Amanda got the call.. The day before my wedding

[glitter]

thinking of you and your family...words fail me, just know your in my thoughts.

[rimbo74]

I can't believe they did this to Amanda.  I hope there is good lawsuits available in Australia, this is unbelievable that this has happened.   

[del]

OMG I can't believe that it wasn't picked up in screening.  Hope you sue those docs and the health care system..  Should never have happened.  Somebody really f#$%ed up!!!

[Sluff]

I just don't know what to say here.. so I guess that's what Icons are for. 

Amanda I hope the Hep C stays dormant forever, if there was anything I could do I would be doing it. Love ya just the same and stay positive and everything has it's way of working out.

[Romona]

Rose and Amanda, My thoughts are prayers are with you! 

[brenda]

Sorry to hear the A. What the hell goes? My thought's are defiantly with you and have been all week. I was telling everyone about my little friend Amanda from Aussie land at camp this past weekend. By the way my daughters and Nevada wish you best of luck. Take care my friend..... Your IHD Mom.

[Amanda From OZ]

Hello to you....

Sorry i have not been on line for the last few days, it has been a huge struggle, which unfortunately i feel i am just at the beginning of. I want to first start off to say thank you for everyones thoughts and prayers, you are all so special people, that a hold dear to me.

First on note of my kidney... I had to dialyse today, so coincidently Ive decided to name the kidney "it".

Well where do i start? Wednesday was .............to simple put it a nightmare.... (you know something is terrible wrong when 15 doctors come into your room to "chat").  They came into my room and told me that they did a specific test on my blood which cost thousands of dollars, which they usually don't do on many people because of cost.. And well it came back positive.. i could honestly feel my heart throbbing against your my chest.... you know that feeling where you had the WORST nightmare and u wake up to the relief it was just a dream.... thats how I've felt since there. I feel physically and mentally sick over it.

Your probably wondering what happend after they broke the news? Things did not go well as u can imagine... there was pretty dramatic scenes at the hospital....... after 1 hour of yelling with transplant co-ordinates and red cross....  I told them to go and page the two doctors (names which i won't mention) that i spoke to in the E.R that night, which i believe where half to blame for this situation along with the red cross.. Both of those doctors i was told were Emotionally upset over this and had cancelled there appointments. But i new they were hiding somewhere int the hospital.... I insisting at the test that they had 2 minutes to get them to my room, they told me they didn't know where they were (which was i lie) so i decided to through there papers on the floor and break such a pretty vase they had on there nurse station. (which did make me feel a bit better).

One of the doctors eventually came up, and he sat down and faced the firing squad..... he was physically upset and looked like he lost 5 kilos in two days...... and admitted to his mistake on his behalf...

Since then everything had been havic..... they have called in the best specialist from around Australia to help this situation. They have all admitted error has been done, and  that this should of never ever of happend..... for legal reasons i can;t for into the other details, but to me none of this makes anything better... no amount of compensation of money can give you back your health.

I can not start to explain how sick to the gut i feel 24/7. This has been the worst week of my life... can u believe i don;t want to think back to last Thursday when i was happy at home on dialysis?? .... yep thats how bad i feel. I kicked my butt to try to stay healthy, i did more dialysis then most people and i have sacrificed so much in my life, to be safe, healthy and stay clear of nasty bugs..... but all of this was for nothing.

I;m so sorry this was not a more up beat message but i find it hard to see a light at the end of the tunnel, and don;t know how this can get better... I want this terrible feeling inside me to leave, but i don't see how it ever will Today I'm 8 days from transplant and Ive lost 7 kilos, even while taking prednisone so that should show u how this is affecting me.

Please pray for me tonight that i am strong enough physically and mentally to get through this.

I;m always thinking of you all.

Stay well.

 Love

Amanda

xx00

[paddbear0000]

Sorry, I kind of lost track of thread for a few days! Amanda--I'm SOOOO sorry about what you're going through! You have every right to not be upbeat in your posts. You are dealing with so much. You need to concentrate on you, and not try to please us!  You are in my prayers.

And Rose--

i LEAVE for Vegas on Saturday!!

You'll love it! My husband and I went there for our honeymoon a few months ago. If you can, take a short side trip to see the Grand Canyon SkyWalk. It's awesome!

[Ohio Buckeye]

I'm so sorry Amanda that all this has happened and I wish I
knew the words to say.  Will keep praying for you and family.

