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willowtreewren
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« Reply #50 on: August 16, 2009, 07:25:30 AM » |
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When you go to a family reunion and sit with your SIL's husband sharing caregiver tips and treatment parameters! And urging him to join IHD!   |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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Des
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« Reply #51 on: August 17, 2009, 02:22:54 AM » |
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You always keep several
get well cards on the mantle.
That way, when unexpected guests arrive,
they will know you've been sick
and will be unable to clean up after them.
So sneacky ! I love this.... I am going to use it ! SOON |
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Stoday
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« Reply #52 on: August 19, 2009, 01:33:20 PM » |
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You admire your fistula more than you admire your penis.  |
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Diagnosed stage 3 CKD May 2003
AV fistula placed June 2009
Started hemo July 2010
Heart Attacks June 2005; October 2010; July 2011
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monrein
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« Reply #53 on: August 19, 2009, 02:13:47 PM » |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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twirl
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« Reply #54 on: August 19, 2009, 02:59:28 PM » |
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I don't have a penis  |
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dwcrawford
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« Reply #55 on: August 19, 2009, 03:04:38 PM » |
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aren't you glad?
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Come to think of it, nothing is funny anymore.
Nothing that I post here is intended for fact but rather for exploration into my personal thought processes. Any slight, use of words with multiple connotations or other percieved insults are totally unintended. I reserve my insults for private.
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twirl
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« Reply #56 on: August 19, 2009, 03:08:37 PM » |
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yes, really I am  no penis envy here |
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RichardMEL
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« Reply #57 on: August 20, 2009, 06:41:57 PM » |
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Reminds me of a joke I had with some of the (female) nurses when they tell me how big my fistula is.... "Yes you know it's good when you've got a big throbbing... fistula" or "you know what they say about men with large throbbing fistulas...." |
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 3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions  27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE! |
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twirl
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« Reply #58 on: August 22, 2009, 12:34:52 PM » |
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what do they say about women with large, throbbing fistulas  |
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willowtreewren
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« Reply #59 on: August 22, 2009, 12:37:48 PM » |
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I love my husband's large throbbing.... fistula.
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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del
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« Reply #60 on: August 22, 2009, 07:01:28 PM » |
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One of the nurses at the unit ( a new one training) felt hubby's fistula and said your's is long and big!! Of course he had an answer for her!! LOL!!
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Don't take your organs to heaven. Heaven knows we need them here.
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RichardMEL
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« Reply #61 on: August 25, 2009, 08:10:14 PM » |
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3/1993: Diagnosed with Kidney Failure (FSGS) 25/7/2006: Started hemo 3x/week 5 hour sessions 27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
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twirl
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« Reply #62 on: September 09, 2009, 05:17:01 PM » |
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you know dialysis is taking over your life when ------  I forgot what I was going to post oh wait, nope, can't remember |
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girliekick
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« Reply #63 on: September 18, 2009, 10:27:57 AM » |
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You see healthy person taking meds, get excited ask what they are taking... Get disappointed, find out its Tylenol girl |
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-Christmas '03 get news of esrd
-June '08 start hemo
-Thanksgiving '08 pd surg
-Feb '09 Stop hemo and manual exchanges
... start cycler
Setp 3 '09 On UNOS list (27th b day)
Dec 09 peritonitis
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Des
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« Reply #64 on: September 21, 2009, 06:47:04 AM » |
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You judge how sick someone is not by how he "looks" but what his GFR is.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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JennyGiggle
Jr. Member
 Offline
Gender: 
Posts: 83
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« Reply #66 on: February 03, 2010, 06:31:00 AM » |
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You Know Dialysis Is taking over your life when...you are proud of how drunk you managed to get on shots on your last and only night out in months.
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fc2821
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« Reply #67 on: February 03, 2010, 06:40:44 AM » |
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You Know Dialysis Is taking over your life when... you dream tht you left your dialysis bag at the clinic and the need to go get it.
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In center hemo dialysis since Feb 14, 2007.
If I could type properly, I'd be dangerous!
You may be only one person in the universe but you may mean the the universe to someone else.
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Rerun
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« Reply #68 on: February 03, 2010, 07:33:46 AM » |
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You know dialysis is taking over your life when they have to wake you up to go home, and you want "just 5 more minutes".  |
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fc2821
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« Reply #69 on: February 03, 2010, 07:43:00 AM » |
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You know dialysis is taking over your life when they have to wake you up to go home, and you want "just 5 more minutes".
WOW, and I thought dreaming about it was bad.....  |
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In center hemo dialysis since Feb 14, 2007.
If I could type properly, I'd be dangerous!
You may be only one person in the universe but you may mean the the universe to someone else.
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JennyGiggle
Jr. Member
Offline
Gender:
Posts: 83
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« Reply #70 on: February 03, 2010, 12:05:22 PM » |
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WOW, and I thought dreaming about it was bad.....
EEEEckkk. I hate dialysis dreams, or rather nightmares. I seem to be having a lot of them lately. I was, well still am to a certain degree scared of needles. The first few sessions I was bubbling like a kid, my nightmares usually involve lots of sharp things. You Know dialysis is taking over your life when...your diary is filled with more appointment reminders than everything else in your diary put together. |
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Xbandito
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« Reply #71 on: February 03, 2010, 12:32:29 PM » |
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You know dialysis is taking over your life when they have to wake you up to go home, and you want "just 5 more minutes".
Oooooppss that happened to me this morning, was put in isolation room due to me having the nasty  and runny stuff bug...so not a lot of sleep for the last two nights......asked if lights could be turned off...next thing I know, she is waking me up to unhook me  .....well away I was |
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tyefly
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« Reply #72 on: February 04, 2010, 08:33:43 AM » |
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Yes dreaming and solving problems....... Since I start self cannulation I have been trying to work on a better way to use the needles so that I dont clott....... I have been using a wet needle and ajusting that so that it works better with the flash........ This is what I dream...... all night working on doing dialysis and then all day doing dialysis....... When will it stop...... |
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IgA Nephropathy April 2009
CKD May 2009
AV Fistula June 2009
In-Center Dialysis Sept 2009
Nxstage Feb 2010
Extended Nxstage March 2011
Transplant Sept 2, 2011
Hello from the Oregon Coast.....
I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir
The clearest way into the Universe is through a forest wilderness.
- John Muir
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fc2821
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« Reply #73 on: February 04, 2010, 11:40:22 AM » |
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You know dialysis might be taking over your life.......when you set the computr cntrolled thermosat for "dialysis days" and "non dialysis days". On dialysis days the heat is lower. Came home one day last week, got out of the center early, and forgt we had that "setting", house was like a frozen wilderness. |
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In center hemo dialysis since Feb 14, 2007.
If I could type properly, I'd be dangerous!
You may be only one person in the universe but you may mean the the universe to someone else.
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JennyGiggle
Jr. Member
Offline
Gender:
Posts: 83
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« Reply #74 on: February 04, 2010, 01:44:42 PM » |
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You know dialysis is taking over your life if....you jump whenever the phone rings
...your phone battery dying whilst your out is a major disaster and you resort to desperate measures to acquire a phone charger.
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I Hate Dialysis Message Board
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