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Author Topic: You Know Dialysis Is Taking Over Your Life When...  (Read 51530 times)
fc2821
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Just another hamster on the dialysis W.O.F.
« Reply #75 on: February 05, 2010, 09:14:18 AM »
You Know Dialysis Is Taking Over Your Life When...

       You check every day to make sure you brought your dialysis bag into the house from the car. 
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In center hemo dialysis since Feb 14, 2007. 

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kitkatz
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« Reply #76 on: February 06, 2010, 04:24:36 PM »
when you make sure your pillow and blanket for dialysis are in the car.

when you have to put your pillow and blanket in the trunk of the car for other passengers, because that is where you keep your dialysis stuff.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Des
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« Reply #77 on: February 26, 2010, 09:38:42 AM »
When your adress book run out  of "d" space as all the names in it starts with Dr. this and Dr that.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
thegrammalady
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« Reply #78 on: February 26, 2010, 09:57:50 AM »
when the only time you leave the house is to go to dialysis or the grocery store.
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« Reply #79 on: June 12, 2010, 11:26:33 PM »
Quote from: thegrammalady on February 26, 2010, 09:57:50 AM
when the only time you leave the house is to go to dialysis or the grocery store.

True that!! When I was on dialysis,my energy levels were so low even showering was a chore.
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I dislike Fred Durst immensely,and this avatar and title are a joke. If you like Limp Bizquik as I call them, this is not here to offend you, it is here as a joke!
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« Reply #80 on: August 10, 2010, 05:50:19 PM »
...you don't light candles anymore cause you're scared you'll hook up to pd for the night, forget to blow them out and not be able to get to them.

...someone offers you Chex Mix and you check the bag's nutrition for potassium before you eat any.

...your favorite saying is that you have to hurry home to "hook up" (to pd that is!)
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Dragonette
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« Reply #81 on: August 25, 2010, 05:20:44 PM »
your idea of a day off consists of a blanket and pillow because you're so tired from D.
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I dislike Fred Durst immensely,and this avatar and title are a joke. If you like Limp Bizquik as I call them, this is not here to offend you, it is here as a joke!
Restorer
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« Reply #82 on: August 25, 2010, 08:07:35 PM »
You have a dream that you're in the hospital and your surgery schedule is written on the whiteboard in your room, and you have 6 surgeries scheduled in 7 days.  :o
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
Des
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« Reply #83 on: August 25, 2010, 10:28:08 PM »
You get super excited when you can still Pee - even a little bit.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Joe Paul
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« Reply #84 on: November 09, 2010, 07:22:26 PM »
You spend a year on dialysis before getting listed to remember what its about, so that when (or if ) your blessed with another chance at freedom, a kidney, you appreciate your gift that much more.







I hope this doesn't offend anyone, its just my opinion developed by the years of thinking in that chair.
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"The history of discovery is completed by those who don't follow rules"
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Transplant Jan. 8, 2010
Des
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« Reply #85 on: November 10, 2010, 01:22:24 AM »
You won't allow a pickled ham at the Christmas lunch because you can't have any.   heheheheheh
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
kitkatz
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« Reply #86 on: November 10, 2010, 06:26:07 AM »
when everyone knows the name for your catheter in your chest is "that damn thing!" and agrees with you!
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Des
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« Reply #87 on: November 24, 2010, 05:34:39 AM »
.. the first thing you pack when going on holiday is all the medication and emergency numbers for the town you are going to. :bandance;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
kitkatz
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« Reply #88 on: November 24, 2010, 04:51:17 PM »
Before you go on vacation you see where the nearest dialysis center is and book time in it with the social worker a month or more in advance.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
elihup
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« Reply #89 on: December 02, 2010, 08:48:19 AM »
...you become envious of other guys' streams in the public restrooms.
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AJW73
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« Reply #90 on: December 06, 2010, 11:52:06 AM »
... the icicles outside your window make you crave a cup of ice.

... you get nervous when the "medium sized " soda you order at the movies turns out to be a large sized drink. (this actually happened to me a few times).  :sos;
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tyefly
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This will be me...... Next spring.... I earned it.
« Reply #91 on: December 06, 2010, 12:04:24 PM »
    Its when you are using the nxstage boxes to use for your gift boxes and wrapping them......
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
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gellybean
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be good be happy
« Reply #92 on: January 04, 2011, 08:35:05 AM »
... when you hardly know what day it is, but knows that your dialysis is in 2 days.  :thumbup;
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Treat me right. Only my kidneys are nonfunctional, not my mind.
Stoday
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« Reply #93 on: January 05, 2011, 07:55:15 PM »
...when you find it comfortable to lie with your arm outstreached, palm up.
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
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Heart Attacks June 2005; October 2010; July 2011
kitkatz
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« Reply #94 on: January 06, 2011, 01:31:31 AM »
You cannot lie on your left arm because you have  fistula there, and a catheter in the right side is not letting you lie on it, so what do you do?
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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Going through life tied to a chair!
« Reply #95 on: January 06, 2011, 07:00:54 AM »
Quote from: kitkatz on January 06, 2011, 01:31:31 AM
You cannot lie on your left arm because you have  fistula there, and a catheter in the right side is not letting you lie on it, so what do you do?

You just lay flat on your back and stare at the celing!   ???
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #96 on: February 16, 2011, 06:24:09 PM »
the dialysis tech seems like your only friend left ....
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
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« Reply #97 on: February 16, 2011, 07:25:21 PM »
Quote from: rsudock on February 16, 2011, 06:24:09 PM
the dialysis tech seems like your only friend left ....
???

And your friends on IHD!  :waving;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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« Reply #98 on: August 04, 2011, 10:57:41 PM »
Quote from: Rerun on January 06, 2011, 07:00:54 AM
Quote from: kitkatz on January 06, 2011, 01:31:31 AM
You cannot lie on your left arm because you have  fistula there, and a catheter in the right side is not letting you lie on it, so what do you do?

You just lay flat on your back and stare at the celing!   ???

I still do that, even though I haven't had a line in over a year.  I've learned to sleep on my back, even though I always slept on my right side before..

Let me think.. You know dialysis is taking over your life when  you get so excited when you pee, that you post your excitement on facebook.... my facebook friends thought that was very funny at the time
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Iwannabean
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« Reply #99 on: October 19, 2011, 09:20:29 AM »
When you know everyones first name at the center but cant remember your neighbors name.

Iwannabean
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