get sorted out when the prednisone dosage is again lower as I was never diabetic before transplant.

Now I have a first "free" day in over a week, as my next clinic appointment is on Wed.
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Chris
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« Reply #86 on: November 05, 2007, 09:53:35 PM »
Hope alll goes well from now on since deling with this issue
Best of Luck
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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« Reply #87 on: November 05, 2007, 10:37:50 PM »
Quote from: waitlisted on November 05, 2007, 09:32:02 PM
5 days Solu-medrol course is now over the creatinine was both on Fri and today 1.6, so I guess it did what it was suppose to do.  :thumbup;

I was surprised to get hardly any side effects I was warned about, the biggest issue was my glucose level, which went high and when it was controlled with glipizide they suddenly went too low. This should hopefully get sorted out when the prednisone dosage is again lower as I was never diabetic before transplant.

Now I have a first "free" day in over a week, as my next clinic appointment is on Wed.

 :clap; Hey that's great. I hope everything stabilizes and you can relax. Thanks for the update, I was wondering how you were doing!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
angela515
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« Reply #88 on: November 05, 2007, 10:44:06 PM »
Quote from: waitlisted on November 05, 2007, 09:32:02 PM
5 days Solu-medrol course is now over the creatinine was both on Fri and today 1.6, so I guess it did what it was suppose to do.  :thumbup;

I was surprised to get hardly any side effects I was warned about, the biggest issue was my glucose level, which went high and when it was controlled with glipizide they suddenly went too low. This should hopefully get sorted out when the prednisone dosage is again lower as I was never diabetic before transplant.

Now I have a first "free" day in over a week, as my next clinic appointment is on Wed.

Glad your done.  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
goofynina
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« Reply #89 on: November 06, 2007, 01:48:37 PM »
Thats great news WaitListed, glad you got no side effects  :2thumbsup;  Hope all stays well for you  :cuddle;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
2_DallasCowboys
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« Reply #90 on: November 06, 2007, 02:47:52 PM »
So glad to see the good news!

May the rest of your healing journey be
easy and smooth

Anne
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waitlisted
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« Reply #91 on: November 07, 2007, 09:24:24 PM »
Things seems to get more stable and better, today's creatinine was 1.4, which is my record.  :2thumbsup;

Glucose level is also well under control now when Solu-medrol was stopped and if everything stays OK, I have only 2 clinic appointments next week.
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Wattle
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« Reply #92 on: November 07, 2007, 09:39:36 PM »



 :thumbup;  Great news.   :bandance;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
goofynina
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« Reply #93 on: November 07, 2007, 09:50:57 PM »
Thats fantastic news Waitlisted,  so your feeling better right?  just want to make sure that EVERYTHING is good now ;) ;)   :2thumbsup;
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
okarol
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« Reply #94 on: November 07, 2007, 10:34:21 PM »
Great - 1.4 is good! Very good!  :clap;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
waitlisted
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« Reply #95 on: November 08, 2007, 10:38:34 AM »
Quote from: goofynina on November 07, 2007, 09:50:57 PM
Thats fantastic news Waitlisted,  so your feeling better right?  just want to make sure that EVERYTHING is good now ;) ;)   :2thumbsup;

Yes, I am feeling good. Actually I have been feeling good all the time and if there would not be small amount of soreness/tightness in the incision, I would not even remember that I have been in surgery 3 weeks ago.
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paddbear0000
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« Reply #96 on: November 08, 2007, 11:55:24 AM »
 :bandance;  I love good news!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
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« Reply #97 on: November 08, 2007, 03:22:53 PM »
 :clap; Nice to hear you're feeling good!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #98 on: November 08, 2007, 09:08:33 PM »
Cool  :2thumbsup;  :clap;   :yahoo;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
Sluff
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« Reply #99 on: November 09, 2007, 03:07:27 AM »
Great news WL.  :2thumbsup;
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