[Roxy]

Oh Amanda I'm soooo sorry and mad to hear this!!! I hope you sue the heck outta them!!  You deserve so much better and I hope the Hep C stays dormant. I'm keeping you in my prayers.

[Laurie]

Amanda, I'm so sorry this happened to you. I'm not sure what to say, but just know that I am praying for you and I hope things get better 

[okarol]

Manda May,
I know you did everything to stay healthy and I am sick about this too. I know all of us are stunned and saddened that you have to experience this. On top of all that is the freekin kidney isn't even working!
What is the next step? What do they plan to do? I am praying and think about you all the time. It's a good thing I'm not closer because I am afraid I would do a lot worse than breaking a vase.  This whole situation makes me so angry. Thank God you have a supportive family and you have us too. If there's anything you need, I will try to get it. Take care baby girl!
 

[livecam]

Amanda...you are very very strong.  What has happened is indescribable.  An author couldn't dream up your story in a hundred years of trying.  We are here for you in every way we can be.  I know that there is nothing that can compensate for what has been done.  I hope that at some point you decide to tell your story publicly, not here on IHD but in a wider way so that the world knows what happened here.  The story needs to be told so that creeps like the ones involved here are stopped from hurting other innocent patients like yourself.

Be strong, let yourself heal, and get yourself away from the people that hurt you.  Don't ever trust these people again.  There must be better teams than these in Oz and you deserve the best.

God bless you and I hope that you will be home and talking to us soon.

Jeff

[MyssAnne]

Oh Amanda. What you must be feeling now. No, no legal action taken can bring back your health. What a horrible shock to have to face. As others have said, we are here for you. Definitely demand another tream, if not another hospital. 

[angela515]

I am at a loss for words... I am hoping the best for you. 

[paris]

Dear Amanda, we are all praying so hard for you.  No one deserves to have to deal with this.  Wish we were all closer, but my thoughts and prayers are with you and your family.  Everyone here loves you

[vandie]

Oh dear Amanda,
You will get through this. You are strong and you are brave.  You have proved that through all that you have been through.  Get well, keep healing and we will all kick some ass when you get better.  You have a lot of love and support, and that is one of the greatest things we can hope for.  Hang in there honey.  We love you.

D'Anne

[George Jung]

Miss Manda Pie,
Your strength has been my motivation since I heard of what has been happening.  I started running a few weeks ago in an attempt to be as healthy as possible for the time when a new kidney becomes available for me.  You are all I think about when I am running and when it gets really difficult half way up the hill at the end of my run, I press on and tough it out because I know the pain that I feel is of no comparison to what you have endured.  I am at such a loss for words and my emotions are all over the place about your situation, angry, confused, scared, faithless, heartbroken.  I almost feel like I am doing an injustice posting this right now but I really want you to know that I am also thinking of you and those you love just as many others from the IHD family.  I will continue to keep you in my thoughts and dedicate every kilometer that passes to your well being and that of your loved ones.  You are an inspiration to me.  With love and compassion and great big Grizzly Adams hugs, XOXOXO - George

[goofynina]

What the &%#$?     Who the @*%! is in charge?  Dont even let me go and &#!@#&^ go and kick some *#!^$^# ass    (now where are my &%@*%# blood pressure pills)      Hang in there girl, you WILL get better soon ok,  keep that beautiful chin up, we love ya 

[mariannas]

Amanda,
I'm sending you big hugs and all the good vibes I can from Seattle! 

I had a similar malpractice issue this summer when the doc who put in my PD catheter severed my ureter at the same time.  Luckily the damage wasn't permanent, but really...I could have died!  I am so glad that you are sticking up for yourself and calling this doctor out on his negligence.  I'm doing the same thing even though my situation isn't nearly as dire as yours.  Best of luck to you, girl!  I'm so sorry that this happened and I hope this "doctor" (using the term lightly) gets his just desserts!

[Ohio Buckeye]

I still wonder how this wasn't found out beforehand.
I wonder if someone else got the donor's other kidney as well.

[angela515]

I still wonder how this wasn't found out beforehand.
I wonder if someone else got the donor's other kidney as well.

I was wondering the same thing. And what about other organs?

[tamara]

how many people were affected, its so sad 

[mrhecht]

Prayers for you Amanda, coming your way with love and hope and faith.

[Joe Paul]

Sorry for all your troubles Amanda...Hoping and praying this will work out.